Civic Intelligence

Lumind Idsc Foundation

EIN 37-1483975 • 501(c)3 • Woburn, MA

View Organization Page

Profile

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

110 Winn Street Suite 105Woburn, MA 01801

lumindidsc.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

67th percentile

0.21x

Higher debt load relative to assets than 67% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

41st percentile

0.04x

Higher debt load relative to revenue than 41% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

42nd percentile

1.2%

Higher net margin than 42% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

5th percentile

-37%

Faster asset growth than 5% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

70th percentile

21%

Faster revenue growth than 70% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets67th percentile

Assets

Down

$848,403

Down $1,318,172 (-61%) from 2022

Liabilities

Down

$174,292

Down $545,815 (-76%) from 2022

Net Assets

Down

$674,111

Down $772,357 (-53%) from 2022

Operations
Liabilities / Revenue41st percentileNet Margin42nd percentile

Revenue

Up

$4,039,327

Up $1,296,963 (+47%) from 2022

Expenses

Down

$3,991,706

Down $735,151 (-16%) from 2022

Net Income

Up

$47,621

Up $2,032,114 (+102%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth5th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2024

Assets$848,403
Liabilities$174,292
Net Assets$674,111
Open 2024 Filing

Operations Trend

Revenue Growth70th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2024

Revenue$4,039,327
Expenses$3,991,706
Net Income$47,621
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$848,403
Liabilities
$174,292
Net assets
$674,111
Revenue
$4,039,327
Expenses
$3,991,706
Net income
$47,621
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.17$0.67$4.04$3.99$0.05
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.72$1.45$2.74$4.73$1.98
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$1.75$2.74$5.27$3.37$1.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.62$0.84$1.86$2.57$0.71
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.83$2.28$1.55$3.83$3.49$0.35
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$1.88$1.20$3.60$2.60$1.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$2.03$0.19$2.24$2.82$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.25$1.47$0.78$2.51$2.58$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.94$0.53$1.76
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
Jul 31, 2025
Return Version
2023v6.0
Gross Receipts
$4,128,551
Mission and Program Overview

Mission

To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with down syndrome.

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$348,784$463,920▲ $115,136
Land, Buildings, and Equipment, Net$330,165$156,668▼ $173,497
Cash and Non-Interest-Bearing Accounts$358,798$116,453▼ $242,345
Pledges and Grants Receivable$139,169$74,385▼ $64,784
Prepaid Expenses and Deferred Charges$22,408$12,839▼ $9,569
Total Assets$1,258,775$848,403▼ $410,372
Other Assets Total$59,451$24,138▼ $35,313
Liabilities
Grants Payable$94,000--
Accounts Payable and Accrued Expenses$363,026$90,075▼ $272,951
Deferred Revenue$30,518$63,682▲ $33,164
Other Liabilities$144,742$20,535▼ $124,207
Total Liabilities$632,286$174,292▼ $457,994
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$-116,676$585,748▲ $702,424
Net Assets With Donor Restrictions$743,165$88,363▼ $654,802
Total Net Assets Fund Balance$626,489$674,111▲ $47,622
Total Liabilities and Net Assets / Fund Balance$1,258,775$848,403▼ $410,372

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$156,668$491,815$648,483
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hampus HillerstromPresident and CEOFT$293,219$37,655$330,874
Lois KellyVP of Clinical OperationsFT$168,170-$168,170
Michelle PetronioChief Development Officer-$164,874-$164,874
Richard A FisherManagerFT$129,600-$129,600
Katherine O'NeillVP Marketing & Community EngagementFT$103,128$13,270$116,398

Board Members and Trustees

NameTitle
Anthony ProvidentiBoard Chair
Tony HungBoard Vice Chair
Beverly PaperielloDirector
Claudia MoreiraDirector
Das NarayandasDirector
Jeff StrobelDirector
Karen GaffneyDirector
Lasandra BrillDirector
Ludivine van der HeydenDirector
Chris SennaSecretary
Hector GuinnessTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Cooke Clinical ConsultingProgram Consultant800 Cross Pointe Rd, Columbus, OH 43230$110,500
Revenue and Support

Revenue Composition

Contributions and Grants
$4,044,988
Program Service Revenue
$0
Investment Income
$12,607
Other Revenue
$-18,268
All Other Contributions
$3,818,921
Change in Net Assets
$47,621

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,039,327
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$174,317
Total Revenue per Audited Statements
$4,213,644
Total Revenue per Form 990
$4,039,327
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,998,637
Other Expenses$1,993,069
Total Fundraising Expense$199,725
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,038,005$231,639$86,242$1,355,886
Current Officers, Directors, Trustees, and Key Employees$253,302$56,526$21,045$330,873
Other Employee Benefits$192,108$42,870$15,961$250,939
Depreciation Depletion$132,822$29,641$11,035$173,498
Fees for Services Accounting$26,334$105,337-$131,671
Information Technology$84,678$7,415$16,935$109,028
Fees for Services Other$15,721$81,978$1,255$98,954
Payroll Taxes$44,402$9,909$3,689$58,000
Conferences and Meetings$54,713--$54,713
Travel$21,695$1$21,727$43,423
Advertising$27,873-$14,551$42,424
Fees for Services Legal$12,000$7,925-$19,925
Office Expenses$15,096$753$1,722$17,571
Occupancy$11,117$973$2,223$14,313
Insurance-$13,560-$13,560
All Other Expenses$2,573$159$365$3,097
Pension Plan Contributions$2,250$502$187$2,939
Other Expenses$2,492$3$2,788$2,495
Total Functional Expenses$3,174,318$617,663$199,725$3,991,706

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,166,022
Expenses per Audited Statements$3,991,705
Total Expenses per Form 990$3,991,705
Expenses Not Reported on Form 990$174,317
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$89,224
Fundraising Gross Income$54,757
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Summer Double Dip$140,098-$45,058-
Funding Futures Chicago$100,431$33,810$2,225$31,585
Total Events$280,824$54,757$89,224$-34,467
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Amit Das is a family member of Das NarayandasAmit Receives a salary from the OrganizationNo$79,920
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$20,535
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“Form 990 is prepared by the Organization's audit firm, using information provided by the Finance Team. It is reviewed by the President and Chief Executive Officer, and provided to the Finance Committee and Board of Directors prior to submission.”

Form 990, Part VI, Section B, line 12C

“The process for monitoring this is by addressing in quarterly board meetings and ad hoc calls as needed.”

Form 990, Part VI, Section B, line 15

“Compensation for the ceo is approved by the board of directors. Other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”

Form 990, Part VI, Section C, line 18

“Form 1023 and form 990 are available upon request and available through public non profit websites.”

Form 990, Part VI, Section C, line 19

“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
LuMind IDSC Foundation
EIN
37-1483975
Phone
7818251302
Address
110 Winn Street Suite 105, Woburn, MA 01801

Signing Officer

Name
Hampus Hillerstrom
Title
President
Phone
7818251302
Signed
2025-07-31
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
11
Employees
20
Volunteers
50

Preparer

Firm
Desmond & Ahern Ltd
Address
10827 S WESTERN AVENUE, CHICAGO, IL 60643-3206
Preparer
Mel Padillo
Phone
7737794720
Supplemental Narrative

Additional Explanations

Form 990, Part XII, line 2C:

“The organization has management oversee and review the audit and form 990 prior to submission. The process has not been changed in the current year.”

Financial Statement Notes

Part X, Line 2:

“The organization has adopted the requirements for accounting for uncertain tax positions and management has determined that the organization was not required to record a liability related to uncertain tax positions as of september 30, 2024.”

Raw XML AppendixShowing 400 of 623 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/AccountsPayableAccrExpnssGrp/EOYAmt090075
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
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IRS990/Desc0THE LIFE-DSR NATURAL HISTORY STUDY, RESEARCH CONSENSUS PROJECTS AND RESEARCH POLICY PROJECTS SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. COMMUNITY PROGRAMS FOR TREATMENT ACCESS EQUITY, RESEARCH AWARENESS AND PARTICIPATION, AND FOR EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION, AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC).
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0Anthony Providenti
IRS990/Form990PartVIISectionAGrp/PersonNm1Tony Hung
IRS990/Form990PartVIISectionAGrp/PersonNm2Hector Guinness
IRS990/Form990PartVIISectionAGrp/PersonNm3Chris Senna
IRS990/Form990PartVIISectionAGrp/PersonNm4Beverly Paperiello
IRS990/Form990PartVIISectionAGrp/PersonNm5Claudia Moreira
IRS990/Form990PartVIISectionAGrp/PersonNm6Das Narayandas
IRS990/Form990PartVIISectionAGrp/PersonNm7Jeff Strobel
IRS990/Form990PartVIISectionAGrp/PersonNm8Karen Gaffney
IRS990/Form990PartVIISectionAGrp/PersonNm9Lasandra Brill
IRS990/Form990PartVIISectionAGrp/PersonNm10Ludivine van der Heyden
IRS990/Form990PartVIISectionAGrp/PersonNm11Hampus Hillerstrom
IRS990/Form990PartVIISectionAGrp/PersonNm12Katherine O'Neill
IRS990/Form990PartVIISectionAGrp/PersonNm13Lois Kelly
IRS990/Form990PartVIISectionAGrp/PersonNm14Michelle Petronio
IRS990/Form990PartVIISectionAGrp/PersonNm15Richard A Fisher
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Board Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt1Board Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11President and CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt12VP Marketing & Community Engagement
IRS990/Form990PartVIISectionAGrp/TitleTxt13VP of Clinical Operations
IRS990/Form990PartVIISectionAGrp/TitleTxt14Chief Development Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt15Manager
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IRS990/MissionDesc0TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
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IRS990/SavingsAndTempCashInvstGrp/BOYAmt0348784
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt05112405
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IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0280824
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt0195882
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt0153307

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