Civic Intelligence

Andrews Firefly Fund

990EZ • Fiscal year 2022 • EIN 81-3737330

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 14, 2023

PO Box 92616Austin, TX 78709

(512) 750-1609

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

2nd percentile

-446%

Higher net margin than 2% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

98th percentile

$95,000

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 248.3% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

13th percentile

-37%

Faster asset growth than 13% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

3rd percentile

-93%

Faster revenue growth than 3% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Assets

Down

$292,418

Down $173,268 (-37%) from 2021

Net Assets

Down

$292,418

Down $170,753 (-37%) from 2021

Liabilities

Down

$0

Down $2,515 (-100%) from 2021

Revenue

Down

$38,267

Down $515,498 (-93%) from 2021

Expenses

Down

$209,020

Down $133,190 (-39%) from 2021

Net Income

Down

-$170,753

Down $382,308 (-181%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2017: $62,975Liabilities 2017: $0Net Assets 2017: $62,9752017Assets 2018: $222,975Liabilities 2018: $0Net Assets 2018: $222,9752018Assets 2019: $166,411Liabilities 2019: $0Net Assets 2019: $166,4112019Assets 2020: $261,346Liabilities 2020: $21,368Net Assets 2020: $239,9782020Assets 2021: $465,686Liabilities 2021: $2,515Net Assets 2021: $463,1712021Assets 2022: $292,418Liabilities 2022: $0Net Assets 2022: $292,4182022Assets 2023: $104,552Liabilities 2023: $4,835Net Assets 2023: $99,7172023Assets 2024: $13,374Liabilities 2024: $1,787Net Assets 2024: $11,5872024

Highlighted filing

2022

Assets$292,418
Liabilities$0
Net Assets$292,418

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2017: $395,959Expenses 2017: $332,984Net Income 2017: $62,9752017Revenue 2018: $533,573Expenses 2018: $373,573Net Income 2018: $160,0002018Revenue 2019: $508,577Expenses 2019: $563,451Net Income 2019: -$54,8742019Revenue 2020: $534,468Expenses 2020: $472,285Net Income 2020: $62,1832020Revenue 2021: $553,765Expenses 2021: $342,210Net Income 2021: $211,5552021Revenue 2022: $38,267Expenses 2022: $209,020Net Income 2022: -$170,7532022Revenue 2023: $55,210Expenses 2023: $247,911Net Income 2023: -$192,7012023Revenue 2024: $649,177Expenses 2024: $737,307Net Income 2024: -$88,1302024

Highlighted filing

2022

Revenue$38,267
Expenses$209,020
Net Income-$170,753
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 14, 2023
Return Version
2022v5.0
Gross Receipts
$38,267
Mission and Program Overview

Mission

The Firefly Fund Neurodegenerative diseases affect children many different ways, but their families share a common and grave reality. These children typically die before the age of 20. Today, the Firefly Fund is focused on Neimann-Pick Type C (NPC), also referred to as Childhood Alzheimer's. NPC results in the buildup of cholesterol in the brain, liver, and spleen, leading to progressive neurodegeneration and organ damage. Currently, there are no FDA approved therapies to treat NPC and there is no cure.

To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.

Program Services

DescriptionGrantsExpenses
NEWBORN SCREENING: SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABLING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS.$19,806$148,079
FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.$25,000$18,509
PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.$12,000$18,509
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
BERYL PAMELA ANDREWSExecutive DirectorFT$95,000-$95,000
CHRIS ANDREWSBoard Of DirectorsPT$0--
LARA LANERI KEELDirectorPT$0--
SUSIE DUDLEYDirectorPT$0--
JENNIFER BERBAS BOERNERDirectorPT$0--
BERYL CROWLEYDirectorPT$0--
Filing and Contact Details

Filer

Filer Name
Andrews Firefly Fund
EIN
81-3737330
Phone
5127501609
Address
PO BOX 92616, AUSTIN, TX 78709

Signing Officer

Name
Beryl Crowley
Title
Director
Phone
5127501609
Signed
2023-11-14
Discuss with paid preparer
Yes

Preparer

Firm
Atchley & Associates Llp
Address
1005 LA POSADA DRIVE, AUSTIN, TX 78752
Preparer
Renae Duncan
Phone
5123462086
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: rush university medical center. Grantee address: 1725 w harrison st, suite 718 chicago , il 60612. Amount given: 22,000.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: 3d communications llc. Grantee address: 15480 annapolis rd, suite 202 pmb #198 bowie, md 20715. Amount given: 9,806.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: regents of the university of michigan. Grantee address: 1000 victors way suite 1a ann arbor, mi 48108. Amount given: 25,000. Total included on form 990-ez, line 10: 56,806.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: books, subscriptions, reference. Amount: 12,224. Description: supplies. Amount: 512. Description: telephone, telecommunications. Amount: 7,704. Description: website hosting. Amount: 1,172. Description: board development. Amount: 169. Description: bank and merchant fees. Amount: 1,394. Description: conference, convention, meeting. Amount: 2,525. Description: travel. Amount: 1,444. Description: insurance - liability, d and o. Amount: 567. Description: payroll taxes. Amount: 7,268. Total to form 990-ez, line 16: 34,979.

Form 990-ez, Part II, Line 24 - Other Assets

Description: prepaid expenses. Beg. Of year amount: 6,699. End of year amount: 6,718. Description: loan to shareholder. Beg. Of year amount: 39,829. End of year amount: 0.

Form 990-ez, Part II, Line 26 - Other Liabilities

Description: accounts payable. Beg. Of year amount: 2,515. End of year amount: 0.

Raw XML Appendix186 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0NEWBORN SCREENING: SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABLING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: RUSH UNIVERSITY MEDICAL CENTER. GRANTEE ADDRESS: 1725 W HARRISON ST, SUITE 718 CHICAGO , IL 60612. AMOUNT GIVEN: 22,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: 3D COMMUNICATIONS LLC. GRANTEE ADDRESS: 15480 ANNAPOLIS RD, SUITE 202 PMB #198 BOWIE, MD 20715. AMOUNT GIVEN: 9,806.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: REGENTS OF THE UNIVERSITY OF MICHIGAN. GRANTEE ADDRESS: 1000 VICTORS WAY SUITE 1A ANN ARBOR, MI 48108. AMOUNT GIVEN: 25,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 56,806.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3DESCRIPTION: BOOKS, SUBSCRIPTIONS, REFERENCE. AMOUNT: 12,224. DESCRIPTION: SUPPLIES. AMOUNT: 512. DESCRIPTION: TELEPHONE, TELECOMMUNICATIONS. AMOUNT: 7,704. DESCRIPTION: WEBSITE HOSTING. AMOUNT: 1,172. DESCRIPTION: BOARD DEVELOPMENT. AMOUNT: 169. DESCRIPTION: BANK AND MERCHANT FEES. AMOUNT: 1,394. DESCRIPTION: CONFERENCE, CONVENTION, MEETING. AMOUNT: 2,525. DESCRIPTION: TRAVEL. AMOUNT: 1,444. DESCRIPTION: INSURANCE - LIABILITY, D AND O. AMOUNT: 567. DESCRIPTION: PAYROLL TAXES. AMOUNT: 7,268. TOTAL TO FORM 990-EZ, LINE 16: 34,979.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4DESCRIPTION: PREPAID EXPENSES. BEG. OF YEAR AMOUNT: 6,699. END OF YEAR AMOUNT: 6,718. DESCRIPTION: LOAN TO SHAREHOLDER. BEG. OF YEAR AMOUNT: 39,829. END OF YEAR AMOUNT: 0.
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TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
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ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

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