Liabilities / Assets
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
2nd percentile
Higher net margin than 2% of similar nonprofits.
Top Officer Pay
98th percentile
Higher top officer pay than 98% of similar nonprofits.
Top officer pay equals 248.3% of source-year revenue.
Asset Growth
13th percentile
Faster asset growth than 13% of similar nonprofits.
Revenue Growth
3rd percentile
Faster revenue growth than 3% of similar nonprofits.
Assets
Down$292,418
Down $173,268 (-37%) from 2021
Net Assets
Down$292,418
Down $170,753 (-37%) from 2021
Liabilities
Down$0
Down $2,515 (-100%) from 2021
Revenue
Down$38,267
Down $515,498 (-93%) from 2021
Expenses
Down$209,020
Down $133,190 (-39%) from 2021
Net Income
Down-$170,753
Down $382,308 (-181%) from 2021
The Firefly Fund Neurodegenerative diseases affect children many different ways, but their families share a common and grave reality. These children typically die before the age of 20. Today, the Firefly Fund is focused on Neimann-Pick Type C (NPC), also referred to as Childhood Alzheimer's. NPC results in the buildup of cholesterol in the brain, liver, and spleen, leading to progressive neurodegeneration and organ damage. Currently, there are no FDA approved therapies to treat NPC and there is no cure.
To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.
| Description | Grants | Expenses |
|---|---|---|
| NEWBORN SCREENING: SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABLING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS. | $19,806 | $148,079 |
| FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE. | $25,000 | $18,509 |
| PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS. | $12,000 | $18,509 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| BERYL PAMELA ANDREWS | Executive Director | FT | $95,000 | - | $95,000 |
| CHRIS ANDREWS | Board Of Directors | PT | $0 | - | - |
| LARA LANERI KEEL | Director | PT | $0 | - | - |
| SUSIE DUDLEY | Director | PT | $0 | - | - |
| JENNIFER BERBAS BOERNER | Director | PT | $0 | - | - |
| BERYL CROWLEY | Director | PT | $0 | - | - |
“Activity classification: grant. Grantee name: rush university medical center. Grantee address: 1725 w harrison st, suite 718 chicago , il 60612. Amount given: 22,000.”
“Activity classification: grant. Grantee name: 3d communications llc. Grantee address: 15480 annapolis rd, suite 202 pmb #198 bowie, md 20715. Amount given: 9,806.”
“Activity classification: grant. Grantee name: regents of the university of michigan. Grantee address: 1000 victors way suite 1a ann arbor, mi 48108. Amount given: 25,000. Total included on form 990-ez, line 10: 56,806.”
“Description: books, subscriptions, reference. Amount: 12,224. Description: supplies. Amount: 512. Description: telephone, telecommunications. Amount: 7,704. Description: website hosting. Amount: 1,172. Description: board development. Amount: 169. Description: bank and merchant fees. Amount: 1,394. Description: conference, convention, meeting. Amount: 2,525. Description: travel. Amount: 1,444. Description: insurance - liability, d and o. Amount: 567. Description: payroll taxes. Amount: 7,268. Total to form 990-ez, line 16: 34,979.”
“Description: prepaid expenses. Beg. Of year amount: 6,699. End of year amount: 6,718. Description: loan to shareholder. Beg. Of year amount: 39,829. End of year amount: 0.”
“Description: accounts payable. Beg. Of year amount: 2,515. End of year amount: 0.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990EZ/AddressChangeInd | 0 | X |
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| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 92616 |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | AUSTIN |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | JENNIFER BERBAS BOERNER |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | BERYL CROWLEY |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 5 | BERYL PAMELA ANDREWS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | BOARD OF DIRECTORS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 5 | EXECUTIVE DIRECTOR |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 46528 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 6718 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 34979 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | TO FUND AND SUPPORT RESEARCH AND EDUCATION TO ACCLERATE A CURE FOR RARE AND FATAL NEURODEGENERATIVE GENETIC DISEASES THAT AFFECT CHILDREN. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 326 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | NEWBORN SCREENING: SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABLING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 19806 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 1 | 25000 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 2 | 12000 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 148079 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 18509 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 2 | 18509 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SalariesOtherCompEmplBnftAmt | 0 | 95000 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 2515 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 209020 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 185097 |
| IRS990EZ/TotalRevenueAmt | 0 | 38267 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | FIREFLYFUND.ORG |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 38627 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 446645 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 521349 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 508577 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 533573 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2048771 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.58260 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.65950 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1193645 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 855126 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 38627 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 521349 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 508577 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 533573 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2048771 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2048771 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: RUSH UNIVERSITY MEDICAL CENTER. GRANTEE ADDRESS: 1725 W HARRISON ST, SUITE 718 CHICAGO , IL 60612. AMOUNT GIVEN: 22,000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: 3D COMMUNICATIONS LLC. GRANTEE ADDRESS: 15480 ANNAPOLIS RD, SUITE 202 PMB #198 BOWIE, MD 20715. AMOUNT GIVEN: 9,806. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: REGENTS OF THE UNIVERSITY OF MICHIGAN. GRANTEE ADDRESS: 1000 VICTORS WAY SUITE 1A ANN ARBOR, MI 48108. AMOUNT GIVEN: 25,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 56,806. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | DESCRIPTION: BOOKS, SUBSCRIPTIONS, REFERENCE. AMOUNT: 12,224. DESCRIPTION: SUPPLIES. AMOUNT: 512. DESCRIPTION: TELEPHONE, TELECOMMUNICATIONS. AMOUNT: 7,704. DESCRIPTION: WEBSITE HOSTING. AMOUNT: 1,172. DESCRIPTION: BOARD DEVELOPMENT. AMOUNT: 169. DESCRIPTION: BANK AND MERCHANT FEES. AMOUNT: 1,394. DESCRIPTION: CONFERENCE, CONVENTION, MEETING. AMOUNT: 2,525. DESCRIPTION: TRAVEL. AMOUNT: 1,444. DESCRIPTION: INSURANCE - LIABILITY, D AND O. AMOUNT: 567. DESCRIPTION: PAYROLL TAXES. AMOUNT: 7,268. TOTAL TO FORM 990-EZ, LINE 16: 34,979. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | DESCRIPTION: PREPAID EXPENSES. BEG. OF YEAR AMOUNT: 6,699. END OF YEAR AMOUNT: 6,718. DESCRIPTION: LOAN TO SHAREHOLDER. BEG. OF YEAR AMOUNT: 39,829. END OF YEAR AMOUNT: 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | DESCRIPTION: ACCOUNTS PAYABLE. BEG. OF YEAR AMOUNT: 2,515. END OF YEAR AMOUNT: 0. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES |
| TransferPrsnlBnftContractsDecl/DeclarationDesc | 0 | THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT. |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 2 |
| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | BERYL CROWLEY |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | DIRECTOR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5127501609 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2023-11-14 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | ANDREWS FIREFLY FUND |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | ANDR |
| ReturnHeader/Filer/EIN | 0 | 813737330 |
| ReturnHeader/Filer/PhoneNum | 0 | 5127501609 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | PO BOX 92616 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | AUSTIN |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | TX |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 78709 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 742920819 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | ATCHLEY & ASSOCIATES LLP |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 1005 LA POSADA DRIVE |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | AUSTIN |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | TX |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 78752 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 5123462086 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2023-11-14 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | RENAE DUNCAN |
| ReturnHeader/ReturnTs | 0 | 2023-11-14T20:30:10-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | BERYL |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | CROWLEY |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2022-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2022-12-31 |
| ReturnHeader/TaxYr | 0 | 2022 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2022 • Form 990EZDetailed filing. Detailed filing data is available for this year.