Civic Intelligence

Foundation Fighting Blindness Clinical Research Institute

990 • Fiscal year 2020 • EIN 45-0524687

Jul 01, 2019 to Jun 30, 2020 • Filed on Nov 06, 2020

6925 Oakland Mills Road No 701Columbia, MD 21045

(410) 423-0600

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

35th percentile

0.10x

Higher debt load relative to assets than 35% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Liabilities / Revenue

23rd percentile

0.09x

Higher debt load relative to revenue than 23% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Net Margin

96th percentile

75%

Higher net margin than 96% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Top Officer Pay

92nd percentile

$545,448

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 4.6% of source-year revenue.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Asset Growth

98th percentile

183%

Faster asset growth than 98% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2019 to 2020

Revenue Growth

97th percentile

288%

Faster revenue growth than 97% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2019 to 2020

Assets

Up

$11,438,657

Up $7,401,613 (+183%) from 2019

Net Assets

Up

$10,310,777

Up $6,672,533 (+183%) from 2019

Liabilities

Up

$1,127,880

Up $729,080 (+183%) from 2019

Revenue

Up

$11,939,089

Up $8,861,229 (+288%) from 2019

Expenses

Down

$2,984,402

Down $79,367 (-2.6%) from 2019

Net Income

Up

$8,954,687

Up $8,940,596 (+63449%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $2,381,367Liabilities 2011: $1,152,805Net Assets 2011: $1,228,5622011Assets 2012: $1,766,098Liabilities 2012: $1,310,177Net Assets 2012: $455,9212012Assets 2013: $2,308,427Liabilities 2013: $1,752,099Net Assets 2013: $556,3282013Assets 2014: $2,940,657Liabilities 2014: $2,782,681Net Assets 2014: $157,9762014Assets 2015: $1,333,743Liabilities 2015: $1,109,829Net Assets 2015: $223,9142015Assets 2016: $2,709,507Liabilities 2016: $1,621,320Net Assets 2016: $1,088,1872016Assets 2017: $4,864,479Liabilities 2017: $3,107,750Net Assets 2017: $1,756,7292017Assets 2018: $3,894,860Liabilities 2018: $681,174Net Assets 2018: $3,213,6862018Assets 2019: $4,037,044Liabilities 2019: $398,800Net Assets 2019: $3,638,2442019Assets 2020: $11,438,657Liabilities 2020: $1,127,880Net Assets 2020: $10,310,7772020Assets 2021: $31,011,511Liabilities 2021: $406,940Net Assets 2021: $30,604,5712021Assets 2022: $45,350,093Liabilities 2022: $416,512Net Assets 2022: $44,933,5812022Assets 2023: $47,303,067Liabilities 2023: $65,457Net Assets 2023: $47,237,6102023Assets 2024: $52,460,807Liabilities 2024: $85,288Net Assets 2024: $52,375,5192024Assets 2025: $59,633,698Liabilities 2025: $103,316Net Assets 2025: $59,530,3822025

Highlighted filing

2020

Assets$11,438,657
Liabilities$1,127,880
Net Assets$10,310,777

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MExpenses 2011: $3,160,3042011Revenue 2012: $2,870,275Expenses 2012: $3,642,916Net Income 2012: -$772,6412012Revenue 2013: $5,195,870Expenses 2013: $5,093,512Net Income 2013: $102,3582013Revenue 2014: $4,737,262Expenses 2014: $5,135,614Net Income 2014: -$398,3522014Revenue 2015: $4,672,253Expenses 2015: $4,606,315Net Income 2015: $65,9382015Revenue 2016: $3,694,149Expenses 2016: $3,491,183Net Income 2016: $202,9662016Revenue 2017: $5,414,179Expenses 2017: $4,800,240Net Income 2017: $613,9392017Revenue 2018: $13,259,129Expenses 2018: $11,809,240Net Income 2018: $1,449,8892018Revenue 2019: $3,077,860Expenses 2019: $3,063,769Net Income 2019: $14,0912019Revenue 2020: $11,939,089Expenses 2020: $2,984,402Net Income 2020: $8,954,6872020Revenue 2021: $21,228,882Expenses 2021: $2,021,967Net Income 2021: $19,206,9152021Revenue 2022: $15,424,974Expenses 2022: $1,051,912Net Income 2022: $14,373,0622022Revenue 2023: $9,316,837Expenses 2023: $1,014,874Net Income 2023: $8,301,9632023Revenue 2024: $8,751,135Expenses 2024: $1,309,685Net Income 2024: $7,441,4502024Revenue 2025: $7,006,271Expenses 2025: $2,441,051Net Income 2025: $4,565,2202025

Highlighted filing

2020

Revenue$11,939,089
Expenses$2,984,402
Net Income$8,954,687
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Nov 6, 2020
Return Version
2019v5.1
Gross Receipts
$11,939,089
Mission and Program Overview

Mission

The foundation fighting blindness clinical research institute's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

The foundation fighting blindness retinal degeneration fund's mission is to accelerate the translation of retinal laboratory-based research into clinical trials to expedite the commercialization of patient therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$3,631,237$11,038,170▲ $7,406,933
Cash and Non-Interest-Bearing Accounts$304,568$267,991▼ $36,577
Accounts Receivable$100,000$129,912▲ $29,912
Prepaid Expenses and Deferred Charges$1,239$2,584▲ $1,345
Total Assets$4,037,044$11,438,657▲ $7,401,613
Liabilities
Grants Payable-$750,000-
Other Liabilities$351,055$351,055→ $0
Accounts Payable and Accrued Expenses$47,745$26,825▼ $20,920
Total Liabilities$398,800$1,127,880▲ $729,080
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,638,244$10,310,777▲ $6,672,533
Total Net Assets Fund Balance$3,638,244$10,310,777▲ $6,672,533
Total Liabilities and Net Assets / Fund Balance$4,037,044$11,438,657▲ $7,401,613

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$2,000,000--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Russell W KellyVP, Investments & AlliancesFT$192,595$65,141$257,736
Benjamin R YerxaCEO/pres (ex-officio)PT$61,295$20,522$81,817

Board Members and Trustees

NameTitle
Warren ThalerChairman
Adrienne Graves PhdDirector
Eugene De Juan MdDirector
Jason MorrisDirector
Kelly LisbakkenDirector
David BrintEx Officio Director
Jacque Duncan MdEx Officio Director
Jonathan Steinberg MdEx Officio Director
Jason D MenzoCOO
Revenue and Support

Revenue Composition

Contributions and Grants
$11,939,089
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
Change in Net Assets
$8,954,687

Audited Revenue Reconciliation

Revenue per Audited Statements
$-100,000
Revenue Not Reported on Financial Statements
$12,039,089
Revenue Not Reported on Form 990
$34,838,956
Other Revenue Adjustments
$12,039,089
Total Revenue per Audited Statements
$34,738,956
Total Revenue per Form 990
$11,939,089
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,250,000
Salaries, Compensation, and Employee Benefits$423,451
Other Expenses$310,951
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$2,250,000--$2,250,000
Current Officers, Directors, Trustees, and Key Employees$348,210--$348,210
Fees for Services Management$79,483$715-$80,198
Fees for Services Legal$57,889$10,721-$68,610
Other Employee Benefits$40,799--$40,799
Travel$26,287--$26,287
Payroll Taxes$18,009--$18,009
Pension Plan Contributions$16,433--$16,433
Occupancy$16,308--$16,308
Office Expenses$4,033$3,081-$7,114
Conferences and Meetings$6,635$88-$6,723
Fees for Services Accounting-$4,600-$4,600
Other Expenses$255$856-$1,111
Total Functional Expenses$2,894,341$90,061$0$2,984,402

Audited Expense Reconciliation

Line ItemAmount
Expenses Not Reported on Form 990$40,887,433
Total Expenses per Audited Statements$31,832,746
Expenses Not Reported on Financial Statements$12,039,089
Other Expense Adjustments$12,039,089
Total Expenses per Form 990$2,984,402
Expenses per Audited Statements$-9,054,687
International Activity

International Summary

Offices
0
Employees
0
Spending
$5,921,560

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)InvestmentProgram Related Travel00$3,663,173
Europe (including Iceland & Greenland)Grantmaking-00$2,250,000
Europe (including Iceland & Greenland)Program Service-00$8,387
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Related Party$351,055
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

The sole member of ffb rd fund is the foundation fighting blindness, inc. (ffb).

Form 990, Part VI, Section A, Line 7A

Ffb elects the directors of ffb rd fund annually as needed.

Form 990, Part VI, Section B, Line 11B

Data to prepare the federal form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal form 990 is reviewed by the vp of finance and chief operating officer. With the vp of finance's approval, the draft federal form 990 is then made available to all board members. A final draft is made available to all board members before filing.

Form 990, Part VI, Section B, Line 12C

In connection with any actual or possible conflict of interest, an interested person (including officers, directors, and key employees) must disclose, in writing prior to any discussion or vote upon a proposal, the existence and nature of his or her personal interest to the chair of the board and chair of the board committee considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, the interested person shall leave the board or committee meeting while the financial interest is discussed and voted upon. The remaining board shall decide if a conflict of interest exists, and if so, whether there is a compelling reason to recommend to the board that the conflict of interest policy be overridden. A quorum is needed for voting and the vote to override shall be by majority and duly noted in the minutes.

Form 990, Part VI, Section C, Line 19

Ffb rd fund's federal form 990 tax return and consolidated audit are available at its supported organization's website, www.fightingblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on ffb's web site. These documents are available for the same period of disclosure as set forth in section 6104(d).

FORM 990, PART VII, SECTION A:

The foundation fighting blindness, inc. (ffb), a related organization, acts as the common paymaster for ffb rd fund. Ffb also approves and reviews any compensation to officers, directors, trustees and key employees of ffb rd fund in conformance with their compensation determination policy.

Filing and Contact Details

Filer

Filer Name
Foundation Fighting Blindness
EIN
45-0524687
Phone
4104230600
Address
6925 OAKLAND MILLS ROAD NO 701, COLUMBIA, MD 21045

Signing Officer

Name
Jason Menzo
Title
COO
Phone
4104230600
Signed
2020-11-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Benjamin Yerxa
Formed
2003
Legal Domicile
De
Voting Board Members
8
Independent Board Members
8
Employees
2
Volunteers
10

Preparer

Firm
Rsm US Llp
Address
100 INTERNATIONAL DRIVE SUITE 1400, BALTIMORE, MD 21202
Preparer
Julia Flannery CPA
Phone
4102469301
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Loss on equity method investment -2,282,154.

Financial Statement Notes

PART X, LINE 2:

The foundation performed an evaluation of its uncertainty in income tax for the years ended june 30, 2020 and 2019, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status. The foundation follows the accounting standard on accounting for uncertainty in income taxes, which addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the consolidated financial statements. Under this policy, the foundation may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position would be sustained on examination by taxing authorities, based on the technical merits of the position. Management has evaluated the foundation's tax positions and has concluded that the foundation has taken no uncertain tax positions that require adjustment to the financial statements to comply with provisions of this guidance. The foundation is no longer subject to income tax examinations for the u.s. Federal, state or local tax authorities for years before june 30, 2017.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Revenue from affiliate included on consolidated financial statements 36,986,562. Loss on equity method investments -2,282,154.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Elimination entry included on financial statements 12,039,089.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Expenses from affiliate included on consolidated financial statements 40,752,885.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Elimination entry included on financial statements 12,039,089.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
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IRS990/Desc0DURING FISCAL 2020, THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (FFB-RDF) SUPPORTED THE FOLLOWING 7 NEW AND ONGOING INVESTMENTS WITH RESPECTIVE COMMITTED CAPITAL: 1) SPARING VISION ($8.65M, 2) NACUITY PHARMACEUTICALS (NACUITY: $7.5M), 3) PROQR ($7.5M), 4) NAYAN THERAPEUTICS (NAYAN: $1M), AND 5) VEDERE BIO (VEDERE: $3M), ATSENA THERAPEUTICS (ATSENA: $3M) STARGAZER PHARMACEUTICALS (STARGAZER: $.25M). SPARING VISION, A PORTION OF NACUITY, NAYAN, VEDERE, ATSENA, AND STARGAZER ARE EQUITY INVESTMENTS WITH CAPITAL RESERVES TO INVEST IN FUTURE FINANCING ROUNDS TO HELP MAINTAIN A HEALTHY OWNERSHIP POSITION. EACH OF THESE COMPANIES HAVE LATE PHASE PRECLINICAL RESEARCH AND/OR CLINICAL TRIAL PROGRAMS FOR ADVANCING PROMISING RETINAL DEGENERATIVE THERAPIES. FUNDING IS PRIMARILY TO SUPPORT PHASE ONE AND PHASE TWO PROOF OF CONCEPT CLINICAL TRIALS, WHICH ARE HISTORICALLY CHALLENGING TO FUND, BUT PLAY A VITAL ROLE TO MAKE THEM MORE ATTRACTIVE FOR OPPORTUNITIES TO VENTURE CAPITAL, BIOTECH AND PHARMA COMPANIES. FISCAL 2020 SUMMARY:FFB-RDF INVESTED AN ADDITIONAL $3.75M IN SPARING VISION AND CONTINUES TO TAKE AN ACTIVE ROLE FOR ADVANCING THE GENE THERAPY PROGRAM AT SPARING VISION. SPARING VISION IS A BIOTECH COMPANY INCORPORATED IN FRANCE THAT SUPPORTS DEVELOPMENT OF A PROMISING NEUROPROTECTIVE GENE THERAPY FOR MULTIPLE TYPES OF RETINAL DEGENERATIVE DISEASE THROUGH LATE PRECLINICAL STUDIES AND A PHASE ONE/TWO CLINICAL TRIAL. FFB-RDF INVESTED $2.25M IN COMMITTED CAPITAL TO PROQR FOR ACHIEVING CERTAIN PRECLINICAL AND CLINICAL MILESTONES TO ADVANCE A RETINAL GENETIC THERAPY FOR PEOPLE WITH USHER SYNDROME TYPE 2A (USH2A) AND RETINITIS PIGMENTOSA CAUSED BY MUTATIONS IN EXON 13 OF THE GENE THAT CAUSES USH2A. FFB-RDF WILL BE INVESTING THE REMAINDER OF COMMITTED FUNDS OVER THE NEXT THREE YEARS TO ADVANCE THIS CLINICAL PROGRAM KNOWN AS QR-421A THAT IS CURRENTLY ENROLLING USH2A PATIENTS. FFB-RDF ALSO INVESTED $2.1M IN COMMITTED CAPITAL TO VEDERE BIO. THESE PROCEEDS ARE DEDICATED TO ACHIEVING CERTAIN PRECLINICAL MILESTONES TO ADVANCE GENE-AGNOSTIC THERAPEUTIC CANDIDATES FOR RETINITIS PIGMENTOSA.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt874365
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10210344
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt8421400
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt9364166
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7EX OFFICIO DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CEO/PRES (EX-OFFICIO)
IRS990/Form990PartVIISectionAGrp/TitleTxt9COO
IRS990/Form990PartVIISectionAGrp/TitleTxt10VP, INVESTMENTS & ALLIANCES
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GrantAmt02250000
IRS990/GrantsPayableGrp/EOYAmt0750000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt011939089
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InvestmentInJointVentureInd01
IRS990/InvestmentsProgramRelatedGrp/BOYAmt03631237
IRS990/InvestmentsProgramRelatedGrp/EOYAmt011038170
IRS990/IRPDocumentCnt014
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03638244
IRS990/NetAssetsOrFundBalancesEOYAmt010310777
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03638244
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt010310777
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ProgramServicesAmt016308
IRS990/OccupancyGrp/TotalAmt016308
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03081
IRS990/OfficeExpensesGrp/ProgramServicesAmt04033
IRS990/OfficeExpensesGrp/TotalAmt07114
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0-2282154
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt040799
IRS990/OtherEmployeeBenefitsGrp/TotalAmt040799
IRS990/OtherExpensesGrp/Desc0SERVICE FEES TO FFB
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt070000
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1856
IRS990/OtherExpensesGrp/ProgramServicesAmt030000
IRS990/OtherExpensesGrp/ProgramServicesAmt1255
IRS990/OtherExpensesGrp/TotalAmt0100000
IRS990/OtherExpensesGrp/TotalAmt11111
IRS990/OtherLiabilitiesGrp/BOYAmt0351055
IRS990/OtherLiabilitiesGrp/EOYAmt0351055
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt018009
IRS990/PayrollTaxesGrp/TotalAmt018009
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt016433
IRS990/PensionPlanContributionsGrp/TotalAmt016433
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01239
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt02584
IRS990/PrincipalOfficerNm0BENJAMIN YERXA
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03077860
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02352189
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0347828
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt014091
IRS990/PYSalariesCompEmpBnftPaidAmt0363752
IRS990/PYTotalExpensesAmt03063769
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03077860
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt08954687
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt011939089
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/Contribution35ControlledInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionControllerInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ContributionFamilyInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ControlledDisqualifiedPrsnInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnControllIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/DisqualifiedPrsnOwnrIntInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ExcessBusinessHoldingsRulesInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/ListedByNameGoverningDocInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/LoanDisqualifiedPersonInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/OrganizationChangeSuprtOrgInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/PaymentSubstantialContribtrInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgNotOrganizedUSInd00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportedOrgSectionC456Ind00
IRS990ScheduleA/Form990SchASupportingOrgGrp/SupportNonSupportedOrgInd01
IRS990ScheduleA/Form990SchASupportingOrgGrp/SuprtOrgNoIRSDeterminationInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/OperateBenefitNonSuprtOrgInd00
IRS990ScheduleA/Form990SchAType1SuprtOrgGrp/PowerAppointMajorityDirTrstInd01
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0DURING THE YEAR ENDED JUNE 30, 2020, FOUNDATION FIGHTING BLINDNESS RD FUND AWARDED GRANTS TO ORGANIZATIONS THAT COMPLETE RESEARCH THAT CONTRIBUTES TO THE CURE AND TREATMENT OF RETINAL DISEASES. THESE GRANTS ARE AWARDED AT THE DIRECTION OF THE SUPPORTED ORGANIZATION AND DIRECTLY RELATE TO THE SUPPORTED ORGANIZATION'S MISSION.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART IV, SECTION A, LINE 6:
IRS990ScheduleA/IRSWrittenDeterminationInd0X
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/SupportedOrganizationsCnt01
IRS990ScheduleA/SupportedOrganizationsTotalCnt01
IRS990ScheduleA/SupportedOrgInformationGrp/EIN0237135845
IRS990ScheduleA/SupportedOrgInformationGrp/GoverningDocumentListedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/OrganizationTypeCd07
IRS990ScheduleA/SupportedOrgInformationGrp/OtherSupportAmt00
IRS990ScheduleA/SupportedOrgInformationGrp/SupportAmt011939089
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrganizationName/BusinessNameLine1Txt0THE FOUNDATION FIGHTING BLINDNESS INC
IRS990ScheduleA/SupportingOrganization509a3Ind0X
IRS990ScheduleA/SupportingOrgType1Ind0X
IRS990ScheduleA/SupportSumAmt011939089
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0134548
IRS990ScheduleD/DonatedServicesUseFcltsAmt0134548
IRS990ScheduleD/ExpensesNotReportedAmt040887433
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt012039089
IRS990ScheduleD/ExpensesSubtotalAmt0-9054687
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt03663173
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt1625000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt22999998
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt31500000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt4249999
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt52000000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0SPARING VISION
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc1NAYAN THERAPEUTICS, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc2VEDERE BIO, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc3ATSENA THERAPEUTICS
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc4STARGAZER
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc5NACUITY
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd1F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd2F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd3F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd4F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd5F
IRS990ScheduleD/OtherExpensesIncludedAmt040752885
IRS990ScheduleD/OtherExpensesNotIncludedAmt012039089
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0351055
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0DUE TO RELATED PARTY
IRS990ScheduleD/OtherRevenueAmt034704408
IRS990ScheduleD/OtherRevenuesNotIncludedAmt012039089
IRS990ScheduleD/RevenueNotReportedAmt034838956
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt012039089
IRS990ScheduleD/RevenueSubtotalAmt0-100000
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2020 AND 2019, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE FOUNDATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE FOUNDATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE FOUNDATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2017.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 36,986,562. LOSS ON EQUITY METHOD INVESTMENTS -2,282,154.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 12,039,089.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt3EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 40,752,885.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt4ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 12,039,089.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc3PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc4PART XII, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueProgramRltdAmt011038170
IRS990ScheduleD/TotalExpensesPerForm990Amt02984402
IRS990ScheduleD/TotalLiabilityAmt0351055
IRS990ScheduleD/TotalRevenuePerForm990Amt011939089
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt034738956
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt031832746
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt20
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt20
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt03663173
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt12250000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt28387
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt2EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0PROGRAM RELATED TRAVEL
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0INVESTMENT
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANTMAKING
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2PROGRAM SERVICE
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd01
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt02250000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0ACH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt05921560
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0EACH QUARTER THE RD FUND PORTFOLIO COMPANIES EITHER HOLD A BOARD MEETING (EQUITY INVESTMENTS) OR A JOINT DEVELOPMENT COMMITTEE (JDC) MEETING (PROJECT-BASED CO-FUNDING INVESTMENTS). WITH EQUITY POSITIONS, THE RD FUND IS ENTITLED TO A BOARD DIRECTOR OR BOARD OBSERVER POSITION TO ATTEND QUARTERLY BOARD MEETINGS WITH BOTH COMPANY LEVEL AND PROGRAMMATIC LEVEL UPDATES VIA INFORMATION RIGHTS. THE JDCS ARE HELD BETWEEN A TEAM FROM THE INVESTEE GRANTEE ORGANIZATION AS WELL AS A TEAM FROM THE RD FUND AND FFB STAFF. THESE MEETINGS INCLUDE A DETAILED REVIEW OF THE MILESTONE PROGRESS TO DATE, ANY POTENTIAL CHALLENGES, OUTCOMES OF RESEARCH, AND UPCOMING WORK FOR THE FOLLOWING QUARTER. MILESTONE PAYMENTS ARE MADE BASED UPON PROGRESS REPORTING DURING THESE QUARTERLY MEETINGS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1PART III ACCOUNTING METHOD:
IRS990ScheduleF/Total501c3OrgCnt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$59.6$0.10$59.5$7.01$2.44$4.57
2024Detailed filing. Detailed filing data is available for this year.$52.5$0.09$52.4$8.75$1.31$7.44
2023Detailed filing. Detailed filing data is available for this year.$47.3$0.07$47.2$9.32$1.01$8.30
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$45.4$0.42$44.9$15.4$1.05$14.4
2021Detailed filing. Detailed filing data is available for this year.$31.0$0.41$30.6$21.2$2.02$19.2
2020Detailed filing. Detailed filing data is available for this year.$11.4$1.13$10.3$11.9$2.98$8.95
2019Summary only. Only limited summary data is available for this year.$4.04$0.40$3.64$3.08$3.06$0.01
2018Detailed filing. Detailed filing data is available for this year.$3.89$0.68$3.21$13.3$11.8$1.45
2017Detailed filing. Detailed filing data is available for this year.$4.86$3.11$1.76$5.41$4.80$0.61
2016Detailed filing. Detailed filing data is available for this year.$2.71$1.62$1.09$3.69$3.49$0.20
2015Detailed filing. Detailed filing data is available for this year.$1.33$1.11$0.22$4.67$4.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$2.94$2.78$0.16$4.74$5.14$0.40
2013Summary only. Only limited summary data is available for this year.$2.31$1.75$0.56$5.20$5.09$0.10
2012Summary only. Only limited summary data is available for this year.$1.77$1.31$0.46$2.87$3.64$0.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.38$1.15$1.23$3.16