Nmdp Foundation

“The NMDP Foundation Board of Directors and NMDP Board of Directors approved a name change from Be The Match Foundation to NMDP Foundation. The NMDP Foundation Articles of Incorporation were revised for the name change, effective December 1, 2023. In addition to administrative changes, the NMDP Foundation Articles of Incorporation dissolution article was revised to clarify that the Member (as identified within the Bylaws of the NMDP Foundation) receives the asset distribution upon dissolution, if the Member is a 501(c)(3) at that time.”

“MEMBERS OR STOCKHOLDERS: NMDP IS THE SOLE CORPORATE MEMBER OF NMDP Foundation.”

“MEMBERS OR STOCKHOLDERS WHO MAY ELECT GOVERNING BODY: THE NMDP BOARD ELECTS THE BOARD OF DIRECTORS OF NMDP Foundation.”

“MEMBERS OR STOCKHOLDERS WHO MAY APPROVE DECISIONS: THE NMDP BOARD APPROVES THE ACTIONS OF NMDP Foundation.”

“Form 990 review process: The organization contracted with the outside public accounting firm, Baker Tilly, to prepare the Form 990. Preparing the details and supporting reports for the return is a collaborative effort among a small group of individuals in the financial reporting & compliance area of finance, internal audit and human resources. Once a draft is received back from Baker Tilly, it is reviewed by the team that pulled the details together, Director, Finance and Corporate Controller, Chief Advance Office and Chief Financial Officer. NMDP Chief Administrative Officer also review the governance sections. A copy of the return is provided to the organization's Audit & Finance Committee and board of directors prior to filing.”

“The Conflict-of-Interest Policy states the following: "The existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If a member has an interest which may conflict with those of the Organizations, he or she must immediately disclose the matters and discuss them fully and frankly with the applicable Organization's full Board or its Executive Committee, as set forth in detail below. A Member must not participate in any matter in which that Member may have an actual or potential conflict of interest without the express approval of the applicable Organization's Board of Directors or Executive Committee of the Board of Directors (Executive Committee). All Members must disclose to the applicable Organization's Board of Directors or Executive Committee all conflicts of interest and reportable relationships and must annually complete and submit the Conflict-of-Interest Questionnaire which is required by this Policy. Whenever in the course of events a Member's circumstances change such that the Member knows or has reason to believe that the Member may have an actual or perceived conflict of interest, such Member shall promptly disclose the potential conflict to the applicable Organization's Board of Directors or Executive Committee. For the purposes of this Article, a Member may formally disclose a conflict or reportable relationship to the NMDP Chief Executive Officer (CEO), the Chief Advancement Officer, or the NMDP Chief Administrative Officer (CAO), as applicable, who shall inform the applicable Organization's Board of Directors or Executive Committee for resolution. As noted herein, if the potential conflict involves a Director or Committee Member, that Director or Committee Member shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved in accordance with this Policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the resolution of the matter in accordance with this Policy."”

“Process for determining compensation: THE CHIEF ADVANCEMENT OFFICER REPORTS DIRECTLY TO THE NMDP CHIEF EXECUTIVE OFFICER (CEO) AND IS CONSIDERED A KEY EMPLOYEE PER IRS DEFINITION. THE COMPENSATION OF THE CHIEF ADVANCEMENT OFFICER IS REVIEWED, EVALUATED, AND SET IN ACCORDANCE WITH THE NMDP BYLAWS AND COMPENSATION COMMITTEE CHARTER. THE NMDP BYLAWS STATE: "THE COMPENSATION COMMITTEE SHALL BE COMPRISED ONLY OF VOTING DIRECTORS AND SHALL INCLUDE THE CHAIR OF THE BOARD AND AT LEAST ONE (1) NON-OFFICER BOARD MEMBER AS VOTING COMMITTEE MEMBERS. THE COMPENSATION COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION AND SHALL HAVE SUCH OTHER AUTHORITY AND RESPONSIBILITIES AS SET FORTH IN THE COMPENSATION COMMITTEE CHARTER." THE COMPENSATION COMMITTEE CHARTER STATES: "THE COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION AND APPROVE AND ADOPT A COMPENSATION PHILOSOPHY AND PRINCIPLES CONSISTENT WITH THE CORPORATION'S NON-FOR-PROFIT STATUS (THE "COMPENSATION PHILOSOPHY AND PRINCIPLES"). THE COMMITTEE SHALL CONDUCT THE CHIEF EXECUTIVE OFFICER ("CEO") PERFORMANCE EVALUATION. THE COMMITTEE SHALL MAKE CEO TOTAL COMPENSATION AND BENEFIT RECOMMENDATIONS TO THE EXECUTIVE COMMITTEE, CONSISTENT WITH THE COMPENSATION PHILOSOPHY AND PRINCIPLES. IN MAKING COMPENSATION AND BENEFIT RECOMMENDATIONS FOR THE CEO, THE COMMITTEE SHALL UTILIZE, AMONG OTHER THINGS, COMPARABILITY DATA FOR COMPLIANCE WITH IRS INTERMEDIATE SANCTION PROVISIONS SO AS TO ALLOW THE CORPORATION TO TAKE ADVANTAGE OF THE REBUTTABLE PRESUMPTION OF REASONABLENESS. ON A PERIODIC BASIS, THE COMMITTEE SHALL OBTAIN COMPARABILITY DATA FROM AN INDEPENDENT COMPENSATION CONSULTANT. IN ADDITION, THE COMMITTEE SHALL ADVISE THE CEO IN HIS/HER EVALUATION OF AND DECISIONS REGARDING THE COMPENSATION OF AND BENEFITS FOR SENIOR CORPORATION EMPLOYEES, AS WELL AS THE PRESIDENT (OR EQUIVALENT LEADER) OF ANY SUBSIDIARY OF THE CORPORATION REPORTING TO THE CEO (TOGETHER, "SENIOR LEADERSHIP"). IN ADVISING THE CEO IN MAKING HIS/HER COMPENSATION AND BENEFIT DECISIONS FOR SENIOR LEADERSHIP, THE COMMITTEE SHALL ENSURE THAT SUCH DECISIONS ARE CONSISTENT WITH THE COMPENSATION PHILOSOPHY AND PRINCIPLES, AND UTILIZE, AMONG OTHER THINGS, COMPARABILITY DATA FOR COMPLIANCE WITH IRS INTERMEDIATE SANCTION PROVISIONS. IF DECISIONS PROPOSED BY THE CEO ARE OUTSIDE THE PARAMETERS OF THE COMPENSATION PHILOSOPHY AND PRINCIPLES, THE CEO MUST OBTAIN THE COMMITTEE'S APPROVAL PRIOR TO IMPLEMENTATION."”

“How documents are made available to the public: The conflict of interest policy, articles of incorporation and consolidated audited financial statements and additional consolidating information are all made available to the public upon request. The consolidated audited financial statements are also available on our website. Summary financial statements are also included in our annual report, which is mailed to key stakeholders and posted on our website. Additionally, articles of incorporation are available at the MN office of the secretary of state, and consolidated audited financial statements may be obtained at the MN office of the attorney general.”

“At nmdp, we believe each of us holds the key to curing blood cancers and disorders. As a global nonprofit leader in cell therapy, nmdp creates essential connections between researchers and supporters to inspire action and accelerate innovation to find life-saving cures. With the help of blood stem donors from the world's most diverse registry and our extensive network of transplant partners, physicians and caregivers, we're expanding access to treatment so that every patient can receive their life-saving cell therapy. Nmdp. Find cures. Save lives. Our mission: we save lives through cell therapy. Our vision: create a world where every patient can receive their life-saving cell therapy. The nmdp foundation raises funds for three programs critical to our life-saving mission: transplant research, patient financial assistance and donor recruitment. Some of the life-changing work that we're doing is soley funding by our community of supporters. We conduct research through our research program, cibmtr (center for international blood and marrow transplant research) in collaboration with the medical college of wisconsin. Our research leads to more lives saved and an enriched quality of life for thousands of patients. Through the nmdp amy strelzer manasevit research program and other research grants, outstanding early-career researchers are doing innovative work to find solutions to the complications that can arise after transplant. They're developing treatment approaches that will help the next generation of transplant patients live longer, healthier lives. Patient financial assistance helps cover transplant-related costs not covered by insurance that cause significant hardship or even prevent patients from moving forward with transplant. Costs like transportation, lodging, lost wages and prescriptions. Nmdp connects patients with a matching, unrelated donor, a selfless stranger who can step up and donate their healthy blood stem cells to give them the chance at a life-saving transplant.”

“(Expenses $ 7,133,754 including grants of $ 1,647,306) NMDP FOUNDATION PARTNERS WITH NMDP TO ADVANCE VARIOUS INITIATIVES TIED TO THE SHARED MISSION. THESE PROGRAMS INCLUDE: NMDP PROVIDES COMPREHENSIVE EDUCATION AND SUPPORT SERVICES TO PATIENTS AND THEIR FAMILIES THROUGH ONE-ON-ONE NAVIGATION SUPPORT, VIDEO, PRINTED, AND DIGITAL EDUCATION RESOURCES, COUNSELING, NMDP PEER CONNECT PROGRAM, NMDP SURVIVORSHIP PROGRAM, NMDP SICKLE CELL WARRIOR PROGRAM, AND THE JASON CARTER CLINICAL TRIALS SEARCH AND SUPPORT PROGRAM, WHICH HELPS PATIENTS WITH LIFE-THREATENING BLOOD DISORDERS FIND CLINICAL TRIALS. NMDP Foundation RAISES FUNDS TO SUPPORT THESE CRITICAL SERVICES. NMDP ALLOCATES COMPENSATION AND BENEFITS AND OCCUPANCY COSTS TO PROGRAMS BASED ON EMPLOYEE RESPONSIBILITIES.”

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“The organization has neither changed its oversight process or selection process during the tax year.”

“The return for the current year is being amended to reflect the following: 1. Form 990, part vii, section a, lines 1a, 1b, and 1d column (f) are revised to reflect the accurate compensation reporting for the fiscal year. After filing form 990, it was discovered the organization erroneously failed to include in column (f) the amount earned by eligible individuals under the organization's long-term incentive plan. 2. Schedule j part ii, column (c), column (e), and column (f) are revised to reflect the accurate reporting of compensation and deferred compensation for the period. Amounts deferred and paid under the organization's long-term incentive plan were erroneously excluded from the filing. This amendment corrects the inadvertent error. See schedule j part iii line 7 for additional disclosures.”