Civic Intelligence

Foundation Fighting Blindness Clinical Research Institute

990 • Fiscal year 2018 • EIN 45-0524687

Jul 01, 2017 to Jun 30, 2018 • Filed on Nov 15, 2018

Organization ProfileWWW.FIGHTBLINDNESS.ORG
7168 Columbia Gateway Drive No 100Columbia, MD 21046

(410) 423-0600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.17x

Higher debt load relative to assets than 46% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Liabilities / Revenue

17th percentile

0.05x

Higher debt load relative to revenue than 17% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Net Margin

69th percentile

11%

Higher net margin than 69% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Top Officer Pay

77th percentile

$287,358

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 2.2% of source-year revenue.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Asset Growth

3rd percentile

-20%

Faster asset growth than 3% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Revenue Growth

96th percentile

145%

Faster revenue growth than 96% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets46th percentile

Assets

Down

$3,894,860

Down $969,619 (-20%) from 2017

Net Assets

Up

$3,213,686

Up $1,456,957 (+83%) from 2017

Liabilities

Down

$681,174

Down $2,426,576 (-78%) from 2017

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin69th percentile

Revenue

Up

$13,259,129

Up $7,844,950 (+145%) from 2017

Expenses

Up

$11,809,240

Up $7,009,000 (+146%) from 2017

Net Income

Up

$1,449,889

Up $835,950 (+136%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth3rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $2,381,367Liabilities 2011: $1,152,805Net Assets 2011: $1,228,5622011Assets 2012: $1,766,098Liabilities 2012: $1,310,177Net Assets 2012: $455,9212012Assets 2013: $2,308,427Liabilities 2013: $1,752,099Net Assets 2013: $556,3282013Assets 2014: $2,940,657Liabilities 2014: $2,782,681Net Assets 2014: $157,9762014Assets 2015: $1,333,743Liabilities 2015: $1,109,829Net Assets 2015: $223,9142015Assets 2016: $2,709,507Liabilities 2016: $1,621,320Net Assets 2016: $1,088,1872016Assets 2017: $4,864,479Liabilities 2017: $3,107,750Net Assets 2017: $1,756,7292017Assets 2018: $3,894,860Liabilities 2018: $681,174Net Assets 2018: $3,213,6862018Assets 2019: $4,037,044Liabilities 2019: $398,800Net Assets 2019: $3,638,2442019Assets 2020: $11,438,657Liabilities 2020: $1,127,880Net Assets 2020: $10,310,7772020Assets 2021: $31,011,511Liabilities 2021: $406,940Net Assets 2021: $30,604,5712021Assets 2022: $45,350,093Liabilities 2022: $416,512Net Assets 2022: $44,933,5812022Assets 2023: $47,303,067Liabilities 2023: $65,457Net Assets 2023: $47,237,6102023Assets 2024: $52,460,807Liabilities 2024: $85,288Net Assets 2024: $52,375,5192024Assets 2025: $59,633,698Liabilities 2025: $103,316Net Assets 2025: $59,530,3822025

Highlighted filing

2018

Assets$3,894,860
Liabilities$681,174
Net Assets$3,213,686
Open 2018 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MExpenses 2011: $3,160,3042011Revenue 2012: $2,870,275Expenses 2012: $3,642,916Net Income 2012: -$772,6412012Revenue 2013: $5,195,870Expenses 2013: $5,093,512Net Income 2013: $102,3582013Revenue 2014: $4,737,262Expenses 2014: $5,135,614Net Income 2014: -$398,3522014Revenue 2015: $4,672,253Expenses 2015: $4,606,315Net Income 2015: $65,9382015Revenue 2016: $3,694,149Expenses 2016: $3,491,183Net Income 2016: $202,9662016Revenue 2017: $5,414,179Expenses 2017: $4,800,240Net Income 2017: $613,9392017Revenue 2018: $13,259,129Expenses 2018: $11,809,240Net Income 2018: $1,449,8892018Revenue 2019: $3,077,860Expenses 2019: $3,063,769Net Income 2019: $14,0912019Revenue 2020: $11,939,089Expenses 2020: $2,984,402Net Income 2020: $8,954,6872020Revenue 2021: $21,228,882Expenses 2021: $2,021,967Net Income 2021: $19,206,9152021Revenue 2022: $15,424,974Expenses 2022: $1,051,912Net Income 2022: $14,373,0622022Revenue 2023: $9,316,837Expenses 2023: $1,014,874Net Income 2023: $8,301,9632023Revenue 2024: $8,751,135Expenses 2024: $1,309,685Net Income 2024: $7,441,4502024Revenue 2025: $7,006,271Expenses 2025: $2,441,051Net Income 2025: $4,565,2202025

Highlighted filing

2018

Revenue$13,259,129
Expenses$11,809,240
Net Income$1,449,889
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Nov 15, 2018
Return Version
2017v2.3
Gross Receipts
$13,259,129
Mission and Program Overview

Mission

The foundation fighting blindness clinical research institute's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

The foundation fighting blindness clinical research institutes's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$870,135$2,894,925▲ $2,024,790
Prepaid Expenses and Deferred Charges$1,104,420$713,294▼ $391,126
Cash and Non-Interest-Bearing Accounts$512,483$157,026▼ $355,457
Accounts Receivable$2,377,441$129,615▼ $2,247,826
Total Assets$4,864,479$3,894,860▼ $969,619
Liabilities
Other Liabilities$0$351,055▲ $351,055
Accounts Payable and Accrued Expenses$2,886,045$215,798▼ $2,670,247
Grants Payable$221,705$114,321▼ $107,384
Total Liabilities$3,107,750$681,174▼ $2,426,576
Net Assets / Fund Balance
Unrestricted Net Assets$1,756,729$3,213,686▲ $1,456,957
Total Net Assets Fund Balance$1,756,729$3,213,686▲ $1,456,957
Total Liabilities and Net Assets / Fund Balance$4,864,479$3,894,860▼ $969,619

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$2,894,925--
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Patricia ZillioxChief Drug Dev Off (thru 11/10/17)FT$207,377$25,694$233,071
Annette HinkleTreas (ex-officio) (thru 3/30/18)--$137,686$137,686
Benjamin R YerxaCEO/pres (ex-officio) (beg 10/17)--$94,399$94,399
Mort GoldbergChairmanPT$85,578-$85,578

Board Members and Trustees

NameTitle
David BrintDirector
Dee MellorDirector
Edward GollobDirector
Ena ProssnerDirector
Gerald CagleDirector
Gordon GundDirector
Jonathan SteinbergDirector
Lester KaplanDirector
Peter CrowleyDirector
Robert HeidenbergDirector
William Thomas SchmidtCEO/pres (ex-officio) (thru 7/14/17)
Jason D MenzoCOO (beg 3/12/18)

Highest Paid Contractors

ContractorServicesLocationCompensation
Schaner & Lubitz LLCScientific Consultation30521 VIA LINDOSA, Laguna Niguel, CA 92677$125,759
-Legal4550 MONTGOMERY AVE SUITE 1100N, Bethesda, MD 20814$116,860
Revenue and Support

Revenue Composition

Contributions and Grants
$12,990,979
Program Service Revenue
$268,150
Investment Income
$0
Other Revenue
$0
Change in Net Assets
$1,449,889

Audited Revenue Reconciliation

Revenue per Audited Statements
$168,150
Revenue Not Reported on Financial Statements
$13,090,979
Revenue Not Reported on Form 990
$22,984,056
Other Revenue Adjustments
$13,090,979
Total Revenue per Audited Statements
$23,152,206
Total Revenue per Form 990
$13,259,129
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$9,125,384
Other Expenses$2,187,505
Salaries, Compensation, and Employee Benefits$496,351
Total Fundraising Expense$300
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$5,714,272--$5,714,272
Foreign Grants$3,411,112--$3,411,112
Fees for Services Other$363,428--$363,428
Current Officers, Directors, Trustees, and Key Employees$333,249--$333,249
Conferences and Meetings$128,776--$128,776
Other Salaries and Wages$125,067--$125,067
Fees for Services Legal$118,356--$118,356
Other Expenses$30,000$70,000-$100,000
Payroll Taxes$19,684--$19,684
Office Expenses$13,485-$300$13,785
Other Employee Benefits$10,400--$10,400
Travel$9,504--$9,504
Pension Plan Contributions$7,951--$7,951
Information Technology$6,807--$6,807
Total Functional Expenses$11,738,940$70,000$300$11,809,240

Audited Expense Reconciliation

Line ItemAmount
Expenses Not Reported on Form 990$33,783,849
Total Expenses per Audited Statements$32,502,110
Expenses Not Reported on Financial Statements$13,090,979
Other Expense Adjustments$13,090,979
Total Expenses per Form 990$11,809,240
Expenses per Audited Statements$-1,281,739
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Nacuity Pharmacuticals IncFt Worth, TX-Research$4,000,000
Jaeb Center Health ResearchTampa, FL501(c)(3)Research$1,102,640
Doheny Eye InstituteLos Angeles, CA501(c)(3)Research$363,032
Johns Hopkins UniversityBaltimore, MD501(c)(3)Research$248,600

International Summary

Offices
0
Employees
0
Spending
$6,306,037

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grantmaking-00$3,411,112
Europe (including Iceland & Greenland)Investment-00$2,894,925
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Related Party$351,055
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“The sole member of ffb cri is the foundation fighting blindness, inc. (ffb).”

Form 990, Part VI, Section A, Line 7A

“Ffb elects the directors of ffb cri annually as needed.”

Form 990, Part VI, Section B, Line 11B

“Data to prepare the federal form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal form 990 is reviewed by the senior director of finance and chief operating officer. With the senior director of finance's approval, the draft federal form 990 is then made available to all board members. All board members are invited to attend a special meeting of the finance committee to review the federal form 990. A final draft is made available to all board members before filing.”

Form 990, Part VI, Section B, Line 12C

“In connection with any actual or possible conflict of interest, an interested person (including officers, directors, and key employees) must disclose, in writing prior to any discussion or vote upon a proposal, the existence and nature of his or her personal interest to the chair of the board and chair of the board committee considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, the interested person shall leave the board or committee meeting while the financial interest is discussed and voted upon. The remaining board shall decide if a conflict of interest exists, and if so, whether there is a compelling reason to recommend to the board that the conflict of interest policy be overridden. A quorum is needed for voting and the vote to override shall be by majority and duly noted in the minutes.”

Form 990, Part VI, Section C, Line 19

“Ffb cri's federal form 990 tax return and consolidated audit are available at its supported organization's website, www.fightblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on ffb's web site. These documents are available for the same period of disclosure as set forth in section 6104(d).”

FORM 990, PART VII, SECTION A:

“The foundation fighting blindness, inc. (ffb), a related organization, acts as the common paymaster for ffb cri. Ffb also approves and reviews any compensation to officers, directors, trustees and key employees of ffb cri in conformance with their compensation determination policy.”

Filing and Contact Details

Filer

Filer Name
Foundation Fighting Blindness Clinical
EIN
45-0524687
Phone
4104230600
Address
7168 COLUMBIA GATEWAY DRIVE NO 100, COLUMBIA, MD 21046

Signing Officer

Name
Patricia Dudley
Title
Chro
Phone
4104230600
Signed
2018-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Benjamin Yerxa
Formed
2003
Legal Domicile
De
Voting Board Members
11
Independent Board Members
10
Employees
2
Volunteers
10

Preparer

Firm
Rsm US Llp
Address
100 INTERNATIONAL DRIVE SUITE 1400, BALTIMORE, MD 21202
Preparer
Julia Flannery CPA
Phone
4102469301
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation performed an evaluation of its uncertainty in income tax for the years ended june 30, 2018 and 2017, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status. The foundation follows the accounting standard on accounting for uncertainty in income taxes, which addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under this policy, the foundation may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position would be sustained on examination by taxing authorities, based on the technical merits of the position. Management has evaluated the foundation's tax positions and has concluded that the foundation has taken no uncertain tax positions that require adjustment to the financial statements to comply with provisions of this guidance. The foundation is no longer subject to income tax examinations for the u.s. Federal, state or local tax authorities for years before june 30, 2015.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Revenue from affiliate included on consolidated financial statements 22,976,988.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Elimination entry included on financial statements 13,090,979.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Expenses from affiliate included on consolidated financial statements 33,783,849.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Elimination entry included on financial statements 13,090,979.”

Raw XML AppendixShowing 400 of 681 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTES'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
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IRS990/Desc0DURING FISCAL 2018, THE FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE (FFB-CRI) SUPPORTED 6 DIFFERENT PROGRAM AREAS, PRIMARILY TARGETED TO BRIDGE THE GAP BETWEEN LATE PHASE PRECLINICAL RESEARCH AND CLINICAL TRIALS FOR PROMISING RETINAL DEGENERATIVE THERAPIES. FUNDING IS PRIMARILY TO SUPPORT PHASE I AND PHASE II PROOF OF CONCEPT CLINICAL TRIALS, WHICH ARE HISTORICALLY CHALLENGING TO FUND, BUT PLAY A VITAL ROLE TO MAKE THEM MORE ATTRACTIVE FOR OPPORTUNITIES TO VENTURE CAPITAL, BIOTECH AND PHARMA COMPANIES. PROGRAMS ARE TYPICALLY FUNDED FOR 2-4 YEARS, BASED ON MILESTONE ACHIEVEMENTS. DURING FISCAL 2018, FFB-CRI ISSUED AN AWARD TO PROQR, A BIOTECH COMPANY, TO DEVELOP A RETINAL GENETIC THERAPY FOR PEOPLE WITH USHER SYNDROME TYPE 2A (USH2A) AND RETINITIS PIGMENTOSA CAUSED BY MUTATIONS IN EXON 13 OF THE GENE USH2A. FFB-CRI WILL BE INVESTING UP TO $7.5 MILLION OVER THREE YEARS TO ADVANCE THE TREATMENT, KNOWN AS QR-421A, THROUGH LATE PRECLINICAL STUDIES AND A PHASE 1/2 CLINICAL TRIAL, WHICH IS EXPECTED TO START IN EARLY 2019.ADDITIONAL ACTIVITIES THAT BEGAN IN EARLIER FISCAL YEARS INCLUDE: - FUNDING FOR SPARING VISION, A BIOTECH COMPANY INCORPORATED IN FRANCE THAT SUPPORTS DEVELOPMENT OF A PROMISING NEUROPROTECTIVE GENE THERAPY FOR MULTIPLE TYPES OF RETINAL DEGENERATIVE DISEASE THROUGH LATE PRECLINICAL STUDIES AND A PHASE 1/2 CLINICAL TRIAL.- FUNDING FOR NACUITY PHARMACEUTICALS, A US BIOTECH COMPANY, FOCUSED ON THE DEVELOPMENT OF A SMALL MOLECULE DRUG TARGETED TO SLOW OR HALT THE PROGRESSION OF MULTIPLE TYPES OF RETINAL DEGENERATIVE DISEASES BY REDUCING OXIDATIVE STRESS. THE COMPANY IS COMPLETING PHASE 1 CLINICAL TRIALS AND IS PREPARING FOR PHASE II CLINICAL TRIALS ANTICIPATED TO START IN MID 2019. - FUNDING FOR PROGSTAR AND A CRITICAL NATURAL HISTORY STUDY TO CHARACTERIZE THE RATE OF PROGRESSION OF STARGARDT DISEASE DUE TO MUTATIONS IN THE ABCA4 GENE AND IDENTIFIED ENDPOINTS THAT COULD BE USED TO MEASURE EFFICACY IN CLINICAL TRIALS. THE RESULTS HAVE BEEN PUBLISHED IN OVER 10 PEER REVIEWED SCIENTIFIC REPORTS AND THE DATASET IS BEING SHARED WITH THE RESEARCH, BITOTECH AND PHARMA COMMUNITY TO HELP ACCELERATE THE DESIGN AND EXECUTION OF CLINICAL TRAILS FOR MULTIPLE POTENTIAL THERAPEUTICS. THE PROGRAM CULMINATED WITH AN IN-PERSON MEETING OF 60 LEADING INTERNATIONAL RETINAL DISEASE CLINICAL RESEARCHERS TO DISCUSS THE FINDINGS OF THE NATURAL HISTORY STUDY. - MY RETINA TRACKER IS AN INTERNATIONAL RETINAL DEGENERATIVE DISEASE PATIENT REGISTRY. DURING FISCAL 2018, APPROXIMATELY 3,000 ADDITIONAL PATIENTS WERE ADDED TO THE REGISTRY, BRINGING TOTAL REGISTERED INDIVIDUALS UP TO 9,500.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt151.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt118452
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt126925
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt138266
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt148612
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0MORT GOLDBERG
IRS990/Form990PartVIISectionAGrp/PersonNm1DAVID BRINT
IRS990/Form990PartVIISectionAGrp/PersonNm2GERALD CAGLE
IRS990/Form990PartVIISectionAGrp/PersonNm3PETER CROWLEY
IRS990/Form990PartVIISectionAGrp/PersonNm4EDWARD GOLLOB
IRS990/Form990PartVIISectionAGrp/PersonNm5GORDON GUND
IRS990/Form990PartVIISectionAGrp/PersonNm6ROBERT HEIDENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm7LESTER KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm8DEE MELLOR
IRS990/Form990PartVIISectionAGrp/PersonNm9ENA PROSSNER
IRS990/Form990PartVIISectionAGrp/PersonNm10JONATHAN STEINBERG
IRS990/Form990PartVIISectionAGrp/PersonNm11WILLIAM THOMAS SCHMIDT
IRS990/Form990PartVIISectionAGrp/PersonNm12BENJAMIN R YERXA
IRS990/Form990PartVIISectionAGrp/PersonNm13ANNETTE HINKLE
IRS990/Form990PartVIISectionAGrp/PersonNm14PATRICIA ZILLIOX
IRS990/Form990PartVIISectionAGrp/PersonNm15JASON D MENZO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt085578
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14224459
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt11278906
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt1287474
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt13129420
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11CEO/PRES (EX-OFFICIO) (THRU 7/14/17)
IRS990/Form990PartVIISectionAGrp/TitleTxt12CEO/PRES (EX-OFFICIO) (BEG 10/17)
IRS990/Form990PartVIISectionAGrp/TitleTxt13TREAS (EX-OFFICIO) (THRU 3/30/18)
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF DRUG DEV OFF (THRU 11/10/17)
IRS990/Form990PartVIISectionAGrp/TitleTxt15COO (BEG 3/12/18)
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt09125384
IRS990/GrantsPayableGrp/BOYAmt0221705
IRS990/GrantsPayableGrp/EOYAmt0114321
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt05714272
IRS990/GrantsToDomesticOrgsGrp/TotalAmt05714272
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt013259129
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt06807
IRS990/InformationTechnologyGrp/TotalAmt06807
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0870135
IRS990/InvestmentsProgramRelatedGrp/EOYAmt02894925
IRS990/IRPDocumentCnt017
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FIGHTING BLINDNESS CLINICAL RESEARCH INSTITUTE'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt01756729
IRS990/NetAssetsOrFundBalancesEOYAmt03213686
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt07068
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt0300
IRS990/OfficeExpensesGrp/ProgramServicesAmt013485
IRS990/OfficeExpensesGrp/TotalAmt013785
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt010400
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010400
IRS990/OtherExpensesGrp/Desc0TRIAL & GRANT RELATED E
IRS990/OtherExpensesGrp/Desc1SERVICE FEES TO FFB
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt070000
IRS990/OtherExpensesGrp/ProgramServicesAmt01446849
IRS990/OtherExpensesGrp/ProgramServicesAmt130000
IRS990/OtherExpensesGrp/TotalAmt01446849
IRS990/OtherExpensesGrp/TotalAmt1100000
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt0351055
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0125067
IRS990/OtherSalariesAndWagesGrp/TotalAmt0125067
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt019684
IRS990/PayrollTaxesGrp/TotalAmt019684
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt07951
IRS990/PensionPlanContributionsGrp/TotalAmt07951
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01104420
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0713294
IRS990/PrincipalOfficerNm0BENJAMIN YERXA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/BusinessCd2900099
IRS990/ProgramServiceRevenueGrp/Desc0WORKSHOP FEES
IRS990/ProgramServiceRevenueGrp/Desc1SERVICE FEE REVENUE
IRS990/ProgramServiceRevenueGrp/Desc2EXHIBITOR FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0166300
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt195850
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt26000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0166300
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt195850
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt26000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt05333359
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt03607851
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0738824
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt080820
IRS990/PYRevenuesLessExpensesAmt0613939
IRS990/PYSalariesCompEmpBnftPaidAmt0453565
IRS990/PYTotalExpensesAmt04800240
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt05414179
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt01449889
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt012990979
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd01
IRS990/RevenueAmt0268150
IRS990ScheduleA/Form990SchASupportingOrgGrp/Contribution35ControlledInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionControllerInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionFamilyInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ControlledDisqualifiedPrsnInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnControllIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnOwnrIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ExcessBusinessHoldingsRulesInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ListedByNameGoverningDocInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/LoanDisqualifiedPersonInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/OrganizationChangeSuprtOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/PaymentSubstantialContribtrInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgNotOrganizedUSInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgSectionC456Ind00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportNonSupportedOrgInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/SuprtOrgNoIRSDeterminationInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/OperateBenefitNonSuprtOrgInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/PowerAppointMajorityDirTrstInd01
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0DURING THE YEAR ENDED JUNE 30, 2018, FFB CRI AWARDED GRANTS TO ORGANIZATIONS THAT COMPLETE RESEARCH THAT CONTRIBUTES TO THE CURE AND TREATMENT OF RETINAL DISEASES. REFER TO SCHEDULES I AND F FOR A FULL LISTING OF THESE ORGANIZATIONS. THESE GRANTS ARE AWARDED AT THE DIRECTION OF THE SUPPORTED ORGANIZATION AND DIRECTLY RELATE TO THE SUPPORTED ORGANIZATION'S MISSION.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART IV, SECTION A, LINE 6:
IRS990ScheduleA/IRSWrittenDeterminationInd0X
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/SupportedOrganizationsCnt01
IRS990ScheduleA/SupportedOrganizationsTotalCnt01
IRS990ScheduleA/SupportedOrgInformationGrp/EIN0237135845
IRS990ScheduleA/SupportedOrgInformationGrp/GoverningDocumentListedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/OrganizationTypeCd07
IRS990ScheduleA/SupportedOrgInformationGrp/OtherSupportAmt00
IRS990ScheduleA/SupportedOrgInformationGrp/SupportAmt0100000
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrganizationName/BusinessNameLine1Txt0THE FOUNDATION FIGHTING BLINDNESS INC
IRS990ScheduleA/SupportingOrganization509a3Ind0X
IRS990ScheduleA/SupportingOrgType1Ind0X
IRS990ScheduleA/SupportSumAmt0100000
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt033783849
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt013090979
IRS990ScheduleD/ExpensesSubtotalAmt0-1281739
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt02894925
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0INVESTMENT IN SPARING VISION
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0F
IRS990ScheduleD/NetUnrealizedGainsInvstAmt07068
IRS990ScheduleD/OtherExpensesIncludedAmt033783849
IRS990ScheduleD/OtherExpensesNotIncludedAmt013090979
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0351055
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0DUE TO RELATED PARTY
IRS990ScheduleD/OtherRevenueAmt022976988
IRS990ScheduleD/OtherRevenuesNotIncludedAmt013090979
IRS990ScheduleD/RevenueNotReportedAmt022984056
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt013090979
IRS990ScheduleD/RevenueSubtotalAmt0168150
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2018 AND 2017, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE FOUNDATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THIS POLICY, THE FOUNDATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE FOUNDATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2015.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 22,976,988.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 13,090,979.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt3EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 33,783,849.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt4ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 13,090,979.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc3PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc4PART XII, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueProgramRltdAmt02894925
IRS990ScheduleD/TotalExpensesPerForm990Amt011809240
IRS990ScheduleD/TotalLiabilityAmt0351055
IRS990ScheduleD/TotalRevenuePerForm990Amt013259129
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt023152206
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt032502110
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,894,860
Liabilities
$681,174
Net assets
$3,213,686
Revenue
$13,259,129
Expenses
$11,809,240
Net income
$1,449,889
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$59.6$0.10$59.5$7.01$2.44$4.57
2024Detailed filing. Detailed filing data is available for this year.$52.5$0.09$52.4$8.75$1.31$7.44
2023Detailed filing. Detailed filing data is available for this year.$47.3$0.07$47.2$9.32$1.01$8.30
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$45.4$0.42$44.9$15.4$1.05$14.4
2021Detailed filing. Detailed filing data is available for this year.$31.0$0.41$30.6$21.2$2.02$19.2
2020Detailed filing. Detailed filing data is available for this year.$11.4$1.13$10.3$11.9$2.98$8.95
2019Summary only. Only limited summary data is available for this year.$4.04$0.40$3.64$3.08$3.06$0.01
2018Detailed filing. Detailed filing data is available for this year.$3.89$0.68$3.21$13.3$11.8$1.45
2017Detailed filing. Detailed filing data is available for this year.$4.86$3.11$1.76$5.41$4.80$0.61
2016Detailed filing. Detailed filing data is available for this year.$2.71$1.62$1.09$3.69$3.49$0.20
2015Detailed filing. Detailed filing data is available for this year.$1.33$1.11$0.22$4.67$4.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$2.94$2.78$0.16$4.74$5.14$0.40
2013Summary only. Only limited summary data is available for this year.$2.31$1.75$0.56$5.20$5.09$0.10
2012Summary only. Only limited summary data is available for this year.$1.77$1.31$0.46$2.87$3.64$0.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.38$1.15$1.23$3.16