Civic Intelligence

Foundation for Sarcoidosis Research

990 • Fiscal year 2015 • EIN 36-4378232

Jan 01, 2015 to Dec 31, 2015 • Filed on Sep 14, 2016

1820 W WEBSTER No 304Chicago, IL 60614

(312) 341-0500

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.22x

Higher debt load relative to assets than 62% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

74th percentile

0.41x

Higher debt load relative to revenue than 74% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

16th percentile

-15%

Higher net margin than 16% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

78th percentile

$125,160

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 13.7% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2015

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2015

Assets

Up

$1,737,866

Up $964,802 (+125%) from 2011

Net Assets

Up

$1,360,125

Up $616,366 (+83%) from 2011

Liabilities

Up

$377,741

Up $348,436 (+1189%) from 2011

Revenue

$910,825

No earlier filing loaded for comparison.

Expenses

Up

$1,051,766

Up $635,872 (+153%) from 2011

Net Income

-$140,941

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $896,758Liabilities 2010: $36,170Net Assets 2010: $860,5882010Assets 2011: $773,064Liabilities 2011: $29,305Net Assets 2011: $743,7592011Assets 2015: $1,737,866Liabilities 2015: $377,741Net Assets 2015: $1,360,1252015Assets 2016: $2,281,769Liabilities 2016: $173,802Net Assets 2016: $2,107,9672016Assets 2017: $3,091,102Liabilities 2017: $27,123Net Assets 2017: $3,063,9792017Assets 2018: $4,456,932Liabilities 2018: $157,738Net Assets 2018: $4,299,1942018Assets 2019: $4,488,567Liabilities 2019: $231,043Net Assets 2019: $4,257,5242019Assets 2020: $5,212,814Liabilities 2020: $508,375Net Assets 2020: $4,704,4392020Assets 2021: $6,004,041Liabilities 2021: $350,532Net Assets 2021: $5,653,5092021Assets 2022: $4,929,854Liabilities 2022: $384,856Net Assets 2022: $4,544,9982022Assets 2023: $5,742,895Liabilities 2023: $455,899Net Assets 2023: $5,286,9962023Assets 2024: $17,183,158Liabilities 2024: $1,172,431Net Assets 2024: $16,010,7272024

Highlighted filing

2015

Assets$1,737,866
Liabilities$377,741
Net Assets$1,360,125

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $424,0512010Expenses 2011: $415,8942011Revenue 2015: $910,825Expenses 2015: $1,051,766Net Income 2015: -$140,9412015Revenue 2016: $1,442,108Expenses 2016: $723,252Net Income 2016: $718,8562016Revenue 2017: $2,119,501Expenses 2017: $1,381,138Net Income 2017: $738,3632017Revenue 2018: $4,058,860Expenses 2018: $2,454,428Net Income 2018: $1,604,4322018Revenue 2019: $2,172,152Expenses 2019: $2,666,891Net Income 2019: -$494,7392019Revenue 2020: $1,785,472Expenses 2020: $1,389,197Net Income 2020: $396,2752020Revenue 2021: $2,385,283Expenses 2021: $1,728,967Net Income 2021: $656,3162021Revenue 2022: $1,673,599Expenses 2022: $2,027,945Net Income 2022: -$354,3462022Revenue 2023: $2,574,104Expenses 2023: $2,402,436Net Income 2023: $171,6682023Revenue 2024: $13,585,865Expenses 2024: $3,368,016Net Income 2024: $10,217,8492024

Highlighted filing

2015

Revenue$910,825
Expenses$1,051,766
Net Income-$140,941
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Sep 14, 2016
Return Version
2015v2.1
Gross Receipts
$1,853,770
Mission and Program Overview

Mission

The foundation for sarcoidosis research is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, fsr has fostered over $3 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.

Dedicated to improving care for sarcoidosis patients and to finding a cure for this disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$602,139$1,587,031▲ $984,892
Savings and Temporary Cash Investments$841,348--
Cash and Non-Interest-Bearing Accounts$216,879$131,870▼ $85,009
Pledges and Grants Receivable$6,223$8,234▲ $2,011
Land, Buildings, and Equipment, Net$5,616$3,744▼ $1,872
Total Assets$1,676,192$1,737,866▲ $61,674
Other Assets Total$3,987$6,987▲ $3,000
Liabilities
Grants Payable-$360,000-
Accounts Payable and Accrued Expenses$4,862$17,741▲ $12,879
Total Liabilities$4,862$377,741▲ $372,879
Net Assets / Fund Balance
Unrestricted Net Assets$1,671,330$1,360,125▼ $311,205
Total Net Assets Fund Balance$1,671,330$1,360,125▼ $311,205
Total Liabilities and Net Assets / Fund Balance$1,676,192$1,737,866▲ $61,674

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$3,744$5,616$9,360
Other Securities$601,603--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Ginger SpitzerExecutive DirectorFT$120,960$4,200$125,160

Board Members and Trustees

NameTitle
Andrea WilsonChairwoman
Reading WilsonPresident
Leslie SerchuckVice President
Azmi NabulsiDirector
Craig LipsetDirector
Daniel CulverDirector
Denise WoolDirector
Karen LambrosDirector
Kirk AllenDirector
Louise M PerkinsDirector
Yvonne JamesDirector
Louie HondrosTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$773,178
Program Service Revenue
$0
Investment Income
$137,647
Other Revenue
$0
All Other Contributions
$773,178
Change in Net Assets
$-140,941

Audited Revenue Reconciliation

Revenue per Audited Statements
$910,825
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-170,264
Total Revenue per Audited Statements
$740,561
Total Revenue per Form 990
$910,825
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$495,191
Other Expenses$299,241
Salaries, Compensation, and Employee Benefits$257,334
Total Fundraising Expense$153,857
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$495,191--$495,191
Current Officers, Directors, Trustees, and Key Employees$180,134$38,600$38,600$257,334
All Other Expenses$33,123$10,350$21,894$65,367
Other Expenses$16,190$9,502$9,502$35,194
Occupancy$7,996$7,760$7,760$23,516
Travel$9,096$369$2,827$12,292
Advertising$2,068$2,008$2,008$6,084
Insurance$2,906$623$623$4,152
Depreciation Depletion-$1,872-$1,872
Total Functional Expenses$797,155$100,754$153,857$1,051,766

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,051,766
Total Expenses per Audited Statements$1,051,766
Total Expenses per Form 990$1,051,766
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
albany medical centerAlbany, NY501c3Research$60,000
cleveland clinicCleveland, OH501c3Research$60,000
john hopkins medicineBaltimore, MD501c3Research$60,000
national jewish healthDenver, CO501c3Research$60,000
university of cincinnatiCincinnati, OH115Research$60,000
university of illinois college of medicine chicagoChicago, ILn/aResearch$60,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

The President and Treasurer are spouses.

Form 990, Part VI, Section A, line 8B

In the future, the Organization intends to keep formal minutes of their Scientific Advisory Committee.

Form 990, Part VI, Section B, line 11

The 990 is distributed to the Board before being filed.

Form 990, Part VI, Section B, line 15

The Board of Directors shall annually review in writing, the performance of the Executive Director against performance criteria that are linked to the organization's long-term plan. The Executive Director shall participate in the evaluation process and reviews, signs and responds to the evaluation before it is entered into his or her record. The Board of Directors shall also review the fairness of the Executive Director's compensation and benefits in relationship to industry practices and federal requirements.

Form 990, Part VI, Section C, line 18

All forms are available upon request.

Form 990, Part VI, Section C, line 19

The organization's governing documents, conflict of interest statement and financial statements are available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Foundation for Sarcoidosis Research
EIN
36-4378232
Phone
3123410500
Address
1820 W WEBSTER No 304, CHICAGO, IL 60614

Signing Officer

Name
Ginger Spitzer
Title
Executive Director
Phone
7733288156
Signed
2016-09-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ginger Spitzer
Formed
2000
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
12
Employees
5
Volunteers
5

Preparer

Firm
Sassetti LLC
Address
6611 North Avenue, Oak Park, IL 60302
Preparer
James Robbs
Phone
7083861433
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IRS990/ActivityOrMissionDesc0DEDICATED TO IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE.
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IRS990/Desc0EDUCATION AND AWARENESS - Patients can be KEY elements in progress toward better treatments and a cure! FSR educates and connects patients with opportunities to become involved by becoming knowledgeable about sarcoidosis research. This includes participating in clinical trials, tissue donation programs, patient registries and shared data for research. FSR also offers annual conferences, webinars and comprehensive educational materials for people across the globe living with sarcoidosis, and connects patients to each other for support and enabling a larger impact. More than 14,000 members from all 50 states and nearly 80 countries have joined our free Stop Sarcoidosis Online Support Community. Thousands more are helped through in-person support groups under the umbrella of FSR. We are committed to informing the public about the disease and the dire need for increased funding, as this will in turn advance research and an understanding of the disease.
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IRS990/MissionDesc0The Foundation for Sarcoidosis Research ("FSR") is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, FSR has funded numerous domestic and international research efforts and has worked diligently to provide resources to thousands. Our model provides a dual-focused approach for strategic movement.
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IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH - FSR provides funding and collaborations for research and initiatives which focus on the understanding of sarcoidosis, addresses the causes of the disease, counters the suffering of patients, and advances the potential for a cure. Through collaborations and partnerships with the pharmaceutical industry, biotech companies, medical institutes and professionals, academic institutes, researchers, and patients from across the globe, FSR is producing game-changing initiatives toward a cure. To date, FSR has fostered more than $1 million in sarcoidosis-specific research. In the years ahead, the Foundation looks forward to increasing our investment to find innovative breakthroughs which will provide treatments, therapies and a cure for the disease.
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