Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2022 • EIN 37-1483975

Oct 01, 2021 to Sep 30, 2022 • Filed on May 26, 2023

Organization ProfileLUMINDRDS.ORG

View Organization Page

20 Burlington Mall Road Ste 200Burlington, MA 01803

(630) 715-5486

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

77th percentile

0.33x

Higher debt load relative to assets than 77% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

70th percentile

0.26x

Higher debt load relative to revenue than 70% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

5th percentile

-72%

Higher net margin than 5% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

96th percentile

$342,309

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 12.5% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

2nd percentile

-52%

Faster asset growth than 2% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

8th percentile

-48%

Faster revenue growth than 8% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets77th percentile

Assets

Down

$2,166,575

Down $2,320,639 (-52%) from 2021

Net Assets

Down

$1,446,468

Down $1,293,977 (-47%) from 2021

Liabilities

Down

$720,107

Down $1,026,662 (-59%) from 2021

Revenue And Expenses
Liabilities / Revenue70th percentileNet Margin5th percentile

Revenue

Down

$2,742,364

Down $2,524,851 (-48%) from 2021

Expenses

Up

$4,726,857

Up $1,358,931 (+40%) from 2021

Net Income

Down

-$1,984,493

Down $3,883,782 (-204%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2022

Assets$2,166,575
Liabilities$720,107
Net Assets$1,446,468
Open 2022 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2022

Revenue$2,742,364
Expenses$4,726,857
Net Income-$1,984,493
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2021 to Sep 30, 2022
Signed
May 26, 2023
Return Version
2021v4.2
Gross Receipts
$2,830,368
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

To accelerate the research that will increase the availability of therapeutic,diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$914,870$943,623▲ $28,753
Pledges and Grants Receivable$2,655,533$754,462▼ $1,901,071
Savings and Temporary Cash Investments$637,017--
Land, Buildings, and Equipment, Net$216,053$420,990▲ $204,937
Prepaid Expenses and Deferred Charges$34,321$21,585▼ $12,736
Inventories for Sale or Use-$13,726-
Total Assets$4,487,214$2,166,575▼ $2,320,639
Other Assets Total$29,420$12,189▼ $17,231
Liabilities
Accounts Payable and Accrued Expenses$167,209$347,366▲ $180,157
Grants Payable$1,563,845$334,611▼ $1,229,234
Deferred Revenue$12,555$38,130▲ $25,575
Other Liabilities$3,160--
Total Liabilities$1,746,769$720,107▼ $1,026,662
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,908,417$1,870,836▼ $37,581
Net Assets Without Donor Restrictions$832,028$-424,368▼ $1,256,396
Total Net Assets Fund Balance$2,740,445$1,446,468▼ $1,293,977
Total Liabilities and Net Assets / Fund Balance$4,487,214$2,166,575▼ $2,320,639

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$420,990$156,001$576,991
Other Assets Org$11,760--
Compensation and Service Providers
Top Officer Pay96th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hampus HillerstromPresident and CEOFT$318,264$24,045$342,309
Dr James HendrixChief Science OfficerFT$211,409$24,045$235,454
Angela BrittonVP of Clinical OfficerFT$213,833-$213,833
Michelle PetronioChief Development OfficerFT$163,933$24,045$187,978

Board Members and Trustees

NameTitle
Anthony ProvidentiBoard Chair
Tony HungBoard Vice Chair
Beverly PaperielloDirector
Chris SennaDirector
Claudia MoreiraDirector
Collette DevittoDirector
Hector GuinnessDirector
Jeff StrobelDirector
Paul MuraskoDirector
Sohail MasoodDirector
Patrick KannanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,544,017
Program Service Revenue
$0
Investment Income
$2,465
Other Revenue
$195,882
All Other Contributions
$2,544,017
Change in Net Assets
$-1,984,493

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,742,364
Total Revenue per Audited Statements
$2,742,364
Total Revenue per Form 990
$2,742,364
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,164,220
Other Expenses$2,115,637
Total Fundraising Expense$604,049
Grants and Similar Amounts Paid$447,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Expenses$1,312,149$750$9,194$1,312,149
Other Salaries and Wages$646,664$59,497$205,790$911,951
Current Officers, Directors, Trustees, and Key Employees$644,282$58,983$204,174$907,439
Grants to Domestic Orgs$447,000--$447,000
Other Employee Benefits$121,594$17,370$34,741$173,705
Fees for Services Other$6,450$102,794$34,956$144,200
Fees for Services Accounting-$144,138-$144,138
Information Technology$98,678$13,127$26,266$138,071
Payroll Taxes$87,574$12,511$25,021$125,106
Travel$54,358$6,313$12,626$73,297
Depreciation Depletion$47,129$6,733$13,466$67,328
Occupancy$38,279$5,468$10,937$54,684
Pension Plan Contributions$32,213$4,602$9,204$46,019
Office Expenses$26,747$3,957$8,042$38,746
Insurance-$37,278-$37,278
Fees for Services Legal-$31,200-$31,200
Conferences and Meetings$17,233$11$23$17,267
Advertising$7,495$307$1,030$8,832
Interest-$3,698-$3,698
Total Functional Expenses$3,598,866$523,942$604,049$4,726,857

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,726,857
Total Expenses per Audited Statements$4,726,857
Total Expenses per Form 990$4,726,857
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Rand CorporationSanta Monica, CA501c3To Support Down Syndrome Medical Info$170,000
Harvard UnversityBoston, MA501c3To Support Down Syndrome Medical Info$150,000
Dsc2uBoston, MA501c3To Support Down Medical Syndrome$90,000
Advocate Health ResourcesDowners Grove, IL501c3To Support Down Syndrome Medical Info$37,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$283,886
Fundraising Direct Expenses$88,004
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Summerdouble$112,841$112,841$42,498$70,343
Artsandblues$43,964$43,964-$43,964
Total Events$283,886$283,886$88,004$195,882
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The organizations process to review the final form 990 is to have management review return prior to submission and then the return is signed by an authorized officer.”

Conflict of interest policy compliance Part VI line 12C

“The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.”

CEO executive director top management comp Part VI line 15A

“Compensation by ceo is approved by the board of directors, other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”

Other officer or key employee compensation Part VI line 15B

“Compensation for ceo is approved by the board of directors, other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”

Form 990 availability to public Part VI line 18

“Form 1023 and form 990 are available upon request and available through public non profit websites.”

Governing documents etc available to public Part VI line 19

“Governing documents disclosure,conflict of interest policy and financial statements are available upon request.”

Part VI response or note to any other line in Part VI

“Ca,ma,ny,al,ak,az,ar,co,ct,dc,fa,ga,il,ks,ky,me,md,mi,ma,mn,ms,nh,nj,nc,nd,oh,ok,or,pa,ri,sc,tn,ut,va,wa,wv,wi”

Filing and Contact Details

Filer

Filer Name
Lumind Idsc Foundation
EIN
37-1483975
Address
20 BURLINGTON MALL ROAD STE 200, BURLINGTON, MA 01803

Signing Officer

Name
Hampus Hillerstrom
Title
President
Phone
7818251300
Signed
2023-05-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
11
Employees
21
Volunteers
50

Preparer

Firm
Duncan Accounting & Tax
Address
2130 S Academy Blvd Ste 200, Colorado Springs, CO 80916
Preparer
Beth Ulbrich
Phone
7194528664
Supplemental Narrative

Additional Explanations

Not undergone required audits or steps for audit part XII line 3B

“The organization has management oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.”

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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT AND CEO
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IRS990/Form990PartVIISectionAGrp/TitleTxt2VP OF CLINICAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHIEF DEVELOPMENT OFFICER
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IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
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IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19,GENE THERAPHY, INDEPENDENCE, MEDICAL CARE AND REGULATORY.
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Document Assets

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Filings

Displayed year

2022 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,166,575
Liabilities
$720,107
Net assets
$1,446,468
Revenue
$2,742,364
Expenses
$4,726,857
Net income
-$1,984,493
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.17$0.67$4.04$3.99$0.05
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.72$1.45$2.74$4.73$1.98
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$1.75$2.74$5.27$3.37$1.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.62$0.84$1.86$2.57$0.71
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.83$2.28$1.55$3.83$3.49$0.35
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$1.88$1.20$3.60$2.60$1.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$2.03$0.19$2.24$2.82$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.25$1.47$0.78$2.51$2.58$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.94$0.53$1.76
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2022 filings • 501(c)3 • $1M-$5M nonprofits