Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
990 • Fiscal year 2017 • EIN 76-0585072
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
Liabilities / Revenue
85th percentile
Higher debt load relative to revenue than 85% of similar nonprofits.
Net Margin
20th percentile
Higher net margin than 20% of similar nonprofits.
Top Officer Pay
92nd percentile
Higher top officer pay than 92% of similar nonprofits.
Top officer pay equals 21.6% of source-year revenue.
Asset Growth
25th percentile
Faster asset growth than 25% of similar nonprofits.
Revenue Growth
10th percentile
Faster revenue growth than 10% of similar nonprofits.
Assets
Down$4,421,521
Down $140,386 (-3.1%) from 2016
Net Assets
Up$3,407,845
Up $81,530 (+2.5%) from 2016
Liabilities
Down$1,013,676
Down $221,916 (-18%) from 2016
Revenue
Down$1,069,272
Down $400,436 (-27%) from 2016
Expenses
Down$1,183,802
Down $137,279 (-10%) from 2016
Net Income
Down-$114,530
Down $263,157 (-177%) from 2016
See schedule o statement[1] to fund and promote research and educational programs that will advance the creation, application, and dissemination of knowledge of gastrointestinal, hepatobiliary, pancreatic and nutritional disorders in children.[2] to identify, encourage, support, and coordinate scientific research and professional study of these pediatric disorders.[3] to strengthen the role of pediatric gastrointestinal and nutritional scientists as leaders in research and education in these medical and health care fields.[4] to evaluate and improve the quality and availability of medical care for children with digestive disorders.[5] to support the research and educational programs of its parent organization (north american society for pediatric gastroenterology hepatology and nutrition inc.)
Funds & supports research and education missions of naspghan.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $3,130,912 | $3,361,388 | ▲ $230,476 |
| Savings and Temporary Cash Investments | $764,194 | $649,497 | ▼ $114,697 |
| Cash and Non-Interest-Bearing Accounts | $166,564 | $230,877 | ▲ $64,313 |
| Pledges and Grants Receivable | $497,732 | $177,304 | ▼ $320,428 |
| Prepaid Expenses and Deferred Charges | $2,505 | $2,455 | ▼ $50 |
| Total Assets | $4,561,907 | $4,421,521 | ▼ $140,386 |
| Liabilities | |||
| Grants Payable | $831,675 | $787,340 | ▼ $44,335 |
| Deferred Revenue | $346,274 | $211,098 | ▼ $135,176 |
| Accounts Payable and Accrued Expenses | $57,643 | $15,238 | ▼ $42,405 |
| Total Liabilities | $1,235,592 | $1,013,676 | ▼ $221,916 |
| Net Assets / Fund Balance | |||
| Permanently Rstr Net Assets | $2,500,000 | $2,500,000 | → $0 |
| Unrestricted Net Assets | $554,215 | $560,229 | ▲ $6,014 |
| Temporarily Rstr Net Assets | $272,100 | $347,616 | ▲ $75,516 |
| Total Net Assets Fund Balance | $3,326,315 | $3,407,845 | ▲ $81,530 |
| Total Liabilities and Net Assets / Fund Balance | $4,561,907 | $4,421,521 | ▼ $140,386 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2017 | $2,500,000 | - | - | - | $2,500,000 |
| 2016 | $2,500,000 | - | - | - | $2,500,000 |
| 2015 | $2,500,000 | - | - | - | $2,500,000 |
| 2014 | $2,500,000 | - | - | - | $2,500,000 |
| 2013 | $2,500,000 | - | - | - | $2,500,000 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Margaret Stallings | Executive Director | PT | $50,000 | $180,886 | $50,000 |
| Name | Title |
|---|---|
| John Barnard Md | Past President |
| Barry Wershil Md | President |
| Alessio Fasano Md | Director |
| Amy Donegan Rn Ms Apn | Director |
| Benjamin Gold Md | Director |
| Carlo Di Lorenzo Md | Director |
| Glenn Furuta Md | Director |
| James Heubi Md | Director |
| Jeannie Huang Md Mph | Director |
| Jenifer Lightdale Md Mph | Director |
| Karen Murray Md | Director |
| Leo Heitlinger Md | Director |
| Maria Oliva-hemker Md | Director |
| Marjorie Merrick Vp Research | Director |
| Miriam Vos Md Msph | Director |
| Nicola Jones Md Phd | Director |
| Robert Baldassano Md | Director |
| Rohit Kohli Mbbs Mph | Director |
| Ann Scheimann Md Mba | Secretary - Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $739,015 |
| Other Expenses | $307,983 |
| Salaries, Compensation, and Employee Benefits | $136,804 |
| Total Fundraising Expense | $42,562 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Individuals | $739,015 | - | - | $739,015 |
| Other Salaries and Wages | $25,666 | $36,479 | $18,239 | $80,384 |
| Current Officers, Directors, Trustees, and Key Employees | $15,964 | $22,690 | $11,346 | $50,000 |
| Fees for Service Investment Mgmnt Fees | - | $21,468 | - | $21,468 |
| Fees for Services Other | $13,766 | $3,933 | $3,386 | $21,085 |
| Occupancy | $12,966 | $3,704 | $1,852 | $18,522 |
| Other Expenses | $5,705 | $1,630 | $815 | $8,150 |
| Travel | $5,211 | $1,489 | $744 | $7,444 |
| Payroll Taxes | $2,050 | $2,913 | $1,457 | $6,420 |
| All Other Expenses | $1,175 | $3,966 | $167 | $5,308 |
| Insurance | $2,061 | $589 | $295 | $2,945 |
| Total Functional Expenses | $1,033,688 | $107,552 | $42,562 | $1,183,802 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $1,183,802 |
| Expenses per Audited Statements | $1,162,334 |
| Total Expenses per Audited Statements | $1,162,334 |
| Expenses Not Reported on Financial Statements | $21,468 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Governing body review of form 990 prior to its filing with the irs, a copy of the form 990 is reviewed by board of directors either electronically or at annual board meeting.”
“Monitoring and enforcement of conflicts policy disclosure updated on an annual basis via "disclosure website". Updated and confirmed at all meetings/conference calls.”
“Process for determining compensation the process for determining compensation for executive director includes the following: [1] review of similar societies; and [2] annual evaluation”
“Public availability of other documents they are available upon request and for inspection at the organization's office.”
“The mission of the north american society for pediatric gastroenterology, hepatology and nutrition is to advance the understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.”
“Intended use of the endowment funds it consists of two endowments, all of which were received from pharmaceutical companies. The investment income for each endowment fund is restricted for the following purposes: [1]the investment income from $1,500,000 is restricted for innovative research awards. [2]the investment income from $1,000,000 is restricted for research grants in acid-peptic disorders.”
“Uncertain tax positions under asc 740 the foundation has adopted an accounting standard regarding uncertain tax positions. The standard prescribes a minimum threshold that a tax position is required to meet in order to be recognized in the financial statements. The foundation believes that it had no uncertain tax positions as defined in the standard.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 15238 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | FUNDS & SUPPORTS RESEARCH AND EDUCATION MISSIONS OF NASPGHAN. |
| IRS990/AllOtherContributionsAmt | 0 | 549047 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 167 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3966 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1175 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 5308 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | EXECUTIVE DIRECTOR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2152330808 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 714 N BETHLEHEM PIKE STE 300 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AMBLER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 19002 |
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| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 230877 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
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| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22690 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 15964 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 50000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 1 |
| IRS990/CreditCounselingInd | 0 | 0 |
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| IRS990/CYContributionsGrantsAmt | 0 | 699047 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 739015 |
| IRS990/CYInvestmentIncomeAmt | 0 | 92197 |
| IRS990/CYOtherExpensesAmt | 0 | 307983 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 278028 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -114530 |
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| IRS990/CYTotalExpensesAmt | 0 | 1183802 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 42562 |
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| IRS990/CYTotalRevenueAmt | 0 | 1069272 |
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| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 211098 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GRANTS AND AWARDS:[1] NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATOR DEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO NEW AND JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE GASTROINTESTINAL TRACT, LIVER OR PANCREAS IN CHILDREN.SEE SCHEDULE O FOR CONTINUATIONS[2] NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATOR DEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO NEW AND JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. THIS GRANT, SUPPORTED BY NESTLE NUTRITION INSTITUTE, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL PROPOSAL RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE.[3] NASPGHAN FOUNDATION FELLOW TO FACULTY TRANSITION AWARD IN INFLAMMATORY BOWEL DISEASES:- THIS AWARD PROVIDES SUPPORT TO ENABLE PROMISING SENIOR PEDIATRIC GASTROENTEROLOGY FELLOWS TO SPEND AN ADDITIONAL YEAR UPON COMPLETION OF THEIR FELLOWSHIP TRAINING ENGAGED IN FULL-TIME RESEARCH AND PATIENT CARE RELATED TO PEDIATRIC INFLAMMATORY BOWEL DISEASES (IBD). THE INTENT OF THIS RESEARCH AWARD IS TO DEVELOP ADDITIONAL CLINICAL AND RESEARCH EXPERTISE IN PEDIATRIC IBD.[4] NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INC RESEARCH INNOVATION AWARD:- IT PROVIDES A TWO-YEAR GRANT FOR INNOVATIVE, HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATE SCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HAS THE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTS AT ANY CAREER LEVEL MAY APPLY.[5] NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES:- THIS AWARD IS GRANTED TO AN INVESTIGATOR TO STUDY THE EPIDEMIOLOGY, PATHOGENESIS, NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISEASES AFFECTING CHILDREN. "PEPTIC DISEASES" REFERS TO A VARIETY OF DISORDERS INCLUDING, BUT NOT LIMITED TO, GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC (ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPER GASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUT ULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES.[6] NASPGHAN FOUNDATION IN-OFFICE MEMBER GRANT FOR DEVELOPMENT OF PATIENT EDUCATION PROTOTYPES: THE ONE-YEAR GRANTS SUPPORT DEVELOPMENT AND IMPLEMENTATION OF PROTOTYPE PROJECTS WHICH FOCUS ON PATIENT EDUCATION IN PRACTICE SETTINGS. THE GOAL OF THIS GRASSROOTS PROGRAM IS TO SUPPORT PATIENTS' NEEDS THROUGH PROTOTYPIC CONCEPTS THAT COULD POTENTIALLY BE UTILIZED BY THE NASPGHAN/APGNN COMMUNITY IN THE FUTURE. |
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| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 793826 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
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| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 3933 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 13766 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 21085 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 21468 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 21468 |
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| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.50 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.10 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 0.10 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 6.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
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| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | JAMES HEUBI MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | CARLO DI LORENZO MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | ROBERT BALDASSANO MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | AMY DONEGAN RN MS APN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | MARJORIE MERRICK VP RESEARCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | MARGARET STALLINGS |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
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| IRS990/MissionDesc | 0 | THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSIONS OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS. |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | EDUCATIONAL CAMPAIGNS:IBD NEWSLETTER SERIES FOR MEDICAL PROFESSIONALS- IMPROVING HEALTH SUPERVISION OF CHILDREN AND YOUNG ADULTS WITH INFLAMMATORY BOWEL DISEASE (IBD). - UTILIZE APPROPRIATE SCREENING TOOLS FOR THE ACCURATE DIAGNOSIS OF IBD IN PEDIATRIC, ADOLESCENT, AND YOUNG ADULT PATIENTS IN THE PRIMARY CARE SETTING. - INITIATE AND/OR MONITOR RECOMMENDED PHARMACOTHERAPY. - SCREEN AND DIAGNOSE IBD PATIENTS SUFFERING FROM COMORBID DEPRESSION. SEE SCHEDULE O FOR CONTINUATIONS - DEVELOP COLLABORATIVE CARE PLANS WITH PRIMARY AND SUBSPECIALTY PROVIDERS IN EFFORTS TO PROVIDE APPROPRIATE PHARMACOTHERAPY AND SOCIAL SUPPORT FOR PATIENTS WITH IBD AND THEIR FAMILIES.- IMPROVING THE TRANSITION PROCESS - IDENTIFY THE NEEDS OF IBD PATIENTS FOR A SUCCESSFUL TRANSITION FROM PEDIATRIC TO ONGOING ADULT CARE. - EXPLORE POTENTIAL BARRIERS TO THIS TRANSITION FROM THE PERSPECTIVES OF PATIENTS, FAMILIES, AND MEDICAL TEAM MEMBERS. - UTILIZE THE CHECKLIST AND PATIENT WEB RESOURCE TO DEVELOP AN EFFECTIVE TRANSITION PLAN FOR PEDIATRIC IBD PATIENTS, WITH A FOCUS ON DEVELOPING PATIENT INDEPENDENCE, EDUCATION, AND COMMUNICATION. - INCORPORATE PARENTS AND FAMILY MEMBERS OF PEDIATRIC IBD PATIENTS INTO THE PLANNING PROCESS TO ENSURE THEIR SUPPORT. - DEVELOP A TEAM APPROACH (WHEN AVAILABLE) IN TRANSITIONING IBD PATIENTS FROM PEDIATRIC CARE TO ADULT CARE, AND UTILIZE AVAILABLE TRANSITION RESOURCES.- MONITORING DISEASE ACTIVITYIDENTIFY VALIDATED INDICES TO EVALUATE DISEASE PROGRESSION, SEVERITY OF DISEASE, AND EFFICACY OF PHARMACOTHERAPIES FOR CHILDREN WITH IBD. - UTILIZE APPROPRIATE INDICES FOR CHILDREN WITH UC AND CD BASED ON THEIR PRESENTING SYMPTOMS. - IMPLEMENT INDICES TO MONITOR DISEASE ACTIVITY IN APPROPRIATE CHILDREN WITH IBD WHILE UNDERSTANDING THE ADVANTAGES AND DISADVANTAGES OF EACH TOOL.- MAKING THE RIGHT DIAGNOSISRENDER ACCURATE DIAGNOSES BASED ON IDENTIFYING THE RANGE OF HISTOLOGICAL FEATURES AND ENDOSCOPIC FINDINGS OF PEDIATRIC UC AND CD. - DIFFERENTIATE PEDIATRIC IBD FROM ASLC. - APPLY CONSISTENT CLASSIFICATION AND DIAGNOSTIC CRITERIA TO MORE ACCURATELY PHENOTYPE PEDIATRIC IBD PATIENTS. - IMPLEMENT A SYSTEMATIC APPROACH TO DIAGNOSIS AND MANAGEMENT BASED UPON A STANDARD ALGORITHM. - DELINEATE THE FEATURES OF IBD-UNCLASSIFIED AND HOW TO FOLLOW UP THESE CASES.- CAPSULE ENDOSCOPYCAPPY COMIC BOOK AND PARENT HAND OUT FOCUSING ON EDUCATING THE PATIENT AND FAMILY ABOUT WHAT IS A CAPSULE ENDOSCOPY AND HOW IS THE PROCEDURE IMPLEMENTED.- CME COURSE "NASPGHAN NUTRITION UNIVERSITY"THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION FOR 3RD YEAR POSTDOCTORAL FELLOWS AND GRADUATES OF PEDIATRIC GASTROENTEROLOGY TRAINING PROGRAMS (GRADUATED WITHIN THE LAST 10 YEARS). THE COURSE INCLUDED A FACULTY DEBATE FOLLOWED BY A SERIES OF SMALL GROUP HANDS-ON CASE-BASED LEARNING OF SEVERAL CHALLENGING CASES ON SATURDAY. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | OTHER PROGRAM SERVICES:[1] CONSTIPATION CARE PACKAGE - INFORMATION FOR DOCTORS, NURSES AND PATIENTS REGARDING THE TREATMENT AND MANAGEMENT OF CONSTIPATION.[2] PSC WEBINAR - TO EDUCATE PATIENTS, FAMILIES AND CAREGIVERS ABOUT THE DIAGNOSIS AND TREATMENT OF AUTOIMMUNE LIVER DISEASES IN PEDIATRIC PATIENTS.-TO REVIEW STRESS MANAGEMENT, COPING, NUTRITIONAL, LEGAL AND ADVOCACY ISSUES.[3] WEBINAR: EXOCRINE PANCREATIC INSUFFICIENCY (JUNE 16, 2016) - TO DEFINE EPI. -TO UNDERSTAND THE EPIDEMIOLOGY, PATHOPHYSIOLOGY AND GENETIC SYNDROMES LEADING TO EPI.-TO DESCRIBE CLINICAL SYMPTOMS OF EPI.-TO LIST AVAILABLE TESTING FOR EPI FROM SIMPLE SCREENING TESTS TO THE MORE SPECIALIZED THAT NEED AN ENDOSCOPY, INCLUDING ENDOSCOPIC PANCREATIC FUNCTION TESTING.-TO PROVIDE COMPARISONS OF AVAILABLE TESTING WITH PROS AND CONS OF CLINICAL UTILITY.-TO UNDERSTAND HOW TO MANAGE PATIENTS WITH EPI.-TO PROVIDE INFORMATION REGARDING ONGOING AND FUTURE RESEARCH ON EPI[4] GERD: PPI TREATMENT - SLIDE SET/GRAND ROUNDS AND WEBINAR - TO REVIEW EVIDENCE -BASED INDICATIONS FOR TREATING INFANTS AND OLDER CHILDREN WITH PPI.-TO DISCUSS THE RISKS OF TREATMENT, AS WELL AS WHY, WHEN AND HOW TO STOP TREATMENT-TO REVIEW THE CURRENT EVIDENCE FOR EXTRA-ESOPHAGEAL ASSOCIATIONS WITH REFLUX DISEASE.-TO REVIEW NEW UNDERSTANDINGS OF REFLUX RELATED DISORDERS. [5] IBD AND NUTRITION PODCAST AND WEBPAGE - TO EDUCATE FAMILIES, PATIENTS AND CAREGIVERS ABOUT NUTRITIONAL MANAGEMENT OF CHILDREN WITH IBD.[6] IBD DECISION AID TOOL - TO HELP PATIENTS AND HEALTH PROVIDERS FIND THE RIGHT TREATMENT OPTIONS FOR PEDIATRIC CROHN'S.-TO EXPLAIN THE POSSIBLE RISKS AND BENEFITS OF EACH OPTION SO THAT AN INFORMED DECISION CAN BE MADE.[7] NEONATAL CHOLESTASIS SLIDE SET - TO PROVIDE HEALTHCARE PROVIDERS INFORMATION REGARDING DIAGNOSIS, TREATMENT AND MANAGEMENT OF NEONATAL CHOLESTASIS. |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.