Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
990 • Fiscal year 2017 • EIN 37-1667986
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
21st percentile
Higher net margin than 21% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 9.3% of source-year revenue.
Asset Growth
43rd percentile
Faster asset growth than 43% of similar nonprofits.
Revenue Growth
29th percentile
Faster revenue growth than 29% of similar nonprofits.
Assets
Up$1,281,796
Up $15,135 (+1.2%) from 2016
Net Assets
Down$1,188,198
Down $16,383 (-1.4%) from 2016
Liabilities
Up$93,598
Up $31,518 (+51%) from 2016
Revenue
Down$676,083
Down $26,041 (-3.7%) from 2016
Expenses
Up$739,095
Up $174,031 (+31%) from 2016
Net Income
Down-$63,012
Down $200,072 (-146%) from 2016
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
To lead the fight to cure and treat als through global, cutting edge research and patient care.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $737,898 | $811,288 | ▲ $73,390 |
| Savings and Temporary Cash Investments | $404,495 | $264,830 | ▼ $139,665 |
| Cash and Non-Interest-Bearing Accounts | $98,335 | $174,147 | ▲ $75,812 |
| Land, Buildings, and Equipment, Net | $22,933 | $18,887 | ▼ $4,046 |
| Prepaid Expenses and Deferred Charges | $500 | $5,989 | ▲ $5,489 |
| Accounts Receivable | $2,500 | $5,437 | ▲ $2,937 |
| Total Assets | $1,266,661 | $1,281,796 | ▲ $15,135 |
| Other Assets Total | - | $1,218 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $62,080 | $90,273 | ▲ $28,193 |
| Deferred Revenue | - | $3,325 | - |
| Total Liabilities | $62,080 | $93,598 | ▲ $31,518 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,200,880 | $1,188,198 | ▼ $12,682 |
| Temporarily Rstr Net Assets | $3,701 | $0 | ▼ $3,701 |
| Total Net Assets Fund Balance | $1,204,581 | $1,188,198 | ▼ $16,383 |
| Total Liabilities and Net Assets / Fund Balance | $1,266,661 | $1,281,796 | ▲ $15,135 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $18,887 | $38,511 | $57,398 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Elizabeth Krisanda | Executive Director | FT | $63,076 | $63,076 |
| Name | Title |
|---|---|
| Brian Dumond | President |
| Robert Doren | Vice President |
| Charlie Robinson | Member |
| Diane Zunic | Member |
| Matthew Ramsey | Member |
| PATRICK O'NEIL | Member |
| Robert Zaffram | Member |
| Roy Cunningham | Member |
| Scott Solomon | Member |
| Thomas Byrnes | Member |
| Tim Virgil | Member |
| Bill Soffel | Secretary |
| Julie Burgess | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $423,528 |
| Salaries, Compensation, and Employee Benefits | $315,567 |
| Total Fundraising Expense | $85,812 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Comp Disqual Persons | $120,441 | $21,043 | $44,959 | $186,443 |
| Current Officers, Directors, Trustees, and Key Employees | $40,242 | $18,292 | $14,633 | $73,167 |
| Other Employee Benefits | $20,423 | $9,248 | $8,864 | $38,535 |
| Other Expenses | $28,752 | $3,239 | $13,231 | $31,991 |
| Fees for Services Other | $25,601 | $4,267 | - | $29,868 |
| All Other Expenses | $25,310 | $3,954 | - | $29,264 |
| Office Expenses | $25,881 | $2,579 | - | $28,460 |
| Travel | $25,837 | $315 | - | $26,152 |
| Payroll Taxes | $11,075 | $2,222 | $4,125 | $17,422 |
| Occupancy | $9,909 | $2,831 | - | $12,740 |
| Depreciation Depletion | $4,697 | $1,737 | - | $6,434 |
| Total Functional Expenses | $576,941 | $76,342 | $85,812 | $739,095 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $771,977 |
| Expenses per Audited Statements | $739,095 |
| Total Expenses per Form 990 | $739,095 |
| Expenses Not Reported on Form 990 | $32,882 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $32,882 |
| Fundraising Gross Income | $7,845 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Als Walk | $477,378 | - | $15,440 | - |
| Golf Tournament | $21,006 | $7,845 | $2,182 | $5,663 |
| Total Events | $498,384 | $7,845 | $32,882 | $-25,037 |
“The 990 is reviewed by management and provided to the board of directors for their approval prior to filing.”
“Board members are required to complete an annual conflict of interest statement.”
“The executive director and other employee compensation is approved by the board of directors.”
“The organizational documents are available upon request.”
“The organization has not changed its oversight process or selection process during the year.”
“Direct fundraising expenses 32,882.”
“Direct fundraising expenses 32,882.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 62080 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 90273 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 2500 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 5437 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING EDGE RESEARCH AND PATIENT CARE. |
| IRS990/AllOtherContributionsAmt | 0 | 171102 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3954 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 25310 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 29264 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ELIZABETH KRISANDA EXECUTIVE DIRECTOR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3154130121 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 135 OLD COVE RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LIVERPOOL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13090 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 98335 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 174147 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 14633 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 18292 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 40242 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 73167 |
| IRS990/CompDisqualPersonsGrp/FundraisingAmt | 0 | 44959 |
| IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt | 0 | 21043 |
| IRS990/CompDisqualPersonsGrp/ProgramServicesAmt | 0 | 120441 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 186443 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 490539 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 692731 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 8389 |
| IRS990/CYOtherExpensesAmt | 0 | 423528 |
| IRS990/CYOtherRevenueAmt | 0 | -25037 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -63012 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 315567 |
| IRS990/CYTotalExpensesAmt | 0 | 739095 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 85812 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 676083 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 3325 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1737 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 4697 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 6434 |
| IRS990/Desc | 0 | THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS (TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION AND AWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 8 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 576941 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 25506 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 4267 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 25601 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 29868 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | PATRICK O'NEIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | CHARLIE ROBINSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | TIM VIRGIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ROBERT ZAFFRAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | THOMAS BYRNES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MATTHEW RAMSEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | ROY CUNNINGHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SCOTT SOLOMON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DIANE ZUNIC |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | BRIAN DUMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ROBERT DOREN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JULIE BURGESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | BILL SOFFEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ELIZABETH KRISANDA |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 63076 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2011 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 490539 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 32882 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 7845 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 708965 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 8389 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 8389 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 737898 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 811288 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 38511 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 22933 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 18887 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 57398 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1204581 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1188198 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -25037 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -25037 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 46629 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 2831 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 9909 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 12740 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2579 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 25881 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 28460 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1218 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 8864 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 9248 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 20423 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 38535 |
| IRS990/OtherExpensesGrp/Desc | 0 | NATIONAL REVENUE SHARE |
| IRS990/OtherExpensesGrp/Desc | 1 | ASSISTANCE GRANTS |
| IRS990/OtherExpensesGrp/Desc | 2 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 3 | SPECIAL EVENTS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 13231 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6615 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3239 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 74660 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 89143 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 74970 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 28752 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 94506 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 89143 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 74970 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 31991 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4125 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2222 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 11075 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 17422 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 500 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 5989 |
| IRS990/PrincipalOfficerNm | 0 | ELIZABETH KRISANDA |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 728015 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2539 |
| IRS990/PYOtherExpensesAmt | 0 | 353237 |
| IRS990/PYOtherRevenueAmt | 0 | -28430 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 137060 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 211827 |
| IRS990/PYTotalExpensesAmt | 0 | 565064 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 702124 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -63012 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 5584 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 404495 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 264830 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 700576 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 728015 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1058948 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 669265 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 537039 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 3693843 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 8389 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2539 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1521 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1664 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 871 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 14984 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3693843 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 700576 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 728015 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1058948 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 669265 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 537039 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 3693843 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 3708827 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 18887 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 38511 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 57398 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 32882 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 739095 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 46629 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 32882 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 32882 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 79511 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 676083 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | DIRECT FUNDRAISING EXPENSES 32,882. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT FUNDRAISING EXPENSES 32,882. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 18887 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 739095 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 676083 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 755594 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 771977 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 900 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent2Amt | 0 | 699 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 1599 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 490539 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 477378 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 13161 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 32882 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | ALS WALK |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 187 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 5530 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 5717 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 477378 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 21006 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 498384 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 7845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 7845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -25037 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent2Amt | 0 | 1962 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 1962 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 17622 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 15440 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 2182 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 5982 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 5982 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 IS REVIEWED BY MANAGEMENT AND PROVIDED TO THE BOARD OF DIRECTORS FOR THEIR APPROVAL PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | BOARD MEMBERS ARE REQUIRED TO COMPLETE AN ANNUAL CONFLICT OF INTEREST STATEMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR AND OTHER EMPLOYEE COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE ORGANIZATIONAL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION HAS NOT CHANGED ITS OVERSIGHT PROCESS OR SELECTION PROCESS DURING THE YEAR. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART XII, LINE 2C: |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NY |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.