Civic Intelligence

Foundation Fighting Blindness Clinical Research Institute

990 • Fiscal year 2023 • EIN 45-0524687

Jul 01, 2022 to Jun 30, 2023 • Filed on Nov 01, 2023

Organization ProfileWWW.RETINALDEGENERATIONFUND.ORG
6925 Oakland Mills Road 701Columbia, MD 21045

(410) 423-0600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

6th percentile

0.00x

Higher debt load relative to assets than 6% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Liabilities / Revenue

6th percentile

0.01x

Higher debt load relative to revenue than 6% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Net Margin

97th percentile

89%

Higher net margin than 97% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Top Officer Pay

88th percentile

$622,172

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 6.7% of source-year revenue.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Asset Growth

43rd percentile

4.3%

Faster asset growth than 43% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2023

Revenue Growth

8th percentile

-40%

Faster revenue growth than 8% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets6th percentile

Assets

Up

$47,303,067

Up $1,952,974 (+4.3%) from 2022

Net Assets

Up

$47,237,610

Up $2,304,029 (+5.1%) from 2022

Liabilities

Down

$65,457

Down $351,055 (-84%) from 2022

Revenue And Expenses
Liabilities / Revenue6th percentileNet Margin97th percentile

Revenue

Down

$9,316,837

Down $6,108,137 (-40%) from 2022

Expenses

Down

$1,014,874

Down $37,038 (-3.5%) from 2022

Net Income

Down

$8,301,963

Down $6,071,099 (-42%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth43rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $2,381,367Liabilities 2011: $1,152,805Net Assets 2011: $1,228,5622011Assets 2012: $1,766,098Liabilities 2012: $1,310,177Net Assets 2012: $455,9212012Assets 2013: $2,308,427Liabilities 2013: $1,752,099Net Assets 2013: $556,3282013Assets 2014: $2,940,657Liabilities 2014: $2,782,681Net Assets 2014: $157,9762014Assets 2015: $1,333,743Liabilities 2015: $1,109,829Net Assets 2015: $223,9142015Assets 2016: $2,709,507Liabilities 2016: $1,621,320Net Assets 2016: $1,088,1872016Assets 2017: $4,864,479Liabilities 2017: $3,107,750Net Assets 2017: $1,756,7292017Assets 2018: $3,894,860Liabilities 2018: $681,174Net Assets 2018: $3,213,6862018Assets 2019: $4,037,044Liabilities 2019: $398,800Net Assets 2019: $3,638,2442019Assets 2020: $11,438,657Liabilities 2020: $1,127,880Net Assets 2020: $10,310,7772020Assets 2021: $31,011,511Liabilities 2021: $406,940Net Assets 2021: $30,604,5712021Assets 2022: $45,350,093Liabilities 2022: $416,512Net Assets 2022: $44,933,5812022Assets 2023: $47,303,067Liabilities 2023: $65,457Net Assets 2023: $47,237,6102023Assets 2024: $52,460,807Liabilities 2024: $85,288Net Assets 2024: $52,375,5192024Assets 2025: $59,633,698Liabilities 2025: $103,316Net Assets 2025: $59,530,3822025

Highlighted filing

2023

Assets$47,303,067
Liabilities$65,457
Net Assets$47,237,610
Open 2023 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MExpenses 2011: $3,160,3042011Revenue 2012: $2,870,275Expenses 2012: $3,642,916Net Income 2012: -$772,6412012Revenue 2013: $5,195,870Expenses 2013: $5,093,512Net Income 2013: $102,3582013Revenue 2014: $4,737,262Expenses 2014: $5,135,614Net Income 2014: -$398,3522014Revenue 2015: $4,672,253Expenses 2015: $4,606,315Net Income 2015: $65,9382015Revenue 2016: $3,694,149Expenses 2016: $3,491,183Net Income 2016: $202,9662016Revenue 2017: $5,414,179Expenses 2017: $4,800,240Net Income 2017: $613,9392017Revenue 2018: $13,259,129Expenses 2018: $11,809,240Net Income 2018: $1,449,8892018Revenue 2019: $3,077,860Expenses 2019: $3,063,769Net Income 2019: $14,0912019Revenue 2020: $11,939,089Expenses 2020: $2,984,402Net Income 2020: $8,954,6872020Revenue 2021: $21,228,882Expenses 2021: $2,021,967Net Income 2021: $19,206,9152021Revenue 2022: $15,424,974Expenses 2022: $1,051,912Net Income 2022: $14,373,0622022Revenue 2023: $9,316,837Expenses 2023: $1,014,874Net Income 2023: $8,301,9632023Revenue 2024: $8,751,135Expenses 2024: $1,309,685Net Income 2024: $7,441,4502024Revenue 2025: $7,006,271Expenses 2025: $2,441,051Net Income 2025: $4,565,2202025

Highlighted filing

2023

Revenue$9,316,837
Expenses$1,014,874
Net Income$8,301,963
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2022 to Jun 30, 2023
Signed
Nov 1, 2023
Return Version
2022v5.0
Gross Receipts
$15,223,946
Mission and Program Overview

Mission

The foundation fighting blindness clinical research institute's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

The foundation fighting blindness retinal degeneration fund's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$37,103,878$37,780,078▲ $676,200
Other Notes and Loans Receivable, Net-$1,965,012-
Cash and Non-Interest-Bearing Accounts$1,604,228$313,572▼ $1,290,656
Accounts Receivable$49,510--
Prepaid Expenses and Deferred Charges$4,417$6,199▲ $1,782
Total Assets$45,350,093$47,303,067▲ $1,952,974
Other Assets Total$6,588,060$7,238,206▲ $650,146
Liabilities
Other Liabilities$351,055$0▼ $351,055
Accounts Payable and Accrued Expenses$65,457$65,457→ $0
Total Liabilities$416,512$65,457▼ $351,055
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$44,933,581$47,237,610▲ $2,304,029
Total Net Assets Fund Balance$44,933,581$47,237,610▲ $2,304,029
Total Liabilities and Net Assets / Fund Balance$45,350,093$47,303,067▲ $1,952,974

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$2,564,098--
Other Assets Org$7,238,206--
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Russell W KelleyManaging Director, Rd FundFT$260,777$79,056$339,833
Benjamin R YerxaCEO (thru 7/1/22)PT$101,576$42,203$143,779
Jason D MenzoCEO (beg 7/1/22)PT$79,826$24,780$104,606
Peter GinsbergCOOPT$58,888$18,938$77,826
Jacque Duncan MdEx Officio Director--$75,000$75,000
Catherine Bowes Rickman PhdDirector--$15,000$15,000
Jose-alain Sahel MdDirector--$15,000$15,000

Board Members and Trustees

NameTitle
Adrienne Graves PhdChairman
Jean Bennett Md PhdDirector
Kelly LisbakkenDirector
Mark Blumenkranz Md MmsDirector
Tony Adamis MdDirector
Warren ThalerDirector
David BrintEx Officio Director
Jonathan Steinberg MdEx Officio Director
Revenue and Support

Revenue Composition

Contributions and Grants
$14,920,274
Program Service Revenue
$0
Investment Income
$-5,603,437
Other Revenue
$0
Change in Net Assets
$8,301,963

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,316,837
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$16,669,356
Total Revenue per Audited Statements
$25,986,193
Total Revenue per Form 990
$9,316,837
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$845,458
Other Expenses$169,416
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$674,390--$674,390
Other Employee Benefits$65,187--$65,187
Fees for Services Legal$32,224$16,299-$48,523
Payroll Taxes$43,867--$43,867
Pension Plan Contributions$33,987--$33,987
Other Salaries and Wages$28,027--$28,027
Travel$27,835--$27,835
Conferences and Meetings$26,560--$26,560
Occupancy$20,396--$20,396
Fees for Services Management$1,525$15,817-$17,342
Fees for Services Accounting-$7,823-$7,823
Other Expenses$6,565$1,221-$7,786
Office Expenses$6,804--$6,804
Advertising$3,824--$3,824
All Other Expenses$2,240$283-$2,523
Total Functional Expenses$973,431$41,443$0$1,014,874

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$45,442,108
Expenses Not Reported on Form 990$44,427,234
Expenses per Audited Statements$1,014,874
Total Expenses per Form 990$1,014,874
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
0
Spending
$12,411,823

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Investment-00$12,407,036
Europe (including Iceland & Greenland)Program ServicesTravel00$4,787
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“The sole member of ffb rd fund is the foundation fighting blindness, inc. (ffb).”

Form 990, Part VI, Section A, Line 7A

“Ffb elects the directors of ffb rd fund annually as needed.”

Form 990, Part VI, Section B, Line 11B

“Data to prepare the federal form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal form 990 is reviewed by the vp, finance and chief operating officer. With the coo's approval, the draft federal form 990 is then made available to all board members. A final draft is made available to all board members before filing.”

Form 990, Part VI, Section B, Line 12C

“In connection with any actual or possible conflict of interest, an interested person (including officers, directors, and key employees) must disclose, in writing prior to any discussion or vote upon a proposal, the existence and nature of his or her personal interest to the chair of the board and chair of the board committee considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, the interested person shall leave the board or committee meeting while the financial interest is discussed and voted upon. The remaining board shall decide if a conflict of interest exists, and if so, whether there is a compelling reason to recommend to the board that the conflict of interest policy be overridden. A quorum is needed for voting and the vote to override shall be by majority and duly noted in the minutes.”

Form 990, Part VI, Section C, Line 19

“Ffb rd fund's federal form 990 tax return and consolidated audit are available at its supported organization's website, www.fightingblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on ffb's web site. These documents are available for the same period of disclosure as set forth in section 6104(d).”

FORM 990, PART VII, SECTION A:

“The foundation fighting blindness, inc. (ffb), a related organization, acts as the common paymaster for ffb rd fund. Ffb also approves and reviews any compensation to officers, directors, trustees and key employees of ffb rd fund in conformance with their compensation determination policy. Benjamin yerxa's compensation included in part vii, columns d, e, and f includes his compensation paid as the ceo of ffb and ffb rd fund for the period january 2022 through july 2022. It also includes his compensation paid as the ceo of related organization, opus genetics, from july 2022 through december 2022. Board members were not compensated for their service on the board, but some received stipends for serving on the ffb's scientific advisory board.”

Filing and Contact Details

Filer

Filer Name
Foundation Fighting Blindness
EIN
45-0524687
Phone
4104230600
Address
6925 OAKLAND MILLS ROAD 701, COLUMBIA, MD 21045

Signing Officer

Name
Peter Ginsberg
Title
Chief Operating Officer, Ffb
Phone
4104230600
Signed
2023-11-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Russell W Kelley
Formed
2003
Legal Domicile
De
Voting Board Members
11
Independent Board Members
8
Employees
10
Volunteers
11

Preparer

Firm
Rsm US Llp
Address
100 INTERNATIONAL DRIVE SUITE 1400, BALTIMORE, MD 21202
Preparer
Julia Flannery CPA
Phone
4102469301
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Loss on equity method investment -6,348,990.”

Financial Statement Notes

PART X, LINE 2:

“The organization performed an evaluation of its uncertainty in income tax for the years ended june 30, 2023 and 2022, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status. The organization follows the accounting standard on accounting for uncertainty in income taxes, which addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the consolidated financial statements. Under this policy, the organization may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position would be sustained on examination by taxing authorities, based on the technical merits of the position. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the consolidated financial statements to comply with provisions of this guidance. The organization is no longer subject to income tax examinations for the u.s. Federal, state or local tax authorities for years before june 30, 2020.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Revenue from affiliate included on consolidated financial statements 30,261,961. Loss on equity method investments -6,348,990. Elimination entry included on financial statements -7,243,615.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Expenses from affiliates included on consolidated financial statements 60,098,564. Elimination entry included on financial statements -15,320,274.”

Raw XML AppendixShowing 400 of 681 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
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IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0PETER GINSBERG
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IRS990/Desc0THE THREE LARGEST PROGRAM SERVICES ACCOMPLISHMENTS (AS MEASURED BY EXPENSES) FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (FFB-RDF) DURING FISCAL 2023 WERE EQUITY INVESTMENTS IN OPUS GENETICS, PERCEIVE BIO, AND AMBER BIO. OPUS GENETICS AND PERCEIVE BIO ARE BOTH CLINICALLY STAGED GENE THERAPY COMPANIES, AND AMBER BIO IS A PRECLINICAL STAGE COMPANY. EACH OF THESE COMPANIES IS FOCUSED ON ADVANCING PROMISING THERAPIES FOR RETINAL DEGENERATIVE DISEASES.FISCAL 2023 SUMMARY:FFB-RDF INVESTED AN ADDITIONAL $7,000,000 IN OPUS GENETICS TO HELP ADVANCE ITS PIPELINE OF ORPHAN INHERITED RETINAL DISEASE INDICATIONS INCLUDING LCA5, BEST1, RDH12 AND MERTK. THE FIRST PATIENT WAS DOSED IN THE LCA5 PHASE I/II CLINICAL TRIAL IN AUGUST 2023. FFB-RDF INVESTED $2,564,098 IN PERCEIVE BIO TO HELP ADVANCE A CLINICAL-STAGE COMPLEMENT FACTOR H GENE THERAPY PROGRAM FOR THE TREATMENT OF DRY AMD, AND AN EARLY STAGED DUAL LEUCINE KINASE-DEPENDENT INHIBITOR PROGRAM AIMED AT AXONAL NEUROPROTECTION FOR THE TREATMENT OF GLAUCOMA AND RETINAL DISEASES.FFB-RDF INVESTED $1,800,000 IN AMBER BIO TO HELP SUPPORT THE DEVELOPMENT OF AN RNA EDITING PLATFORM THAT WILL BE FIRST APPLIED TO RETINAL DEGENERATIVE DISEASES.
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IRS990/Form990PartVIISectionAGrp/PersonNm5KELLY LISBAKKEN
IRS990/Form990PartVIISectionAGrp/PersonNm6JACQUE DUNCAN MD
IRS990/Form990PartVIISectionAGrp/PersonNm7JONATHAN STEINBERG MD
IRS990/Form990PartVIISectionAGrp/PersonNm8TONY ADAMIS MD
IRS990/Form990PartVIISectionAGrp/PersonNm9JEAN BENNETT MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm10CATHERINE BOWES RICKMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11BENJAMIN R YERXA
IRS990/Form990PartVIISectionAGrp/PersonNm12JASON D MENZO
IRS990/Form990PartVIISectionAGrp/PersonNm13PETER GINSBERG
IRS990/Form990PartVIISectionAGrp/PersonNm14RUSSELL W KELLEY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11133821
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1291780
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1366023
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14280543
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt315000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt675000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt1015000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt11445893
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt12367118
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt13264095
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11CEO (THRU 7/1/22)
IRS990/Form990PartVIISectionAGrp/TitleTxt12CEO (BEG 7/1/22)
IRS990/Form990PartVIISectionAGrp/TitleTxt13COO
IRS990/Form990PartVIISectionAGrp/TitleTxt14MANAGING DIRECTOR, RD FUND
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0-5603437
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0303672
IRS990/GrossReceiptsAmt015223946
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InvestmentInJointVentureInd01
IRS990/InvestmentsProgramRelatedGrp/BOYAmt037103878
IRS990/InvestmentsProgramRelatedGrp/EOYAmt037780078
IRS990/IRPDocumentCnt012
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0DE
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt05907109
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt044933581
IRS990/NetAssetsOrFundBalancesEOYAmt047237610
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-5603437
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-5603437
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt044933581
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt047237610
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ProgramServicesAmt020396
IRS990/OccupancyGrp/TotalAmt020396
IRS990/OfficeExpensesGrp/ProgramServicesAmt06804
IRS990/OfficeExpensesGrp/TotalAmt06804
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06588060
IRS990/OtherAssetsTotalGrp/EOYAmt07238206
IRS990/OtherChangesInNetAssetsAmt0-6348990
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt065187
IRS990/OtherEmployeeBenefitsGrp/TotalAmt065187
IRS990/OtherExpensesGrp/Desc0PRINTING & PRODUCTION
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01221
IRS990/OtherExpensesGrp/ProgramServicesAmt06565
IRS990/OtherExpensesGrp/TotalAmt07786
IRS990/OtherLiabilitiesGrp/BOYAmt0351055
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt028027
IRS990/OtherSalariesAndWagesGrp/TotalAmt028027
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt01965012
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt043867
IRS990/PayrollTaxesGrp/TotalAmt043867
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt033987
IRS990/PensionPlanContributionsGrp/TotalAmt033987
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04417
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt06199
IRS990/PrincipalOfficerNm0RUSSELL W KELLEY
IRS990/PriorPeriodAdjustmentsAmt0351056
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt015056682
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt0343292
IRS990/PYOtherExpensesAmt0155118
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt025000
IRS990/PYRevenuesLessExpensesAmt014373062
IRS990/PYSalariesCompEmpBnftPaidAmt0896794
IRS990/PYTotalExpensesAmt01051912
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt015424974
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt08301963
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt014920274
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/Contribution35ControlledInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionControllerInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionFamilyInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ControlledDisqualifiedPrsnInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnControllIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnOwnrIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ExcessBusinessHoldingsRulesInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ListedByNameGoverningDocInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/LoanDisqualifiedPersonInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/OrganizationChangeSuprtOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/PaymentSubstantialContribtrInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgNotOrganizedUSInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgSectionC456Ind00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportNonSupportedOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SuprtOrgNoIRSDeterminationInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/OperateBenefitNonSuprtOrgInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/PowerAppointMajorityDirTrstInd01
IRS990ScheduleA/IRSWrittenDeterminationInd0X
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/SupportedOrganizationsCnt01
IRS990ScheduleA/SupportedOrganizationsTotalCnt01
IRS990ScheduleA/SupportedOrgInformationGrp/EIN0237135845
IRS990ScheduleA/SupportedOrgInformationGrp/GoverningDocumentListedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/OrganizationTypeCd07
IRS990ScheduleA/SupportedOrgInformationGrp/OtherSupportAmt00
IRS990ScheduleA/SupportedOrgInformationGrp/SupportAmt014920274
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrganizationName/BusinessNameLine1Txt0THE FOUNDATION FIGHTING BLINDNESS INC
IRS990ScheduleA/SupportingOrganization509a3Ind0X
IRS990ScheduleA/SupportingOrgType1Ind0X
IRS990ScheduleA/SupportSumAmt014920274
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt044427234
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01014874
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt012407036
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt18499995
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt24000000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt3383593
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt4427057
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt51999983
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt65698317
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt71799999
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt82564098
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0SPARING VISION
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc1ATSENA THERAPEUTICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc2NACUITY
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc3LOOKOUT THERAPEUTICS, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc4CHECKEDUP
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc5SALIOGEN
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc6OPUS GENETICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc7AMBER BIO
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc8PERCEIVE BIO
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd1C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd2C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd3F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd4C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd5C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd6F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd7C
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd8C
IRS990ScheduleD/OtherAssetsOrgGrp/BookValueAmt07238206
IRS990ScheduleD/OtherAssetsOrgGrp/Desc0DUE FROM RELATED PARTY
IRS990ScheduleD/OtherExpensesIncludedAmt044778290
IRS990ScheduleD/OtherRevenueAmt016669356
IRS990ScheduleD/PriorYearAdjustmentsAmt0-351056
IRS990ScheduleD/RevenueNotReportedAmt016669356
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt09316837
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2023 AND 2022, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE ORGANIZATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE ORGANIZATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE CONSOLIDATED FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE ORGANIZATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2020.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 30,261,961. LOSS ON EQUITY METHOD INVESTMENTS -6,348,990. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -7,243,615.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2EXPENSES FROM AFFILIATES INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 60,098,564. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -15,320,274.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueOtherAssetsAmt07238206
IRS990ScheduleD/TotalBookValueProgramRltdAmt037780078
IRS990ScheduleD/TotalExpensesPerForm990Amt01014874
IRS990ScheduleD/TotalRevenuePerForm990Amt09316837
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt025986193
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt045442108
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$47,303,067
Liabilities
$65,457
Net assets
$47,237,610
Revenue
$9,316,837
Expenses
$1,014,874
Net income
$8,301,963
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$59.6$0.10$59.5$7.01$2.44$4.57
2024Detailed filing. Detailed filing data is available for this year.$52.5$0.09$52.4$8.75$1.31$7.44
2023Detailed filing. Detailed filing data is available for this year.$47.3$0.07$47.2$9.32$1.01$8.30
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$45.4$0.42$44.9$15.4$1.05$14.4
2021Detailed filing. Detailed filing data is available for this year.$31.0$0.41$30.6$21.2$2.02$19.2
2020Detailed filing. Detailed filing data is available for this year.$11.4$1.13$10.3$11.9$2.98$8.95
2019Summary only. Only limited summary data is available for this year.$4.04$0.40$3.64$3.08$3.06$0.01
2018Detailed filing. Detailed filing data is available for this year.$3.89$0.68$3.21$13.3$11.8$1.45
2017Detailed filing. Detailed filing data is available for this year.$4.86$3.11$1.76$5.41$4.80$0.61
2016Detailed filing. Detailed filing data is available for this year.$2.71$1.62$1.09$3.69$3.49$0.20
2015Detailed filing. Detailed filing data is available for this year.$1.33$1.11$0.22$4.67$4.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$2.94$2.78$0.16$4.74$5.14$0.40
2013Summary only. Only limited summary data is available for this year.$2.31$1.75$0.56$5.20$5.09$0.10
2012Summary only. Only limited summary data is available for this year.$1.77$1.31$0.46$2.87$3.64$0.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.38$1.15$1.23$3.16