Civic Intelligence

The Naspghan Foundation

EIN 76-0585072 • 501(c)3 • Ambler, PA

Profile

The naspghan foundation funds and supports the research and education missions of naspghan in order to enhance the health and well-being of children with gastrointestinal, liver, pancreas and nutritional disorders.

714 N Bethlehem Pike 300Ambler, PA 19002

www.naspghan.org/content/84/en/foundation/abo

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

61st percentile

0.21x

Higher debt load relative to assets than 61% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

81st percentile

0.77x

Higher debt load relative to revenue than 81% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

72nd percentile

18%

Higher net margin than 72% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

64th percentile

10%

Faster asset growth than 64% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

74th percentile

24%

Faster revenue growth than 74% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets61st percentile

Assets

Up

$8,213,426

Up $754,499 (+10%) from 2023

Liabilities

Down

$1,756,363

Down $29,458 (-1.6%) from 2023

Net Assets

Up

$6,457,063

Up $783,957 (+14%) from 2023

Operations
Liabilities / Revenue81st percentileNet Margin72nd percentile

Revenue

Up

$2,269,887

Up $444,341 (+24%) from 2023

Expenses

Up

$1,855,146

Up $133,767 (+7.8%) from 2023

Net Income

Up

$414,741

Up $310,574 (+298%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth64th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2010: $4,217,937Liabilities 2010: $1,304,144Net Assets 2010: $2,913,7932010Assets 2011: $3,872,828Liabilities 2011: $993,448Net Assets 2011: $2,879,3802011Assets 2012: $4,314,002Liabilities 2012: $1,417,338Net Assets 2012: $2,896,6642012Assets 2013: $4,067,332Liabilities 2013: $988,862Net Assets 2013: $3,078,4702013Assets 2014: $4,108,702Liabilities 2014: $954,786Net Assets 2014: $3,153,9162014Assets 2015: $4,293,861Liabilities 2015: $1,186,791Net Assets 2015: $3,107,0702015Assets 2016: $4,561,907Liabilities 2016: $1,235,592Net Assets 2016: $3,326,3152016Assets 2017: $4,421,521Liabilities 2017: $1,013,676Net Assets 2017: $3,407,8452017Assets 2018: $4,502,389Liabilities 2018: $1,237,472Net Assets 2018: $3,264,9172018Assets 2019: $4,869,576Liabilities 2019: $950,580Net Assets 2019: $3,918,9962019Assets 2020: $5,610,869Liabilities 2020: $1,052,211Net Assets 2020: $4,558,6582020Assets 2021: $6,522,780Liabilities 2021: $1,200,434Net Assets 2021: $5,322,3462021Assets 2022: $6,677,645Liabilities 2022: $1,431,689Net Assets 2022: $5,245,9562022Assets 2023: $7,458,927Liabilities 2023: $1,785,821Net Assets 2023: $5,673,1062023Assets 2024: $8,213,426Liabilities 2024: $1,756,363Net Assets 2024: $6,457,0632024

Highlighted filing

2024

Assets$8,213,426
Liabilities$1,756,363
Net Assets$6,457,063
Open 2024 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,529,0712010Revenue 2011: $1,107,751Expenses 2011: $1,112,855Net Income 2011: -$5,1042011Expenses 2012: $1,239,4352012Revenue 2013: $1,384,722Expenses 2013: $1,250,314Net Income 2013: $134,4082013Revenue 2014: $1,408,074Expenses 2014: $1,310,503Net Income 2014: $97,5712014Revenue 2015: $1,196,576Expenses 2015: $1,104,860Net Income 2015: $91,7162015Revenue 2016: $1,469,708Expenses 2016: $1,321,081Net Income 2016: $148,6272016Revenue 2017: $1,069,272Expenses 2017: $1,183,802Net Income 2017: -$114,5302017Revenue 2018: $1,261,701Expenses 2018: $1,178,150Net Income 2018: $83,5512018Revenue 2019: $1,594,603Expenses 2019: $1,307,252Net Income 2019: $287,3512019Revenue 2020: $1,544,768Expenses 2020: $1,085,923Net Income 2020: $458,8452020Revenue 2021: $1,880,637Expenses 2021: $1,235,543Net Income 2021: $645,0942021Revenue 2022: $1,995,391Expenses 2022: $1,511,688Net Income 2022: $483,7032022Revenue 2023: $1,825,546Expenses 2023: $1,721,379Net Income 2023: $104,1672023Revenue 2024: $2,269,887Expenses 2024: $1,855,146Net Income 2024: $414,7412024

Highlighted filing

2024

Revenue$2,269,887
Expenses$1,855,146
Net Income$414,741
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,213,426
Liabilities
$1,756,363
Net assets
$6,457,063
Revenue
$2,269,887
Expenses
$1,855,146
Net income
$414,741
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.21$1.76$6.46$2.27$1.86$0.41
2023Detailed filing. Detailed filing data is available for this year.$7.46$1.79$5.67$1.83$1.72$0.10
2022Detailed filing. Detailed filing data is available for this year.$6.68$1.43$5.25$2.00$1.51$0.48
2021Detailed filing. Detailed filing data is available for this year.$6.52$1.20$5.32$1.88$1.24$0.65
2020Detailed filing. Detailed filing data is available for this year.$5.61$1.05$4.56$1.54$1.09$0.46
2019Detailed filing. Detailed filing data is available for this year.$4.87$0.95$3.92$1.59$1.31$0.29
2018Detailed filing. Detailed filing data is available for this year.$4.50$1.24$3.26$1.26$1.18$0.08
2017Detailed filing. Detailed filing data is available for this year.$4.42$1.01$3.41$1.07$1.18$0.11
2016Detailed filing. Detailed filing data is available for this year.$4.56$1.24$3.33$1.47$1.32$0.15
2015Detailed filing. Detailed filing data is available for this year.$4.29$1.19$3.11$1.20$1.10$0.09
2014Detailed filing. Detailed filing data is available for this year.$4.11$0.95$3.15$1.41$1.31$0.10
2013Detailed filing. Detailed filing data is available for this year.$4.07$0.99$3.08$1.38$1.25$0.13
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.31$1.42$2.90$1.24
2011Summary only. Only limited summary data is available for this year.$3.87$0.99$2.88$1.11$1.11$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.22$1.30$2.91$1.53
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Dec 1, 2025
Return Version
2024v5.2
Gross Receipts
$4,887,567
Mission and Program Overview

Mission

See schedule o statement[1] to fund and promote research and educational programs that will advance the creation, application, and dissemination of knowledge of gastrointestinal, hepatobiliary, pancreatic and nutritional disorders in children.[2] to identify, encourage, support, and coordinate scientific research and professional study of these pediatric disorders.[3] to strengthen the role of pediatric gastrointestinal and nutritional scientists as leaders in research and education in these medical and health care fields.[4] to evaluate and improve the quality and availability of medical care for children with digestive disorders.[5] to support the research and educational programs of its parent organization (north american society for pediatric gastroenterology hepatology and nutrition inc.)

The naspghan foundation funds and supports the research and education mission of naspghan.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$4,312,762$4,619,190▲ $306,428
Savings and Temporary Cash Investments$399,489$1,696,099▲ $1,296,610
Accounts Receivable$448,375$1,019,227▲ $570,852
Cash and Non-Interest-Bearing Accounts$2,295,715$875,024▼ $1,420,691
Prepaid Expenses and Deferred Charges$2,586$3,886▲ $1,300
Total Assets$7,458,927$8,213,426▲ $754,499
Liabilities
Accounts Payable and Accrued Expenses$394,571$1,243,863▲ $849,292
Grants Payable$1,391,250$512,500▼ $878,750
Total Liabilities$1,785,821$1,756,363▼ $29,458
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,673,106$3,389,221▼ $2,283,885
Net Assets With Donor Restrictions-$3,067,842-
Total Net Assets Fund Balance$5,673,106$6,457,063▲ $783,957
Total Liabilities and Net Assets / Fund Balance$7,458,927$8,213,426▲ $754,499

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$2,112,739-▲ $328,719-$2,291,458
2023$2,058,000-▲ $204,739-$2,112,739
2022$2,486,243-▼ $278,243-$2,058,000
2021$2,472,426-▲ $163,817-$2,486,243
2020$2,423,819-▲ $198,607-$2,472,426
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Margaret StallingsExecutive DirectorPT$50,000$321,166$50,000

Board Members and Trustees

NameTitle
Menno Verhae MdPast President
Ann Scheimann Md MbaPresident
Benjamin Gold Md Faap FacgDirector
Cara Mack MdDirector
Dedrick Moulton MdDirector
Jenifer R Lightdale Md MphDirector
Joel Rosh MdDirector
Justine Turner MbbsDirector
Karen Murray MdDirector
Manu Sood MdDirector
Maria M Oliva-hemker MdDirector
Mercedes MartinezDirector
Praveen Goday MdDirector
Robert DahmsDirector
Rohit Kohli Mbbs MsDirector
Sandra Chihyun Kim MdDirector
Jeanie Huang Md MphSecretary/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,258,912
Program Service Revenue
$0
Investment Income
$10,975
Other Revenue
$0
All Other Contributions
$2,144,493
Change in Net Assets
$414,741

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,242,887
Revenue Not Reported on Financial Statements
$27,000
Revenue Not Reported on Form 990
$369,216
Total Revenue per Audited Statements
$2,612,103
Total Revenue per Form 990
$2,269,887
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,111,093
Other Expenses$575,020
Salaries, Compensation, and Employee Benefits$169,033
Total Fundraising Expense$51,068
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$768,828--$768,828
Grants to Domestic Orgs$342,265--$342,265
Other Salaries and Wages$61,137$20,992$21,009$103,138
Current Officers, Directors, Trustees, and Key Employees$29,638$10,177$10,185$50,000
Fees for Service Investment Mgmnt Fees-$27,000-$27,000
Occupancy$14,047$4,682$4,682$23,411
Fees for Services Accounting$11,496$3,832$3,832$19,160
Fees for Services Other$9,634$3,211$3,211$16,056
Travel$8,945$2,982$2,982$14,909
Other Employee Benefits$5,143$1,766$1,767$8,676
Payroll Taxes$4,279$1,469$1,471$7,219
Office Expenses$3,871$1,290$1,290$6,451
Insurance$1,917$639$639$3,195
Information Technology-$1,260-$1,260
Other Expenses$0$25$0$25
Total Functional Expenses$1,718,889$85,189$51,068$1,855,146

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,855,146
Expenses per Audited Statements$1,828,146
Total Expenses per Audited Statements$1,828,146
Expenses Not Reported on Financial Statements$27,000
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The University of Texas Southwestern Medical CenterDallas, TX-General Support$150,000
University of PittsburghPittsburgh, PA-General Support$150,000
CHILDREN'S HOSPITAL MEDICAL CENTERWashington, DC-General Support$25,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to its filing with the irs, a copy of the form 990 is reviewed by board of directors either electronially or at an annual board meeting.”

Form 990, Part VI, Section B, Line 12C

“All foundation officers and directors are required to complete a conflict of interest disclosure and update it on an annual basis via the "disclosure website." the conflict of interest subcommittee of naspghan, a related organization, made up of the chair of clinical care and quality, chair of ethics, and chair of professional development reviews all submitted disclosures. If a conflict exists, participation in board activity may be limited or prohibited.”

Form 990, Part VI, Section B, Line 15

“Compensation for the foundation's executive director is set by naspghan, a related organization. Compensation for the development director is determined and reviewed by the foundation board based on industry standards and performance evaluation and review.”

Form 990, Part VI, Section C, Line 19

“They are available upon request and for inspection at the organization's office.”

Filing and Contact Details

Filer

Filer Name
The Naspghan Foundation
EIN
76-0585072
Phone
2156419800
Address
714 N BETHLEHEM PIKE 300, AMBLER, PA 19002

Signing Officer

Name
Celena T Nuquay
Title
Executive Director
Phone
2156419800
Signed
2025-12-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Celena T Nuquay
Formed
1988
Legal Domicile
TX
Voting Board Members
17
Independent Board Members
17
Employees
0
Volunteers
60

Preparer

Firm
Mckonly & Asbury Llp
Address
415 FALLOWFIELD ROAD, CAMP HILL, PA 17011
Preparer
James P Shellenberger
Phone
7177617910
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Form 990, Page 3, Line 12A

“The audit of the organization's financial statements has not yet been finalized for 2024. Therefore, this form 990 includes unaudited numbers.”

Financial Statement Notes

PART V, LINE 4:

“Intended use for endowment funds: it consists of two endowments, both were received from pharmaceutical companies. The investment income for each endowment fund is restricted for the following purposes: (1) the investment income from $1,500,000 is restricted for innovative research awards. (2) the investment income from $1,000,000 is restricted for research grants in acid-peptic disorders.”

PART X, LINE 2:

“The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and a similar section in the pennsylvania revenue code. Therefore there is no provision or liability for income taxes is included in the accompanying financial statements. In addition, the organization qualifies for the charitable contribution deduction under section 170(b)(1)(a) and has been classified as an organization that is not a private foundation under section 509(a)(2). Accounting principles generally accepted in the united states of america require management to evaluate tax positions taken by the foundation, including whether the entity is exempt from income taxes. Management evaluated the tax positions taken and concluded that the foundation had taken no uncertain tax positions that require recognition or disclosure in the financial statements. Therefore, no provision or liability for income taxes has been included in these financial statements. With few exceptions, the foundation is no longer subject to income tax examinations by the u.s. Federal, state, or local tax authorities for years before december 31, 2021.”

Raw XML AppendixShowing 400 of 675 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0GRANTS AND AWARDS:(1) NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE DISEASES OF THE GASTROINTESTINAL TRACT, LIVER OR PANCREASE AND NUTRITIONAL DISORDERS IN CHILDREN.(2) NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATOR DEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. THIS GRANT, GENEROUSLY SUPPORTED BY MEAD JOHNSON, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL RESEARCH PROJECT RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE.(3) NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INC RESEARCH INNOVATION AWARD:- THIS GRANT IS OFFERED IN ODD NUMBERED YEARS. THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR INNOVATIVE, HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATE SCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HAS THE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTS AT ANY CAREER LEVEL MAY APPLY.(4) NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES:- THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR STUDIES FOCUSED ON THE EPIDEMIOLOGY, PATHOGENESIS, NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISORDERS AND OTHER DISEASES OF THE UPPER GASTROINTESTINAL TRACT IN CHILDREN. DISEASES THAT ARE RELEVANT TO THIS ANNOUNCEMENT INCLUDE, BUT ARE NOT LIMITED TO GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC (ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPER GASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUT ULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES. APPLICANTS AT ANY CAREER LEVEL MAY APPLY.(5) NASPGHAN FOUNDATION MID-LEVEL CAREER DEVELOPMENT AWARD:THIS MID-LEVEL CAREER DEVELOPMENT AWARD IS FOR NASPGHAN MEMBERS PURSUING RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION AND ARE AT A MID-LEVEL IN THEIR CAREER. MID-LEVEL IS DEFINED AS A FACULTY MEMBER WHO HAS HELD A FACULTY APPOINTMENT FOR AT LEAST 6 YEARS AT THE TIME OF THE APPLICATION, BUT HAS NOT YET REACHED PROFESSOR LEVEL. THIS AWARD WILL PROVIDE UP TO $100,000 IN DIRECT FUNDING FOR 2 YEARS ($50,000 PER YEAR) FOR THE ADVANCEMENT OF RESEARCH CAREERS FOR APPLICANTS WITH SIGNIFICANT PROMISE IN THEIR MID-YEARS AS FACULTY. THE PROPOSAL MUST INCLUDE A FOCUSED AREA OF RESEARCH THAT WILL DIRECTLY ENHANCE THE APPLICANT'S ABILITY TO ACHIEVE FURTHER NATIONAL PEER-REVIEWED RESEARCH FUNDING AND RESULT IN SIGNIFICANT IMPACT ON GASTROINTESTINAL, NUTRITION AND LIVER HEALTH IN CHILDREN. BASIC, CLINICAL, TRANSLATIONAL, EPIDEMIOLOGIC, DISSEMINATION AND IMPLEMENTATION RESEARCH ARE ALL ENCOURAGED. THIS AWARD IS TO FOSTER EITHER A NEW AREA OF ENQUIRY OR TO PROVIDE PILOT DATA IN AN ONGOING AREA OF RESEARCH WITH SUBSTANTIAL POTENTIAL FOR NEW FUNDING.[6] NASPGHAN FOUNDATION/APGNN SUSAN MOYER NURSING RESEARCH GRANT:THIS ONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC GASTROENTEROLOGY, NUTRITION AND HEPATOLOGY NURSES TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL TO ADVANCE NURSING CARE OF PATIENTS AND FAMILIES OF CHILDREN WITH GASTROINTESTINAL, HEPATOBILIARY, OR NUTRITIONAL DISORDERS. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECTS TO STUDY THE NURSING CARE OFFAMILIES AND CHILDREN WITH PEDIATRIC GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS.[7]NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP TRAINING IN PEDIATRIC NUTRITION:THE AWAR
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IRS990/MissionDesc0THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSION OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS.
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL CAMPAIGNS:THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. TOPIC AREAS ARE REFLUX AND GERO, INFLAMMATORY BOWEL DISEASE, CELIAC DISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILIC ESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTH OUTCOMES BY EARLY DETECTION AND INTERVENTION. GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITH GIKIDS, ASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT IRECTLY TO AMILIES,KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDTIONS TO PROVIDE THEM WITH THE INFORMATION THEY NEED TO:-UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH-WORK WITH THEIR HEALTH CARE PROVIDERS-LIVE A MORE INDEPENDENT LIFE-UNDERSTAND WHAT WORKS IN PLAIN LANGUAGE"A PRACTICAL APPROACH TO NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES:TIPS FOR PATIENTS AND CAREGIVERS" WEBINAR AND ON DEMAND PROGRAM CHILDREN WITH CHOLESTATIC LIVER DISEASES HAVE UNIQUE NUTRITIONAL REQUIREMENTS.OBJECTIVES:1.OVERVIEW OF THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDRENWITH CHOLESTATIC LIVER DISORDERS.2.REVIEW CURRENT AVAILABLE FORMULATION AND PRACTICAL TIPS FOR THE CARE PROVIDER.3.REVIEW THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS, FORMULATIONS AND DISCUSSION.4.DISCUSS LACK OF INSURANCE COVER FOR MEDICAL FOOD, VITAMINS AND FINANCIAL BURDEN TO THE FAMILIES. HEPATITIS C SLIDE SET AND GRAND ROUNDS HCV INFECTION IS CHILDREN IS FREQUENTLY UNRECOGNIZED. RECENTLY PROPOSED UNIVERSAL TESTING STRATEGIES DURING PREGNANCY NEED TO BEIMPLEMENTED. ALTHOUGH LIVER DISEASE IS GENERALLY MILD IN CHILDREN, CHRONIC HEPATITIS AND CIRRHOSIS OCCURS. DIRECT ACTIVE ANTIVIRALS ARE VERY EFFICACIOUS AND SAFE. THEREFORE, ALL HCV INFECTED CHILDREN> 3 YEARS OF AGE SHOULD BE CONSIDERED FOR TREATMENT. PUBLIC AND PROFESSIONAL EDUCATION IS CRITICALLY IMPORTANT TO INCREASE HCV AWARENESS. THE FOUNDATION DEVELOPED A SLIDE DECK AND GRAND ROUNDS PROGRAM TO INCREASE AWARENESS REGARDING TESTING ANDMANAGEMENT OF HCV. "NUTRITION AND LIVER DISEASE IN PEROXISOMAL BIOGENESIS DISORDERS: DIAGNOSIS AND MANAGEMENT" NASPGHAN NUTRITION UNIVERSITY (N2U) THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION TO 3RD YEAR FELLOWS, JUNIOR FACULTY AND DIETITIANS. IT TARGETS TWO GROUPS: CANDIDATES WHO RECEIVED MINIMAL NUTRITION EDUCATION DURING THEIR FELLOWSHIP OR WHOM PLAN TO PURSUE PEDIATRIC NUTRITION AS THEIR CAREER FOCUS.TEACHING AND TOMORROW UNDERREPRESENTED IN MEDICINE (URIM) PROGRAM THE PEDIATRIC GI TEACHING AND TOMORROW PROGRAM OF NASPGHAN STRIVES TO ATTRACT THE BRIGHTEST RESIDENTS TO SUBSPECIALTY TRAINING IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. DUE TO THE EXCELLENT INTEREST IN THIS INNOVATIVE NASPGHAN PROGRAM, WE HAVE SEEN CONTINUAL GROWTH IN THE INTEREST AND APPLICATIONS TO GI TRAINING PROGRAMS THROUGH THE YEARS. THIS PROGRAM HAS BEEN RECENTLY EXPANDED TO PROVIDE SCHOLARSHIPS TO INTERESTED 1ST AND 2ND YEAR PEDIATRIC RESIDENTS AND 4TH YEAR MEDICAL STUDENTS WHO SELF-IDENTIFY AS UNDERREPRESENTED IN MEDICINE (URIM). IN ADDITIONTO NETWORKING WITH OTHER PARTICIPANTS WHILE ATTENDING THE PROGRAM'S SCHEDULED SESSIONS,THE URIM PROGRAM ATTENDEES ARE MATCHED UP WITH A NASPGHAN FELLOW AND/OR ATTENDING PHYSICIAN (A TEACHING AND TOMORROW PROGRAM ALUMNUS) WHO SERVES AS A POINT OF CONTACT AND AMBASSADOR TO THE ANNUAL MEETING. URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM THE URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM TAKES PLACE AT MUL
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IRS990/ProgSrvcAccomActy3Grp/Desc0WEBINARS AND ON-DEMAND EDUCATIONAL MODULES EGIDS: BEYOND THE ESOPHAGUS. EGIDS ARE A COLLECTION OF CHRONIC INFLAMMATORY DISEASES INCLUDING EOSINOPHILIC ESOPHAGITIS (EOE), EOSINOPHILIC GASTRITIS (EG) EOSINOPHILIC GASTROENTERITIS(EGE), AND EOSINOPHILIC COLITIS (EC). AMONG THE EGIDS, EOE HAS BECOME AN INCREASINGLY RECOGNIZED AND STUDIED CONDITION. VALIDATED METRICS HAVE BEEN ESTABLISHED TO QUANTIFY QUALITY OF LIFE, SYMPTOMS, HISTOLOGIC AND ENDOSCOPIC FINDINGS. IN ADDITION, THERE ARE WELL-ESTABLISHED, EFFECTIVETREATMENTS. THE SAME CANNOT BE SAID FOR EG, EGE, OR EC, WHICH LACKS WELL ESTABLISHED HISTOLOGIC CRITERIA FOR DIAGNOSIS, AND HAS A MORE UNCLEAR NATURAL HISTORY, NOR WELL-ESTABLISHED TREATMENTS. EGIDS: BEYOND THE ESOPHAGUS BRINGS TO LIGHT THE LATEST ON NON-EOE EGID, INCLUDING THE SIGNS AND SYMPTOMS; THE CRITERIA TO MAKE A DIAGNOSIS; WHAT OPTIONS EXIST FOR THERAPY,AND THE POTENTIAL MECHANISMS OF DISEASE. PRACTICAL TIPS IN THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISORDERS: A WEBINAR FOR PATIENTS, FAMILIES AND CAREGIVERS.THIS WEBINAR EXPLORES PRACTICAL APPROACHES TO THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES, WITH SPECIAL TIPS FOR PATIENTS AND CAREGIVERS. PARTICIPANTS LEARN THECLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS, BECOME ACQUAINTED WITH DIFFERENCES AMONG THE CURRENTLY AVAILABLE FORMULATION TO SUPPORT NUTRITION IN CHOLESTATIC BABIES, AND THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS AND FORMULATIONS. THE LACK OF INSURANCE COVERAGE FORMEDICAL FOOD AND VITAMINS IS ALSO DISCUSSED.
IRS990/ProgSrvcAccomActyOtherGrp/Desc0CHILDREN WITH CHOLESTATIC LIVER DISEASE : DIAGNOSTICS, MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN:MAXIMIZING TREATMENT AND IMPROVING OUTCOMES, REMOVING DIETING FROM DIET THERAPIES IN PEDIATRIC GI, THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES, CHILDREN WITH CHOLESTATIC LIVER DISEASE: PRURITIS MANAGEMENT, NASPGHAN FELLOWS TOOLBOX WEBSITE, BOWEL SOUNDS EPISODES ON EARLY NUTRITION. CHOLESTATIC JAUNDICE IS A RARE PRESENTATION OF VARIOUS HEPATOBILIARY, METABOLIC, AND GENETIC DISORDERS . CHOLESTASIS TYPICALLY PRESENTS IN THENEONATAL/ INFANTILE PERIOD BUT CAN ALSO PRESENT LATE IN OLDER CHILDREN OR EVEN ADULTS . EARLY DIAGNOSIS AND APPROPRIATE MANAGEMENT OF THE UNDERLYING CONDITION ARE OF PARAMOUNT IMPORTANCE FOR OPTIMAL PROGNOSIS . DIAGNOSIS OF CHOLESTASIS NEEDS AN ARRAY OF INVESTIGATIONS INCLUDING BLOOD TESTS, IMAGING, GENETIC TESTING, AND INVASIVE PROCEDURES LIKE LIVER BIOPSY . LIVER BIOPSY IS ONE OF THE CENTRAL CRUCIAL INVESTIGATIONS DONE IN EVALUATING CHILDREN WITH CHOLESTASIS, HOWEVER, CAN BE ASSOCIATED WITH COMPLICATIONS INCLUDING BLEEDING . UNDERSTANDING WHEN TO USE A LIVER BIOPSY IN CHILDREN WITH CHOLESTASIS ALONG WITH ITS LIMITATIONS IS EXTREMELY IMPORTANT TO GAIN THE MAXIMUM BENEFIT OUT OF AN INVASIVE PROCEDURE. OVER THE LAST DECADE, THE GROWTH IN GENETIC TECHNIQUES AND THE IDENTIFICATION OF NEW GENES LEADING TO CHOLESTASIS IN CHILDREN HAVEEVOLVED SIGNIFICANTLY AND HAVE LED TO THE SHRINKING OF THE UNIDENTIFIED ETIOLOGIES. THIS WEBINAR ADDRESSES THE RAPIDLY EVOLVING FIELD OF GENETIC CHOLESTASIS AND WHEN TO PERFORM A LIVER BIOPSY,ITS UTILITY, AND LIMITATIONS. MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN : MAXIMIZINGTREATMENT AND IMPROVING OUTCOMES CHRONIC PANCREATITIS (CP) IN CHILDREN IS ASSOCIATED WITH SIGNIFICANT MORBIDITY AND POOR QUALITY OF LIFE . THE INCIDENCE OF CP IN CHILDREN HAS RISEN OVER THE PAST FEW DECADES AND IS APPROACHING THAT SEEN IN THE ADULT POPULATION . CP IS AN INFLAMMATORY DISEASE RESULTING IN IRREVERSIBLE CHANGES IN THE PANCREAS INCLUDING ACINAR CELL LOSS, FIBROSIS, DUCTAL CHANGES, AND CALCIFICATIONS . PATIENTS WITH CP MAY SUFFER FROM ABDOMINAL PAIN AND COMPLICATIONS OF EXOCRINE PANCREATIC INSUFFICIENCY (EPI) AND DIABETES MELLITUS . MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN : MAXIMIZING TREATMENT AND IMPROVINGOUTCOMES BRINGS TOGETHER LEADING EXPERTS TO DISCUSS HOW TO ENSURE THAT CHILDHOOD CP IS RECOGNIZED EARLY AND ITS SEQUALAE TREATED PROMPTLY . REMOVING DIETING FROM DIET THERAPIES IN PEDIATRIC GI OBESITY WAS DECLARED AN EPIDEMIC BY THE CDC IN THE 1990S, YET SIGNIFICANT AND SUSTAINED WEIGHT LOSS CONTINUES TO BE PROBLEMATIC FOR AMERICANS AS A POPULATION . CRITICAL FACTORS ARE OFTEN OVERLOOKED WHEN ADDRESSING OBESITY SUCH AS RACIAL DISCRIMINATION, DISABILITY STATUS, AND ENVIRONMENTAL FACTORS. IN CONJUNCTION, "WEIGHT STIGMA", OR BIAS THAT DEVALUES PEOPLE WITH LARGER BODIES, CAN CAUSE INCREASED MORBIDITY AND MORTALITY, INDEPENDENT OF BMI. AS A RESPONSE, A MOVEMENT IS TAKING PLACE, KNOWN BY SEVERAL NAMES INCLUDING "ANTI-DIET OR "INTUITIVE EATING". THIS IS AN INCLUSIVE MOVEMENT THAT RECOGNIZES ONE'S SIZE AS PART OF HIS OR HER IDENTITY AS MUCH AS RACE, NATIONAL ORIGIN, AND SEXUALITY. IT CONSIDERS SOCIAL, ECONOMIC, AND PHYSICAL BARRIERS TO OBESITY, RATHER THAN ASSUMING LACK OF WILLPOWER OR EDUCATION ARE THECAUSE . IT'S ABOUT RECOGNIZING "DIET CULTURE AND DISMANTLING THE ANTI-FAT AND PRO-THIN MESSAGES THAT INFILTRATE SOCIETY . THIS INFORMATIVE AND INTERACTIVE WEBINAR HELPS HEALTHCARE PROVIDERSRECOGNIZE WEIGHT STIGMA AND PROMOTE A POSITIVE RELATIONSHIP WITH FOOD, PARTICULARLY IN PATIENTS WITH GI-RELATED HEALTH CONDITIONS AND THOSE FOLLOWING THERAPEUTIC DIETS. THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES : PART ONE UNDERSTANDING NORMAL GROWTH AND DEVELOPMENT IS CRITICALLY ESSENTIAL FOR QUICK RECOGNITION AND INTERVENTION FOR DEVIATIONS IN CHILDHOOD GROWTH AND NUTRIENT INTAKE PRACTICES ASSOCIATED WITH INCREASE
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