Civic Intelligence

Andrews Firefly Fund

990EZ • Fiscal year 2023 • EIN 81-3737330

Jan 01, 2023 to Dec 31, 2023 • Filed on Aug 12, 2024

PO Box 92616Austin, TX 78709

(512) 750-1609

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

75th percentile

0.05x

Higher debt load relative to assets than 75% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

82nd percentile

0.09x

Higher debt load relative to revenue than 82% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

3rd percentile

-349%

Higher net margin than 3% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

99th percentile

$122,071

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 221.1% of source-year revenue.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

7th percentile

-64%

Faster asset growth than 7% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

79th percentile

44%

Faster revenue growth than 79% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Assets

Down

$104,552

Down $187,866 (-64%) from 2022

Net Assets

Down

$99,717

Down $192,701 (-66%) from 2022

Liabilities

Up

$4,835

Up $4,835 from 2022

Revenue

Up

$55,210

Up $16,943 (+44%) from 2022

Expenses

Up

$247,911

Up $38,891 (+19%) from 2022

Net Income

Down

-$192,701

Down $21,948 (-13%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2017: $62,975Liabilities 2017: $0Net Assets 2017: $62,9752017Assets 2018: $222,975Liabilities 2018: $0Net Assets 2018: $222,9752018Assets 2019: $166,411Liabilities 2019: $0Net Assets 2019: $166,4112019Assets 2020: $261,346Liabilities 2020: $21,368Net Assets 2020: $239,9782020Assets 2021: $465,686Liabilities 2021: $2,515Net Assets 2021: $463,1712021Assets 2022: $292,418Liabilities 2022: $0Net Assets 2022: $292,4182022Assets 2023: $104,552Liabilities 2023: $4,835Net Assets 2023: $99,7172023Assets 2024: $13,374Liabilities 2024: $1,787Net Assets 2024: $11,5872024

Highlighted filing

2023

Assets$104,552
Liabilities$4,835
Net Assets$99,717

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2017: $395,959Expenses 2017: $332,984Net Income 2017: $62,9752017Revenue 2018: $533,573Expenses 2018: $373,573Net Income 2018: $160,0002018Revenue 2019: $508,577Expenses 2019: $563,451Net Income 2019: -$54,8742019Revenue 2020: $534,468Expenses 2020: $472,285Net Income 2020: $62,1832020Revenue 2021: $553,765Expenses 2021: $342,210Net Income 2021: $211,5552021Revenue 2022: $38,267Expenses 2022: $209,020Net Income 2022: -$170,7532022Revenue 2023: $55,210Expenses 2023: $247,911Net Income 2023: -$192,7012023Revenue 2024: $649,177Expenses 2024: $737,307Net Income 2024: -$88,1302024

Highlighted filing

2023

Revenue$55,210
Expenses$247,911
Net Income-$192,701
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Aug 12, 2024
Return Version
2023v5.1
Gross Receipts
$55,210
Mission and Program Overview

Mission

The Firefly Fund Neurodegenerative diseases affect children many different ways, but their families share a common and grave reality. These children typically die before the age of 20. Today, the Firefly Fund is focused on Neimann-Pick Type C (NPC), also referred to as Childhood Alzheimer's. NPC results in the buildup of cholesterol in the brain, liver, and spleen, leading to progressive neurodegeneration and organ damage. Currently, there are no FDA approved therapies to treat NPC and there is no cure.

To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.

Program Services

DescriptionGrantsExpenses
NEWBORN SCREENING: SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABLING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS.$15,000$173,638
FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.$22,000$21,705
PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.$20,000$21,705
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
BERYL PAMELA ANDREWSExecutive DirectorFT$122,071-$122,071
CHRISTOPHER EVANS ANDREWSBoard Of DirectorsPT$0--
LARA LANERI KEELDirectorPT$0--
SUSIE DUDLEYDirectorPT$0--
JENNIFER BERBAS BOERNERDirectorPT$0--
BERYL P CROWLEYDirectorPT$0--
Filing and Contact Details

Filer

Filer Name
Andrews Firefly Fund
EIN
81-3737330
Phone
5127501609
Address
PO BOX 92616, AUSTIN, TX 78709

Signing Officer

Name
Beryl Crowley
Title
Director
Phone
5127501609
Signed
2024-08-12
Discuss with paid preparer
Yes

Preparer

Firm
Atchley & Associates Llp
Address
1005 LA POSADA DRIVE, AUSTIN, TX 78752
Preparer
Renae Duncan
Phone
5123462086
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: rush university medical center. Grantee address: 1700 w. Van buren street suite 250 chicago, il 60612. Amount given: 22,000.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: national niemann-pick disease foundation inc . Grantee address: po box 49 fort atkinson, wi 53538. Amount given: 15,000.

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: grant. Grantee name: hope for marian. Grantee address: 1519 s fifth avenue arcadia, ca 91006. Amount given: 20,000. Total included on form 990-ez, line 10: 57,000.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: books, subscriptions, reference. Amount: 17,064. Description: supplies. Amount: 216. Description: telephone, telecommunications. Amount: 6,580. Description: website hosting. Amount: 588. Description: bank and merchant fees. Amount: 1,218. Description: conference, convention, meeting. Amount: 3,921. Description: travel. Amount: 9,432. Description: insurance - liability, d and o. Amount: 570. Description: payroll taxes. Amount: 9,338. Description: meals (business or stewardship). Amount: 160. Description: outreach and awareness. Amount: 498. Description: memberships and dues. Amount: 532. Total to form 990-ez, line 16: 50,117.

Form 990-ez, Part II, Line 24 - Other Assets

Description: prepaid expenses. Beg. Of year amount: 6,718. End of year amount: 6,735.

Form 990-ez, Part II, Line 26 - Other Liabilities

Description: reimbursements payable. Beg. Of year amount: 0. End of year amount: 693. Description: payroll liabilities. Beg. Of year amount: 0. End of year amount: 4,142.

Raw XML Appendix179 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2PATIENT ACCESS/IMPACT: WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: RUSH UNIVERSITY MEDICAL CENTER. GRANTEE ADDRESS: 1700 W. VAN BUREN STREET SUITE 250 CHICAGO, IL 60612. AMOUNT GIVEN: 22,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC . GRANTEE ADDRESS: PO BOX 49 FORT ATKINSON, WI 53538. AMOUNT GIVEN: 15,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ACTIVITY CLASSIFICATION: GRANT. GRANTEE NAME: HOPE FOR MARIAN. GRANTEE ADDRESS: 1519 S FIFTH AVENUE ARCADIA, CA 91006. AMOUNT GIVEN: 20,000. TOTAL INCLUDED ON FORM 990-EZ, LINE 10: 57,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3DESCRIPTION: BOOKS, SUBSCRIPTIONS, REFERENCE. AMOUNT: 17,064. DESCRIPTION: SUPPLIES. AMOUNT: 216. DESCRIPTION: TELEPHONE, TELECOMMUNICATIONS. AMOUNT: 6,580. DESCRIPTION: WEBSITE HOSTING. AMOUNT: 588. DESCRIPTION: BANK AND MERCHANT FEES. AMOUNT: 1,218. DESCRIPTION: CONFERENCE, CONVENTION, MEETING. AMOUNT: 3,921. DESCRIPTION: TRAVEL. AMOUNT: 9,432. DESCRIPTION: INSURANCE - LIABILITY, D AND O. AMOUNT: 570. DESCRIPTION: PAYROLL TAXES. AMOUNT: 9,338. DESCRIPTION: MEALS (BUSINESS OR STEWARDSHIP). AMOUNT: 160. DESCRIPTION: OUTREACH AND AWARENESS. AMOUNT: 498. DESCRIPTION: MEMBERSHIPS AND DUES. AMOUNT: 532. TOTAL TO FORM 990-EZ, LINE 16: 50,117.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4DESCRIPTION: PREPAID EXPENSES. BEG. OF YEAR AMOUNT: 6,718. END OF YEAR AMOUNT: 6,735.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5DESCRIPTION: REIMBURSEMENTS PAYABLE. BEG. OF YEAR AMOUNT: 0. END OF YEAR AMOUNT: 693. DESCRIPTION: PAYROLL LIABILITIES. BEG. OF YEAR AMOUNT: 0. END OF YEAR AMOUNT: 4,142.
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02024-08-08 14:25:15Z
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ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum05127501609
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-08-12
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0ANDREWS FIREFLY FUND
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ReturnHeader/Filer/EIN0813737330
ReturnHeader/Filer/PhoneNum05127501609
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ReturnHeader/PreparerPersonGrp/PhoneNum05123462086
ReturnHeader/PreparerPersonGrp/PreparationDt02024-08-07
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0RENAE DUNCAN
ReturnHeader/ReturnTs02024-08-13T10:11:00-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

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