Civic Intelligence

Foundation for Sarcoidosis Research

EIN 36-4378232 • 501(c)3 • Chicago, IL

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Profile

The foundation for sarcoidosis research (fsr) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, fsr has fostered over $6.5 million in sarcoidosis specific research efforts.

320 W Ohio St 300Chicago, IL 60654

www.stopsarcoidosis.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

34th percentile

0.07x

Higher debt load relative to assets than 34% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

28th percentile

0.09x

Higher debt load relative to revenue than 28% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

95th percentile

75%

Higher net margin than 95% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

96th percentile

87%

Faster asset growth than 96% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2024

Revenue Growth

96th percentile

185%

Faster revenue growth than 96% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets34th percentile

Assets

Up

$17,183,158

Up $11,440,263 (+199%) from 2023

Liabilities

Up

$1,172,431

Up $716,532 (+157%) from 2023

Net Assets

Up

$16,010,727

Up $10,723,731 (+203%) from 2023

Operations
Liabilities / Revenue28th percentileNet Margin95th percentile

Revenue

Up

$13,585,865

Up $11,011,761 (+428%) from 2023

Expenses

Up

$3,368,016

Up $965,580 (+40%) from 2023

Net Income

Up

$10,217,849

Up $10,046,181 (+5852%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth96th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20M$15M$10M$5.0M$0Assets 2010: $896,758Liabilities 2010: $36,170Net Assets 2010: $860,5882010Assets 2011: $773,064Liabilities 2011: $29,305Net Assets 2011: $743,7592011Assets 2015: $1,737,866Liabilities 2015: $377,741Net Assets 2015: $1,360,1252015Assets 2016: $2,281,769Liabilities 2016: $173,802Net Assets 2016: $2,107,9672016Assets 2017: $3,091,102Liabilities 2017: $27,123Net Assets 2017: $3,063,9792017Assets 2018: $4,456,932Liabilities 2018: $157,738Net Assets 2018: $4,299,1942018Assets 2019: $4,488,567Liabilities 2019: $231,043Net Assets 2019: $4,257,5242019Assets 2020: $5,212,814Liabilities 2020: $508,375Net Assets 2020: $4,704,4392020Assets 2021: $6,004,041Liabilities 2021: $350,532Net Assets 2021: $5,653,5092021Assets 2022: $4,929,854Liabilities 2022: $384,856Net Assets 2022: $4,544,9982022Assets 2023: $5,742,895Liabilities 2023: $455,899Net Assets 2023: $5,286,9962023Assets 2024: $17,183,158Liabilities 2024: $1,172,431Net Assets 2024: $16,010,7272024

Highlighted filing

2024

Assets$17,183,158
Liabilities$1,172,431
Net Assets$16,010,727
Open 2024 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $424,0512010Expenses 2011: $415,8942011Revenue 2015: $910,825Expenses 2015: $1,051,766Net Income 2015: -$140,9412015Revenue 2016: $1,442,108Expenses 2016: $723,252Net Income 2016: $718,8562016Revenue 2017: $2,119,501Expenses 2017: $1,381,138Net Income 2017: $738,3632017Revenue 2018: $4,058,860Expenses 2018: $2,454,428Net Income 2018: $1,604,4322018Revenue 2019: $2,172,152Expenses 2019: $2,666,891Net Income 2019: -$494,7392019Revenue 2020: $1,785,472Expenses 2020: $1,389,197Net Income 2020: $396,2752020Revenue 2021: $2,385,283Expenses 2021: $1,728,967Net Income 2021: $656,3162021Revenue 2022: $1,673,599Expenses 2022: $2,027,945Net Income 2022: -$354,3462022Revenue 2023: $2,574,104Expenses 2023: $2,402,436Net Income 2023: $171,6682023Revenue 2024: $13,585,865Expenses 2024: $3,368,016Net Income 2024: $10,217,8492024

Highlighted filing

2024

Revenue$13,585,865
Expenses$3,368,016
Net Income$10,217,849
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$17,183,158
Liabilities
$1,172,431
Net assets
$16,010,727
Revenue
$13,585,865
Expenses
$3,368,016
Net income
$10,217,849
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$17.2$1.17$16.0$13.6$3.37$10.2
2023Detailed filing. Detailed filing data is available for this year.$5.74$0.46$5.29$2.57$2.40$0.17
2022Detailed filing. Detailed filing data is available for this year.$4.93$0.38$4.54$1.67$2.03$0.35
2021Detailed filing. Detailed filing data is available for this year.$6.00$0.35$5.65$2.39$1.73$0.66
2020Detailed filing. Detailed filing data is available for this year.$5.21$0.51$4.70$1.79$1.39$0.40
2019Detailed filing. Detailed filing data is available for this year.$4.49$0.23$4.26$2.17$2.67$0.49
2018Detailed filing. Detailed filing data is available for this year.$4.46$0.16$4.30$4.06$2.45$1.60
2017Detailed filing. Detailed filing data is available for this year.$3.09$0.03$3.06$2.12$1.38$0.74
2016Detailed filing. Detailed filing data is available for this year.$2.28$0.17$2.11$1.44$0.72$0.72
2015Detailed filing. Detailed filing data is available for this year.$1.74$0.38$1.36$0.91$1.05$0.14
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.77$0.03$0.74$0.42
2010Detailed filing. Detailed filing data is available for this year.$0.90$0.04$0.86$0.42
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 29, 2025
Return Version
2024v5.2
Gross Receipts
$14,480,859
Mission and Program Overview

Mission

The foundation for sarcoidosis research is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, fsr has fostered over $3 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.

The foundation for sarcoidosis research (fsr) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, fsr has fostered over $7.5 million in sarcoidosis specific research efforts.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$4,403,647$16,071,598▲ $11,667,951
Cash and Non-Interest-Bearing Accounts$959,707$759,559▼ $200,148
Pledges and Grants Receivable$322,714$187,301▼ $135,413
Accounts Receivable$7,284$98,186▲ $90,902
Prepaid Expenses and Deferred Charges$49,489$66,514▲ $17,025
Land, Buildings, and Equipment, Net$54$0▼ $54
Total Assets$5,742,895$17,183,158▲ $11,440,263
Liabilities
Grants Payable$313,500$845,304▲ $531,804
Accounts Payable and Accrued Expenses$142,399$321,294▲ $178,895
Deferred Revenue-$5,833-
Total Liabilities$455,899$1,172,431▲ $716,532
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,205,506$14,502,618▲ $10,297,112
Net Assets With Donor Restrictions$1,081,490$1,508,109▲ $426,619
Total Net Assets Fund Balance$5,286,996$16,010,727▲ $10,723,731
Total Liabilities and Net Assets / Fund Balance$5,742,895$17,183,158▲ $11,440,263

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$38,862$38,862
Equipment$0$6,841$6,841
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary McgowanPresident & CEOFT$242,000$30,376$272,376
Tricha ShivasChief of Staff and StrategyFT$190,600$26,556$217,156

Board Members and Trustees

NameTitle
Mary CobbPresident
Heidi W JunkVice President (thru Dec-2024)
Calvin HarrisDirector
Craig LipsetDirector
Emerson Randy Hall JrDirector
Jeffrey RaichDirector
Leslie SerchuckDirector
Louise M PerkinsDirector
Michael KlingherDirector
Yvette C CozierDirector
Rev Michael a Walrond JrDirector (thru Nov-24)
Joel RosenSecretary
Michael KaplanTreasurer (thru Dec-2024)
Revenue and Support

Revenue Composition

Contributions and Grants
$13,025,070
Program Service Revenue
$192,325
Investment Income
$364,032
Other Revenue
$4,438
All Other Contributions
$12,895,070
Change in Net Assets
$10,217,849

Audited Revenue Reconciliation

Revenue per Audited Statements
$13,559,676
Revenue Not Reported on Financial Statements
$26,189
Revenue Not Reported on Form 990
$540,386
Total Revenue per Audited Statements
$14,100,062
Total Revenue per Form 990
$13,585,865
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,334,219
Other Expenses$1,081,462
Grants and Similar Amounts Paid$952,335
Total Fundraising Expense$211,631
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$847,694--$847,694
Other Salaries and Wages$475,233$149,353$76,985$701,571
Current Officers, Directors, Trustees, and Key Employees$309,294$97,203$50,103$456,600
Fees for Services Other$304,955$16,615$1,000$322,570
Information Technology$37,546$90,487$25,299$153,332
Office Expenses$78,470$26,897$36,771$142,138
Travel$108,787$8,092$47$116,926
Foreign Grants$104,641--$104,641
Other Expenses$97,779$3,323$2,107$103,209
Fees for Services Accounting$161$94,626$1$94,788
Payroll Taxes$63,925$20,090$10,355$94,370
Conferences and Meetings$81,880$910-$82,790
Other Employee Benefits$54,921$17,260$8,897$81,078
Occupancy-$33,602-$33,602
Fees for Service Investment Mgmnt Fees-$26,189-$26,189
Insurance-$4,501-$4,501
Advertising$1,362--$1,362
Pension Plan Contributions$406$128$66$600
Depreciation Depletion-$55-$55
Total Functional Expenses$2,567,054$589,331$211,631$3,368,016

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,376,331
Total Expenses per Form 990$3,368,016
Expenses per Audited Statements$3,341,827
Expenses Not Reported on Form 990$34,504
Expenses Not Reported on Financial Statements$26,189
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PA501c3Research$200,000
University of IowaIowa City, IA501c3Research$163,400
University of California San FranciscoConcord, CA501c3Research$150,000
Duke UniversityDurham, NC501c3Research$100,000
University of ColoradoAurora, CO501c3Pilot Grant$100,000
Mayo ClinicMinneapolis, MN501c3Research$50,500
Cleveland ClinicCleveland, OH501c3Research$16,450
Northwestern UniversityEvanston, IL501c3Research$15,450
University of Illinois at ChicagoChicago, IL501c3Research$12,500
American Thoracic Society (ats)New York, NY501c3Research$10,611
National Jewish HealthDenver, CO501c3Research$10,550
Medical University of South CarolinaCharleston, SC501c3Research$9,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is distributed to the board before being filed.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy is reviewed and signed on an annual basis as part of the organization's due diligence.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy is reviewed and signed on an annual basis as part of the organization's due diligence.”

Form 990, Part VI, Section B, Line 15A

“The board of directors shall annually review in writing, the performance of the chief executive officer (ceo) against performance criteria that are linked to the organization's long-term plan. The ceo shall participate in the evaluation process and reviews, signs and responds to the evaluation before it is entered into his or her record. The board of directors shall also review the fairness of the ceo's compensation and benefits in relationship to industry practices and federal requirements.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation for Sarcoidosis Research
EIN
36-4378232
Phone
3123410500
Address
320 W OHIO ST 300, CHICAGO, IL 60654

Signing Officer

Name
Mary Cobb
Title
President
Phone
7733288156
Signed
2025-09-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mary Cobb
Formed
2000
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
12
Employees
18
Volunteers
125

Preparer

Firm
Sassetti LLC
Address
2107 SWIFT DRIVE SUITE 210, OAK BROOK, IL 60523
Preparer
Izabela Poludniak
Phone
7083861433
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“This process is unchanged from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income taxes under the provision of section 501(c)(3) of the internal revenue code. Accounting principles generally accepted in the united states of america require management to evaluate tax positions taken by the organization and recognize a tax liability if the foundation has taken any uncertain positions that more likely than not would not be sustained upon examination by the internal revenue service or other applicable taxing authorities. Management has analyzed tax positions taken by the foundation and has concluded that there are no uncertain positions taken or expected to be taken as of december 31, 2024. Thus, no provision for income tax has been provided for in the financial statements. The foundation's forms 990, return of foundation exempt from income tax, are subject to examination by the irs, generally for three years after they were filed.”

Raw XML AppendixShowing 400 of 723 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/AccountsReceivableGrp/EOYAmt098186
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.
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IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CostOfGoodsSoldAmt00
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IRS990/CYContributionsGrantsAmt013025070
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IRS990/Desc0PATIENT AND CLINICIAN SUPPORT AND PROGRAMMING:FSR PROVIDES PATIENTS WITH DIRECT SUPPORT THROUGH OUR PEER-LED TRAINED VOLUNTEER COMMUNITY GROUPS, SUPPORT GROUPS, OUR ONE-ONE-ONE PATIENT NAVIGATOR SUPPORT PROGRAM, AND COMMUNITY OUTREACH ACTIVITIES. FSR PROVIDES DIRECT PATIENT EDUCATION THROUGH FSR'S WEBINAR AND TOWN HALL EDUCATIONAL SERIES, FSR SARC FIGHTER PODCAST. FSR HAS ALSO PROVIDED A SPECIFIC EMPHASIS ON IMPROVING REPRESENTATION IN CLINICAL TRIALS THROUGH OUR IGNORE NO MORE EFFORTS.FSR ALSO PROVIDES CLINICIAN EDUCATION AND SUPPORT THROUGH THE CLINICIAN EDUCATION AND ENGAGEMENT SERIES, PEER CASE REVIEWS, AND THE FSR JOURNAL CLUB. THESE PROGRAMS PROVIDE CLINICIANS WITH CONTINUING MEDICAL EDUCATION CREDITS AND FOSTER BEST PRACTICE SHARING AND OUTCOME IMPROVEMENT STRATEGIES.
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IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt018
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
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IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
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IRS990/Form990PartVIISectionAGrp/PersonNm0MARY COBB
IRS990/Form990PartVIISectionAGrp/PersonNm1HEIDI W JUNK
IRS990/Form990PartVIISectionAGrp/PersonNm2MICHAEL KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm3JOEL ROSEN
IRS990/Form990PartVIISectionAGrp/PersonNm4YVETTE C COZIER
IRS990/Form990PartVIISectionAGrp/PersonNm5EMERSON RANDY HALL JR
IRS990/Form990PartVIISectionAGrp/PersonNm6CALVIN HARRIS
IRS990/Form990PartVIISectionAGrp/PersonNm7MICHAEL KLINGHER
IRS990/Form990PartVIISectionAGrp/PersonNm8JEFFREY RAICH
IRS990/Form990PartVIISectionAGrp/PersonNm9LOUISE M PERKINS
IRS990/Form990PartVIISectionAGrp/PersonNm10CRAIG LIPSET
IRS990/Form990PartVIISectionAGrp/PersonNm11LESLIE SERCHUCK
IRS990/Form990PartVIISectionAGrp/PersonNm12REV MICHAEL A WALROND JR
IRS990/Form990PartVIISectionAGrp/PersonNm13MARY MCGOWAN
IRS990/Form990PartVIISectionAGrp/PersonNm14TRICHA SHIVAS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13256000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14200600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT (THRU DEC-2024)
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER (THRU DEC-2024)
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR (THRU NOV-24)
IRS990/Form990PartVIISectionAGrp/TitleTxt13PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF OF STAFF AND STRATEGY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
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IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0-24867
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantsPayableGrp/BOYAmt0313500
IRS990/GrantsPayableGrp/EOYAmt0845304
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0847694
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0847694
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0870127
IRS990/GrossReceiptsAmt014480859
IRS990/GrossSalesOfInventoryAmt0370
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt025299
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt090487
IRS990/InformationTechnologyGrp/ProgramServicesAmt037546
IRS990/InformationTechnologyGrp/TotalAmt0153332
IRS990/InsuranceGrp/ManagementAndGeneralAmt04501
IRS990/InsuranceGrp/TotalAmt04501
IRS990/InvestmentIncomeGrp/ExclusionAmt0388899
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0388899
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt04403647
IRS990/InvestmentsPubTradedSecGrp/EOYAmt016071598
IRS990/IRPDocumentCnt018
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt045703
IRS990/LandBldgEquipBasisNetGrp/BOYAmt054
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt045703
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0894994
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt0130000
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt05286996
IRS990/NetAssetsOrFundBalancesEOYAmt016010727
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-24867
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-24867
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0370
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0370
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0505882
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04205506
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt014502618
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt033602
IRS990/OccupancyGrp/TotalAmt033602
IRS990/OfficeExpensesGrp/FundraisingAmt036771
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt026897
IRS990/OfficeExpensesGrp/ProgramServicesAmt078470
IRS990/OfficeExpensesGrp/TotalAmt0142138
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08897
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt017260
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt054921
IRS990/OtherEmployeeBenefitsGrp/TotalAmt081078
IRS990/OtherExpensesGrp/Desc0RESEARCH PROGRAMS
IRS990/OtherExpensesGrp/FundraisingAmt02107
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03323
IRS990/OtherExpensesGrp/ProgramServicesAmt097779
IRS990/OtherExpensesGrp/TotalAmt0103209
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt04068
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt04068
IRS990/OtherRevenueTotalAmt04068
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt076985
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0149353
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0475233
IRS990/OtherSalariesAndWagesGrp/TotalAmt0701571
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt010355
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt020090
IRS990/PayrollTaxesGrp/ProgramServicesAmt063925
IRS990/PayrollTaxesGrp/TotalAmt094370
IRS990/PensionPlanContributionsGrp/FundraisingAmt066
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0128
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0406
IRS990/PensionPlanContributionsGrp/TotalAmt0600
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0322714
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0187301
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt049489
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt066514
IRS990/PrincipalOfficerNm0MARY COBB
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541700
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM SERVICE FEES
IRS990/ProgramServiceRevenueGrp/Desc1MEMBERSHIP DUES & ASSESSMENTS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0129025
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt163300
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0129025
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt163300
IRS990/ProgSrvcAccomActy2Grp/Desc0FSR PROVIDES RESEARCH FUNDING THROUGH OUR FELLOWSHIP, CARDIAC GRANT, AND PILOT GRANT FUNDING PROGRAM. THROUGH THE FSR CLINICAL STUDIES NETWORK, FSR FUNDS AND FACILITATES A 12 SITE INTERNATIONAL STUDY SEEKING TO UNDERSTAND THE DIAGNOSIS OF CARDIAC SARCOIDOSIS. FSR HAS ALSO SIGNIFICANTLY INCREASED PARTICIPATION IN THE FSR PATIENT REPORTED OUTCOMES REGISTRY IN ORDER TO INCREASE UNDERSTANDING OF PATIENT'S LIVED EXPERIENCE WITH SARCOIDOSIS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01376075
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0952335
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0129025
IRS990/ProgSrvcAccomActy3Grp/Desc0FSR WORKS DIRECTLY WITH INDUSTRY PARTNERS LEVERAGING ITS EXPERTISE, CONTACTS, THE FSR PATIENT REPORTED OUTCOMES REGISTRY, AND ITS DATABASE IN SUPPORT OF ACADEMIC AND INDUSTRY SPONSORED RESEARCH EFFORTS. THROUGH THIS PROGRAM FSR HELPS TO REVIEW PROTOCOLS, CONNECT INDUSTRY WITH POSSIBLE INVESTIGATORS AND RESEARCH SITES, AND SUPPORT THE RECRUITMENT AND ENROLLMENT OF SARCOIDOSIS-RELATED INDUSTRY SPONSORED TRIALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0219305
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02411412
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0323706
IRS990/PYInvestmentIncomeAmt0-22783
IRS990/PYOtherExpensesAmt0861499
IRS990/PYOtherRevenueAmt0-67462
IRS990/PYProgramServiceRevenueAmt0252937
IRS990/PYRevenuesLessExpensesAmt0171668
IRS990/PYSalariesCompEmpBnftPaidAmt01217231
IRS990/PYTotalExpensesAmt02402436
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02574104
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt010217849
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt063300
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME - 2020 AMOUNT: $ 470. 2021 AMOUNT: $ 320. 2022 AMOUNT: $ 1,375. 2023 AMOUNT: $ 6,232. 2024 AMOUNT: $ 4,068.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt013025070
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02331449
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01461209
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01943444
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01137781
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt019898953
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0388899
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0143978
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0119287
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0154644
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0446799
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01253607
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0889584
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt04068
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt06232
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt01375
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0320
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0470
IRS990ScheduleA/OtherIncome170Grp/TotalAmt012465
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.39840
IRS990ScheduleA/PublicSupportPY170Pct00.58730
IRS990ScheduleA/PublicSupportTotal170Amt08432526
IRS990ScheduleA/SubstantialContributorsTotAmt011466427
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt013025070
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02331449
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01461209
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01943444
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01137781
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt019898953
IRS990ScheduleA/TotalSupportAmt021165025
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED

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