Alliance for Aging Research

Filing Period

Jul 1, 2012 to Jun 30, 2013

Signed

Apr 29, 2014

Return Version

2012v2.1

Gross Receipts

$1,911,239

Mission

Major Activities

Activity 2

Communications: the alliance for aging research disseminates information on aging-related health topics, conducts surveys, and provides online web-based information on issues impacting the aging community.

Activity 3

Public policy: the alliance for aging research believes that advances in research help people live longer, happier, more productive lives and reduce healthcare costs over the long term. Access to the latest scientific information empowers people to take control of their health. The alliance strives to advance science and enhance lives through a variety of activities and initiatives that generate knowledge and action on age-related issues. Coalitions: the alliance builds coalitions of diverse organizations and individuals to bring visibility and support to health research and its goals, including: accelerate cure/treatments for alzheimers disease (act-ad), www.act-ad.org, is a coalition of 50 national organizations committed to accelerating the research and development of better treatments and potential cures for alzheimers disease. Act-ad supports accelerating research into transformational therapies to better treat and potentially slow, halt or reverse the progression of alzheimers disease. Aging in motion (aim), www.aginginmotion.org, is a diverse group of patient, caregiver, health and aging groups working together to press for greater levels of research and innovation to develop treatments in the area of sarcopenia and age-related functional decline. The aim coalition members are leading ongoing interactions with clinicians, regulators and policy influencers to overcome obstacles that impede the development and evaluation of promising treatments for sarcopenia and associated functional decline in people as they age. Additionally, the alliance serves as an active member of a number of coalitions, including those below (a full listing can be found at www.agingresearch.org): alliance for a stronger fda unites 185 patient groups, consumer advocates, biomedical research advocates, health professionals, and industry members in an effort to increase appropriations to the u.s. Food and drug administration (fda). It is supported by leading public health advocates, including three former secretaries of the department of health and human services and seven former fda commissioners. Friends of the national institute on aging (fonia) is a coalition of 50 academic institutions and patient organizations committed to the advancement of health sciences research that benefits millions of older americans. Friends of the nia supports the research and training missions of the nia, and advocates for nia initiatives as public policies in health and research take shape. The partnership to improve patient care was formed in november 2008 to ensure that proposals to expand the government's role in comparative effectiveness research (cer) are centered on patient and provider needs; raise awareness about the value of well-designed cer; and promote the important role of continued medical innovation as part of the solution to cost and quality challenges in health care. Regulatory education and action for patients (reap) is an umbrella coalition comprised of 52 patient advocacy groups whose mission is to communicate the challenges patients face in accessing care to federal and state policymakers. Reaps collective voice assures a wide range of patient concerns are considered in policy development to maximize care access and improved outcomes as well as minimize unintended consequences upon implementation. Reap, through its member entities, contributes information and perspectives regarding important health care decisions to a degree that has not been possible heretofore by health care advocacy groups in the regulatory arena.

Filer

EIN

54-1379174