Civic Intelligence

The Naspghan Foundation

990 • Fiscal year 2023 • EIN 76-0585072

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 18, 2024

714 N BETHLEHEM PIKE Suite 300Ambler, PA 19002

(215) 641-9800

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.24x

Higher debt load relative to assets than 62% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

83rd percentile

0.98x

Higher debt load relative to revenue than 83% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

54th percentile

5.7%

Higher net margin than 54% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

80th percentile

$223,168

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 12.2% of source-year revenue.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Asset Growth

66th percentile

12%

Faster asset growth than 66% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

27th percentile

-8.5%

Faster revenue growth than 27% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Assets

Up

$7,458,927

Up $781,282 (+12%) from 2022

Net Assets

Up

$5,673,106

Up $427,150 (+8.1%) from 2022

Liabilities

Up

$1,785,821

Up $354,132 (+25%) from 2022

Revenue

Down

$1,825,546

Down $169,845 (-8.5%) from 2022

Expenses

Up

$1,721,379

Up $209,691 (+14%) from 2022

Net Income

Down

$104,167

Down $379,536 (-78%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2010: $4,217,937Liabilities 2010: $1,304,144Net Assets 2010: $2,913,7932010Assets 2011: $3,872,828Liabilities 2011: $993,448Net Assets 2011: $2,879,3802011Assets 2012: $4,314,002Liabilities 2012: $1,417,338Net Assets 2012: $2,896,6642012Assets 2013: $4,067,332Liabilities 2013: $988,862Net Assets 2013: $3,078,4702013Assets 2014: $4,108,702Liabilities 2014: $954,786Net Assets 2014: $3,153,9162014Assets 2015: $4,293,861Liabilities 2015: $1,186,791Net Assets 2015: $3,107,0702015Assets 2016: $4,561,907Liabilities 2016: $1,235,592Net Assets 2016: $3,326,3152016Assets 2017: $4,421,521Liabilities 2017: $1,013,676Net Assets 2017: $3,407,8452017Assets 2018: $4,502,389Liabilities 2018: $1,237,472Net Assets 2018: $3,264,9172018Assets 2019: $4,869,576Liabilities 2019: $950,580Net Assets 2019: $3,918,9962019Assets 2020: $5,610,869Liabilities 2020: $1,052,211Net Assets 2020: $4,558,6582020Assets 2021: $6,522,780Liabilities 2021: $1,200,434Net Assets 2021: $5,322,3462021Assets 2022: $6,677,645Liabilities 2022: $1,431,689Net Assets 2022: $5,245,9562022Assets 2023: $7,458,927Liabilities 2023: $1,785,821Net Assets 2023: $5,673,1062023Assets 2024: $8,213,426Liabilities 2024: $1,756,363Net Assets 2024: $6,457,0632024

Highlighted filing

2023

Assets$7,458,927
Liabilities$1,785,821
Net Assets$5,673,106

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,529,0712010Revenue 2011: $1,107,751Expenses 2011: $1,112,855Net Income 2011: -$5,1042011Expenses 2012: $1,239,4352012Revenue 2013: $1,384,722Expenses 2013: $1,250,314Net Income 2013: $134,4082013Revenue 2014: $1,408,074Expenses 2014: $1,310,503Net Income 2014: $97,5712014Revenue 2015: $1,196,576Expenses 2015: $1,104,860Net Income 2015: $91,7162015Revenue 2016: $1,469,708Expenses 2016: $1,321,081Net Income 2016: $148,6272016Revenue 2017: $1,069,272Expenses 2017: $1,183,802Net Income 2017: -$114,5302017Revenue 2018: $1,261,701Expenses 2018: $1,178,150Net Income 2018: $83,5512018Revenue 2019: $1,594,603Expenses 2019: $1,307,252Net Income 2019: $287,3512019Revenue 2020: $1,544,768Expenses 2020: $1,085,923Net Income 2020: $458,8452020Revenue 2021: $1,880,637Expenses 2021: $1,235,543Net Income 2021: $645,0942021Revenue 2022: $1,995,391Expenses 2022: $1,511,688Net Income 2022: $483,7032022Revenue 2023: $1,825,546Expenses 2023: $1,721,379Net Income 2023: $104,1672023Revenue 2024: $2,269,887Expenses 2024: $1,855,146Net Income 2024: $414,7412024

Highlighted filing

2023

Revenue$1,825,546
Expenses$1,721,379
Net Income$104,167
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 18, 2024
Return Version
2023v5.1
Gross Receipts
$2,280,490
Mission and Program Overview

Mission

See schedule o statement[1] to fund and promote research and educational programs that will advance the creation, application, and dissemination of knowledge of gastrointestinal, hepatobiliary, pancreatic and nutritional disorders in children.[2] to identify, encourage, support, and coordinate scientific research and professional study of these pediatric disorders.[3] to strengthen the role of pediatric gastrointestinal and nutritional scientists as leaders in research and education in these medical and health care fields.[4] to evaluate and improve the quality and availability of medical care for children with digestive disorders.[5] to support the research and educational programs of its parent organization (north american society for pediatric gastroenterology hepatology and nutrition inc.)

The naspghan foundation funds and supports the research and education mission of naspghan.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,976,291$4,312,762▲ $336,471
Cash and Non-Interest-Bearing Accounts$2,190,999$2,295,715▲ $104,716
Accounts Receivable$29,738$448,375▲ $418,637
Savings and Temporary Cash Investments$352,860$399,489▲ $46,629
Pledges and Grants Receivable$115,001$0▼ $115,001
Prepaid Expenses and Deferred Charges$12,756$2,586▼ $10,170
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$6,677,645$7,458,927▲ $781,282
Other Assets Total$0$0→ $0
Liabilities
Grants Payable$1,286,000$1,391,250▲ $105,250
Accounts Payable and Accrued Expenses$95,689$394,571▲ $298,882
Deferred Revenue$50,000$0▼ $50,000
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$1,431,689$1,785,821▲ $354,132
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,085,087$5,673,106▲ $3,588,019
Net Assets With Donor Restrictions$3,160,869$0▼ $3,160,869
Total Net Assets Fund Balance$5,245,956$5,673,106▲ $427,150
Total Liabilities and Net Assets / Fund Balance$6,677,645$7,458,927▲ $781,282

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$2,058,000-▲ $204,739-$2,112,739
2022$2,486,243-▼ $278,243-$2,058,000
2021$2,472,426-▲ $163,817-$2,486,243
2020$2,423,819-▲ $198,607-$2,472,426
2019$2,312,696-▲ $261,123-$2,423,819
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Margaret StallingsExecutive DirectorPT$50,000$173,168$50,000

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$1,740,118
Program Service Revenue
$0
Investment Income
$85,428
Other Revenue
$0
All Other Contributions
$1,490,118
Change in Net Assets
$104,167
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,121,597
Other Expenses$461,779
Salaries, Compensation, and Employee Benefits$138,003
Total Fundraising Expense$35,784
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$987,000--$987,000
Grants to Domestic Orgs$134,597--$134,597
Other Salaries and Wages$50,294$17,345$8,669$76,308
Current Officers, Directors, Trustees, and Key Employees$32,955$11,365$5,680$50,000
Fees for Services Accounting$10,284$1,469$13,938$25,691
Occupancy$16,118$4,605$2,303$23,026
Fees for Service Investment Mgmnt Fees-$22,998-$22,998
Office Expenses$9,889$2,908$1,472$14,269
Fees for Services Other$1,252$12,702-$13,954
Conferences and Meetings-$10,741-$10,741
Travel$5,769$1,648$824$8,241
Other Employee Benefits$4,187$1,444$722$6,353
Payroll Taxes$3,074$885$1,383$5,342
Insurance$2,776$396$793$3,965
Information Technology-$1,240-$1,240
Fees for Services Legal-$600-$600
Other Expenses$331,008$480-$480
Total Functional Expenses$1,589,203$96,392$35,784$1,721,379
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North American Soc for Pediatric GastroenterologyAmbler, PA501(c)(3)general support$15,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Governing body review of form 990 prior to its filing with the irs, a copy of the form 990 is reviewed by board of directors either electronically or at annual board meeting.

Form 990, Part VI, Section B, Line 12C

Monitoring and enforcement of conflicts policy all foundation officers and directors are required to complete a conflict of interest disclosure and update it on an annual basis via the "disclosure website". The conflict of interest subcommittee of naspghan, a related organization, made up of the chair of clinical care and quality, chair of ethics, and chair of professional development reviews all submitted disclosures. If a conflict exists, participation in board activity may be limited or prohibited.

Form 990, Part VI, Section B, Line 15

Compensation for the foundation's executive director is set by naspghan, a related organization. Compensation for the development director is determined and reviewed by the foundation board based on industry standards and performance evaluation and review.

Form 990, Part VI, Section C, Line 19

Public availability of other documents they are available upon request and for inspection at the organization's office.

Filing and Contact Details

Filer

Filer Name
The Naspghan Foundation
EIN
76-0585072
In Care Of
% EXECUTIVE DIRECTOR
Phone
2156419800
Address
714 N BETHLEHEM PIKE Suite 300, AMBLER, PA 19002

Signing Officer

Name
Margaret Stallings
Title
Executive Director
Phone
2156419800
Signed
2024-11-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Margaret Stallings
Formed
1988
Legal Domicile
TX
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
50

Preparer

Firm
Withumsmithbrown Pc
Address
4600 EAST WEST HWY 900, BETHESDA, MD 20814-3423
Preparer
RICHARD Ruvelson
Phone
3012726000
Supplemental Narrative

Additional Explanations

SCHEDULE R, PART II, COLUMN B, NASPGHAN'S PRIMARY ACTIVITY:

The mission of the north american society for pediatric gastroenterology, hepatology and nutrition is to advance the understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.

FORM 990, PART III, LINE 4D, OTHER PROGRAM SERVICES:

Children with cholestatic liver disease: diagnostics cholestatic jaundice is a rare presentation of various hepatobiliary, metabolic, and genetic disorders. Cholestasis typically presents in the neonatal/infantile period but can also present late in older children or even adults. Early diagnosis and appropriate management of the underlying condition are of paramount importance for optimal prognosis. Diagnosis of cholestasis needs an array of investigations including blood tests, imaging, genetic testing, and invasive procedures like liver biopsy. Liver biopsy is one of the central crucial investigations done in evaluating children with cholestasis, however, can be associated with complications including bleeding. Understanding when to use a liver biopsy in children with cholestasis along with its limitations is extremely important to gain the maximum benefit out of an invasive procedure. Over the last decade, the growth in genetic techniques and the identification of new genes leading to cholestasis in children have evolved significantly and have led to the shrinking of the unidentified etiologies. This webinar addresses the rapidly evolving field of genetic cholestasis and when to perform a liver biopsy, its utility, and limitations. Medical management of chronic pancreatitis in children: maximizing treatment and improving outcomes chronic pancreatitis (cp) in children is associated with significant morbidity and poor quality of life. The incidence of cp in children has risen over the past few decades and is approaching that seen in the adult population. Cp is an inflammatory disease resulting in irreversible changes in the pancreas including acinar cell loss, fibrosis, ductal changes, and calcifications. Patients with cp may suffer from abdominal pain and complications of exocrine pancreatic insufficiency (epi) and diabetes mellitus. Medical management of chronic pancreatitis in children: maximizing treatment and improving outcomes brings together leading experts to discuss how to ensure that childhood cp is recognized early and its sequalae treated promptly. Removing dieting from diet therapies in pediatric gi obesity was declared an epidemic by the cdc in the 1990s, yet significant and sustained weight loss continues to be problematic for americans as a population. Critical factors are often overlooked when addressing obesity such as racial discrimination, disability status, and environmental factors. In conjunction, "weight stigma", or bias that devalues people with larger bodies, can cause increased morbidity and mortality, independent of bmi. As a response, a movement is taking place, known by several names including "anti-diet"intuitive eating". This is an inclusive movement that recognizes one's size as part of his or her identity as much as race, national origin, and sexuality. It considers social, economic, and physical barriers to obesity, rather than assuming lack of willpower or education are the cause. It's about recognizing "diet culturedismantling the anti-fat and pro-thin messages that infiltrate society. This informative and interactive webinar helps healthcare providers recognize weight stigma and promote a positive relationship with food, particularly in patients with gi-related health conditions and those following therapeutic diets. The what, how and ifs of optimizing early childhood growth and long-term outcomes: part one understanding normal growth and development is critically essential for quick recognition and intervention for deviations in childhood growth and nutrient intake practices associated with increased risk for disease and poor long-term health. Nutrient and non-nutrient factors influence health outcomes throughout the lifecycle. This webinar and podcast series, the what, how and ifs of optimizing early childhood growth and long-term outcomes discusses how to implement nutrient and non-nutrient factors that optimize long-term health, recognize childhood growth and nutrient intake patterns

Financial Statement Notes

PART V, LINE 4:

Intended use for endowment funds it consists of two endowments, both were received from pharmaceutical companies. The investment income for each endowment fund is restricted for the following purposes: [1]the investment income from $1,500,000 is restricted for innovative research awards. [2]the investment income from $1,000,000 is restricted for research grants in acid-peptic disorders.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0GRANTS AND AWARDS: [1] NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE DISEASES OF THE GASTROINTESTINAL TRACT, LIVER OR PANCREAS AND NUTRITIONAL DISORDERS IN CHILDREN. [2] NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. THIS GRANT, GENEROUSLY SUPPORTED BY MEAD JOHNSON, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL RESEARCH PROJECT RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE. [3] NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INC RESEARCH INNOVATION AWARD: - THIS GRANT IS OFFERED IN ODD NUMBERED YEARS. THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR INNOVATIVE, HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATE SCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HAS THE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTS AT ANY CAREER LEVEL MAY APPLY. [4] NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES: - THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR STUDIES FOCUSED ON THE EPIDEMIOLOGY, PATHOGENESIS, NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISORDERS AND OTHER DISEASES OF THE UPPER GASTROINTESTINAL TRACT IN CHILDREN. DISEASES THAT ARE RELEVANT TO THIS ANNOUNCEMENT INCLUDE, BUT ARE NOT LIMITED TO GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC (ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPER GASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUT ULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES. APPLICANTS AT ANY CAREER LEVEL MAY APPLY. [5] NASPGHAN FOUNDATION MID-LEVEL CAREER DEVELOPMENT AWARD - THIS MID-LEVEL CAREER DEVELOPMENT AWARD IS FOR NASPGHAN MEMBERS PURSUING RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION AND ARE AT A MID-LEVEL IN THEIR CAREER. MID-LEVEL IS DEFINED AS A FACULTY MEMBER WHO HAS HELD A FACULTY APPOINTMENT FOR AT LEAST 6 YEARS AT THE TIME OF THE APPLICATION, BUT HAS NOT YET REACHED PROFESSOR LEVEL. THIS AWARD WILL PROVIDE UP TO $100,000 IN DIRECT FUNDING FOR 2 YEARS ($50,000 PER YEAR) FOR THE ADVANCEMENT OF RESEARCH CAREERS FOR APPLICANTS WITH SIGNIFICANT PROMISE IN THEIR MID-YEARS AS FACULTY. THE PROPOSAL MUST INCLUDE A FOCUSED AREA OF RESEARCH THAT WILL DIRECTLY ENHANCE THE APPLICANT'S ABILITY TO ACHIEVE FURTHER NATIONAL PEER-REVIEWED RESEARCH FUNDING AND RESULT IN SIGNIFICANT IMPACT ON GASTROINTESTINAL, NUTRITION AND LIVER HEALTH IN CHILDREN. BASIC, CLINICAL, TRANSLATIONAL, EPIDEMIOLOGIC, DISSEMINATION AND IMPLEMENTATION RESEARCH ARE ALL ENCOURAGED. THIS AWARD IS TO FOSTER EITHER A NEW AREA OF ENQUIRY OR TO PROVIDE PILOT DATA IN AN ONGOING AREA OF RESEARCH WITH SUBSTANTIAL POTENTIAL FOR NEW FUNDING. [6] NASPGHAN FOUNDATION/APGNN SUSAN MOYER NURSING RESEARCH GRANT - THIS ONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC GASTROENTEROLOGY, NUTRITION AND HEPATOLOGY NURSES TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL TO ADVANCE NURSING CARE OF PATIENTS AND FAMILIES OF CHILDREN WITH GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECTS TO STUDY THE NURSING CARE OF FAMILIES AND CHILDREN WITH PEDIATRIC GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS. [7] NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP TRAINING IN PE
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL CAMPAIGNS: THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. TOPIC AREAS ARE REFLUX AND GERD, INFLAMMATORY BOWEL DISEASE, CELIAC DISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILIC ESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTH OUTCOMES BY EARLY DETECTION AND INTERVENTION. GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITH GIKIDS, NASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT DIRECTLY TO FAMILIES, KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDITIONS TO PROVIDE THEM WITH THE INFORMATION THEY NEED TO: -UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH -WORK WITH THEIR HEALTH CARE PROVIDERS -LIVE A MORE INDEPENDENT LIFE -UNDERSTAND WHAT WORKS IN PLAIN LANGUAGE "A PRACTICAL APPROACH TO NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES: TIPS FOR PATIENTS AND CAREGIVERS" WEBINAR AND ON DEMAND PROGRAM CHILDREN WITH CHOLESTATIC LIVER DISEASES HAVE UNIQUE NUTRITIONAL REQUIREMENTS. OBJECTIVES: 1.OVERVIEW OF THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS. 2.REVIEW CURRENT AVAILABLE FORMULATION AND PRACTICAL TIPS FOR THE CARE PROVIDER. 3.REVIEW THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS, FORMULATIONS AND DISCUSSION. 4.DISCUSS LACK OF INSURANCE COVER FOR MEDICAL FOOD, VITAMINS AND FINANCIAL BURDEN TO THE FAMILIES. HEPATITIS C SLIDE SET AND GRAND ROUNDS HCV INFECTION IS CHILDREN IS FREQUENTLY UNRECOGNIZED. RECENTLY PROPOSED UNIVERSAL TESTING STRATEGIES DURING PREGNANCY NEED TO BE IMPLEMENTED. ALTHOUGH LIVER DISEASE IS GENERALLY MILD IN CHILDREN, CHRONIC HEPATITIS AND CIRRHOSIS OCCURS. DIRECT ACTIVE ANTIVIRALS ARE VERY EFFICACIOUS AND SAFE. THEREFORE, ALL HCV INFECTED CHILDREN > 3 YEARS OF AGE SHOULD BE CONSIDERED FOR TREATMENT. PUBLIC AND PROFESSIONAL EDUCATION IS CRITICALLY IMPORTANT TO INCREASE HCV AWARENESS. THE FOUNDATION DEVELOPED A SLIDE DECK AND GRAND ROUNDS PROGRAM TO INCREASE AWARENESS REGARDING TESTING AND MANAGEMENT OF HCV. "NUTRITION AND LIVER DISEASE IN PEROXISOMAL BIOGENESIS DISORDERS: DIAGNOSIS AND MANAGEMENT" NASPGHAN NUTRITION UNIVERSITY (N2U) THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION TO 3RD YEAR FELLOWS, JUNIOR FACULTY AND DIETITIANS. IT TARGETS TWO GROUPS: CANDIDATES WHO RECEIVED MINIMAL NUTRITION EDUCATION DURING THEIR FELLOWSHIP OR WHOM PLAN TO PURSUE PEDIATRIC NUTRITION AS THEIR CAREER FOCUS. TEACHING AND TOMORROW UNDERREPRESENTED IN MEDICINE (URIM) PROGRAM THE PEDIATRIC GI TEACHING AND TOMORROW PROGRAM OF NASPGHAN STRIVES TO ATTRACT THE BRIGHTEST RESIDENTS TO SUBSPECIALTY TRAINING IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. DUE TO THE EXCELLENT INTEREST IN THIS INNOVATIVE NASPGHAN PROGRAM, WE HAVE SEEN CONTINUAL GROWTH IN THE INTEREST AND APPLICATIONS TO GI TRAINING PROGRAMS THROUGH THE YEARS. THIS PROGRAM HAS BEEN RECENTLY EXPANDED TO PROVIDE SCHOLARSHIPS TO INTERESTED 1ST AND 2ND YEAR PEDIATRIC RESIDENTS AND 4TH YEAR MEDICAL STUDENTS WHO SELF-IDENTIFY AS UNDERREPRESENTED IN MEDICINE (URIM). IN ADDITION TO NETWORKING WITH OTHER PARTICIPANTS WHILE ATTENDING THE PROGRAM'S SCHEDULED SESSIONS, THE URIM PROGRAM ATTENDEES ARE MATCHED UP WITH A NASPGHAN FELLOW AND/OR ATTENDING PHYSICIAN (A TEACHING AND TOMORROW PROGRAM ALUMNUS) WHO SERVES AS A POINT OF CONTACT AND AMBASSADOR TO THE ANNUAL MEETING. URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM THE URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PR
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IRS990/ProgSrvcAccomActy3Grp/Desc0WEBINARS AND ON-DEMAND EDUCATIONAL MODULES EGIDS: BEYOND THE ESOPHAGUS EGIDS ARE A COLLECTION OF CHRONIC INFLAMMATORY DISEASES INCLUDING EOSINOPHILIC ESOPHAGITIS (EOE), EOSINOPHILIC GASTRITIS (EG) EOSINOPHILIC GASTROENTERITIS (EGE), AND EOSINOPHILIC COLITIS (EC). AMONG THE EGIDS, EOE HAS BECOME AN INCREASINGLY RECOGNIZED AND STUDIED CONDITION. VALIDATED METRICS HAVE BEEN ESTABLISHED TO QUANTIFY QUALITY OF LIFE, SYMPTOMS, HISTOLOGIC AND ENDOSCOPIC FINDINGS. IN ADDITION, THERE ARE WELL-ESTABLISHED, EFFECTIVE TREATMENTS. THE SAME CANNOT BE SAID FOR EG, EGE, OR EC, WHICH LACKS WELL ESTABLISHED HISTOLOGIC CRITERIA FOR DIAGNOSIS, AND HAS A MORE UNCLEAR NATURAL HISTORY, NOR WELL-ESTABLISHED TREATMENTS. EGIDS: BEYOND THE ESOPHAGUS BRINGS TO LIGHT THE LATEST ON NON-EOE EGID, INCLUDING THE SIGNS AND SYMPTOMS; THE CRITERIA TO MAKE A DIAGNOSIS; WHAT OPTIONS EXIST FOR THERAPY, AND THE POTENTIAL MECHANISMS OF DISEASE. PRACTICAL TIPS IN THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISORDERS: A WEBINAR FOR PATIENTS, FAMILIES AND CAREGIVERS. THIS WEBINAR EXPLORES PRACTICAL APPROACHES TO THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES, WITH SPECIAL TIPS FOR PATIENTS AND CAREGIVERS. PARTICIPANTS LEARN THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS, BECOME ACQUAINTED WITH DIFFERENCES AMONG THE CURRENTLY AVAILABLE FORMULATION TO SUPPORT NUTRITION IN CHOLESTATIC BABIES, AND THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS AND FORMULATIONS. THE LACK OF INSURANCE COVERAGE FOR MEDICAL FOOD AND VITAMINS IS ALSO DISCUSSED.
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IRS990ScheduleA/TotalSupportAmt08812042
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.21$1.76$6.46$2.27$1.86$0.41
2023Detailed filing. Detailed filing data is available for this year.$7.46$1.79$5.67$1.83$1.72$0.10
2022Detailed filing. Detailed filing data is available for this year.$6.68$1.43$5.25$2.00$1.51$0.48
2021Detailed filing. Detailed filing data is available for this year.$6.52$1.20$5.32$1.88$1.24$0.65
2020Detailed filing. Detailed filing data is available for this year.$5.61$1.05$4.56$1.54$1.09$0.46
2019Detailed filing. Detailed filing data is available for this year.$4.87$0.95$3.92$1.59$1.31$0.29
2018Detailed filing. Detailed filing data is available for this year.$4.50$1.24$3.26$1.26$1.18$0.08
2017Detailed filing. Detailed filing data is available for this year.$4.42$1.01$3.41$1.07$1.18$0.11
2016Detailed filing. Detailed filing data is available for this year.$4.56$1.24$3.33$1.47$1.32$0.15
2015Detailed filing. Detailed filing data is available for this year.$4.29$1.19$3.11$1.20$1.10$0.09
2014Detailed filing. Detailed filing data is available for this year.$4.11$0.95$3.15$1.41$1.31$0.10
2013Detailed filing. Detailed filing data is available for this year.$4.07$0.99$3.08$1.38$1.25$0.13
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.31$1.42$2.90$1.24
2011Summary only. Only limited summary data is available for this year.$3.87$0.99$2.88$1.11$1.11$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.22$1.30$2.91$1.53