Liabilities / Assets
34th percentile
Higher debt load relative to assets than 34% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
34th percentile
Higher debt load relative to assets than 34% of similar nonprofits.
Liabilities / Revenue
64th percentile
Higher debt load relative to revenue than 64% of similar nonprofits.
Net Margin
4th percentile
Higher net margin than 4% of similar nonprofits.
Top Officer Pay
21st percentile
Higher top officer pay than 21% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
9th percentile
Faster asset growth than 9% of similar nonprofits.
Revenue Growth
1st percentile
Faster revenue growth than 1% of similar nonprofits.
Assets
Down$8,202,383
Down $993,021 (-11%) from 2018
Net Assets
Down$7,767,426
Down $976,050 (-11%) from 2018
Liabilities
Down$434,957
Down $16,971 (-3.8%) from 2018
Revenue
Down$1,360,589
Down $7,045,282 (-84%) from 2018
Expenses
Up$2,336,639
Up $679,868 (+41%) from 2018
Net Income
Down-$976,050
Down $7,725,150 (-114%) from 2018
To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with als until a treatment or cure is found; discover what causes als; develop models to understand als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $7,053,184 | $7,125,474 | ▲ $72,290 |
| Pledges and Grants Receivable | $1,900,000 | $950,000 | ▼ $950,000 |
| Prepaid Expenses and Deferred Charges | - | $88,922 | - |
| Accounts Receivable | $210,626 | $23,626 | ▼ $187,000 |
| Intangible Assets | $31,594 | $14,361 | ▼ $17,233 |
| Total Assets | $9,195,404 | $8,202,383 | ▼ $993,021 |
| Liabilities | |||
| Other Liabilities | $200,930 | $360,000 | ▲ $159,070 |
| Accounts Payable and Accrued Expenses | $250,998 | $74,957 | ▼ $176,041 |
| Total Liabilities | $451,928 | $434,957 | ▼ $16,971 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $6,843,476 | $6,817,426 | ▼ $26,050 |
| Net Assets With Donor Restrictions | $1,900,000 | $950,000 | ▼ $950,000 |
| Total Net Assets Fund Balance | $8,743,476 | $7,767,426 | ▼ $976,050 |
| Total Liabilities and Net Assets / Fund Balance | $9,195,404 | $8,202,383 | ▼ $993,021 |
| Name | Title |
|---|---|
| Beverly Goulet | Chairman & Director |
| Gianugo Rabellino | Board Member |
| Jay Quinlan | Board Member |
| Michelle Farr | Board Member |
| Patrick Quinn | Board Member |
| Steve Finkbeiner | Board Member |
| Steve Gleason | Board Member |
| Paul Varisco | Board Member/co-coordinator |
| Clare Durrett | Board Member/managing Coordinator |
| David Sherman | Secretary |
| Thomas Capella | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $2,077,600 |
| Other Expenses | $223,523 |
| Total Fundraising Expense | $84,701 |
| Salaries, Compensation, and Employee Benefits | $35,516 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $2,077,600 | - | - | $2,077,600 |
| Fees for Services Other | $36,000 | - | - | $36,000 |
| Other Salaries and Wages | $18,462 | $13,846 | - | $32,308 |
| Travel | $9,222 | $53 | $10,945 | $20,220 |
| Depreciation Depletion | $12,063 | - | $5,170 | $17,233 |
| Fees for Services Accounting | - | $13,034 | - | $13,034 |
| Insurance | - | $6,692 | - | $6,692 |
| Information Technology | $2,064 | $243 | $3,088 | $5,395 |
| Office Expenses | $224 | $4,021 | $120 | $4,365 |
| All Other Expenses | $2,164 | - | $2,039 | $4,203 |
| Other Expenses | $3,519 | $0 | $300 | $3,819 |
| Conferences and Meetings | $3,330 | - | - | $3,330 |
| Payroll Taxes | $1,724 | $1,484 | - | $3,208 |
| Advertising | $1,496 | $15 | $590 | $2,101 |
| Total Functional Expenses | $2,212,535 | $39,403 | $84,701 | $2,336,639 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,344,439 |
| Expenses per Audited Statements | $2,336,639 |
| Total Expenses per Form 990 | $2,336,639 |
| Expenses Not Reported on Form 990 | $7,800 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Robert Packard Center for Als Research John Hopkins University School of Me | Baltimore, MD | - | Donation to Als Research. | $2,000,000 |
| Evergreen Circuits LLC | Duvall, WA | - | Application to Assist Als Patients Drive Their Wheelchairs With Their Eyes. | $77,600 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $313,607 |
| Fundraising Gross Income | $114,628 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf Tournament | $1,114,795 | $92,415 | $3,364 | $89,051 |
| Total Events | $1,137,008 | $114,628 | $313,607 | $-198,979 |
| Liability | Amount |
|---|---|
| Deferred Revenue | $360,000 |
“A copy of the organization's form 990 will be provided to the organization's governing body for review prior to it being filed.”
“The board reviews and enforces compliance with the conflict of interest policy.”
“Form 1023 is available upon request.”
“No documents are provided to the general public.”
“Accounting standards provide detailed guidance for financial statement recognition, measurement and disclosure of uncertain tax positions recognized in an entity's financial statements.as of december 31, 2018, management of the organization believes that it has no uncertain tax positions that qualify for either recognition or disclosure in the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 250998 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 74957 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 210626 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 23626 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 590 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 15 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1496 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2101 |
| IRS990/AllOtherContributionsAmt | 0 | 537188 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2039 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 2164 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 4203 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LIZ HATCH ACCOUNTING |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5043096393 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 190 E OAKRIDGE PARK |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | METAIRIE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | LA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 70005 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 7053184 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 7125474 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 3330 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 3330 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1022380 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1559568 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 2077600 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 223523 |
| IRS990/CYOtherRevenueAmt | 0 | -198979 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -976050 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 35516 |
| IRS990/CYTotalExpensesAmt | 0 | 2336639 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 84701 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1360589 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 5170 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 12063 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 17233 |
| IRS990/Desc | 0 | CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1900000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 950000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2212535 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 13034 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 13034 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 36000 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 36000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BEVERLY GOULET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | THOMAS CAPELLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CLARE DURRETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STEVE GLEASON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PAUL VARISCO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAVID SHERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MICHELLE FARR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | STEVE FINKBEINER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | GIANUGO RABELLINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JAY QUINLAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | PATRICK QUINN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRMAN & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER/MANAGING COORDINATOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER/CO-COORDINATOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2014 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1022380 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 313607 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 114628 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantAmt | 0 | 2077600 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 2077600 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 2077600 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1674196 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 3088 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 243 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2064 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5395 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 6692 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 6692 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 31594 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 14361 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | LA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 8743476 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 7767426 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -198979 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -198979 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 6843476 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 6817426 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 120 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4021 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 224 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4365 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | VIDEO AND PHOTOGRAPHY |
| IRS990/OtherExpensesGrp/Desc | 1 | BAD DEBT EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 2 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/Desc | 3 | WEBSITE MAINTENANCE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 59074 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 3375 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 300 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 15 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 43600 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1067 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 3519 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 59074 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 43600 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4457 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 3819 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 200930 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 360000 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 13846 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 18462 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 32308 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1484 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 1724 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 3208 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 1900000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 950000 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 88922 |
| IRS990/PrincipalOfficerNm | 0 | PAUL VARISCO |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 6826026 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1500000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 156771 |
| IRS990/PYOtherRevenueAmt | 0 | 1579845 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 6749100 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 1656771 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 8405871 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -976050 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 537188 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 6826026 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1877678 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1142342 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 440835 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 10824069 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3318969 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 868576 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 285 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 4187830 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.42540 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 6385744 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 4438325 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 537188 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 6826026 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1877678 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1142342 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 440835 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 10824069 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 15011899 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 7800 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 7800 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 7800 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 2336639 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 360000 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | DEFERRED REVENUE |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 7800 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1360589 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | ACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 2336639 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 360000 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1360589 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1368389 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 2344439 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 1022380 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 1022380 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 313607 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 125977 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 125977 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 1114795 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 22213 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 1137008 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 92415 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 22213 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 114628 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -198979 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 10419 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 10419 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 3364 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 3364 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 173847 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 173847 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 2000000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 77600 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | DONATION TO ALS RESEARCH. |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | APPLICATION TO ASSIST ALS PATIENTS DRIVE THEIR WHEELCHAIRS WITH THEIR EYES. |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | ROBERT PACKARD CENTER FOR ALS RESEARCH JOHN HOPKINS UNIVERSITY SCHOOL OF ME |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | EVERGREEN CIRCUITS LLC |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 855 NORTH WOLFE STREET RM 270 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 14023 284TH CIR NE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | BALTIMORE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | DUVALL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | WA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 98019 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A COPY OF THE ORGANIZATION'S FORM 990 WILL BE PROVIDED TO THE ORGANIZATION'S GOVERNING BODY FOR REVIEW PRIOR TO IT BEING FILED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE BOARD REVIEWS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 1023 IS AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | NO DOCUMENTS ARE PROVIDED TO THE GENERAL PUBLIC. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleR/AssetExchangeInd | 0 | 0 |
| IRS990ScheduleR/AssetPurchaseFromOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/AssetSaleToOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/DivRelatedOrganizationInd | 0 | 0 |
| IRS990ScheduleR/GiftGrntCapContriFromOthOrgInd | 0 | 0 |
| IRS990ScheduleR/GiftGrntOrCapContriToOthOrgInd | 0 | 1 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/ControlledOrganizationInd | 0 | 0 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DirectControllingNACd | 0 | N/A |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DisregardedEntityName/BusinessNameLine1Txt | 0 | GLEASON INITIATIVE FOUNDATION |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/EIN | 0 | 453689316 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.
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