Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
990 • Fiscal year 2024 • EIN 37-1483975
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
Liabilities / Revenue
41st percentile
Higher debt load relative to revenue than 41% of similar nonprofits.
Net Margin
42nd percentile
Higher net margin than 42% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 8.2% of source-year revenue.
Asset Growth
4th percentile
Faster asset growth than 4% of similar nonprofits.
Revenue Growth
72nd percentile
Faster revenue growth than 72% of similar nonprofits.
Assets
Down$848,403
Down $1,318,172 (-61%) from 2022
Net Assets
Down$674,111
Down $772,357 (-53%) from 2022
Liabilities
Down$174,292
Down $545,815 (-76%) from 2022
Revenue
Up$4,039,327
Up $1,296,963 (+47%) from 2022
Expenses
Down$3,991,706
Down $735,151 (-16%) from 2022
Net Income
Up$47,621
Up $2,032,114 (+102%) from 2022
To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $348,784 | $463,920 | ▲ $115,136 |
| Land, Buildings, and Equipment, Net | $330,165 | $156,668 | ▼ $173,497 |
| Cash and Non-Interest-Bearing Accounts | $358,798 | $116,453 | ▼ $242,345 |
| Pledges and Grants Receivable | $139,169 | $74,385 | ▼ $64,784 |
| Prepaid Expenses and Deferred Charges | $22,408 | $12,839 | ▼ $9,569 |
| Total Assets | $1,258,775 | $848,403 | ▼ $410,372 |
| Other Assets Total | $59,451 | $24,138 | ▼ $35,313 |
| Liabilities | |||
| Grants Payable | $94,000 | - | - |
| Accounts Payable and Accrued Expenses | $363,026 | $90,075 | ▼ $272,951 |
| Deferred Revenue | $30,518 | $63,682 | ▲ $33,164 |
| Other Liabilities | $144,742 | $20,535 | ▼ $124,207 |
| Total Liabilities | $632,286 | $174,292 | ▼ $457,994 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $-116,676 | $585,748 | ▲ $702,424 |
| Net Assets With Donor Restrictions | $743,165 | $88,363 | ▼ $654,802 |
| Total Net Assets Fund Balance | $626,489 | $674,111 | ▲ $47,622 |
| Total Liabilities and Net Assets / Fund Balance | $1,258,775 | $848,403 | ▼ $410,372 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $156,668 | $491,815 | $648,483 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Hampus Hillerstrom | President and CEO | FT | $293,219 | $37,655 | $330,874 |
| Lois Kelly | VP of Clinical Operations | FT | $168,170 | - | $168,170 |
| Michelle Petronio | Chief Development Officer | - | $164,874 | - | $164,874 |
| Richard A Fisher | Manager | FT | $129,600 | - | $129,600 |
| Katherine O'Neill | VP Marketing & Community Engagement | FT | $103,128 | $13,270 | $116,398 |
| Name | Title |
|---|---|
| Anthony Providenti | Board Chair |
| Tony Hung | Board Vice Chair |
| Beverly Paperiello | Director |
| Claudia Moreira | Director |
| Das Narayandas | Director |
| Jeff Strobel | Director |
| Karen Gaffney | Director |
| Lasandra Brill | Director |
| Ludivine van der Heyden | Director |
| Chris Senna | Secretary |
| Hector Guinness | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Cooke Clinical Consulting | Program Consultant | 800 Cross Pointe Rd, Columbus, OH 43230 | $110,500 |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,998,637 |
| Other Expenses | $1,993,069 |
| Total Fundraising Expense | $199,725 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $1,038,005 | $231,639 | $86,242 | $1,355,886 |
| Current Officers, Directors, Trustees, and Key Employees | $253,302 | $56,526 | $21,045 | $330,873 |
| Other Employee Benefits | $192,108 | $42,870 | $15,961 | $250,939 |
| Depreciation Depletion | $132,822 | $29,641 | $11,035 | $173,498 |
| Fees for Services Accounting | $26,334 | $105,337 | - | $131,671 |
| Information Technology | $84,678 | $7,415 | $16,935 | $109,028 |
| Fees for Services Other | $15,721 | $81,978 | $1,255 | $98,954 |
| Payroll Taxes | $44,402 | $9,909 | $3,689 | $58,000 |
| Conferences and Meetings | $54,713 | - | - | $54,713 |
| Travel | $21,695 | $1 | $21,727 | $43,423 |
| Advertising | $27,873 | - | $14,551 | $42,424 |
| Fees for Services Legal | $12,000 | $7,925 | - | $19,925 |
| Office Expenses | $15,096 | $753 | $1,722 | $17,571 |
| Occupancy | $11,117 | $973 | $2,223 | $14,313 |
| Insurance | - | $13,560 | - | $13,560 |
| All Other Expenses | $2,573 | $159 | $365 | $3,097 |
| Pension Plan Contributions | $2,250 | $502 | $187 | $2,939 |
| Other Expenses | $2,492 | $3 | $2,788 | $2,495 |
| Total Functional Expenses | $3,174,318 | $617,663 | $199,725 | $3,991,706 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $4,166,022 |
| Expenses per Audited Statements | $3,991,705 |
| Total Expenses per Form 990 | $3,991,705 |
| Expenses Not Reported on Form 990 | $174,317 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $89,224 |
| Fundraising Gross Income | $54,757 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Summer Double Dip | $140,098 | - | $45,058 | - |
| Funding Futures Chicago | $100,431 | $33,810 | $2,225 | $31,585 |
| Total Events | $280,824 | $54,757 | $89,224 | $-34,467 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | Amit Das is a family member of Das Narayandas | Amit Receives a salary from the Organization | No | $79,920 |
| Liability | Amount |
|---|---|
| Operating Lease Liability | $20,535 |
“Form 990 is prepared by the Organization's audit firm, using information provided by the Finance Team. It is reviewed by the President and Chief Executive Officer, and provided to the Finance Committee and Board of Directors prior to submission.”
“The process for monitoring this is by addressing in quarterly board meetings and ad hoc calls as needed.”
“Compensation for the ceo is approved by the board of directors. Other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”
“Form 1023 and form 990 are available upon request and available through public non profit websites.”
“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”
“The organization has management oversee and review the audit and form 990 prior to submission. The process has not been changed in the current year.”
“The organization has adopted the requirements for accounting for uncertain tax positions and management has determined that the organization was not required to record a liability related to uncertain tax positions as of september 30, 2024.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 363026 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 90075 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 14551 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 27873 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 42424 |
| IRS990/AllOtherContributionsAmt | 0 | 3818921 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 365 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 159 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 2573 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3097 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Hampus Hillerstrom |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7818251300 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 110 Winn Street Suite 105 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Woburn |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01801 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 1 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 358798 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 116453 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 21045 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 56526 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 253302 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 330873 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 54713 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 54713 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 110500 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 800 Cross Pointe Rd |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | Columbus |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 43230 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | Cooke Clinical Consulting |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Program Consultant |
| IRS990/ContriRptFundraisingEventAmt | 0 | 226067 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 4044988 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 12607 |
| IRS990/CYOtherExpensesAmt | 0 | 1993069 |
| IRS990/CYOtherRevenueAmt | 0 | -18268 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 47621 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1998637 |
| IRS990/CYTotalExpensesAmt | 0 | 3991706 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 199725 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 4039327 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 30518 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 63682 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 11035 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 29641 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 132822 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 173498 |
| IRS990/Desc | 0 | THE LIFE-DSR NATURAL HISTORY STUDY, RESEARCH CONSENSUS PROJECTS AND RESEARCH POLICY PROJECTS SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. COMMUNITY PROGRAMS FOR TREATMENT ACCESS EQUITY, RESEARCH AWARENESS AND PARTICIPATION, AND FOR EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION, AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 743165 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 88363 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 20 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 3174318 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 105337 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 26334 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 131671 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 7925 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 12000 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 19925 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1255 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 81978 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 15721 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 98954 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 37655 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 13270 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Anthony Providenti |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Tony Hung |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Hector Guinness |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Chris Senna |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Beverly Paperiello |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Claudia Moreira |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Das Narayandas |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Jeff Strobel |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Karen Gaffney |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Lasandra Brill |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Ludivine van der Heyden |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Hampus Hillerstrom |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Katherine O'Neill |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | Lois Kelly |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Michelle Petronio |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | Richard A Fisher |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 293219 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 103128 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 168170 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 164874 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 129600 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Board Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Board Vice Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | President and CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | VP Marketing & Community Engagement |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | VP of Clinical Operations |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | Chief Development Officer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | Manager |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 226067 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 89224 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 54757 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 94000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 4128551 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 5 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 16935 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 7415 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 84678 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 109028 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 13560 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 13560 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 12607 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 12607 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 17 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 491815 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 330165 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 156668 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 648483 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 626489 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 674111 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -34467 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -34467 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | -116676 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 585748 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2223 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 973 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 11117 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 14313 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1722 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 753 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 15096 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 17571 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 59451 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 24138 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 15961 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 42870 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 192108 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 250939 |
| IRS990/OtherExpensesGrp/Desc | 0 | Sites expenses and rese |
| IRS990/OtherExpensesGrp/Desc | 1 | Taxes Fees & Licenses |
| IRS990/OtherExpensesGrp/Desc | 2 | Supplies |
| IRS990/OtherExpensesGrp/Desc | 3 | MIscellaneous |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2788 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 27251 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1221 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 3 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1222982 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 14155 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2492 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1222982 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 27251 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 18164 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2495 |
| IRS990/OtherInd | 0 | X |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 144742 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 20535 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Other Revenue |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 16199 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 16199 |
| IRS990/OtherRevenueTotalAmt | 0 | 16199 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 86242 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 231639 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 1038005 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 1355886 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3689 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 9909 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 44402 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 58000 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 187 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 502 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2250 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 2939 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 139169 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 74385 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 22408 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 12839 |
| IRS990/PrincipalOfficerNm | 0 | Hampus Hillerstrom |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 3191064 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 14309 |
| IRS990/PYOtherExpensesAmt | 0 | 2269891 |
| IRS990/PYOtherRevenueAmt | 0 | -45829 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -819979 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1709632 |
| IRS990/PYTotalExpensesAmt | 0 | 3979523 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 3159544 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 47621 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 16199 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 348784 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 463920 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 3818921 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3191064 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2544017 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5112405 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1577945 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 16244352 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 12607 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 14309 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2465 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1503 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 30884 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 280824 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 16199 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 792 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 27345 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 44336 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.88500 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 14981444 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1262908 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 3818921 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3191064 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2544017 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5112405 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1577945 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 16244352 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 16927302 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 195882 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 153307 |
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Displayed year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.