Civic Intelligence

Foundation Fighting Blindness Clinical Research Institute

990 • Fiscal year 2022 • EIN 45-0524687

Jul 01, 2021 to Jun 30, 2022 • Filed on Nov 01, 2022

Organization ProfileWWW.RETINALDEGENERATIONFUND.ORG
6925 Oakland Mills Road 701Columbia, MD 21045

(410) 423-0600

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$45,350,093

Flat from 2022

Net Assets

Flat

$44,933,581

Flat from 2022

Liabilities

Flat

$416,512

Flat from 2022

Revenue And Expenses

Revenue

Flat

$15,424,974

Flat from 2022

Expenses

Flat

$1,051,912

Flat from 2022

Net Income

Flat

$14,373,062

Flat from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $2,381,367Liabilities 2011: $1,152,805Net Assets 2011: $1,228,5622011Assets 2012: $1,766,098Liabilities 2012: $1,310,177Net Assets 2012: $455,9212012Assets 2013: $2,308,427Liabilities 2013: $1,752,099Net Assets 2013: $556,3282013Assets 2014: $2,940,657Liabilities 2014: $2,782,681Net Assets 2014: $157,9762014Assets 2015: $1,333,743Liabilities 2015: $1,109,829Net Assets 2015: $223,9142015Assets 2016: $2,709,507Liabilities 2016: $1,621,320Net Assets 2016: $1,088,1872016Assets 2017: $4,864,479Liabilities 2017: $3,107,750Net Assets 2017: $1,756,7292017Assets 2018: $3,894,860Liabilities 2018: $681,174Net Assets 2018: $3,213,6862018Assets 2019: $4,037,044Liabilities 2019: $398,800Net Assets 2019: $3,638,2442019Assets 2020: $11,438,657Liabilities 2020: $1,127,880Net Assets 2020: $10,310,7772020Assets 2021: $31,011,511Liabilities 2021: $406,940Net Assets 2021: $30,604,5712021Assets 2022: $45,350,093Liabilities 2022: $416,512Net Assets 2022: $44,933,5812022Assets 2022: $45,350,093Liabilities 2022: $416,512Net Assets 2022: $44,933,5812022Assets 2023: $47,303,067Liabilities 2023: $65,457Net Assets 2023: $47,237,6102023Assets 2024: $52,460,807Liabilities 2024: $85,288Net Assets 2024: $52,375,5192024Assets 2025: $59,633,698Liabilities 2025: $103,316Net Assets 2025: $59,530,3822025

Highlighted filing

2022

Assets$45,350,093
Liabilities$416,512
Net Assets$44,933,581
Open 2022 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MExpenses 2011: $3,160,3042011Revenue 2012: $2,870,275Expenses 2012: $3,642,916Net Income 2012: -$772,6412012Revenue 2013: $5,195,870Expenses 2013: $5,093,512Net Income 2013: $102,3582013Revenue 2014: $4,737,262Expenses 2014: $5,135,614Net Income 2014: -$398,3522014Revenue 2015: $4,672,253Expenses 2015: $4,606,315Net Income 2015: $65,9382015Revenue 2016: $3,694,149Expenses 2016: $3,491,183Net Income 2016: $202,9662016Revenue 2017: $5,414,179Expenses 2017: $4,800,240Net Income 2017: $613,9392017Revenue 2018: $13,259,129Expenses 2018: $11,809,240Net Income 2018: $1,449,8892018Revenue 2019: $3,077,860Expenses 2019: $3,063,769Net Income 2019: $14,0912019Revenue 2020: $11,939,089Expenses 2020: $2,984,402Net Income 2020: $8,954,6872020Revenue 2021: $21,228,882Expenses 2021: $2,021,967Net Income 2021: $19,206,9152021Revenue 2022: $15,424,974Expenses 2022: $1,051,912Net Income 2022: $14,373,0622022Revenue 2022: $15,424,974Expenses 2022: $1,051,912Net Income 2022: $14,373,0622022Revenue 2023: $9,316,837Expenses 2023: $1,014,874Net Income 2023: $8,301,9632023Revenue 2024: $8,751,135Expenses 2024: $1,309,685Net Income 2024: $7,441,4502024Revenue 2025: $7,006,271Expenses 2025: $2,441,051Net Income 2025: $4,565,2202025

Highlighted filing

2022

Revenue$15,424,974
Expenses$1,051,912
Net Income$14,373,062
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2021 to Jun 30, 2022
Signed
Nov 1, 2022
Return Version
2021v4.2
Gross Receipts
$15,424,974
Mission and Program Overview

Mission

The foundation fighting blindness clinical research institute's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

The foundation fighting blindness retinal degeneration fund's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$21,506,962$37,103,878▲ $15,596,916
Cash and Non-Interest-Bearing Accounts$1,791,845$1,604,228▼ $187,617
Accounts Receivable$1,604,137$49,510▼ $1,554,627
Pledges and Grants Receivable$5,000--
Prepaid Expenses and Deferred Charges$1,757$4,417▲ $2,660
Total Assets$31,011,511$45,350,093▲ $14,338,582
Other Assets Total$6,101,810$6,588,060▲ $486,250
Liabilities
Other Liabilities$351,056$351,055▼ $1
Accounts Payable and Accrued Expenses$55,884$65,457▲ $9,573
Total Liabilities$406,940$416,512▲ $9,572
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$30,604,571$44,933,581▲ $14,329,010
Total Net Assets Fund Balance$30,604,571$44,933,581▲ $14,329,010
Total Liabilities and Net Assets / Fund Balance$31,011,511$45,350,093▲ $14,338,582

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$4,998,306--
Other Assets Org$6,588,060--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Russell W KelleySVP, Rd FundFT$223,742$140,694$364,436
Benjamin R YerxaCEO/pres (ex-officio)PT$153,411$98,679$252,090
Peter GinsbergEvp, Chief Business OfficerPT$112,393$33,618$146,011
Jason D MenzoCOOPT$83,992$46,330$130,322

Board Members and Trustees

NameTitle
Warren ThalerChairman
Adrienne Graves PhdDirector
Eugene De Juan MdDirector
Kelly LisbakkenDirector
Tony AdamisDirector
David BrintEx Officio Director
Jacque Duncan MdEx Officio Director
Jonathan Steinberg MdEx Officio Director
Revenue and Support

Revenue Composition

Contributions and Grants
$15,056,682
Program Service Revenue
$25,000
Investment Income
$343,292
Other Revenue
$0
Change in Net Assets
$14,373,062

Audited Revenue Reconciliation

Revenue per Audited Statements
$15,424,974
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$19,851,671
Total Revenue per Audited Statements
$35,276,645
Total Revenue per Form 990
$15,424,974
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$896,794
Other Expenses$155,118
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$722,044--$722,044
Other Employee Benefits$60,466--$60,466
Fees for Services Management$14,250$40,695-$54,945
Other Salaries and Wages$45,643--$45,643
Payroll Taxes$35,458--$35,458
Pension Plan Contributions$33,183--$33,183
Fees for Services Legal$22,974--$22,974
Travel$21,769--$21,769
Occupancy$16,604--$16,604
Fees for Services Accounting-$14,350-$14,350
Conferences and Meetings$10,827--$10,827
Office Expenses$8,703--$8,703
Other Expenses$3,730--$3,730
All Other Expenses$703$513-$1,216
Total Functional Expenses$996,354$55,558$0$1,051,912

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$40,241,260
Expenses Not Reported on Form 990$39,189,348
Expenses per Audited Statements$1,051,912
Total Expenses per Form 990$1,051,912
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
0
Spending
$10,772,530

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Investment-00$10,765,449
Europe (including Iceland & Greenland)Program ServicesTravel00$7,081
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Related Party$351,055
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 4

“Article iii membership - section 2 - added "(or equivalent)" to "managing director" article iv bod - updated section 3 and 4 - the board of directors of the corporation shall be composed of no more than eleven (11) voting members. (c)there shall be up to five (5) at large directors. Directors of the board shall serve for a term of two (2) years that align with a july 1 - june 30 fiscal year with a term limit of three (3) full, consecutive terms. Article v officers - section 1 and 7 - added "(or equivalent)" to "managing director" section 7 - added "in consultation with the executive management team" article vii - added section 9: "whenever the masculine pronoun appears in these by-laws, it shall be interpreted to include also the feminine pronoun."”

Form 990, Part VI, Section A, Line 6

“The sole member of ffb rd fund is the foundation fighting blindness, inc. (ffb).”

Form 990, Part VI, Section A, Line 7A

“Ffb elects the directors of ffb rd fund annually as needed.”

Form 990, Part VI, Section B, Line 11B

“Data to prepare the federal form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal form 990 is reviewed by the vp, finance and chief operating officer. With the coo's approval, the draft federal form 990 is then made available to all board members. A final draft is made available to all board members before filing.”

Form 990, Part VI, Section B, Line 12C

“In connection with any actual or possible conflict of interest, an interested person (including officers, directors, and key employees) must disclose, in writing prior to any discussion or vote upon a proposal, the existence and nature of his or her personal interest to the chair of the board and chair of the board committee considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, the interested person shall leave the board or committee meeting while the financial interest is discussed and voted upon. The remaining board shall decide if a conflict of interest exists, and if so, whether there is a compelling reason to recommend to the board that the conflict of interest policy be overridden. A quorum is needed for voting and the vote to override shall be by majority and duly noted in the minutes.”

Form 990, Part VI, Section C, Line 19

“Ffb rd fund's federal form 990 tax return and consolidated audit are available at its supported organization's website, www.fightingblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on ffb's web site. These documents are available for the same period of disclosure as set forth in section 6104(d).”

FORM 990, PART VII, SECTION A:

“The foundation fighting blindness, inc. (ffb), a related organization, acts as the common paymaster for ffb rd fund. Ffb also approves and reviews any compensation to officers, directors, trustees and key employees of ffb rd fund in conformance with their compensation determination policy.”

Filing and Contact Details

Filer

Filer Name
Foundation Fighting Blindness
EIN
45-0524687
Phone
4104230600
Address
6925 OAKLAND MILLS ROAD 701, COLUMBIA, MD 21045

Signing Officer

Name
Peter Ginsberg
Title
Chief Operating Officer, Ffb
Phone
4104230600
Signed
2022-11-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jason Menzo
Formed
2003
Legal Domicile
De
Voting Board Members
8
Independent Board Members
8
Employees
9
Volunteers
10

Preparer

Firm
Rsm US Llp
Address
100 INTERNATIONAL DRIVE SUITE 1400, BALTIMORE, MD 21202
Preparer
Julia Flannery CPA
Phone
4102469301
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Gain on equity method investment -44,052.”

Financial Statement Notes

PART X, LINE 2:

“The organization performed an evaluation of its uncertainty in income tax for the years ended june 30, 2022 and 2021, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status. The organization follows the accounting standard on accounting for uncertainty in income taxes, which addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the consolidated financial statements. Under this policy, the organization may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position would be sustained on examination by taxing authorities, based on the technical merits of the position. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the consolidated financial statements to comply with provisions of this guidance. The organization is no longer subject to income tax examinations for the u.s. Federal, state or local tax authorities for years before june 30, 2019.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Revenue from affiliate included on consolidated financial statements 35,006,491. Loss on equity method investments -44,052. Elimination entry included on financial statements -15,123,032.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Expenses from affiliates included on consolidated financial statements 54,300,116. Elimination entry included on financial statements -15,123,032.”

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IRS990/ActivityOrMissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
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IRS990/Desc0THE THREE LARGEST PROGRAM SERVICES ACCOMPLISHMENTS (AS MEASURED BY EXPENSES) FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (FFB-RDF) DURING FISCAL 2022 WERE EQUITY INVESTMENTS IN OPUS GENETICS, SPARINGVISION SAS, AND ATSENA THERAPEUTICS. OPUS GENETICS IS A PATIENT-FOCUSED GENE THERAPY COMPANY FOCUSED ON ORPHAN INHERITED RETINAL DISEASES. SPARINGVISION IS A LATE-STAGE PRECLINICAL COMPANY, AND ATSENA THERAPEUTICS IS A CLINICAL-STAGE COMPANY, WITH EACH ADVANCING PROMISING THERAPIES FOR RETINAL DEGENERATIVE DISEASES. FISCAL 2022 SUMMARY:FFB-RDF INVESTED $4,998,306 IN OPUS GENETICS TO HELP ADVANCE ITS PRECLINICAL STAGED PIPELINE OF ORPHAN RETINAL DEGENERATIVE DISEASE INDICATIONS INCLUDING LCA5, RDH12 AND NMNAT1 TOWARD CLINICAL TESTING. A CLINICAL TRIAL FOR LCA5 IS EXPECTED TO START IN THE FIRST QUARTER OF 2023. FFB-RDF INVESTED AN ADDITIONAL $2,949,500 IN SPARINGVISION SAS TO HELP ADVANCE TWO PRECLINICAL GENE AGNOSTIC GENE THERAPY PROGRAMS (SPVN06 AND SPVN20) FOR THE TREATMENT OF MULTIPLE TYPES OF RETINAL DEGENERATIVE DISEASE INCLUDING RETINITIS PIGMENTOSA, AND A GENE EDITING PROGRAM FOR RP1.FFB-RDF INVESTED AN ADDITIONAL $2,749,998 IN ATSENA THERAPEUTICS TO HELP SUPPORT A CLINICAL-STAGED GENE THERAPY PROGRAM FOR THE TREATMENT OF LCA1 AND TWO PRECLINICAL PROGRAMS FOR THE TREATMENT OF X-LINKED RETINOSCHISIS AND USHER1B.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt8431138
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt9346030
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10184340
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/PRES (EX-OFFICIO)
IRS990/Form990PartVIISectionAGrp/TitleTxt9COO
IRS990/Form990PartVIISectionAGrp/TitleTxt10EVP, CHIEF BUSINESS OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt11SVP, RD FUND
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0343292
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GrantAmt00
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0343292
IRS990/GrossReceiptsAmt015424974
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InvestmentInJointVentureInd01
IRS990/InvestmentsProgramRelatedGrp/BOYAmt021506962
IRS990/InvestmentsProgramRelatedGrp/EOYAmt037103878
IRS990/IRPDocumentCnt014
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0DE
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt030604571
IRS990/NetAssetsOrFundBalancesEOYAmt044933581
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0343292
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0343292
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt030604571
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt044933581
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ProgramServicesAmt016604
IRS990/OccupancyGrp/TotalAmt016604
IRS990/OfficeExpensesGrp/ProgramServicesAmt08703
IRS990/OfficeExpensesGrp/TotalAmt08703
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06101810
IRS990/OtherAssetsTotalGrp/EOYAmt06588060
IRS990/OtherChangesInNetAssetsAmt0-44052
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt060466
IRS990/OtherEmployeeBenefitsGrp/TotalAmt060466
IRS990/OtherExpensesGrp/Desc0PRINTING & PRODUCTION
IRS990/OtherExpensesGrp/ProgramServicesAmt03730
IRS990/OtherExpensesGrp/TotalAmt03730
IRS990/OtherLiabilitiesGrp/BOYAmt0351056
IRS990/OtherLiabilitiesGrp/EOYAmt0351055
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt045643
IRS990/OtherSalariesAndWagesGrp/TotalAmt045643
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt035458
IRS990/PayrollTaxesGrp/TotalAmt035458
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt033183
IRS990/PensionPlanContributionsGrp/TotalAmt033183
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt05000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01757
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04417
IRS990/PrincipalOfficerNm0JASON MENZO
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0MANAGEMENT FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt025000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt025000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt011140788
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01000000
IRS990/PYInvestmentIncomeAmt010060594
IRS990/PYOtherExpensesAmt0172826
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt027500
IRS990/PYRevenuesLessExpensesAmt019206915
IRS990/PYSalariesCompEmpBnftPaidAmt0849141
IRS990/PYTotalExpensesAmt02021967
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt021228882
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt014373062
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt015056682
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd01
IRS990/RevenueAmt025000
IRS990ScheduleA/Form990SchASupportingOrgGrp/Contribution35ControlledInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionControllerInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionFamilyInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ControlledDisqualifiedPrsnInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnControllIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnOwnrIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ExcessBusinessHoldingsRulesInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ListedByNameGoverningDocInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/LoanDisqualifiedPersonInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/OrganizationChangeSuprtOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/PaymentSubstantialContribtrInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgNotOrganizedUSInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgSectionC456Ind00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportNonSupportedOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SuprtOrgNoIRSDeterminationInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/OperateBenefitNonSuprtOrgInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/PowerAppointMajorityDirTrstInd01
IRS990ScheduleA/IRSWrittenDeterminationInd0X
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/SupportedOrganizationsCnt01
IRS990ScheduleA/SupportedOrganizationsTotalCnt01
IRS990ScheduleA/SupportedOrgInformationGrp/EIN0237135845
IRS990ScheduleA/SupportedOrgInformationGrp/GoverningDocumentListedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/OrganizationTypeCd07
IRS990ScheduleA/SupportedOrgInformationGrp/OtherSupportAmt00
IRS990ScheduleA/SupportedOrgInformationGrp/SupportAmt015056682
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrganizationName/BusinessNameLine1Txt0THE FOUNDATION FIGHTING BLINDNESS INC
IRS990ScheduleA/SupportingOrganization509a3Ind0X
IRS990ScheduleA/SupportingOrgType1Ind0X
IRS990ScheduleA/SupportSumAmt015056682
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt012264
IRS990ScheduleD/DonatedServicesUseFcltsAmt012264
IRS990ScheduleD/ExpensesNotReportedAmt039189348
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01051912
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt010765449
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt11000000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt25000000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt38499995
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt44000000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt5413088
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt6427057
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt71999983
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt84998306
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0SPARING VISION
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc1NAYAN THERAPEUTICS, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc2VEDERE BIO, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc3ATSENA THERAPEUTICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc4NACUITY
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc5LOOKOUT THERAPEUTICS, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc6CHECKEDUP
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc7SALIOGEN
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc8OPUS GENETICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd1C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd2C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd3C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd4C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd5F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd6C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd7C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd8C
IRS990ScheduleD/OtherAssetsOrgGrp/BookValueAmt06588060
IRS990ScheduleD/OtherAssetsOrgGrp/Desc0DUE FROM RELATED PARTY
IRS990ScheduleD/OtherExpensesIncludedAmt039177084
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0351055
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0DUE TO RELATED PARTY
IRS990ScheduleD/OtherRevenueAmt019839407
IRS990ScheduleD/RevenueNotReportedAmt019851671
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt015424974
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2022 AND 2021, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE ORGANIZATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE ORGANIZATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE CONSOLIDATED FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE ORGANIZATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2019.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 35,006,491. LOSS ON EQUITY METHOD INVESTMENTS -44,052. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -15,123,032.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2EXPENSES FROM AFFILIATES INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 54,300,116. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -15,123,032.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueOtherAssetsAmt06588060
IRS990ScheduleD/TotalBookValueProgramRltdAmt037103878
IRS990ScheduleD/TotalExpensesPerForm990Amt01051912
IRS990ScheduleD/TotalLiabilityAmt0351055
IRS990ScheduleD/TotalRevenuePerForm990Amt015424974
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt035276645
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt040241260
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt07081
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt110765449
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0TRAVEL
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1INVESTMENT
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd01
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$45,350,093
Liabilities
$416,512
Net assets
$44,933,581
Revenue
$15,424,974
Expenses
$1,051,912
Net income
$14,373,062
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$59.6$0.10$59.5$7.01$2.44$4.57
2024Detailed filing. Detailed filing data is available for this year.$52.5$0.09$52.4$8.75$1.31$7.44
2023Detailed filing. Detailed filing data is available for this year.$47.3$0.07$47.2$9.32$1.01$8.30
2022Detailed filing. Detailed filing data is available for this year.$45.4$0.42$44.9$15.4$1.05$14.4
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$45.4$0.42$44.9$15.4$1.05$14.4
2021Detailed filing. Detailed filing data is available for this year.$31.0$0.41$30.6$21.2$2.02$19.2
2020Detailed filing. Detailed filing data is available for this year.$11.4$1.13$10.3$11.9$2.98$8.95
2019Summary only. Only limited summary data is available for this year.$4.04$0.40$3.64$3.08$3.06$0.01
2018Detailed filing. Detailed filing data is available for this year.$3.89$0.68$3.21$13.3$11.8$1.45
2017Detailed filing. Detailed filing data is available for this year.$4.86$3.11$1.76$5.41$4.80$0.61
2016Detailed filing. Detailed filing data is available for this year.$2.71$1.62$1.09$3.69$3.49$0.20
2015Detailed filing. Detailed filing data is available for this year.$1.33$1.11$0.22$4.67$4.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$2.94$2.78$0.16$4.74$5.14$0.40
2013Summary only. Only limited summary data is available for this year.$2.31$1.75$0.56$5.20$5.09$0.10
2012Summary only. Only limited summary data is available for this year.$1.77$1.31$0.46$2.87$3.64$0.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.38$1.15$1.23$3.16