Civic Intelligence

The Naspghan Foundation

990 • Fiscal year 2020 • EIN 76-0585072

Jan 01, 2020 to Dec 31, 2020 • Filed on Sep 20, 2021

Organization ProfileWWW.NASPGHAN.ORG/CONTENT/84/EN/FOUNDATION/ABOUT
714 N Bethlehem Pike No 300Ambler, PA 19002

(215) 641-9800

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

52nd percentile

0.19x

Higher debt load relative to assets than 52% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Liabilities / Revenue

76th percentile

0.68x

Higher debt load relative to revenue than 76% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Net Margin

82nd percentile

30%

Higher net margin than 82% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Top Officer Pay

72nd percentile

$181,964

Higher top officer pay than 72% of similar nonprofits.

Top officer pay equals 11.8% of source-year revenue.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2020

Asset Growth

68th percentile

15%

Faster asset growth than 68% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2019 to 2020

Revenue Growth

38th percentile

-3.1%

Faster revenue growth than 38% of similar nonprofits.

2020 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets52nd percentile

Assets

Up

$5,610,869

Up $741,293 (+15%) from 2019

Net Assets

Up

$4,558,658

Up $639,662 (+16%) from 2019

Liabilities

Up

$1,052,211

Up $101,631 (+11%) from 2019

Revenue And Expenses
Liabilities / Revenue76th percentileNet Margin82nd percentile

Revenue

Down

$1,544,768

Down $49,835 (-3.1%) from 2019

Expenses

Down

$1,085,923

Down $221,329 (-17%) from 2019

Net Income

Up

$458,845

Up $171,494 (+60%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth68th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2010: $4,217,937Liabilities 2010: $1,304,144Net Assets 2010: $2,913,7932010Assets 2011: $3,872,828Liabilities 2011: $993,448Net Assets 2011: $2,879,3802011Assets 2012: $4,314,002Liabilities 2012: $1,417,338Net Assets 2012: $2,896,6642012Assets 2013: $4,067,332Liabilities 2013: $988,862Net Assets 2013: $3,078,4702013Assets 2014: $4,108,702Liabilities 2014: $954,786Net Assets 2014: $3,153,9162014Assets 2015: $4,293,861Liabilities 2015: $1,186,791Net Assets 2015: $3,107,0702015Assets 2016: $4,561,907Liabilities 2016: $1,235,592Net Assets 2016: $3,326,3152016Assets 2017: $4,421,521Liabilities 2017: $1,013,676Net Assets 2017: $3,407,8452017Assets 2018: $4,502,389Liabilities 2018: $1,237,472Net Assets 2018: $3,264,9172018Assets 2019: $4,869,576Liabilities 2019: $950,580Net Assets 2019: $3,918,9962019Assets 2020: $5,610,869Liabilities 2020: $1,052,211Net Assets 2020: $4,558,6582020Assets 2021: $6,522,780Liabilities 2021: $1,200,434Net Assets 2021: $5,322,3462021Assets 2022: $6,677,645Liabilities 2022: $1,431,689Net Assets 2022: $5,245,9562022Assets 2023: $7,458,927Liabilities 2023: $1,785,821Net Assets 2023: $5,673,1062023Assets 2024: $8,213,426Liabilities 2024: $1,756,363Net Assets 2024: $6,457,0632024

Highlighted filing

2020

Assets$5,610,869
Liabilities$1,052,211
Net Assets$4,558,658
Open 2020 Filing

Operations Trend

Revenue Growth38th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,529,0712010Revenue 2011: $1,107,751Expenses 2011: $1,112,855Net Income 2011: -$5,1042011Expenses 2012: $1,239,4352012Revenue 2013: $1,384,722Expenses 2013: $1,250,314Net Income 2013: $134,4082013Revenue 2014: $1,408,074Expenses 2014: $1,310,503Net Income 2014: $97,5712014Revenue 2015: $1,196,576Expenses 2015: $1,104,860Net Income 2015: $91,7162015Revenue 2016: $1,469,708Expenses 2016: $1,321,081Net Income 2016: $148,6272016Revenue 2017: $1,069,272Expenses 2017: $1,183,802Net Income 2017: -$114,5302017Revenue 2018: $1,261,701Expenses 2018: $1,178,150Net Income 2018: $83,5512018Revenue 2019: $1,594,603Expenses 2019: $1,307,252Net Income 2019: $287,3512019Revenue 2020: $1,544,768Expenses 2020: $1,085,923Net Income 2020: $458,8452020Revenue 2021: $1,880,637Expenses 2021: $1,235,543Net Income 2021: $645,0942021Revenue 2022: $1,995,391Expenses 2022: $1,511,688Net Income 2022: $483,7032022Revenue 2023: $1,825,546Expenses 2023: $1,721,379Net Income 2023: $104,1672023Revenue 2024: $2,269,887Expenses 2024: $1,855,146Net Income 2024: $414,7412024

Highlighted filing

2020

Revenue$1,544,768
Expenses$1,085,923
Net Income$458,845
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Sep 20, 2021
Return Version
2020v4.1
Gross Receipts
$2,757,018
Mission and Program Overview

Mission

See schedule o statement[1] to fund and promote research and educational programs that will advance the creation, application, and dissemination of knowledge of gastrointestinal, hepatobiliary, pancreatic and nutritional disorders in children.[2] to identify, encourage, support, and coordinate scientific research and professional study of these pediatric disorders.[3] to strengthen the role of pediatric gastrointestinal and nutritional scientists as leaders in research and education in these medical and health care fields.[4] to evaluate and improve the quality and availability of medical care for children with digestive disorders.[5] to support the research and educational programs of its parent organization (north american society for pediatric gastroenterology hepatology and nutrition inc.)

Funds & supports research and education missions of naspghan.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,529,536$3,794,097▲ $264,561
Savings and Temporary Cash Investments$810,095$1,114,544▲ $304,449
Pledges and Grants Receivable$179,416$397,304▲ $217,888
Cash and Non-Interest-Bearing Accounts$332,638$291,826▼ $40,812
Prepaid Expenses and Deferred Charges$17,891$13,098▼ $4,793
Total Assets$4,869,576$5,610,869▲ $741,293
Liabilities
Grants Payable$859,540$1,013,250▲ $153,710
Accounts Payable and Accrued Expenses$91,040$38,961▼ $52,079
Total Liabilities$950,580$1,052,211▲ $101,631
Net Assets / Fund Balance
Net Assets With Donor Restrictions$3,153,183$3,445,281▲ $292,098
Net Assets Without Donor Restrictions$765,813$1,113,377▲ $347,564
Total Net Assets Fund Balance$3,918,996$4,558,658▲ $639,662
Total Liabilities and Net Assets / Fund Balance$4,869,576$5,610,869▲ $741,293

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2020$2,423,819-▲ $198,607-$2,472,426
2019$2,312,696-▲ $261,123-$2,423,819
2018$2,500,000-▼ $87,817-$2,312,696
2017$2,500,000---$2,500,000
2016$2,500,000---$2,500,000
Compensation and Service Providers
Top Officer Pay72nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Margaret StallingsExecutive DirectorPT$50,000$131,964$50,000

Board Members and Trustees

NameTitle
Barry Wershil MdPast President
Menno Verhave MdPresident
Benjamin Gold MdDirector
Jeannie Huang Md MphDirector
Joel Rosh MdDirector
Karen Murray MdDirector
Marjorie MerrickDirector
Patricia Robuck Phd MphDirector
Praveen Goday MdDirector
Vicky Ng MdDirector
Ann Scheimann Md MbaSecretary - Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,387,107
Program Service Revenue
$0
Investment Income
$157,661
Other Revenue
$0
All Other Contributions
$1,162,107
Change in Net Assets
$458,845

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,544,768
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$157,348
Total Revenue per Audited Statements
$1,702,116
Total Revenue per Form 990
$1,544,768
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$732,057
Other Expenses$234,577
Salaries, Compensation, and Employee Benefits$119,289
Total Fundraising Expense$42,398
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$717,057--$717,057
Other Salaries and Wages$38,737$11,146$17,427$67,310
Current Officers, Directors, Trustees, and Key Employees$28,775$8,280$12,945$50,000
Fees for Services Other$8,447$13,614$9,015$31,076
Fees for Service Investment Mgmnt Fees-$23,469-$23,469
Occupancy$15,314$4,375$2,188$21,877
Grants to Domestic Orgs$15,000--$15,000
Other Expenses$67$4,423$10$4,500
Insurance$2,111$603$301$3,015
Payroll Taxes$1,139$328$512$1,979
Information Technology-$1,343-$1,343
Total Functional Expenses$975,944$67,581$42,398$1,085,923

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,085,923
Expenses per Audited Statements$1,062,454
Total Expenses per Audited Statements$1,062,454
Expenses Not Reported on Financial Statements$23,469
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
North American Soc for Pediatric Gastroenterology Hepatology & NutritionAmbler, PA501(c)(3)General Support$15,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Governing body review of form 990 prior to its filing with the irs, a copy of the form 990 is reviewed by board of directors either electronically or at annual board meeting.”

Form 990, Part VI, Section B, Line 12C

“Monitoring and enforcement of conflicts policy all foundation officers and directors are required to complete a conflict of interest disclosure and update it on an annual basis via the "disclosure website". The conflict of interest subcommittee of naspghan, a related organization, made up of the chair of clinical care and quality, chair of ethics, and chair of professional development reviews all submitted disclosures. If a conflict exists, participation in board activity may be limited or prohibited.”

Form 990, Part VI, Section B, Line 15

“Compensation for the foundation's executive director is set by naspghan, a related organization. Compensation for the development director is determined and reviewed by the foundation board based on industry standards and performance evaluation and review.”

Form 990, Part VI, Section C, Line 19

“Public availability of other documents they are available upon request and for inspection at the organization's office.”

Filing and Contact Details

Filer

Filer Name
The Naspghan Foundation
EIN
76-0585072
Phone
2156419800
Address
714 N BETHLEHEM PIKE NO 300, AMBLER, PA 19002

Signing Officer

Name
Margaret Stallings
Title
Executive Director
Phone
2152330808
Signed
2021-09-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Menno Verhave
Formed
1988
Legal Domicile
TX
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
150

Preparer

Firm
Bbd Llp
Address
1835 MARKET STREET 3RD FLOOR, PHILADELPHIA, PA 19103
Preparer
Jennifer Solot
Phone
2155677770
Supplemental Narrative

Additional Explanations

SCHEDULE R, PART II, COLUMN B, NASPGHAN'S PRIMARY ACTIVITY:

“The mission of the north american society for pediatric gastroenterology, hepatology and nutrition is to advance the understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.”

Financial Statement Notes

PART V, LINE 4:

“Intended use of the endowment funds it consists of two endowments, both were received from pharmaceutical companies. The investment income for each endowment fund is restricted for the following purposes: [1]the investment income from $1,500,000 is restricted for innovative research awards. [2]the investment income from $1,000,000 is restricted for research grants in acid-peptic disorders.”

PART X, LINE 2:

“Uncertain tax positions under asc 740 gaap requires entities to evaluate, measure, recognize and disclose any uncertain income tax positions taken on their tax returns. Gaap prescribes a minimum recognition threshold that a tax position is required to meet in order to be recognized in the financial statements. The foundation believes that it had no uncertain tax positions as defined in gaap.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Investment expenses -23,469.”

Raw XML AppendixShowing 400 of 569 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0GRANTS AND AWARDS:[1] NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATORDEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORTRESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO ANINDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGYOR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCHPROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE DISEASES OF THEGASTROINTESTINAL TRACT, LIVER OR PANCREAS AND NUTRITIONAL DISORDERS INCHILDREN.SEE SCHEDULE O FOR CONTINUATIONS[2] NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATORDEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORTRESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO ANINDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGYOR NUTRITION. THIS GRANT, GENEROUSLY SUPPORTED BY NESTLE NUTRITIONINSTITUTE, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL RESEARCHPROJECT RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE.[3] NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INCRESEARCH INNOVATION AWARD:- THIS GRANT IS OFFERED IN ODD NUMBERED YEARS. THIS GRANT WILL PROVIDE$75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR INNOVATIVE,HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY ANDNUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATESCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HASTHE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTSAT ANY CAREER LEVEL MAY APPLY.[4] NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES:- THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL$150,000) FOR STUDIES FOCUSED ON THE EPIDEMIOLOGY, PATHOGENESIS,NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISORDERSAND OTHER DISEASES OF THE UPPER GASTROINTESTINAL TRACT IN CHILDREN.DISEASES THAT ARE RELEVANT TO THIS ANNOUNCEMENT INCLUDE, BUT ARE NOTLIMITED TO GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC(ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPERGASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUTULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES.APPLICANTS AT ANY CAREER LEVEL MAY APPLY.[5] NASPGHAN FOUNDATION MID-LEVEL CAREER DEVELOPMENT AWARD - THISMID-LEVEL CAREER DEVELOPMENT AWARD IS FOR NASPGHAN MEMBERS PURSUINGRESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION ANDARE AT A MID-LEVEL IN THEIR CAREER. MID-LEVEL IS DEFINED AS A FACULTYMEMBER WHO HAS HELD A FACULTY APPOINTMENT FOR AT LEAST 6 YEARS AT THETIME OF THE APPLICATION, BUT HAS NOT YET REACHED PROFESSOR LEVEL. THISAWARD WILL PROVIDE UP TO $100,000 IN DIRECT FUNDING FOR 2 YEARS($50,000 PER YEAR) FOR THE ADVANCEMENT OF RESEARCH CAREERS FORAPPLICANTS WITH SIGNIFICANT PROMISE IN THEIR MID-YEARS AS FACULTY. THEPROPOSAL MUST INCLUDE A FOCUSED AREA OF RESEARCH THAT WILL DIRECTLYENHANCE THE APPLICANT'S ABILITY TO ACHIEVE FURTHER NATIONALPEER-REVIEWED RESEARCH FUNDING AND RESULT IN SIGNIFICANT IMPACT ONGASTROINTESTINAL, NUTRITION AND LIVER HEALTH IN CHILDREN. BASIC,CLINICAL, TRANSLATIONAL, EPIDEMIOLOGIC, DISSEMINATION ANDIMPLEMENTATION RESEARCH ARE ALL ENCOURAGED. THIS AWARD IS TO FOSTEREITHER A NEW AREA OF ENQUIRY OR TO PROVIDE PILOT DATA IN AN ONGOINGAREA OF RESEARCH WITH SUBSTANTIAL POTENTIAL FOR NEW FUNDING.[6] NASPGHAN FOUNDATION/APGNN SUSAN MOYER NURSING RESEARCH GRANT - THISONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC GASTROENTEROLOGY, NUTRITIONAND HEPATOLOGY NURSES TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THEPOTENTIAL TO ADVANCE NURSING CARE OF PATIENTS AND FAMILIES OF CHILDRENWITH GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONALDISORDERS. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCHPROJECTS TO STUDY THE NURSING CARE OF FAMILIES AND CHILDREN WITHPEDIATRIC GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONALDISORDERS.[7] NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP TRAININGIN PEDIATRIC NUTRITION -
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IRS990/Form990PartVIISectionAGrp/PersonNm10JOEL ROSH MD
IRS990/Form990PartVIISectionAGrp/PersonNm11MARGARET STALLINGS
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IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11EXECUTIVE DIRECTOR
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IRS990/MissionDesc0THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSIONS OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS.
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IRS990/OtherExpensesGrp/Desc0EDUCATION MATERIALS
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL CAMPAIGNS:THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH ADIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES.TOPIC AREAS ARE REFLUX AND GERD, INFLAMMATORY BOWEL DISEASE, CELIACDISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILICESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASEIN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TOEDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THEDEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARETO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTHOUTCOMES BY EARLY DETECTION AND INTERVENTION.GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITHGIKIDS, NASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT DIRECTLYTO FAMILIES, KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDITIONS TOPROVIDE THEM WITH THE INFORMATION THEY NEED TO:-UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH-WORK WITH THEIR HEALTH CARE PROVIDERS-LIVE A MORE INDEPENDENT LIFE-UNDERSTAND WHAT WORKS IN PLAIN LANGUAGE"EOSINOPHILIC GI DISEASES: BEYOND THE ESOPHAGUS" WEBINAR AND ON DEMAND CME/MOC PROGRAMEOSINOPHILIC GASTRITIS (EG), GASTROENTERITIS (EGE) OR COLITIS (EC) ARE RARE DISEASES WITH VERY LITTLE KNOWN ABOUT EVEN THE MOST FUNDAMENTAL ASPECTS OF THE DISEASES. GIVEN THE DIFFICULTY IN RECOGNIZING THESE CONDITIONS AND THE GAPS IN OUR KNOWLEDGE, A WEBINAR PRESENTATION LED BY EXPERTS IN THE FIELD OF EGIDS IS TIMELY AND INFORMATIVE. TO FULFILL THESE MEDICAL PROFESSIONAL EDUCATIONAL NEEDS AND GAPS, NASPGHAN AND THE NASPGHAN FOUNDATION DEVELOPED A CME/MOC WEBINAR ON "EOSINOPHILIC GI DISEASES: BEYOND THE ESOPHAGUS". LEARNING OBJECTIVES:1.UNDERSTAND THE SIGNS AND SYMPTOMS OF EGIDS2.DEFINE THE CURRENT STATE OF THE BEST PRACTICES FOR THE DIAGNOSIS OF EGIDS3.UNDERSTAND THE PROPOSED MECHANISMS OF DISEASE4.DEFINE THE STATE OF THE ART FOR TREATMENT"A PRACTICAL APPROACH TO NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES: TIPS FOR PATIENTS AND CAREGIVERS" WEBINAR AND ON DEMAND PROGRAMCHILDREN WITH CHOLESTATIC LIVER DISEASES HAVE UNIQUE NUTRITIONAL REQUIREMENTS. OBJECTIVES: 1.OVERVIEW OF THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS.2.REVIEW CURRENT AVAILABLE FORMULATION AND PRACTICAL TIPS FOR THE CARE PROVIDER.3.REVIEW THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS, FORMULATIONS AND DISCUSSION 4.DISCUSS LACK OF INSURANCE COVER FOR MEDICAL FOOD, VITAMINS AND FINANCIAL BURDEN TO THE FAMILIES."ADVANCES IN DIAGNOSIS AND TREATMENT OF ALAGILLE SYNDROME" WEBINAR AND ON DEMAND CME/MOC PROGRAMALAGILLE SYNDROME (ALGS) IS AN AUTOSOMAL DOMINANT MULTISYSTEM DISORDER CHARACTERIZED BY BILE DUCT PAUCITY AND CHOLESTASIS ALONG WITH MANIFESTATIONS IN OTHER ORGAN SYSTEMS. SINCE THE DISCOVERY OF JAG1 AS THE FIRST DISEASE GENE FOR ALGS IN 1997, MAJOR ADVANCES HAVE BEEN MADE IN THE UNDERSTANDING OF THE PATHOPHYSIOLOGY AND NATURAL HISTORY OF THIS COMPLEX DISORDER. TO FULFILL THESE MEDICAL PROFESSIONAL EDUCATIONAL NEEDS AND GAPS, NASPGHAN DEVELOPED A CME WEBINAR ON "ADVANCES IN DIAGNOSIS AND TREATMENT OF ALAGILLE SYNDROME" OBJECTIVES: 1. TO DEFINE ALAGILLE SYNDROME AND ITS CLINICAL MANIFESTATIONS 2. TO UNDERSTAND THE CURRENT STATE OF THE ART IN GENETIC DIAGNOSIS FOR ALGS, INCLUDING THE STRENGTHS AND LIMITATIONS OF DIAGNOSTIC MODALITIES INCLUDING NEXT GENERATION SEQUENCING PANELS, WHOLE EXOME AND WHOLE GENOME SEQUENCING. 3. TO DISCUSS THE ROLE OF GENETIC MODIFIERS IN LIVER DISEASE SEVERITY IN ALGS. 4. TO UNDERSTAND VARIABILITY IN CLINICAL PRESENTATIONS IN PATIENTS PRESENTING WITH JAG1 AND NOTCH2 MUTATIONS."NEW FRONTIERS IN THE SCIENCE AND PRACTICE OF PARENTERAL NUTRITION." WEBINAR AND ON DEMAND CME/MOC PROGRAMWE ALSO NEED MORE EDUCATION FOR PEDIATRIC GASTROENTEROLOGY SPECIALISTS NEED MORE EDUCATION BECAUSE THE NUMBER OF PATIENTS WITH INTESTINAL FAILURE SEEMS TO BE INCREASING AND MAY NEED TO HAVE TO
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0227513
IRS990/ProgSrvcAccomActy3Grp/Desc0OTHER PROGRAM SERVICES:[1] CONSTIPATION CARE PACKAGE - INFORMATION FOR DOCTORS, NURSES AND PATIENTS REGARDING THE TREATMENT AND MANAGEMENT OF CONSTIPATION.[2] PSC WEBINAR - TO EDUCATE PATIENTS, FAMILIES AND CAREGIVERS ABOUT THE DIAGNOSIS AND TREATMENT OF AUTOIMMUNE LIVER DISEASES IN PEDIATRIC PATIENTS.-TO REVIEW STRESS MANAGEMENT, COPING, NUTRITIONAL, LEGAL AND ADVOCACY ISSUES.
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IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt02500000
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IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt02500000
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IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0INTENDED USE OF THE ENDOWMENT FUNDS IT CONSISTS OF TWO ENDOWMENTS, BOTH WERE RECEIVED FROM PHARMACEUTICAL COMPANIES. THE INVESTMENT INCOME FOR EACH ENDOWMENT FUND IS RESTRICTED FOR THE FOLLOWING PURPOSES: [1]THE INVESTMENT INCOME FROM $1,500,000 IS RESTRICTED FOR INNOVATIVE RESEARCH AWARDS. [2]THE INVESTMENT INCOME FROM $1,000,000 IS RESTRICTED FOR RESEARCH GRANTS IN ACID-PEPTIC DISORDERS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1UNCERTAIN TAX POSITIONS UNDER ASC 740 GAAP REQUIRES ENTITIES TO EVALUATE, MEASURE, RECOGNIZE AND DISCLOSE ANY UNCERTAIN INCOME TAX POSITIONS TAKEN ON THEIR TAX RETURNS. GAAP PRESCRIBES A MINIMUM RECOGNITION THRESHOLD THAT A TAX POSITION IS REQUIRED TO MEET IN ORDER TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS. THE FOUNDATION BELIEVES THAT IT HAD NO UNCERTAIN TAX POSITIONS AS DEFINED IN GAAP.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2INVESTMENT EXPENSES -23,469.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART V, LINE 4:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XI, LINE 2D - OTHER ADJUSTMENTS:
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IRS990ScheduleD/TotalRevenuePerForm990Amt01544768
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt175000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt27500
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt35000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt4150000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt5161294
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt6131014
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt72455
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt89794
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt975000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0MID-LEVEL CAREER DEVELOPMENT AWARD
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt1NUTRITION FELLOWSHIP
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt2INNOVATIVE RESEARCH AWARD
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt3APGNN GRANT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt4YOUNG INVESTIGATOR GRANT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt5NESTLE NUTRITION AWARD
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt6ASTRAZENECA RESEARCH AWARD
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt7OTHER
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt8CLINICAL CARE AWARDS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt9ENDOSCOPY FELLOWSHIP
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt11
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt22
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt31
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt41
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt54
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt61

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,610,869
Liabilities
$1,052,211
Net assets
$4,558,658
Revenue
$1,544,768
Expenses
$1,085,923
Net income
$458,845
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$8.21$1.76$6.46$2.27$1.86$0.41
2023Detailed filing. Detailed filing data is available for this year.$7.46$1.79$5.67$1.83$1.72$0.10
2022Detailed filing. Detailed filing data is available for this year.$6.68$1.43$5.25$2.00$1.51$0.48
2021Detailed filing. Detailed filing data is available for this year.$6.52$1.20$5.32$1.88$1.24$0.65
2020Detailed filing. Detailed filing data is available for this year.$5.61$1.05$4.56$1.54$1.09$0.46
2019Detailed filing. Detailed filing data is available for this year.$4.87$0.95$3.92$1.59$1.31$0.29
2018Detailed filing. Detailed filing data is available for this year.$4.50$1.24$3.26$1.26$1.18$0.08
2017Detailed filing. Detailed filing data is available for this year.$4.42$1.01$3.41$1.07$1.18$0.11
2016Detailed filing. Detailed filing data is available for this year.$4.56$1.24$3.33$1.47$1.32$0.15
2015Detailed filing. Detailed filing data is available for this year.$4.29$1.19$3.11$1.20$1.10$0.09
2014Detailed filing. Detailed filing data is available for this year.$4.11$0.95$3.15$1.41$1.31$0.10
2013Detailed filing. Detailed filing data is available for this year.$4.07$0.99$3.08$1.38$1.25$0.13
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.31$1.42$2.90$1.24
2011Summary only. Only limited summary data is available for this year.$3.87$0.99$2.88$1.11$1.11$0.01
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.22$1.30$2.91$1.53