Civic Intelligence

Rare Trait Hope Fund

990EZ • Fiscal year 2023 • EIN 46-2762646

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 15, 2024

Organization Profileraretrait.org
406 Schlief DriveBelle Chasse, LA 70037

(504) 408-1126

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

4th percentile

-201%

Higher net margin than 4% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

4th percentile

-85%

Faster asset growth than 4% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

6th percentile

-72%

Faster revenue growth than 6% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$25,867

Down $148,378 (-85%) from 2022

Net Assets

Down

$25,867

Down $148,378 (-85%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin4th percentile

Revenue

Down

$73,805

Down $186,843 (-72%) from 2022

Expenses

Down

$222,183

Down $404,888 (-65%) from 2022

Net Income

Up

-$148,378

Up $218,045 (+60%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth4th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2014: $90,615Liabilities 2014: $02014Assets 2015: $110,975Liabilities 2015: $02015Assets 2016: $58,002Liabilities 2016: $02016Assets 2017: $124,476Liabilities 2017: $02017Assets 2018: $101,211Liabilities 2018: $02018Assets 2019: $125,131Liabilities 2019: $02019Assets 2020: $203,255Liabilities 2020: $0Net Assets 2020: $203,2552020Assets 2021: $540,668Liabilities 2021: $0Net Assets 2021: $540,6682021Assets 2022: $174,245Liabilities 2022: $0Net Assets 2022: $174,2452022Assets 2023: $25,867Liabilities 2023: $0Net Assets 2023: $25,8672023Assets 2024: $55,991Liabilities 2024: $20,000Net Assets 2024: $35,9912024

Highlighted filing

2023

Assets$25,867
Liabilities$0
Net Assets$25,867
Open 2023 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2014: $143,671Expenses 2014: $53,055Net Income 2014: $90,6162014Revenue 2015: $104,197Expenses 2015: $76,229Net Income 2015: $27,9682015Revenue 2016: $68,404Expenses 2016: $121,377Net Income 2016: -$52,9732016Revenue 2017: $69,600Expenses 2017: $3,125Net Income 2017: $66,4752017Revenue 2018: $55,481Expenses 2018: $78,747Net Income 2018: -$23,2662018Revenue 2019: $32,324Expenses 2019: $8,403Net Income 2019: $23,9212019Revenue 2020: $78,386Expenses 2020: $262Net Income 2020: $78,1242020Revenue 2021: $410,842Expenses 2021: $73,429Net Income 2021: $337,4132021Revenue 2022: $260,648Expenses 2022: $627,071Net Income 2022: -$366,4232022Revenue 2023: $73,805Expenses 2023: $222,183Net Income 2023: -$148,3782023Revenue 2024: $103,771Expenses 2024: $93,647Net Income 2024: $10,1242024

Highlighted filing

2023

Revenue$73,805
Expenses$222,183
Net Income-$148,378
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 15, 2024
Return Version
2023v5.0
Gross Receipts
$73,805
Mission and Program Overview

Mission

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Program Services

DescriptionGrantsExpenses
AGA drug product vector safety and toxicology study per task order 1, agreement #AGR00026049 signed October 17, 2022$0$218,576
Per FDA feedback from pre-IND meeting in 2018, we continue production of the gene therapy product that will be used in a clinical trial for AGU treatment.$0$0
Setting up patient registry$0$0
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Julia TaravellaPresident, Executive DirectorFT$0--
Alla ComardelleMedical DirectorPT$0--
Emily MoranDirectorPT$0--
Guzel BilyalovaSecretary, TreasurePT$0--
Erik HeywoodDirectorPT$0--
Jody TaravellaDirectorPT$0--
Filing and Contact Details

Filer

Filer Name
Rare Trait Hope Fund
EIN
46-2762646
Phone
5044081126
Address
406 Schlief Drive, Belle Chasse, LA 70037

Signing Officer

Name
Julia Taravella
Title
Director
Phone
5043883732
Signed
2024-11-15
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Description;Amount^Safety Study;218576|IT programs;10|State fee;10|travel;1032^Total;219628^”

Raw XML Appendix165 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd00
IRS990EZ/BenefitsPaidToOrForMembersAmt00
IRS990EZ/BooksInCareOfDetail/PersonNm0Julia Taravella
IRS990EZ/BooksInCareOfDetail/PhoneNum05043883732
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0406 Schlief Drive
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0Belle Chasse
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0LA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd070037
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt0174245
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt025867
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd00
IRS990EZ/ContributionsGiftsGrantsEtcAmt073805
IRS990EZ/CostOfGoodsSoldAmt00
IRS990EZ/CostOrOtherBasisExpenseSaleAmt00
IRS990EZ/DirectIndirectPltclExpendAmt00
IRS990EZ/DonorAdvisedFndsInd00
IRS990EZ/EngagedInExcessBenefitTransInd00
IRS990EZ/ExcessOrDeficitForYearAmt0-148378
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt02321
IRS990EZ/FiledScheduleAInd01
IRS990EZ/ForeignFinancialAccountInd00
IRS990EZ/ForeignOfficeInd00
IRS990EZ/Form1120PolFiledInd00
IRS990EZ/Form990TotalAssetsGrp/BOYAmt0174245
IRS990EZ/Form990TotalAssetsGrp/EOYAmt025867
IRS990EZ/FundraisingGrossIncomeAmt00
IRS990EZ/GainOrLossFromSaleOfAssetsAmt00
IRS990EZ/GamingGrossIncomeAmt00
IRS990EZ/GrantsAndSimilarAmountsPaidAmt00
IRS990EZ/GrossProfitLossSlsOfInvntryAmt00
IRS990EZ/GrossReceiptsAmt073805
IRS990EZ/GrossSalesOfInventoryAmt00
IRS990EZ/InfoInScheduleOPartIInd0X
IRS990EZ/InvestmentIncomeAmt00
IRS990EZ/LandAndBuildingsGrp/BOYAmt00
IRS990EZ/LandAndBuildingsGrp/EOYAmt00
IRS990EZ/LobbyingActivitiesInd00
IRS990EZ/MadeLoansToFromOfficersInd00
IRS990EZ/MembershipDuesAmt00
IRS990EZ/MethodOfAccountingAccrualInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt0174245
IRS990EZ/NetAssetsOrFundBalancesEOYAmt025867
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt0174245
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt025867
IRS990EZ/OccupancyRentUtltsAndMaintAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt050
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt110
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt25
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt35
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt45
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt55
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt50
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0Julia Taravella
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1Alla Comardelle
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2Emily Moran
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3Guzel Bilyalova
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4Erik Heywood
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm5Jody Taravella
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0President, Executive Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Medical Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Secretary, Treasure
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5Director
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt0219628
IRS990EZ/OtherRevenueTotalAmt00
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.
IRS990EZ/PrintingPublicationsPostageAmt0234
IRS990EZ/ProgramServiceRevenueAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0Per FDA feedback from pre-IND meeting in 2018, we continue production of the gene therapy product that will be used in a clinical trial for AGU treatment.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1AGA drug product vector safety and toxicology study per task order 1, agreement #AGR00026049 signed October 17, 2022
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2Setting up patient registry
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt20
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt1218576
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt20
IRS990EZ/ProhibitedTaxShelterTransInd00
IRS990EZ/RelatedOrganizationCtrlEntInd00
IRS990EZ/SalariesOtherCompEmplBnftAmt00
IRS990EZ/SaleOfAssetsGrossAmt00
IRS990EZ/SchoolOperatingInd00
IRS990EZ/SpecialEventsDirectExpensesAmt00
IRS990EZ/SpecialEventsNetIncomeLossAmt00
IRS990EZ/StatesWhereCopyOfReturnIsFldCd0LA
IRS990EZ/SubjectToProxyTaxInd00
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd00
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
IRS990EZ/TaxImposedUnderIRC4955Amt00
IRS990EZ/TaxReimbursedByOrganizationAmt00
IRS990EZ/TotalExpensesAmt0222183
IRS990EZ/TotalProgramServiceExpensesAmt0218576
IRS990EZ/TotalRevenueAmt073805
IRS990EZ/TransactionWithControlEntInd00
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0raretrait.org
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt073805
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0260648
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0410842
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt078386
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt032324
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0856005
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct01
IRS990ScheduleA/PublicSupportPY170Pct01
IRS990ScheduleA/PublicSupportTotal170Amt0856005
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt073805
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0260648
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0410842
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt078386
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt032324
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0856005
IRS990ScheduleA/TotalSupportAmt0856005
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Description;Amount^Safety Study;218576|IT programs;10|State fee;10|travel;1032^Total;219628^
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReasonableCauseExplanation/ExplanationTxt0Extension (form 8868) was filed and approved on May 15, 2024.
ReturnHeader/BuildTS02024-10-15 13:58:12Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Julia Taravella
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Director
ReturnHeader/BusinessOfficerGrp/PhoneNum05043883732
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-11-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0RARE TRAIT HOPE FUND
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0462762646
ReturnHeader/Filer/PhoneNum05044081126
ReturnHeader/Filer/USAddress/AddressLine1Txt0406 Schlief Drive
ReturnHeader/Filer/USAddress/CityNm0Belle Chasse
ReturnHeader/Filer/USAddress/StateAbbreviationCd0LA
ReturnHeader/Filer/USAddress/ZIPCd070037
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/ReturnTs02024-11-15T16:16:57-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$25,867
Liabilities
$0
Net assets
$25,867
Revenue
$73,805
Expenses
$222,183
Net income
-$148,378
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.56$0.20$0.36$1.04$0.94$0.10
2023Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.74$2.22$1.48
2022Detailed filing. Detailed filing data is available for this year.$1.74$0.00$1.74$2.61$6.27$3.66
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.41$0.00$5.41$4.11$0.73$3.37
2020Detailed filing. Detailed filing data is available for this year.$2.03$0.00$2.03$0.78$0.00$0.78
2019Summary only. Only limited summary data is available for this year.$1.25$0.00$0.32$0.08$0.24
2018Summary only. Only limited summary data is available for this year.$1.01$0.00$0.55$0.79$0.23
2017Summary only. Only limited summary data is available for this year.$1.24$0.00$0.70$0.03$0.66
2016Summary only. Only limited summary data is available for this year.$0.58$0.00$0.68$1.21$0.53
2015Summary only. Only limited summary data is available for this year.$1.11$0.00$1.04$0.76$0.28
2014Summary only. Only limited summary data is available for this year.$0.91$0.00$1.44$0.53$0.91