Liabilities / Assets
40th percentile
Higher debt load relative to assets than 40% of similar nonprofits.
990 • Fiscal year 2016 • EIN 37-1667986
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
40th percentile
Higher debt load relative to assets than 40% of similar nonprofits.
Liabilities / Revenue
47th percentile
Higher debt load relative to revenue than 47% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
56th percentile
Higher top officer pay than 56% of similar nonprofits.
Top officer pay equals 10.6% of source-year revenue.
Asset Growth
79th percentile
Faster asset growth than 79% of similar nonprofits.
Revenue Growth
10th percentile
Faster revenue growth than 10% of similar nonprofits.
Assets
Up$1,266,661
Up $179,824 (+17%) from 2015
Net Assets
Up$1,204,581
Up $135,407 (+13%) from 2015
Liabilities
Up$62,080
Up $44,417 (+251%) from 2015
Revenue
Down$702,124
Down $332,982 (-32%) from 2015
Expenses
Up$565,064
Up $110,641 (+24%) from 2015
Net Income
Down$137,060
Down $443,623 (-76%) from 2015
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
To lead the fight to cure and treat als through global, cutting edge research and patient care.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | - | $737,898 | - |
| Savings and Temporary Cash Investments | $1,013,554 | $404,495 | ▼ $609,059 |
| Cash and Non-Interest-Bearing Accounts | $52,974 | $98,335 | ▲ $45,361 |
| Land, Buildings, and Equipment, Net | $18,384 | $22,933 | ▲ $4,549 |
| Accounts Receivable | $1,500 | $2,500 | ▲ $1,000 |
| Prepaid Expenses and Deferred Charges | $425 | $500 | ▲ $75 |
| Total Assets | $1,086,837 | $1,266,661 | ▲ $179,824 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $17,663 | $62,080 | ▲ $44,417 |
| Total Liabilities | $17,663 | $62,080 | ▲ $44,417 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,068,603 | $1,200,880 | ▲ $132,277 |
| Temporarily Rstr Net Assets | $571 | $3,701 | ▲ $3,130 |
| Total Net Assets Fund Balance | $1,069,174 | $1,204,581 | ▲ $135,407 |
| Total Liabilities and Net Assets / Fund Balance | $1,086,837 | $1,266,661 | ▲ $179,824 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $22,933 | $32,077 | $55,010 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Kathryn Lahey | Executive Director Thru Sept. 2015 | FT | $74,346 | $74,346 |
| Name | Title |
|---|---|
| PATRICK O'NEIL | President (current) |
| Tim Virgil | Vice President |
| Charlie Robinson | Member |
| Julie Burgess | Member |
| Matthew Ramsey | Member |
| Robert Doren | Member |
| Robert Zaffram | Member |
| Roy Cunningham | Member |
| Scott Solomon | Member |
| Thomas Byrnes | Member |
| Kim Lynch | Secretary |
| Brian Dumond | Treasuer |
| Line Item | Amount |
|---|---|
| Other Expenses | $353,237 |
| Salaries, Compensation, and Employee Benefits | $211,827 |
| Total Fundraising Expense | $51,860 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $92,649 | $2,945 | $9,889 | $105,483 |
| Current Officers, Directors, Trustees, and Key Employees | $46,652 | $21,204 | $16,964 | $84,820 |
| Other Expenses | $24,308 | $3,325 | $0 | $27,633 |
| Office Expenses | $20,996 | $4,407 | $1,454 | $26,857 |
| Travel | $25,583 | $698 | - | $26,281 |
| Fees for Services Other | $3,378 | $21,298 | $1,423 | $26,099 |
| All Other Expenses | $7,502 | $12,360 | $5,451 | $25,313 |
| Occupancy | $10,962 | $3,132 | $1,566 | $15,660 |
| Payroll Taxes | $9,491 | $450 | $1,613 | $11,554 |
| Other Employee Benefits | $7,723 | $1,092 | $1,155 | $9,970 |
| Depreciation Depletion | $7,527 | - | - | $7,527 |
| Total Functional Expenses | $429,388 | $83,816 | $51,860 | $565,064 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $608,613 |
| Expenses per Audited Statements | $565,064 |
| Total Expenses per Form 990 | $565,064 |
| Expenses Not Reported on Form 990 | $43,549 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $43,549 |
| Fundraising Gross Income | $15,119 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Als Walk-syracuse | $542,837 | - | $18,210 | - |
| Golf Tournament | $35,165 | $15,119 | $6,660 | $8,459 |
| Total Events | $578,002 | $15,119 | $43,549 | $-28,430 |
“The 990 is reviewed by management and provided to the board of directors for their approval prior to filing.”
“Board members are required to complete an annual conflict of interest statement.”
“The executive director and other employee compensation is approved by the board of directors.”
“The organizational documents are available upon request.”
“The organization has not changed its oversight or selection process from the preceeding year.”
“Direct fundraising expenses 43,549.”
“Direct fundraising expenses 43,549.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 17663 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 62080 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 1500 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 2500 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING EDGE RESEARCH AND PATIENT CARE. |
| IRS990/AllOtherContributionsAmt | 0 | 137031 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 5451 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 12360 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 7502 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 25313 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ELIZABETH KRISANDA EXECUTIVE DIRECTOR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3154130121 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 135 OLD COVE RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LIVERPOOL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13090 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 52974 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 98335 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 16964 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 21204 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 46652 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 84820 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 562883 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 728015 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2539 |
| IRS990/CYOtherExpensesAmt | 0 | 353237 |
| IRS990/CYOtherRevenueAmt | 0 | -28430 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 137060 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 211827 |
| IRS990/CYTotalExpensesAmt | 0 | 565064 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 51860 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 702124 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 7527 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 7527 |
| IRS990/Desc | 0 | THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS (TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION AND AWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 429388 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 26421 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1423 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 21298 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 3378 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 26099 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CHARLIE ROBINSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROBERT ZAFFRAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | THOMAS BYRNES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MATTHEW RAMSEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ROY CUNNINGHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JULIE BURGESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | SCOTT SOLOMON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | PATRICK O'NEIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BRIAN DUMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | KIM LYNCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TIM VIRGIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ROBERT DOREN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | KATHRYN LAHEY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 74346 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | PRESIDENT (CURRENT) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASUER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | EXECUTIVE DIRECTOR THRU SEPT. 2015 |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2011 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 562883 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 43549 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 15119 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 745673 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 2539 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 2539 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 737898 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 32077 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 18384 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 22933 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 55010 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1069174 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1204581 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -28430 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -28430 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -1653 |
| IRS990/NoncashContributionsAmt | 0 | 18567 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 1566 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3132 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 10962 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 15660 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1454 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4407 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 20996 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 26857 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 1155 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1092 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7723 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 9970 |
| IRS990/OtherExpensesGrp/Desc | 0 | NATIONAL REVENUE SHARE |
| IRS990/OtherExpensesGrp/Desc | 1 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 2 | ASSISTANCE GRANTS |
| IRS990/OtherExpensesGrp/Desc | 3 | SPECIAL EVENTS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 12345 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 12905 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3325 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 69820 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 59599 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 43198 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 24308 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 95070 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 59599 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 43198 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 27633 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 9889 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 2945 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 92649 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 105483 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1613 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 450 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9491 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 11554 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 425 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 500 |
| IRS990/PrincipalOfficerNm | 0 | ELIZABETH KRISANDA |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1025174 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1521 |
| IRS990/PYOtherExpensesAmt | 0 | 211170 |
| IRS990/PYOtherRevenueAmt | 0 | 8411 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 580683 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 243253 |
| IRS990/PYTotalExpensesAmt | 0 | 454423 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1035106 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 137060 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 1680 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1013554 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 404495 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 728015 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1058948 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 669265 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 537039 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2993267 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 2539 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1521 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1664 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 871 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 6595 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99780 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2993267 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 728015 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1058948 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 669265 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 537039 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2993267 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2999862 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 43549 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 565064 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -1653 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 43549 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 22933 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 32077 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 55010 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 43549 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 41896 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 702124 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | DIRECT FUNDRAISING EXPENSES 43,549. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT FUNDRAISING EXPENSES 43,549. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 22933 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 565064 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 702124 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 744020 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 608613 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 125 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent2Amt | 0 | 2145 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 2270 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 562883 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 542837 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 20046 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 43549 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | ALS WALK-SYRACUSE |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 1666 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 6739 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 8405 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 542837 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 35165 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 578002 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 15119 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 15119 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -28430 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 379 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent2Amt | 0 | 825 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 1204 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 24870 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 18210 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 6660 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 6800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 6800 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 IS REVIEWED BY MANAGEMENT AND PROVIDED TO THE BOARD OF DIRECTORS FOR THEIR APPROVAL PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | BOARD MEMBERS ARE REQUIRED TO COMPLETE AN ANNUAL CONFLICT OF INTEREST STATEMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR AND OTHER EMPLOYEE COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE ORGANIZATIONAL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION HAS NOT CHANGED ITS OVERSIGHT OR SELECTION PROCESS FROM THE PRECEEDING YEAR. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART XII, LINE 2C: |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NY |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 571 |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 3701 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | 0 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.
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