Civic Intelligence

Answer Als

990 • Fiscal year 2023 • EIN 47-1643994

Jan 01, 2023 to Dec 31, 2023 • Filed on Feb 03, 2025

Organization ProfileWWW.ANSWERALS.ORG
2021 Lakeshore Drive Suite 304New Orleans, LA 70122

(800) 490-2375

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.01x

Higher debt load relative to assets than 16% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

14th percentile

0.01x

Higher debt load relative to revenue than 14% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

76th percentile

21%

Higher net margin than 76% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

22nd percentile

$0

Higher top officer pay than 22% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Asset Growth

72nd percentile

16%

Faster asset growth than 72% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

Score unavailable

No value available

A valid growth rate could not be computed from the available filing history.

Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets16th percentile

Assets

Up

$7,363,198

Up $1,008,861 (+16%) from 2022

Net Assets

Up

$7,325,482

Up $1,002,365 (+16%) from 2022

Liabilities

Up

$37,716

Up $6,496 (+21%) from 2022

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin76th percentile

Revenue

Up

$3,651,316

Up $3,663,365 (+30404%) from 2022

Expenses

Up

$2,890,451

Up $1,665,049 (+136%) from 2022

Net Income

Up

$760,865

Up $1,998,316 (+161%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth72nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2015: $280,264Liabilities 2015: $0Net Assets 2015: $280,2642015Assets 2016: $1,151,283Liabilities 2016: $0Net Assets 2016: $1,151,2832016Assets 2017: $2,069,660Liabilities 2017: $75,284Net Assets 2017: $1,994,3762017Assets 2018: $9,195,404Liabilities 2018: $451,928Net Assets 2018: $8,743,4762018Assets 2019: $8,202,383Liabilities 2019: $434,957Net Assets 2019: $7,767,4262019Assets 2020: $8,316,048Liabilities 2020: $19,499Net Assets 2020: $8,296,5492020Assets 2021: $7,757,258Liabilities 2021: $131,415Net Assets 2021: $7,625,8432021Assets 2022: $6,354,337Liabilities 2022: $31,220Net Assets 2022: $6,323,1172022Assets 2023: $7,363,198Liabilities 2023: $37,716Net Assets 2023: $7,325,4822023Assets 2024: $7,362,169Liabilities 2024: $464,664Net Assets 2024: $6,897,5052024

Highlighted filing

2023

Assets$7,363,198
Liabilities$37,716
Net Assets$7,325,482
Open 2023 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2015: $438,943Expenses 2015: $158,679Net Income 2015: $280,2642015Revenue 2016: $1,142,342Expenses 2016: $271,323Net Income 2016: $871,0192016Revenue 2017: $2,166,797Expenses 2017: $1,826,704Net Income 2017: $340,0932017Revenue 2018: $8,405,871Expenses 2018: $1,656,771Net Income 2018: $6,749,1002018Revenue 2019: $1,360,589Expenses 2019: $2,336,639Net Income 2019: -$976,0502019Revenue 2020: $2,276,502Expenses 2020: $1,747,379Net Income 2020: $529,1232020Revenue 2021: $1,800,662Expenses 2021: $2,468,582Net Income 2021: -$667,9202021Revenue 2022: -$12,049Expenses 2022: $1,225,402Net Income 2022: -$1,237,4512022Revenue 2023: $3,651,316Expenses 2023: $2,890,451Net Income 2023: $760,8652023Revenue 2024: $2,817,907Expenses 2024: $3,245,884Net Income 2024: -$427,9772024

Highlighted filing

2023

Revenue$3,651,316
Expenses$2,890,451
Net Income$760,865
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Feb 3, 2025
Return Version
2023v6.0
Gross Receipts
$4,441,498
Mission and Program Overview

Mission

To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with als until a treatment or cure is found; discover what causes als; develop models to understand als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$5,903,332$6,451,283▲ $547,951
Pledges and Grants Receivable$252,500$868,235▲ $615,735
Accounts Receivable$5,971$21,971▲ $16,000
Prepaid Expenses and Deferred Charges$1,836$5,732▲ $3,896
Land, Buildings, and Equipment, Net$168,147$4,982▼ $163,165
Total Assets$6,354,337$7,363,198▲ $1,008,861
Other Assets Total$22,551$10,995▼ $11,556
Liabilities
Accounts Payable and Accrued Expenses$9,174$27,361▲ $18,187
Other Liabilities$22,046$10,355▼ $11,691
Total Liabilities$31,220$37,716▲ $6,496
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,070,617$4,841,412▼ $1,229,205
Net Assets With Donor Restrictions$252,500$2,484,070▲ $2,231,570
Total Net Assets Fund Balance$6,323,117$7,325,482▲ $1,002,365
Total Liabilities and Net Assets / Fund Balance$6,354,337$7,363,198▲ $1,008,861

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$4,982$554,712$559,694
Compensation and Service Providers
Top Officer Pay22nd percentile

Board Members and Trustees

NameTitle
Beverly GouletChairman
Elizabeth BruceBoard Member
John CostelloBoard Member
Michelle FarrBoard Member
Pat QuinnBoard Member
Steve FinkbeinerBoard Member
Steve GleasonBoard Member
William J Quinlan JrBoard Member
Clare DurrettCo-director/managing Coord
Paul VariscoDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$3,485,831
Program Service Revenue
$0
Investment Income
$132,036
Other Revenue
$33,449
All Other Contributions
$3,485,831
Change in Net Assets
$760,865

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,651,316
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$241,500
Total Revenue per Audited Statements
$3,892,816
Total Revenue per Form 990
$3,651,316
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,036,876
Other Expenses$787,743
Total Fundraising Expense$72,321
Salaries, Compensation, and Employee Benefits$65,832
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,008,876--$2,008,876
Information Technology$214,095$2,541$459$217,095
Depreciation Depletion$117,271-$50,259$167,530
Fees for Services Other$158,300--$158,300
Other Salaries and Wages$61,000--$61,000
Travel$31,512-$1,849$33,361
Foreign Grants$28,000--$28,000
Fees for Services Accounting-$19,833-$19,833
All Other Expenses$7,725$10,985$576$19,286
Other Expenses$90,424$12,226$18,130$12,226
Insurance-$10,082-$10,082
Office Expenses$1,856$6,339$1,048$9,243
Payroll Taxes$4,832--$4,832
Advertising$2,233--$2,233
Total Functional Expenses$2,726,124$92,006$72,321$2,890,451

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,890,451
Total Expenses per Audited Statements$2,890,451
Total Expenses per Form 990$2,890,451
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cedars Sinai HospitalLos Angeles, CA-Grant to Fund Als Research.$946,512
John Hopkins University School of MedicineBaltimore, MD-Grant to Fund Als Research.$724,850
Diagenode LLCDenville, NJ-Grant to Fund Als Research.$227,400
On Point ScientificMontague, NJ-Grant to Fund Als Research.$53,689
Louisiana State UniversityBaton Rouge, LA-Grant to Fund Als Research.$41,425
AlmaguNew York, NY-Grant to Fund Als Research.$15,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$823,631
Fundraising Direct Expenses$790,182
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournament$823,631$823,631$373,698$449,933
Total Events$823,631$823,631$790,182$33,449
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$10,355
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A copy of the organization's form 990 will be provided to the organization's governing body for review prior to it being filed.”

Form 990, Part VI, Section B, Line 12C

“The board reviews and enforces compliance with the conflict of interest policy.”

Form 990, Part VI, Section C, Line 18

“Form 1023 is available upon request.”

Form 990, Part VI, Section C, Line 19

“No documents are provided to the general public.”

Filing and Contact Details

Filer

Filer Name
Answer Als
EIN
47-1643994
Phone
8004902375
Address
2021 LAKESHORE DRIVE SUITE 304, NEW ORLEANS, LA 70122

Signing Officer

Name
Clare Durrett
Title
Managing Coordinator
Phone
8004902375
Signed
2025-02-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Clare Durrett
Formed
2014
Legal Domicile
La
Voting Board Members
10
Independent Board Members
10
Employees
1
Volunteers
0

Preparer

Firm
Hienz & Macaluso LLC
Address
110 VETERANS BLVD SUITE 170, METAIRIE, LA 70005
Preparer
Rebecca K Bouchon
Phone
5048375434
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Accounting standards provide detailed guidance for financial statement recognition, measurement and disclosure of uncertain tax positions recognized in an entity's financial statements.as of december 31, 2018, management of the organization believes that it has no uncertain tax positions that qualify for either recognition or disclosure in the financial statements.”

Raw XML AppendixShowing 400 of 538 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt09174
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt027361
IRS990/AccountsReceivableGrp/BOYAmt05971
IRS990/AccountsReceivableGrp/EOYAmt021971
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.
IRS990/AdvertisingGrp/ProgramServicesAmt02233
IRS990/AdvertisingGrp/TotalAmt02233
IRS990/AllOtherContributionsAmt03485831
IRS990/AllOtherExpensesGrp/FundraisingAmt0576
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt010985
IRS990/AllOtherExpensesGrp/ProgramServicesAmt07725
IRS990/AllOtherExpensesGrp/TotalAmt019286
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/PersonNm0LIZ HATCH ACCOUNTING
IRS990/BooksInCareOfDetail/PhoneNum05043096393
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0190 E OAKRIDGE PARK
IRS990/BooksInCareOfDetail/USAddress/CityNm0METAIRIE
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0LA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd070005
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt05903332
IRS990/CashNonInterestBearingGrp/EOYAmt06451283
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt03485831
IRS990/CYGrantsAndSimilarPaidAmt02036876
IRS990/CYInvestmentIncomeAmt0132036
IRS990/CYOtherExpensesAmt0787743
IRS990/CYOtherRevenueAmt033449
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0760865
IRS990/CYSalariesCompEmpBnftPaidAmt065832
IRS990/CYTotalExpensesAmt02890451
IRS990/CYTotalFundraisingExpenseAmt072321
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt03651316
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/FundraisingAmt050259
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0117271
IRS990/DepreciationDepletionGrp/TotalAmt0167530
IRS990/Desc0CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonatedServicesAndUseFcltsAmt0241500
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0252500
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt02484070
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt02726124
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt019833
IRS990/FeesForServicesAccountingGrp/TotalAmt019833
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0158300
IRS990/FeesForServicesOtherGrp/TotalAmt0158300
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt028000
IRS990/ForeignGrantsGrp/TotalAmt028000
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0BEVERLY GOULET
IRS990/Form990PartVIISectionAGrp/PersonNm1CLARE DURRETT
IRS990/Form990PartVIISectionAGrp/PersonNm2PAUL VARISCO
IRS990/Form990PartVIISectionAGrp/PersonNm3STEVE GLEASON
IRS990/Form990PartVIISectionAGrp/PersonNm4WILLIAM J QUINLAN JR
IRS990/Form990PartVIISectionAGrp/PersonNm5STEVE FINKBEINER
IRS990/Form990PartVIISectionAGrp/PersonNm6PAT QUINN
IRS990/Form990PartVIISectionAGrp/PersonNm7MICHELLE FARR
IRS990/Form990PartVIISectionAGrp/PersonNm8ELIZABETH BRUCE
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN COSTELLO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1CO-DIRECTOR/MANAGING COORD
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02014
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt0790182
IRS990/FundraisingGrossIncomeAmt0823631
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantAmt02036876
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02008876
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02008876
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt04441498
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0459
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02541
IRS990/InformationTechnologyGrp/ProgramServicesAmt0214095
IRS990/InformationTechnologyGrp/TotalAmt0217095
IRS990/InsuranceGrp/ManagementAndGeneralAmt010082
IRS990/InsuranceGrp/TotalAmt010082
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0132036
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0132036
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0554712
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0168147
IRS990/LandBldgEquipBasisNetGrp/EOYAmt04982
IRS990/LandBldgEquipCostOrOtherBssAmt0559694
IRS990/LegalDomicileStateCd0LA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt06323117
IRS990/NetAssetsOrFundBalancesEOYAmt07325482
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt033449
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt033449
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt06070617
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04841412
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt01048
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06339
IRS990/OfficeExpensesGrp/ProgramServicesAmt01856
IRS990/OfficeExpensesGrp/TotalAmt09243
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt022551
IRS990/OtherAssetsTotalGrp/EOYAmt010995
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0MISSION EXPENSES
IRS990/OtherExpensesGrp/Desc1BAD DEBT
IRS990/OtherExpensesGrp/Desc2OTHER FUNDRAISING EXPEN
IRS990/OtherExpensesGrp/Desc3LEASE EXPENSE
IRS990/OtherExpensesGrp/FundraisingAmt018130
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt030000
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt112226
IRS990/OtherExpensesGrp/ProgramServicesAmt090424
IRS990/OtherExpensesGrp/TotalAmt090424
IRS990/OtherExpensesGrp/TotalAmt130000
IRS990/OtherExpensesGrp/TotalAmt218130
IRS990/OtherExpensesGrp/TotalAmt312226
IRS990/OtherLiabilitiesGrp/BOYAmt022046
IRS990/OtherLiabilitiesGrp/EOYAmt010355
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt061000
IRS990/OtherSalariesAndWagesGrp/TotalAmt061000
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt04832
IRS990/PayrollTaxesGrp/TotalAmt04832
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0252500
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0868235
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01836
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt05732
IRS990/PrincipalOfficerNm0CLARE DURRETT
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0957217
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0700000
IRS990/PYInvestmentIncomeAmt0518
IRS990/PYOtherExpensesAmt0460712
IRS990/PYOtherRevenueAmt0-969784
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-1237451
IRS990/PYSalariesCompEmpBnftPaidAmt064690
IRS990/PYTotalExpensesAmt01225402
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0-12049
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0760865
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03485831
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01985330
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01800662
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02276502
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0537188
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt010085513
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.63310
IRS990ScheduleA/PublicSupportPY170Pct00.43530
IRS990ScheduleA/PublicSupportTotal170Amt06385581
IRS990ScheduleA/SubstantialContributorsTotAmt03699932
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt03485831
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01985330
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01800662
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt02276502
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0537188
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt010085513
IRS990ScheduleA/TotalSupportAmt010085513
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0241500
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt02890451
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt04982
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt0554712
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt0559694
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt010355
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0LEASE LIABILITY
IRS990ScheduleD/RevenueNotReportedAmt0241500
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt03651316
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0ACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt04982
IRS990ScheduleD/TotalExpensesPerForm990Amt02890451
IRS990ScheduleD/TotalLiabilityAmt010355
IRS990ScheduleD/TotalRevenuePerForm990Amt03651316
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt03892816
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt02890451
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt028000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0GRANT TO FUND ALS RESEARCH.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0TORONTO, ON, CANADA
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0790182
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt0342573
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt0342573
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAMENT
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt013414
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt013414
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0823631
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0823631
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0823631
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0823631
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt033449
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0373698
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0373698
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt060497
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt060497
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt0724850
IRS990ScheduleI/RecipientTable/CashGrantAmt115000
IRS990ScheduleI/RecipientTable/CashGrantAmt2946512
IRS990ScheduleI/RecipientTable/CashGrantAmt3227400
IRS990ScheduleI/RecipientTable/CashGrantAmt441425
IRS990ScheduleI/RecipientTable/CashGrantAmt553689
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt40
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt50
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5GRANT TO FUND ALS RESEARCH.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1ALMAGU
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2CEDARS SINAI HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3DIAGENODE LLC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4LOUISIANA STATE UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5ON POINT SCIENTIFIC
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0855 NORTH WOLFE STREET RM 270
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1477 MADISON AVE FLOOR 6
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt28700 BEVERLY BLVD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3400 MORRIS AVE SUITE 101
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt45429 AIRLINE HIGHWAY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5442 ROUTE 206
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BALTIMORE
IRS990ScheduleI/RecipientTable/USAddress/CityNm1NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm2LOS ANGELES
IRS990ScheduleI/RecipientTable/USAddress/CityNm3DENVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm4BATON ROUGE
IRS990ScheduleI/RecipientTable/USAddress/CityNm5MONTAGUE
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MD

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,363,198
Liabilities
$37,716
Net assets
$7,325,482
Revenue
$3,651,316
Expenses
$2,890,451
Net income
$760,865
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.36$0.46$6.90$2.82$3.25$0.43
2023Detailed filing. Detailed filing data is available for this year.$7.36$0.04$7.33$3.65$2.89$0.76
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.35$0.03$6.32$0.01$1.23$1.24
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.76$0.13$7.63$1.80$2.47$0.67
2020Summary only. Only limited summary data is available for this year.$8.32$0.02$8.30$2.28$1.75$0.53
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.20$0.43$7.77$1.36$2.34$0.98
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.20$0.45$8.74$8.41$1.66$6.75
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.07$0.08$1.99$2.17$1.83$0.34
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.15$0.00$1.15$1.14$0.27$0.87
2015Summary only. Only limited summary data is available for this year.$0.28$0.00$0.28$0.44$0.16$0.28