Civic Intelligence

Foundation for Sarcoidosis Research

990 • Fiscal year 2019 • EIN 36-4378232

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 13, 2020

Organization ProfileWWW.STOPSARCOIDOSIS.ORG

View Organization Page

1820 W Webster No 304Chicago, IL 60614

(312) 341-0500

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.05x

Higher debt load relative to assets than 44% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

54th percentile

0.11x

Higher debt load relative to revenue than 54% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

12th percentile

-23%

Higher net margin than 12% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

74th percentile

$114,809

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 5.3% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

42nd percentile

0.7%

Faster asset growth than 42% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

6th percentile

-46%

Faster revenue growth than 6% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets44th percentile

Assets

Up

$4,488,567

Up $31,635 (+0.7%) from 2018

Net Assets

Down

$4,257,524

Down $41,670 (-1.0%) from 2018

Liabilities

Up

$231,043

Up $73,305 (+46%) from 2018

Revenue And Expenses
Liabilities / Revenue54th percentileNet Margin12th percentile

Revenue

Down

$2,172,152

Down $1,886,708 (-46%) from 2018

Expenses

Up

$2,666,891

Up $212,463 (+8.7%) from 2018

Net Income

Down

-$494,739

Down $2,099,171 (-131%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth42nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $896,758Liabilities 2010: $36,170Net Assets 2010: $860,5882010Assets 2011: $773,064Liabilities 2011: $29,305Net Assets 2011: $743,7592011Assets 2015: $1,737,866Liabilities 2015: $377,741Net Assets 2015: $1,360,1252015Assets 2016: $2,281,769Liabilities 2016: $173,802Net Assets 2016: $2,107,9672016Assets 2017: $3,091,102Liabilities 2017: $27,123Net Assets 2017: $3,063,9792017Assets 2018: $4,456,932Liabilities 2018: $157,738Net Assets 2018: $4,299,1942018Assets 2019: $4,488,567Liabilities 2019: $231,043Net Assets 2019: $4,257,5242019Assets 2020: $5,212,814Liabilities 2020: $508,375Net Assets 2020: $4,704,4392020Assets 2021: $6,004,041Liabilities 2021: $350,532Net Assets 2021: $5,653,5092021Assets 2022: $4,929,854Liabilities 2022: $384,856Net Assets 2022: $4,544,9982022Assets 2023: $5,742,895Liabilities 2023: $455,899Net Assets 2023: $5,286,9962023Assets 2024: $17,183,158Liabilities 2024: $1,172,431Net Assets 2024: $16,010,7272024

Highlighted filing

2019

Assets$4,488,567
Liabilities$231,043
Net Assets$4,257,524
Open 2019 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $424,0512010Expenses 2011: $415,8942011Revenue 2015: $910,825Expenses 2015: $1,051,766Net Income 2015: -$140,9412015Revenue 2016: $1,442,108Expenses 2016: $723,252Net Income 2016: $718,8562016Revenue 2017: $2,119,501Expenses 2017: $1,381,138Net Income 2017: $738,3632017Revenue 2018: $4,058,860Expenses 2018: $2,454,428Net Income 2018: $1,604,4322018Revenue 2019: $2,172,152Expenses 2019: $2,666,891Net Income 2019: -$494,7392019Revenue 2020: $1,785,472Expenses 2020: $1,389,197Net Income 2020: $396,2752020Revenue 2021: $2,385,283Expenses 2021: $1,728,967Net Income 2021: $656,3162021Revenue 2022: $1,673,599Expenses 2022: $2,027,945Net Income 2022: -$354,3462022Revenue 2023: $2,574,104Expenses 2023: $2,402,436Net Income 2023: $171,6682023Revenue 2024: $13,585,865Expenses 2024: $3,368,016Net Income 2024: $10,217,8492024

Highlighted filing

2019

Revenue$2,172,152
Expenses$2,666,891
Net Income-$494,739
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 13, 2020
Return Version
2019v5.1
Gross Receipts
$3,941,187
Mission and Program Overview

Mission

The foundation for sarcoidosis research is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, fsr has fostered over $3 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.

Dedicated to improving care for sarcoidsis patients and to finding a cure for this disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$2,397,476$3,384,140▲ $986,664
Pledges and Grants Receivable$100,000$688,726▲ $588,726
Cash and Non-Interest-Bearing Accounts$1,881,620$323,307▼ $1,558,313
Land, Buildings, and Equipment, Net$26,331$34,503▲ $8,172
Total Assets$4,456,932$4,488,567▲ $31,635
Other Assets Total$51,505$57,891▲ $6,386
Liabilities
Deferred Revenue$40,000$154,012▲ $114,012
Accounts Payable and Accrued Expenses$29,337$52,031▲ $22,694
Grants Payable$88,401$25,000▼ $63,401
Total Liabilities$157,738$231,043▲ $73,305
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,299,194$4,257,524▼ $41,670
Total Net Assets Fund Balance$4,299,194$4,257,524▼ $41,670
Total Liabilities and Net Assets / Fund Balance$4,456,932$4,488,567▲ $31,635

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$8,835$30,025$38,860
Leasehold Improvements$19,292$9,738$29,030
Equipment$6,376$1,908$8,284
Other Securities$550,320--
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Ginger SpitzerExecutive DirectorFT$114,809$114,809
Daniel CulverDirector-$10,000$10,000

Board Members and Trustees

NameTitle
Andrea WilsonChairwoman
Reading WilsonPresident
Leslie SerchuckVice President
Azmi NabulsiDirector
Craig LipsetDirector
Jim DavisDirector
Kirk AllenDirector
Louise M PerkinsDirector
Mary CobbDirector
Mary Ellen CarrollDirector
Louie HondrosTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,958,614
Program Service Revenue
$110,795
Investment Income
$113,633
Other Revenue
$-10,890
All Other Contributions
$1,958,614
Change in Net Assets
$-494,739

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,172,152
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$493,639
Total Revenue per Audited Statements
$2,665,791
Total Revenue per Form 990
$2,172,152
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,265,548
Other Expenses$721,413
Salaries, Compensation, and Employee Benefits$679,930
Total Fundraising Expense$251,689
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,054,800--$1,054,800
Other Salaries and Wages$303,706$76,507$110,072$490,285
Fees for Services Other$30,545$135,921$24,290$190,756
Foreign Grants$159,500--$159,500
Current Officers, Directors, Trustees, and Key Employees$68,885$22,962$22,962$114,809
Conferences and Meetings$76,374$1,616$677$78,667
Payroll Taxes$35,476$9,471$12,667$57,614
Grants to Domestic Individuals$51,248--$51,248
Occupancy$26,247$13,124$9,235$48,606
Information Technology$18,511$6,874$21,861$47,246
Other Expenses$32,901$1,042$1,818$34,719
All Other Expenses$14,119$11,884$5,555$31,558
Other Employee Benefits$10,605$2,831$3,786$17,222
Depreciation Depletion$3,433$11,588-$15,021
Advertising$6,576-$748$7,324
Insurance-$5,916$440$6,356
Travel$4,598$285$1,106$5,989
Total Functional Expenses$2,103,879$311,323$251,689$2,666,891

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,707,461
Expenses per Audited Statements$2,666,891
Total Expenses per Form 990$2,666,891
Expenses Not Reported on Form 990$40,570
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Yale UniversityNew Haven, CT501c3Research$325,000
The Ohio State University Wexner Medical CenterColumbus, OH501c3Research$150,000
Vanderbilt UniversityDallas, TX501c3Research$150,000
Oklahoma Medical Research FoundationOklahoma City, OK501c3Research$125,000
University of IowaIowa City, IA501c3Research$30,000
John Hopkins Medical CenterBaltimore, MD501c3Research$25,000
Thomas Jefferson UniversityPhiladelphia, PA501c3Research$25,000
Cleveland ClinicIndependence, OH501c3Research$21,300
Albany Medical CollegeAlbany, NY501c3Research$20,000
Ats FoundationNew York, NY501c3Research$20,000
Medical University of South CarolinaCharleston, SC501c3Research$20,000
National Jewish HealthDenver, CO501c3Research$20,000
Northwestern UniversityEvanston, IL501c3Research$20,000
University of CincinnatiCincinnati, OH501c3Research$20,000
University of IllinoisUrbana, IL501c3Research$20,000
University of PennsylvaniaPhiladelphia, PA501c3Research$20,000
University of WashingtonSeattle, WA501c3Research$20,000
State University of Iowa FoundationIowa City, IA501c3Research$10,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$40,570
Fundraising Gross Income$24,240
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fsr Kiss Walk$24,240$24,240$40,570$-16,330
Total Events$24,240$24,240$40,570$-16,330
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Former Board MemberScientific Advisory Board StipendNo$10,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“The chairwoman and president are spouses.”

Form 990, Part VI, Section A, Line 8B

“In the future, the organization intends to keep formal minutes of their scientific advisory committee.”

Form 990, Part VI, Section B, Line 11B

“The 990 is distributed to the board before being filed.”

Form 990, Part VI, Section B, Line 15

“The board of directors shall annually review in writing, the performance of the executive director against performance criteria that are linked to the organization's long-term plan. The executive director shall participate in the evaluation process and reviews, signs and responds to the evaluation before it is entered into his or her record. The board of directors shall also review the fairness of the executive director's compensation and benefits in relationship to industry practices and federal requirements.”

Form 990, Part VI, Section C, Line 18

“All forms are available upon request.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest statement and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation for Sarcoidosis Research
EIN
36-4378232
Phone
3123410500
Address
1820 W WEBSTER NO 304, CHICAGO, IL 60614

Signing Officer

Name
Reading Wilson
Title
Treasurer
Phone
7733288156
Signed
2020-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Reading Wilson
Formed
2000
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
11
Employees
13
Volunteers
120

Preparer

Firm
Sassetti LLC
Address
6611 NORTH AVENUE, OAK PARK, IL 60302
Preparer
James Robbs
Phone
7083861433
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special events direct expense 40,570.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special events direct expense 40,570.”

Raw XML AppendixShowing 400 of 768 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0EDUCATION AND AWARENESS - IN 2019, FSR AWARENESS AND EDUCATION PROGRAMS PROVIDED OVER 40,000 PATIENTS WITH UP TO DATE, EVIDENCED BASED MATERIALS AS WELL AS SUPPORTING PATIENTS AROUND THE GLOBE WITH RESOURCES, ONLINE TOOLS, AND COMMUNICATION AND NETWORKING FORUMS. OVER 1,000 PATIENTS AND CAREGIVERS ATTENDED FSR'S 9 PATIENT CONFERENCES HELD ACROSS NORTH AMERICA. 38 STATE AND 46 LOCAL GOVERNMENTS AWARDED PROCLAMATIONS RECOGNIZING APRIL AS SARCOIDOSIS AWARENESS MONTH. OVER 1,900 INDIVIDUALS JOINED TEAM KISS DURING APRIL, INCLUDING VIRTUAL WALKERS, FUNDRAISERS, AND SATELLITE WALK PARTICIPANTS. OVER 87 LANDMARKS IN 2 COUNTRIES WERE ILLUMINATED PURPLE ON WORLD SARCOIDOSIS DAY (#LITFORSARC) INCLUDING ONE WORLD TRADE CENTER. 72 AMBASSADORS ATTENDED A TRAINING RETREAT IN WASHINGTON DC, PREPARING THEM TO SPREAD AWARENESS, EDUCATION, AND SUPPORT THROUGHOUT THE COUNTRY. 60 PATIENT SUPPORT GROUPS WERE FACILITATED BY FSR AMBASSADORS THROUGHOUT THE YEAR AND 32 LOCAL AND NATIONAL SPEAKING ENGAGEMENTS WERE CONDUCTED BY FSR SARCOIDOSIS AMBASSADORS.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRWOMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DIRECTOR
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IRS990/FormationYr02000
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt040570
IRS990/FundraisingGrossIncomeAmt024240
IRS990/GainOrLossGrp/SecuritiesAmt038652
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantAmt0250
IRS990/GrantsPayableGrp/BOYAmt088401
IRS990/GrantsPayableGrp/EOYAmt025000
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01054800
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01054800
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IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
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IRS990/GrossReceiptsAmt03941187
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
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IRS990/IndoorTanningServicesInd00
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IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06874
IRS990/InformationTechnologyGrp/ProgramServicesAmt018511
IRS990/InformationTechnologyGrp/TotalAmt047246
IRS990/InsuranceGrp/FundraisingAmt0440
IRS990/InsuranceGrp/ManagementAndGeneralAmt05916
IRS990/InsuranceGrp/TotalAmt06356
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IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt074981
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IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt03384140
IRS990/IRPDocumentCnt023
IRS990/IRPDocumentW2GCnt00
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IRS990/LandBldgEquipBasisNetGrp/BOYAmt026331
IRS990/LandBldgEquipBasisNetGrp/EOYAmt034503
IRS990/LandBldgEquipCostOrOtherBssAmt076174
IRS990/LegalDomicileStateCd0IL
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FOR SARCOIDOSIS RESEARCH IS THE NATION'S LEADING NONPROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR THIS DISEASE AND TO IMPROVING CARE FOR SARCOIDOSIS PATIENTS. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $3 MILLION IN SARCOIDOSIS-SPECIFIC RESEARCH EFFORTS AND HAS WORKED DILIGENTLY TO PROVIDE RESOURCES TO THOUSANDS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
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IRS990/NetAssetsOrFundBalancesEOYAmt04257524
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-16330
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0453069
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04299194
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04257524
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt09235
IRS990/OccupancyGrp/ManagementAndGeneralAmt013124
IRS990/OccupancyGrp/ProgramServicesAmt026247
IRS990/OccupancyGrp/TotalAmt048606
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt057891
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03786
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02831
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt010605
IRS990/OtherEmployeeBenefitsGrp/TotalAmt017222
IRS990/OtherExpensesGrp/Desc0SPECIAL EVENTS
IRS990/OtherExpensesGrp/Desc1FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc2POSTAGE AND PRINTING
IRS990/OtherExpensesGrp/Desc3RESEARCH
IRS990/OtherExpensesGrp/FundraisingAmt03114
IRS990/OtherExpensesGrp/FundraisingAmt117859
IRS990/OtherExpensesGrp/FundraisingAmt215499
IRS990/OtherExpensesGrp/FundraisingAmt31818
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01985
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt19317
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21042
IRS990/OtherExpensesGrp/ProgramServicesAmt0145219
IRS990/OtherExpensesGrp/ProgramServicesAmt129268
IRS990/OtherExpensesGrp/ProgramServicesAmt231868
IRS990/OtherExpensesGrp/ProgramServicesAmt332901
IRS990/OtherExpensesGrp/TotalAmt0150318
IRS990/OtherExpensesGrp/TotalAmt156444
IRS990/OtherExpensesGrp/TotalAmt248409
IRS990/OtherExpensesGrp/TotalAmt334719
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt05440
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt05440
IRS990/OtherRevenueTotalAmt05440
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0110072
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt076507
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0303706
IRS990/OtherSalariesAndWagesGrp/TotalAmt0490285
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt012667
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt09471
IRS990/PayrollTaxesGrp/ProgramServicesAmt035476
IRS990/PayrollTaxesGrp/TotalAmt057614
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0100000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0688726
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0READING WILSON
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0RESEARCH FUND AND FACILITY MANGEM
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0110795
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0110795
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH - IN 2019, THE FSR FELLOWSHIP GRANT PROGRAM CONTINUED TO FUND 4 FELLOWS INTO THEIR SECOND AND FINAL YEAR OF FELLOWSHIP WORK AND SARCOIDOSIS RESEARCH. FSR'S SMALL GRANT PROGRAM FOCUSES ON AWARDING FUNDS TO NEW OR EARLY STAGE RESEARCH ON SARCOIDOSIS. IN 2019, $50,000 WAS PROVIDED TO SMALL GRANT AWARDEES. FSR'S CLINICAL STUDIES NETWORK (CSN) AND SARCONNECT PROGRAMS CONTINUED TO ENGAGE AND PARTNER WITH PHARMACEUTICAL COMPANIES THROUGH PATIENT OUTREACH AND RECRUITMENT FOR LARGE MULTI- CENTER TRIALS. BOTH PROGRAMS HELP CARRY OUT MULTIPLE STUDIES WITH FOCUS IN CARDIAC AND PULMONARY SARCOIDOSIS. IN ADDITION, 400 SURVEYS WERE COLLECTED TO ADVANCE UNDERSTANDING OF ATTITUDES TOWARD RESEARCH FROM POPULATIONS TRADITIONALLY UNDERREPRESENTED IN RESEARCH AND CLINICAL TRIALS. FSR CONTINUED GROWING THE PATIENT REGISTRY AND MADE SIGNIFICANT PROGRESS ON THE SCOUT ENDPOINTS PROJECT, IN ADDITION TO PROVIDING SERVICES AND SUPPORT TO ADVANCE SARCOIDOSIS RESEARCH AND THE MISSION OF THE ORGANIZATION.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01658101
IRS990/ProgSrvcAccomActy2Grp/GrantAmt01265298
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0110795
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03812061
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01307303
IRS990/PYInvestmentIncomeAmt0217975
IRS990/PYOtherExpensesAmt0617442
IRS990/PYOtherRevenueAmt028824
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01604432
IRS990/PYSalariesCompEmpBnftPaidAmt0529683
IRS990/PYTotalExpensesAmt02454428
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04058860
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-494739
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt034000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt016000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt027025
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt040000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt065000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0182025
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt01958614
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt03812061
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt02065871
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01369674
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0773178
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt09979398
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0113633
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt0217975
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt053630
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt072434
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0137647
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0595319
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0113633
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt0217975
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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt072434
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IRS990ScheduleA/InvestmentIncomeCYPct00.05620
IRS990ScheduleA/InvestmentIncomePYPct00.06380
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt05440
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt011027
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IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.34620
IRS990ScheduleA/PublicSupportPY509Pct00.35300
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IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt01450270
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt0672316
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt0155892
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt06312797
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt01081374
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IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt01423245
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt0632316
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt090892
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt01369674
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0773178
IRS990ScheduleA/Total509Grp/TotalAmt09979398
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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,488,567
Liabilities
$231,043
Net assets
$4,257,524
Revenue
$2,172,152
Expenses
$2,666,891
Net income
-$494,739
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$17.2$1.17$16.0$13.6$3.37$10.2
2023Detailed filing. Detailed filing data is available for this year.$5.74$0.46$5.29$2.57$2.40$0.17
2022Detailed filing. Detailed filing data is available for this year.$4.93$0.38$4.54$1.67$2.03$0.35
2021Detailed filing. Detailed filing data is available for this year.$6.00$0.35$5.65$2.39$1.73$0.66
2020Detailed filing. Detailed filing data is available for this year.$5.21$0.51$4.70$1.79$1.39$0.40
2019Detailed filing. Detailed filing data is available for this year.$4.49$0.23$4.26$2.17$2.67$0.49
2018Detailed filing. Detailed filing data is available for this year.$4.46$0.16$4.30$4.06$2.45$1.60
2017Detailed filing. Detailed filing data is available for this year.$3.09$0.03$3.06$2.12$1.38$0.74
2016Detailed filing. Detailed filing data is available for this year.$2.28$0.17$2.11$1.44$0.72$0.72
2015Detailed filing. Detailed filing data is available for this year.$1.74$0.38$1.36$0.91$1.05$0.14
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.77$0.03$0.74$0.42
2010Detailed filing. Detailed filing data is available for this year.$0.90$0.04$0.86$0.42