Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
990 • Fiscal year 2019 • EIN 37-1667986
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
41st percentile
Higher debt load relative to revenue than 41% of similar nonprofits.
Net Margin
69th percentile
Higher net margin than 69% of similar nonprofits.
Top Officer Pay
60th percentile
Higher top officer pay than 60% of similar nonprofits.
Top officer pay equals 8.7% of source-year revenue.
Asset Growth
55th percentile
Faster asset growth than 55% of similar nonprofits.
Revenue Growth
51st percentile
Faster revenue growth than 51% of similar nonprofits.
Assets
Up$1,570,075
Up $67,603 (+4.5%) from 2018
Net Assets
Up$1,518,105
Up $103,510 (+7.3%) from 2018
Liabilities
Down$51,970
Down $35,907 (-41%) from 2018
Revenue
Up$960,017
Up $39,876 (+4.3%) from 2018
Expenses
Up$842,468
Up $84,573 (+11%) from 2018
Net Income
Down$117,549
Down $44,697 (-28%) from 2018
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
To lead the fight to cure and treat als through global, cutting edge research and patient care.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $958,352 | $1,048,992 | ▲ $90,640 |
| Cash and Non-Interest-Bearing Accounts | $245,066 | $318,688 | ▲ $73,622 |
| Savings and Temporary Cash Investments | $264,841 | $165,013 | ▼ $99,828 |
| Land, Buildings, and Equipment, Net | $18,019 | $18,399 | ▲ $380 |
| Accounts Receivable | $14,750 | $13,072 | ▼ $1,678 |
| Prepaid Expenses and Deferred Charges | $226 | $4,693 | ▲ $4,467 |
| Total Assets | $1,502,472 | $1,570,075 | ▲ $67,603 |
| Other Assets Total | $1,218 | $1,218 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $60,202 | $51,970 | ▼ $8,232 |
| Deferred Revenue | $27,675 | $0 | ▼ $27,675 |
| Total Liabilities | $87,877 | $51,970 | ▼ $35,907 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,410,250 | $1,518,105 | ▲ $107,855 |
| Temporarily Rstr Net Assets | $4,345 | $0 | ▼ $4,345 |
| Total Net Assets Fund Balance | $1,414,595 | $1,518,105 | ▲ $103,510 |
| Total Liabilities and Net Assets / Fund Balance | $1,502,472 | $1,570,075 | ▲ $67,603 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $18,399 | $54,663 | $73,062 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Elizabeth Krisanda | Executive Director | FT | $83,323 | $83,323 |
| Name | Title |
|---|---|
| Bob Doren | President |
| Brian Dumond | Vice President |
| Charles Robinson | Member |
| Craig Jacobs | Member |
| Jeffrey Thomas | Member |
| Mary Lou Watson | Member |
| Nicole Woodall | Member |
| PATRICK O'NEIL | Member |
| Tom Brown | Member |
| Bill Soffel | Secretary |
| Julie Burgess | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $441,759 |
| Salaries, Compensation, and Employee Benefits | $400,709 |
| Total Fundraising Expense | $95,164 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $176,142 | $18,690 | $33,864 | $228,696 |
| Current Officers, Directors, Trustees, and Key Employees | $57,003 | $13,791 | $21,146 | $91,940 |
| Other Employee Benefits | $41,675 | $5,588 | $9,547 | $56,810 |
| All Other Expenses | $20,897 | $4,536 | $8,776 | $34,209 |
| Other Expenses | $29,468 | $3,320 | $16,752 | $32,788 |
| Travel | $26,673 | $651 | - | $27,324 |
| Office Expenses | $21,745 | $4,558 | - | $26,303 |
| Payroll Taxes | $17,698 | $2,001 | $3,564 | $23,263 |
| Occupancy | $12,459 | $3,560 | - | $16,019 |
| Fees for Services Other | $811 | $10,194 | - | $11,005 |
| Fees for Services Accounting | - | $9,259 | - | $9,259 |
| Depreciation Depletion | $5,080 | $2,317 | $1,515 | $8,912 |
| Total Functional Expenses | $660,463 | $86,841 | $95,164 | $842,468 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $871,059 |
| Expenses per Audited Statements | $842,468 |
| Total Expenses per Form 990 | $842,468 |
| Expenses Not Reported on Form 990 | $28,591 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $28,791 |
| Fundraising Direct Expenses | $28,591 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Als Walk | $598,936 | - | $10,842 | - |
| Golf Tournament | $34,612 | $9,121 | $4,327 | $4,794 |
| Total Events | $653,218 | $28,791 | $28,591 | $200 |
“The 990 is reviewed by management and provided to the board of directors for their approval prior to filing.”
“Board members are required to complete an annual conflict of interest statement.”
“The executive director and other employee compensation is approved by the board of directors.”
“The organizational documents are available upon request.”
“The 990 is being amended to reflect all officers as voting members of the board.”
“Direct fundraising expenses 28,591.”
“Direct fundraising expenses 28,591.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 60202 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 51970 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 14750 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 13072 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING EDGE RESEARCH AND PATIENT CARE. |
| IRS990/AllOtherContributionsAmt | 0 | 304166 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 8776 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4536 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 20897 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 34209 |
| IRS990/AmendedReturnInd | 0 | X |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ELIZABETH KRISANDA EXECUTIVE DIRECTOR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3154130121 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 135 OLD COVE RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LIVERPOOL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13090 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 245066 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 318688 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 21146 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 13791 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 57003 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 91940 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 624427 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 954737 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 5080 |
| IRS990/CYOtherExpensesAmt | 0 | 441759 |
| IRS990/CYOtherRevenueAmt | 0 | 200 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 117549 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 400709 |
| IRS990/CYTotalExpensesAmt | 0 | 842468 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 95164 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 960017 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 27675 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1515 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 2317 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 5080 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 8912 |
| IRS990/Desc | 0 | THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS (TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION AND AWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 8 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 660463 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 18928 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 9259 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9259 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 10194 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 811 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 11005 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRIAN DUMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JULIE BURGESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BILL SOFFEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TOM BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CRAIG JACOBS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | PATRICK O'NEIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CHARLES ROBINSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARY LOU WATSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | NICOLE WOODALL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ELIZABETH KRISANDA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | BOB DOREN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JEFFREY THOMAS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 83323 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2011 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 624427 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 28591 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 28791 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 988608 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 5080 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5080 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 958352 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1048992 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 54663 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 18019 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 18399 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 73062 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1414595 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1518105 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 200 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 200 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -14039 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3560 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 12459 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16019 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4558 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 21745 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 26303 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 1218 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1218 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 9547 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5588 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 41675 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 56810 |
| IRS990/OtherExpensesGrp/Desc | 0 | NATIONAL REVENUE SHARE |
| IRS990/OtherExpensesGrp/Desc | 1 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 2 | ASSISTANCE GRANTS |
| IRS990/OtherExpensesGrp/Desc | 3 | SPECIAL EVENTS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 16752 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 8376 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3320 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 94530 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 85876 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 70406 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 29468 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 119658 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 85876 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 70406 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 32788 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 33864 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 18690 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 176142 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 228696 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3564 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2001 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 17698 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23263 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 226 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4693 |
| IRS990/PrincipalOfficerNm | 0 | ELIZABETH KRISANDA |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 944518 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 4158 |
| IRS990/PYOtherExpensesAmt | 0 | 388727 |
| IRS990/PYOtherRevenueAmt | 0 | -28535 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 162246 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 369168 |
| IRS990/PYTotalExpensesAmt | 0 | 757895 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 920141 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 117549 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 7216 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 264841 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 165013 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 929859 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 954086 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 700576 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 728015 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1058948 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4371484 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 5080 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 4158 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 8389 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2539 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1521 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 21687 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99510 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99560 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 4371484 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 929859 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 954086 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 700576 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 728015 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1058948 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4371484 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4393171 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/BuildingsGrp/BookValueAmt | 0 | 18399 |
| IRS990ScheduleD/BuildingsGrp/DepreciationAmt | 0 | 54663 |
| IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 73062 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 28591 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 842468 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -14039 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 28591 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 28591 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 14552 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 960017 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | DIRECT FUNDRAISING EXPENSES 28,591. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT FUNDRAISING EXPENSES 28,591. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 18399 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 842468 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 960017 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 974569 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 871059 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 169 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent2Amt | 0 | 547 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 716 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 624427 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 598936 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 25491 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 28591 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | ALS WALK |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 1089 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 5336 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt | 0 | 365 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 6790 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 598936 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 34612 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 19670 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 653218 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 9121 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 19670 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 28791 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 200 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 3619 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 18788 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 10842 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 4327 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 2297 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 2297 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 IS REVIEWED BY MANAGEMENT AND PROVIDED TO THE BOARD OF DIRECTORS FOR THEIR APPROVAL PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | BOARD MEMBERS ARE REQUIRED TO COMPLETE AN ANNUAL CONFLICT OF INTEREST STATEMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR AND OTHER EMPLOYEE COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE ORGANIZATIONAL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE 990 IS BEING AMENDED TO REFLECT ALL OFFICERS AS VOTING MEMBERS OF THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VII, SECTION A |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NY |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.
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