Civic Intelligence

Rare Trait Hope Fund

EIN 46-2762646 • 501(c)3 • Belle Chasse, LA

Profile

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

406 Schlief DriveBelle Chasse, LA 70037

raretrait.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

86th percentile

0.36x

Higher debt load relative to assets than 86% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

87th percentile

0.19x

Higher debt load relative to revenue than 87% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

63rd percentile

9.8%

Higher net margin than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

93rd percentile

116%

Faster asset growth than 93% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

81st percentile

41%

Faster revenue growth than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets86th percentile

Assets

Up

$55,991

Up $30,124 (+116%) from 2023

Liabilities

Up

$20,000

Up $20,000 from 2023

Net Assets

Up

$35,991

Up $10,124 (+39%) from 2023

Operations
Liabilities / Revenue87th percentileNet Margin63rd percentile

Revenue

Up

$103,771

Up $29,966 (+41%) from 2023

Expenses

Down

$93,647

Down $128,536 (-58%) from 2023

Net Income

Up

$10,124

Up $158,502 (+107%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth93rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2014: $90,615Liabilities 2014: $02014Assets 2015: $110,975Liabilities 2015: $02015Assets 2016: $58,002Liabilities 2016: $02016Assets 2017: $124,476Liabilities 2017: $02017Assets 2018: $101,211Liabilities 2018: $02018Assets 2019: $125,131Liabilities 2019: $02019Assets 2020: $203,255Liabilities 2020: $0Net Assets 2020: $203,2552020Assets 2021: $540,668Liabilities 2021: $0Net Assets 2021: $540,6682021Assets 2022: $174,245Liabilities 2022: $0Net Assets 2022: $174,2452022Assets 2023: $25,867Liabilities 2023: $0Net Assets 2023: $25,8672023Assets 2024: $55,991Liabilities 2024: $20,000Net Assets 2024: $35,9912024

Highlighted filing

2024

Assets$55,991
Liabilities$20,000
Net Assets$35,991
Open 2024 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2014: $143,671Expenses 2014: $53,055Net Income 2014: $90,6162014Revenue 2015: $104,197Expenses 2015: $76,229Net Income 2015: $27,9682015Revenue 2016: $68,404Expenses 2016: $121,377Net Income 2016: -$52,9732016Revenue 2017: $69,600Expenses 2017: $3,125Net Income 2017: $66,4752017Revenue 2018: $55,481Expenses 2018: $78,747Net Income 2018: -$23,2662018Revenue 2019: $32,324Expenses 2019: $8,403Net Income 2019: $23,9212019Revenue 2020: $78,386Expenses 2020: $262Net Income 2020: $78,1242020Revenue 2021: $410,842Expenses 2021: $73,429Net Income 2021: $337,4132021Revenue 2022: $260,648Expenses 2022: $627,071Net Income 2022: -$366,4232022Revenue 2023: $73,805Expenses 2023: $222,183Net Income 2023: -$148,3782023Revenue 2024: $103,771Expenses 2024: $93,647Net Income 2024: $10,1242024

Highlighted filing

2024

Revenue$103,771
Expenses$93,647
Net Income$10,124
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZXML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$55,991
Liabilities
$20,000
Net assets
$35,991
Revenue
$103,771
Expenses
$93,647
Net income
$10,124
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.56$0.20$0.36$1.04$0.94$0.10
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.26$0.00$0.26$0.74$2.22$1.48
2022Detailed filing. Detailed filing data is available for this year.$1.74$0.00$1.74$2.61$6.27$3.66
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.41$0.00$5.41$4.11$0.73$3.37
2020Detailed filing. Detailed filing data is available for this year.$2.03$0.00$2.03$0.78$0.00$0.78
2019Summary only. Only limited summary data is available for this year.$1.25$0.00$0.32$0.08$0.24
2018Summary only. Only limited summary data is available for this year.$1.01$0.00$0.55$0.79$0.23
2017Summary only. Only limited summary data is available for this year.$1.24$0.00$0.70$0.03$0.66
2016Summary only. Only limited summary data is available for this year.$0.58$0.00$0.68$1.21$0.53
2015Summary only. Only limited summary data is available for this year.$1.11$0.00$1.04$0.76$0.28
2014Summary only. Only limited summary data is available for this year.$0.91$0.00$1.44$0.53$0.91
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 15, 2023
Return Version
2022v5.0
Gross Receipts
$260,648
Mission and Program Overview

Mission

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$540,668$174,245▼ $366,423
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$540,668$174,245▼ $366,423
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$540,668$174,245▼ $366,423
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$540,668$174,245▼ $366,423
Total Liabilities and Net Assets / Fund Balance$540,668$174,245▼ $366,423
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Julia TaravellaPresident, Executive Director
Alla ComardelleDirector
Emily MoranDirector
Erik HeywoodDirector
Jody TaravellaDirector
Guzel BilyalovaSecretary, Treasure
Revenue and Support

Revenue Composition

Contributions and Grants
$260,648
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$260,648
Change in Net Assets
$-366,423
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$627,071
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$10,632--$10,632
Other Expenses$5,000$0$0$5,000
Information Technology-$875-$875
Conferences and Meetings$250$180-$430
Office Expenses-$166-$166
Advertising-$127-$127
Fees for Services Accounting$0$41-$41
Total Functional Expenses$625,672$1,399$0$627,071
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Director Jody Taravella is married to Executive Director Julia Taravella”

Form 990, Part VI, Section B, Line 11B

“Every organization director is notified about the completion of form 990 which is uploaded on the organization's internal server and can be reviewed by a director.”

Form 990, Part VI, Section B, Line 12C

“By-laws of the organization states that all director and offices have to disclose any potential conflict of interests. All developments within the program are done for a benefit of any patient that has diagnosis of Aspartylglucosaminuria. Information from the conducted research is published and available for everyone interested. Research references are published on the organization's website.”

Form 990, Part VI, Section C, Line 19

“Rare Trait Hope Fund annual report is available on LA Secretary of State website. Articles of incorporation, conflict of interest policy, and financial statements are available to the public anytime by submitting requests through direct communication link on the companies website, email address posted on the website, or by calling the phone posted on the website.”

Filing and Contact Details

Filer

Filer Name
Rare Trait Hope Fund
EIN
46-2762646
Address
406 Schlief Drive, Belle Chasse, LA 70037

Signing Officer

Name
Julia Taravella
Title
Director
Phone
5043883732
Signed
2023-11-15

Organization Details

Principal Officer
Julia Taravella
Formed
2013
Legal Domicile
La
Voting Board Members
6
Independent Board Members
6
Employees
0
Volunteers
10
Supplemental Narrative

Additional Explanations

Form 990, Part IV, Line 38

“The answer is yes”

Raw XML AppendixShowing 400 of 495 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt00
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt00
IRS990/AccountsReceivableGrp/BOYAmt00
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.
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IRS990/BackupWthldComplianceInd01
IRS990/BenefitsToMembersGrp/ProgramServicesAmt00
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Julia Taravella
IRS990/BooksInCareOfDetail/PhoneNum05043883732
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0406 Schlief Drive
IRS990/BooksInCareOfDetail/USAddress/CityNm0Belle Chasse
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0LA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd070037
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0540668
IRS990/CashNonInterestBearingGrp/EOYAmt0174245
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt00
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IRS990/CompensationFromOtherSrcsInd00
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IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0250
IRS990/ConferencesMeetingsGrp/TotalAmt0430
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt00
IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0260648
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0627071
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-366423
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0627071
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0260648
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt00
IRS990/DeferredRevenueGrp/EOYAmt00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ProgramServicesAmt00
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0Per FDA feedback from pre-IND meeting in 2018, we continue production of the gene therapy product that will be used in a clinical trial for AGU treatment. Largest expense for 2022 is the payment for AGA plasmid production and vector production.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
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IRS990/DonatedServicesAndUseFcltsAmt00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt00
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IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/EscrowAccountLiabilityGrp/BOYAmt00
IRS990/EscrowAccountLiabilityGrp/EOYAmt00
IRS990/ExpenseAmt0598393
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IRS990/FederatedCampaignsAmt00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt041
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt041
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt00
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt00
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IRS990/FeesForServicesOtherGrp/ProgramServicesAmt00
IRS990/FeesForServicesOtherGrp/TotalAmt00
IRS990/FeesForServicesProfFundraising/FundraisingAmt00
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt00
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IRS990/ForeignOfficeInd00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt410
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0Julia Taravella
IRS990/Form990PartVIISectionAGrp/PersonNm1Guzel Bilyalova
IRS990/Form990PartVIISectionAGrp/PersonNm2Jody Taravella
IRS990/Form990PartVIISectionAGrp/PersonNm3Emily Moran
IRS990/Form990PartVIISectionAGrp/PersonNm4Erik Heywood
IRS990/Form990PartVIISectionAGrp/PersonNm5Alla Comardelle
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0President, Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Secretary, Treasure
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
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IRS990/FSAuditedInd00
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IRS990/MissionDesc0The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.
IRS990/MoreThan5000KToIndividualsInd00
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