Civic Intelligence

Rare Trait Hope Fund

990 • Fiscal year 2021 • EIN 46-2762646

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 14, 2022

Organization Profileraretrait.com
406 Schlief DriveBelle Chasse, LA 70037

(504) 388-3732

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

96th percentile

82%

Higher net margin than 96% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

52nd percentile

$0

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

95th percentile

166%

Faster asset growth than 95% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

97th percentile

424%

Faster revenue growth than 97% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$540,668

Up $337,413 (+166%) from 2020

Net Assets

Up

$540,668

Up $337,413 (+166%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue And Expenses
Liabilities / Revenue29th percentileNet Margin96th percentile

Revenue

Up

$410,842

Up $332,456 (+424%) from 2020

Expenses

Up

$73,429

Up $73,167 (+27926%) from 2020

Net Income

Up

$337,413

Up $259,289 (+332%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth95th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2014: $90,615Liabilities 2014: $02014Assets 2015: $110,975Liabilities 2015: $02015Assets 2016: $58,002Liabilities 2016: $02016Assets 2017: $124,476Liabilities 2017: $02017Assets 2018: $101,211Liabilities 2018: $02018Assets 2019: $125,131Liabilities 2019: $02019Assets 2020: $203,255Liabilities 2020: $0Net Assets 2020: $203,2552020Assets 2021: $540,668Liabilities 2021: $0Net Assets 2021: $540,6682021Assets 2022: $174,245Liabilities 2022: $0Net Assets 2022: $174,2452022Assets 2023: $25,867Liabilities 2023: $0Net Assets 2023: $25,8672023Assets 2024: $55,991Liabilities 2024: $20,000Net Assets 2024: $35,9912024

Highlighted filing

2021

Assets$540,668
Liabilities$0
Net Assets$540,668
Open 2021 Filing

Operations Trend

Revenue Growth97th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2014: $143,671Expenses 2014: $53,055Net Income 2014: $90,6162014Revenue 2015: $104,197Expenses 2015: $76,229Net Income 2015: $27,9682015Revenue 2016: $68,404Expenses 2016: $121,377Net Income 2016: -$52,9732016Revenue 2017: $69,600Expenses 2017: $3,125Net Income 2017: $66,4752017Revenue 2018: $55,481Expenses 2018: $78,747Net Income 2018: -$23,2662018Revenue 2019: $32,324Expenses 2019: $8,403Net Income 2019: $23,9212019Revenue 2020: $78,386Expenses 2020: $262Net Income 2020: $78,1242020Revenue 2021: $410,842Expenses 2021: $73,429Net Income 2021: $337,4132021Revenue 2022: $260,648Expenses 2022: $627,071Net Income 2022: -$366,4232022Revenue 2023: $73,805Expenses 2023: $222,183Net Income 2023: -$148,3782023Revenue 2024: $103,771Expenses 2024: $93,647Net Income 2024: $10,1242024

Highlighted filing

2021

Revenue$410,842
Expenses$73,429
Net Income$337,413
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 14, 2022
Return Version
2021v4.0
Gross Receipts
$410,842
Mission and Program Overview

Mission

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$203,255$540,668▲ $337,413
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0--
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$203,255$540,668▲ $337,413
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0--
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$203,255$540,668▲ $337,413
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$203,255$540,668▲ $337,413
Total Liabilities and Net Assets / Fund Balance$203,255$540,668▲ $337,413
Compensation and Service Providers
Top Officer Pay52nd percentile

Board Members and Trustees

NameTitle
Julia TaravellaPresident, Executive Director
Alla ComardelleDirector
Barbara InsleyDirector
Erik HeywoodDirector
Jody TaravellaDirector
Guzel BilyalovaSecretary, Treasure
Revenue and Support

Revenue Composition

Contributions and Grants
$410,842
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$410,842
Change in Net Assets
$337,413
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$73,429
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$68,075$10-$68,085
Travel$4,236--$4,236
Information Technology$0$576-$576
Advertising$0$218-$218
Conferences and Meetings$0$180-$180
Office Expenses$0$134-$134
Total Functional Expenses$72,311$1,118$0$73,429
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Director Jody Taravella is married to Executive Director Julia Taravella”

Form 990, Part VI, Section B, Line 11B

“Every organization director is notified about the completion of form 990 which is uploaded on the organization's internal server and can be reviewed by a director.”

Form 990, Part VI, Section B, Line 12C

“By-laws of the organization states that all director and offices have to disclose any potential conflict of interests. All developments within the program are done for a benefit of any patient that has diagnosis of Aspartylglucosaminuria. Information from conducted research is published and available for everyone interested. Research references are published on the organization's website.”

Form 990, Part VI, Section C, Line 19

“Organization documents, including articles of incorporation, bylaws, conflict of interest policy, and financial statements are available for inspection upon request, for inspection at the office of Rare Trait.”

Filing and Contact Details

Filer

Filer Name
Rare Trait Hope Fund
EIN
46-2762646
Address
406 Schlief Drive, Belle Chasse, LA 70037

Signing Officer

Name
Julia Taravella
Title
Director
Phone
5043883732
Signed
2022-11-14

Organization Details

Principal Officer
Julia Taravella
Formed
2013
Legal Domicile
La
Voting Board Members
6
Independent Board Members
6
Employees
0
Volunteers
10
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 24E

“Expenses for production of a drug product for Aspartylglucosaminuria gene therapy clinical trial $68,075. LA Secretary of State annual fee- $10”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0President, Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Secretary, Treasure
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IRS990/PrincipalOfficerNm0Julia Taravella
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IRS990/ProgSrvcAccomActy2Grp/Desc0AGA drug product vector production feasibility study per proposal from August 11, 2021
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt09463
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IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0AGA plasmid sequencing services
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt02125
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Director Jody Taravella is married to Executive Director Julia Taravella
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Every organization director is notified about the completion of form 990 which is uploaded on the organization's internal server and can be reviewed by a director.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2By-laws of the organization states that all director and offices have to disclose any potential conflict of interests. All developments within the program are done for a benefit of any patient that has diagnosis of Aspartylglucosaminuria. Information from conducted research is published and available for everyone interested. Research references are published on the organization's website.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Organization documents, including articles of incorporation, bylaws, conflict of interest policy, and financial statements are available for inspection upon request, for inspection at the office of Rare Trait.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Expenses for production of a drug product for Aspartylglucosaminuria gene therapy clinical trial $68,075. LA Secretary of State annual fee- $10
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$540,668
Liabilities
$0
Net assets
$540,668
Revenue
$410,842
Expenses
$73,429
Net income
$337,413
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.56$0.20$0.36$1.04$0.94$0.10
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.26$0.00$0.26$0.74$2.22$1.48
2022Detailed filing. Detailed filing data is available for this year.$1.74$0.00$1.74$2.61$6.27$3.66
2021Detailed filing. Detailed filing data is available for this year.$5.41$0.00$5.41$4.11$0.73$3.37
2020Detailed filing. Detailed filing data is available for this year.$2.03$0.00$2.03$0.78$0.00$0.78
2019Summary only. Only limited summary data is available for this year.$1.25$0.00$0.32$0.08$0.24
2018Summary only. Only limited summary data is available for this year.$1.01$0.00$0.55$0.79$0.23
2017Summary only. Only limited summary data is available for this year.$1.24$0.00$0.70$0.03$0.66
2016Summary only. Only limited summary data is available for this year.$0.58$0.00$0.68$1.21$0.53
2015Summary only. Only limited summary data is available for this year.$1.11$0.00$1.04$0.76$0.28
2014Summary only. Only limited summary data is available for this year.$0.91$0.00$1.44$0.53$0.91