Usagainstalzheimer'S Network

“The form 990 was prepared by the outside accountants and reviewed by one of the directors and the chief financial officer. A copy of the form 990 was provided to the organization's governing body before it was filed with the irs.”

“Each director, principal officer and member of a committee with governing board delegated powers annually signs a statement which affirms that each he/she: a. Has received a copy of the conflicts of interest policy, b. Has read and understands the policy, c. Has agreed to comply with the policy, and d. Understands that the organization is a non-profit public benefit corporation and, in order to maintain its federal tax exemption, it must engage primarily in activities which accomplish one or more of its tax-exempt purposes. In connection with any actual or possible conflict of interest, an interested person must disclose the existence of the financial interest and be given the opportunity to disclose all material facts to the directors and members of committees with governing board delegated powers considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, and after any discussion with the interested person, he/she leaves the governing board or committee meeting while the determination of a conflict of interest is discussed and voted upon. The remaining board or committee members decide if a conflict of interest exists.”

“Compensation is discussed with the board chairman, who uses information from a review of coo compensation at other non-profits, and a performance review is conducted. The compensation is then approved by the board when it approves the budget. The most recent compensation review took place in december 2018.”

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“Usagainstalzheimer's (usa2) and usagainstalzheimer's action (usa2action), an unrelated organization for tax purposes, have entered into a cost-sharing arrangement under which usa2action reimburses usa2 for usa2action's allocable share of the compensation of certain employees for services provided to usa2action. Pursuant to this agreement, usa2action reimbursed usa2 for its share of officer compensation as follows: sally sacher $501 form 990, part vii, line 1: meryl comer received compensation for her work as a senior project consultant. Her compensation is unrelated to her duties as a board member.”

“The deficit of $771,607 largely reflects the spend down of revenue received in 2017 for the ad pace initiative.”

“Research community in the quest for an alzheimer's cure-accomplishing this through our own patient-centered effective leadership, collaborative advocacy and strategic investments. Through networks and coalitions, we engage the most deeply affected communities (women, african americans, latinos, veterans, researchers, clergy, and patients and caregivers) to: - mobilize to demand greater research funding and elimination of barriers blocking the path to a cure; - focus attention on the unique burden of alzheimer's on women and communities of color, given the disparate impact of the disease on these communities, and scale inclusive solutions; - give greater voice to individuals living with ad-and their caregivers-in scientific, policy and regulatory decisions; - increase the speed, efficiency of and participation in clinical research; - ensure people, providers, and policy-makers treat brain health as an integral element of overall good health and identify cognitive decline early; - alleviate the economic and human burdens of caregiving through family-friendly federal and workplace policies. Our theory of change is rooted in the belief that americans can create the national will to prevent and treat alzheimer's by pressuring political, business and civic leaders to: (1) devote the needed resources to outcomes-oriented research, and (2) reform aspects of drug development that slow progress. We call this "leadership for the cure. And it works.”

“Program management/strategy: program service expenses 1,609,289. Management and general expenses 89,920. Fundraising expenses 18,682. Total expenses 1,717,891. Project funds: program service expenses 3,553,818. Management and general expenses 117,726. Fundraising expenses 349,885. Total expenses 4,021,429. Communications: program service expenses 478,793. Management and general expenses 0. Fundraising expenses 84,315. Total expenses 563,108. Other professional fees: program service expenses 139,082. Management and general expenses 19,300. Fundraising expenses 156,204. Total expenses 314,586.”

“For many services, usa2 contracts with firms to provide core capacities, including policy/legislative affairs, communications and media, digital marketing, and to lead two of our core networks (researchersagainstalzheimer's and womenagainstalzheimer's).”