Liabilities / Assets
24th percentile
Higher debt load relative to assets than 24% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
24th percentile
Higher debt load relative to assets than 24% of similar nonprofits.
Liabilities / Revenue
33rd percentile
Higher debt load relative to revenue than 33% of similar nonprofits.
Net Margin
6th percentile
Higher net margin than 6% of similar nonprofits.
Top Officer Pay
22nd percentile
Higher top officer pay than 22% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
9th percentile
Faster asset growth than 9% of similar nonprofits.
Revenue Growth
12th percentile
Faster revenue growth than 12% of similar nonprofits.
Assets
Down$7,757,258
Down $558,790 (-6.7%) from 2020
Net Assets
Down$7,625,843
Down $670,706 (-8.1%) from 2020
Liabilities
Up$131,415
Up $111,916 (+574%) from 2020
Revenue
Down$1,800,662
Down $475,840 (-21%) from 2020
Expenses
Up$2,468,582
Up $721,203 (+41%) from 2020
Net Income
Down-$667,920
Down $1,197,043 (-226%) from 2020
To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and technology to seek immediate solutions to improve the lives of those living with als until a treatment or cure is found; discover what causes als; develop models to understand als and screen for drug and cellular therapy; discover therapies that could substantially slow or halt the progress of als and ultimately cure the disease; provide all gathered information free for worldwide use by clinicians, scientists and pharma to rapidly advance therapeutics.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $6,766,091 | $3,851,520 | ▼ $2,914,571 |
| Investments Other Securities | - | $2,497,211 | - |
| Pledges and Grants Receivable | $1,039,860 | $1,024,024 | ▼ $15,836 |
| Land, Buildings, and Equipment, Net | $503,225 | $335,686 | ▼ $167,539 |
| Prepaid Expenses and Deferred Charges | $996 | $44,989 | ▲ $43,993 |
| Accounts Receivable | $3,370 | $2,832 | ▼ $538 |
| Total Assets | $8,316,048 | $7,757,258 | ▼ $558,790 |
| Other Assets Total | $2,506 | $996 | ▼ $1,510 |
| Liabilities | |||
| Other Liabilities | $0 | $115,000 | ▲ $115,000 |
| Accounts Payable and Accrued Expenses | $19,499 | $16,415 | ▼ $3,084 |
| Total Liabilities | $19,499 | $131,415 | ▲ $111,916 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $7,256,689 | $6,601,819 | ▼ $654,870 |
| Net Assets With Donor Restrictions | $1,039,860 | $1,024,024 | ▼ $15,836 |
| Total Net Assets Fund Balance | $8,296,549 | $7,625,843 | ▼ $670,706 |
| Total Liabilities and Net Assets / Fund Balance | $8,316,048 | $7,757,258 | ▼ $558,790 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $335,686 | $219,643 | $555,329 |
| Other Securities | $2,497,211 | - | - |
| Name | Title |
|---|---|
| Beverly Goulet | Chairman |
| Elizabeth Bruce | Board Member |
| John Costello | Board Member |
| Michelle Farr | Board Member |
| Pat Quinn | Board Member |
| Steve Finkbeiner | Board Member |
| Steve Gleason | Board Member |
| William J Quinlan Jr | Board Member |
| Clare Durrett | Co-director/managing Coordinator |
| Paul Varisco | Director |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,867,200 |
| Other Expenses | $535,899 |
| Total Fundraising Expense | $68,649 |
| Salaries, Compensation, and Employee Benefits | $65,483 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,867,200 | - | - | $1,867,200 |
| Depreciation Depletion | $117,277 | - | $50,262 | $167,539 |
| Other Salaries and Wages | $60,000 | - | - | $60,000 |
| Fees for Services Other | $42,000 | - | - | $42,000 |
| Fees for Services Accounting | - | $12,985 | - | $12,985 |
| Occupancy | - | $11,952 | - | $11,952 |
| Insurance | - | $10,221 | - | $10,221 |
| Advertising | $6,545 | - | $2,940 | $9,485 |
| Office Expenses | $228 | $7,008 | $431 | $7,667 |
| All Other Expenses | $693 | $2,982 | $2,560 | $6,235 |
| Payroll Taxes | $5,483 | - | - | $5,483 |
| Information Technology | $2,977 | $437 | $500 | $3,914 |
| Other Expenses | $3,779 | - | $11,859 | $3,779 |
| Conferences and Meetings | - | $2,903 | - | $2,903 |
| Travel | $444 | $1,062 | $97 | $1,603 |
| Total Functional Expenses | $2,350,383 | $49,550 | $68,649 | $2,468,582 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $2,468,582 |
| Total Expenses per Audited Statements | $2,468,582 |
| Total Expenses per Form 990 | $2,468,582 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| John Hopkins University School of Medicine | Batimore, MD | - | Grant to Fund Als Research. | $1,500,000 |
| Cedars-sinai Medical Center | Los Angeles, CA | - | Donation to Als Research. | $367,200 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Liability | Amount |
|---|---|
| Deferred Revenue | $115,000 |
“A copy of the organization's form 990 will be provided to the organization's governing body for review prior to it being filed.”
“The board reviews and enforces compliance with the conflict of interest policy.”
“Form 1023 is available upon request.”
“No documents are provided to the general public.”
“Accounting standards provide detailed guidance for financial statement recognition, measurement and disclosure of uncertain tax positions recognized in an entity's financial statements.as of december 31, 2018, management of the organization believes that it has no uncertain tax positions that qualify for either recognition or disclosure in the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 19499 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 16415 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 3370 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 2832 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 2940 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 6545 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 9485 |
| IRS990/AllOtherContributionsAmt | 0 | 1800662 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2560 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2982 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 693 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 6235 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LIZ HATCH ACCOUNTING |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5043096393 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 190 E OAKRIDGE PARK |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | METAIRIE |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | LA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 70005 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 6766091 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 3851520 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 2903 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2903 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1800662 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1867200 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 535899 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -667920 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 65483 |
| IRS990/CYTotalExpensesAmt | 0 | 2468582 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 68649 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1800662 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 50262 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 117277 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 167539 |
| IRS990/Desc | 0 | CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1039860 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1024024 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2350383 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 12985 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 12985 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 42000 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 42000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BEVERLY GOULET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | CLARE DURRETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PAUL VARISCO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STEVE GLEASON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | WILLIAM J QUINLAN JR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | STEVE FINKBEINER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PAT QUINN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MICHELLE FARR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ELIZABETH BRUCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JOHN COSTELLO |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CO-DIRECTOR/MANAGING COORDINATOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2014 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantAmt | 0 | 1867200 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1867200 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1867200 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1800662 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 500 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 437 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2977 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 3914 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 10221 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 10221 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 2497211 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 219643 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 503225 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 335686 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 555329 |
| IRS990/LegalDomicileStateCd | 0 | LA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 8296549 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 7625843 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -2786 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 7256689 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 6601819 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 11952 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 11952 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 431 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 7008 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 228 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7667 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2506 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 996 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | COMMUNITY OUTREACH |
| IRS990/OtherExpensesGrp/Desc | 1 | DONATIONS |
| IRS990/OtherExpensesGrp/Desc | 2 | OTHER FUNDRAISING EXPEN |
| IRS990/OtherExpensesGrp/Desc | 3 | VIDEO AND PHOTOGRAPHY |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 11859 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 205105 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 38652 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3779 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 205105 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 38652 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 11859 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 3779 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 115000 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 60000 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 60000 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 5483 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5483 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 1039860 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 1024024 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 996 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 44989 |
| IRS990/PrincipalOfficerNm | 0 | CLARE DURRETT |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2276502 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1000000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 682595 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 529123 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 64784 |
| IRS990/PYTotalExpensesAmt | 0 | 1747379 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2276502 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -667920 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 1 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1800662 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2276502 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 537188 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 6826026 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1877678 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 13318056 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3318969 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 868576 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 4187545 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.49690 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.49260 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 8698877 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 4619179 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1800662 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2276502 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 537188 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 6826026 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1877678 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 13318056 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 17505601 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 2468582 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -2786 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 335686 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 219643 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 555329 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 115000 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | DEFERRED REVENUE |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 0 | 2497211 |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 0 | INVESTMENTS |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -2786 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1800662 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | ACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 335686 |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 2497211 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 2468582 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 115000 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1800662 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1797876 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 2468582 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 1500000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 367200 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | GRANT TO FUND ALS RESEARCH. |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | DONATION TO ALS RESEARCH. |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | CEDARS-SINAI MEDICAL CENTER |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 855 NORTH WOLFE STREET RM 270 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 8700 BEVERLY BLVD NT 2004 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | BATIMORE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | LOS ANGELES |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 90048 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A COPY OF THE ORGANIZATION'S FORM 990 WILL BE PROVIDED TO THE ORGANIZATION'S GOVERNING BODY FOR REVIEW PRIOR TO IT BEING FILED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE BOARD REVIEWS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FORM 1023 IS AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | NO DOCUMENTS ARE PROVIDED TO THE GENERAL PUBLIC. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleR/AssetExchangeInd | 0 | 0 |
| IRS990ScheduleR/AssetPurchaseFromOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/AssetSaleToOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/DivRelatedOrganizationInd | 0 | 0 |
| IRS990ScheduleR/GiftGrntCapContriFromOthOrgInd | 0 | 1 |
| IRS990ScheduleR/GiftGrntOrCapContriToOthOrgInd | 0 | 0 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/ControlledOrganizationInd | 0 | 0 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DirectControllingNACd | 0 | N/A |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DisregardedEntityName/BusinessNameLine1Txt | 0 | GLEASON INITIATIVE FOUNDATION |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/EIN | 0 | 453689316 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/ExemptCodeSectionTxt | 0 | 501(C)(3) |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/LegalDomicileStateCd | 0 | LA |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/PrimaryActivitiesTxt | 0 | SEE PART VII EXPLANATION |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/PublicCharityStatusTxt | 0 | LINE 7 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/USAddress/AddressLine1Txt | 0 | PO BOX 24493 |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/USAddress/CityNm | 0 | NEW ORLEANS |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/USAddress/StateAbbreviationCd | 0 | LA |
| IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/USAddress/ZIPCd | 0 | 70124 |
| IRS990ScheduleR/LoansOrGuaranteesFromOthOrgInd | 0 | 0 |
| IRS990ScheduleR/LoansOrGuaranteesToOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/PaidEmployeesSharingInd | 0 | 0 |
| IRS990ScheduleR/PerformOfServicesByOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/PerformOfServicesForOthOrgInd | 0 | 0 |
| IRS990ScheduleR/ReceiptOfIntAnntsRntsRyltsInd | 0 | 0 |
| IRS990ScheduleR/ReimbursementPaidByOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/ReimbursementPaidToOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/RentalOfFacilitiesToOthOrgInd | 0 | 0 |
| IRS990ScheduleR/RentalOfFcltsFromOthOrgInd | 0 | 0 |
| IRS990ScheduleR/SharingOfFacilitiesInd | 0 | 0 |
| IRS990ScheduleR/TransactionsRelatedOrgGrp/MethodOfAmountDeterminationTxt | 0 | FMV |
| IRS990ScheduleR/TransactionsRelatedOrgGrp/OtherOrganizationName/BusinessNameLine1Txt | 0 | GLEASON INITIATIVE FOUNDATION |
| IRS990ScheduleR/TransactionsRelatedOrgGrp/TransactionTypeTxt | 0 | C |
| IRS990ScheduleR/TransferFromOtherOrgInd | 0 | 0 |
| IRS990ScheduleR/TransferToOtherOrgInd | 0 | 0 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.