Civic Intelligence

DDC Clinic for Special Needs Children

990 • Fiscal year 2019 • EIN 34-1914344

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 16, 2020

Organization ProfileWWW.DDCCLINIC.ORG

View Organization Page

14567 Madison RoadMiddlefield, OH 44062-0845

(440) 632-1668

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

18th percentile

0.00x

Higher debt load relative to assets than 18% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

18th percentile

0.00x

Higher debt load relative to revenue than 18% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

15th percentile

-17%

Higher net margin than 15% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

91st percentile

$225,385

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 18.2% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

15th percentile

-7.3%

Faster asset growth than 15% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

25th percentile

-7.6%

Faster revenue growth than 25% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets18th percentile

Assets

Down

$2,538,122

Down $200,395 (-7.3%) from 2018

Net Assets

Down

$2,535,611

Down $201,844 (-7.4%) from 2018

Liabilities

Up

$2,511

Up $1,449 (+136%) from 2018

Revenue And Expenses
Liabilities / Revenue18th percentileNet Margin15th percentile

Revenue

Down

$1,241,226

Down $102,177 (-7.6%) from 2018

Expenses

Up

$1,446,922

Up $14,224 (+1.0%) from 2018

Net Income

Down

-$205,696

Down $116,401 (-130%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth15th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2012: $3,251,680Liabilities 2012: $8,651Net Assets 2012: $3,243,0292012Assets 2013: $3,127,508Liabilities 2013: $56,270Net Assets 2013: $3,071,2382013Assets 2014: $2,981,527Liabilities 2014: $6,303Net Assets 2014: $2,975,2242014Assets 2015: $3,212,837Liabilities 2015: $7,028Net Assets 2015: $3,205,8092015Assets 2016: $3,077,605Liabilities 2016: $2,425Net Assets 2016: $3,075,1802016Assets 2017: $3,159,142Liabilities 2017: $82,392Net Assets 2017: $3,076,7502017Assets 2018: $2,738,517Liabilities 2018: $1,062Net Assets 2018: $2,737,4552018Assets 2019: $2,538,122Liabilities 2019: $2,511Net Assets 2019: $2,535,6112019Assets 2020: $2,968,259Liabilities 2020: $202,966Net Assets 2020: $2,765,2932020Assets 2021: $3,336,076Liabilities 2021: $5,320Net Assets 2021: $3,330,7562021Assets 2022: $3,898,894Liabilities 2022: $4,966Net Assets 2022: $3,893,9282022Assets 2024: $4,936,064Liabilities 2024: $4,412Net Assets 2024: $4,931,6522024

Highlighted filing

2019

Assets$2,538,122
Liabilities$2,511
Net Assets$2,535,611
Open 2019 Filing

Operations Trend

Revenue Growth25th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2012: $932,9452012Revenue 2013: $784,879Expenses 2013: $956,670Net Income 2013: -$171,7912013Revenue 2014: $961,211Expenses 2014: $1,057,225Net Income 2014: -$96,0142014Revenue 2015: $1,412,771Expenses 2015: $1,182,187Net Income 2015: $230,5842015Revenue 2016: $1,178,804Expenses 2016: $1,309,433Net Income 2016: -$130,6292016Revenue 2017: $1,377,705Expenses 2017: $1,376,135Net Income 2017: $1,5702017Revenue 2018: $1,343,403Expenses 2018: $1,432,698Net Income 2018: -$89,2952018Revenue 2019: $1,241,226Expenses 2019: $1,446,922Net Income 2019: -$205,6962019Revenue 2020: $1,369,343Expenses 2020: $1,128,348Net Income 2020: $240,9952020Revenue 2021: $1,941,383Expenses 2021: $1,385,087Net Income 2021: $556,2962021Revenue 2022: $2,321,270Expenses 2022: $1,704,065Net Income 2022: $617,2052022Revenue 2024: $2,403,080Expenses 2024: $2,372,750Net Income 2024: $30,3302024

Highlighted filing

2019

Revenue$1,241,226
Expenses$1,446,922
Net Income-$205,696
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 16, 2020
Return Version
2019v5.1
Gross Receipts
$1,268,703
Mission and Program Overview

Mission

To enhance the quality of life for special needs people with metabolic and inherited disorders through early diagnosis and treatment, research, and education.

To enhance the quality of life for people with special needs caused by rare genetic disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Land, Buildings, and Equipment, Net$1,608,645$1,554,152▼ $54,493
Savings and Temporary Cash Investments$821,266$846,324▲ $25,058
Accounts Receivable$78,695$43,822▼ $34,873
Pledges and Grants Receivable$180,768$43,248▼ $137,520
Cash and Non-Interest-Bearing Accounts$27,103$27,103→ $0
Prepaid Expenses and Deferred Charges$22,040$23,473▲ $1,433
Total Assets$2,738,517$2,538,122▼ $200,395
Liabilities
Accounts Payable and Accrued Expenses$1,062$2,511▲ $1,449
Total Liabilities$1,062$2,511▲ $1,449
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,916,802$1,892,684▼ $24,118
Net Assets With Donor Restrictions$820,653$642,927▼ $177,726
Total Net Assets Fund Balance$2,737,455$2,535,611▼ $201,844
Total Liabilities and Net Assets / Fund Balance$2,738,517$2,538,122▼ $200,395

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$1,303,815$464,822$1,768,637
Equipment$114,011$430,407$544,418
Land$80,589-$80,589
Leasehold Improvements$52,959$25,582$78,541
Other Land Buildings$2,778$16,182$18,960

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$402,375-▲ $6,809-$409,184
2018$396,931-▲ $5,444-$402,375
2017$392,393-▲ $4,538-$396,931
2016$381,388$10,000▲ $1,005-$392,393
2015$371,218$7,450▲ $2,720-$381,388
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Heng Wang MdCEO, Medical DirectorFT$202,770$22,615$225,385
Blake AndresExecutive DirectorFT$105,899$13,926$119,825

Board Members and Trustees

NameTitle
Donald R DautPresident
Aden a MillerVice President
Chuck FowlerDirector
Crist YoderDirector
Denise RichardsonDirector
Eli MillerDirector
F Scott BraceDirector
Gordon SafranDirector
Jacob BylerDirector
John DetweilerDirector
John Tumbush DoDirector
Leroy CoblentzDirector
Linda VinneyDirector
Mark Rodgers MdDirector
Patra Duangjak MdDirector
Robert MillerDirector
Robert YoderDirector
Tom Stone PhdDirector
Marvin FisherSecretary
Joe VitaleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$734,649
Program Service Revenue
$420,578
Investment Income
$4,616
Other Revenue
$81,383
All Other Contributions
$734,649
Change in Net Assets
$-205,696
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$898,290
Other Expenses$548,632
Total Fundraising Expense$186,416
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$342,135$29,977$45,508$417,620
Current Officers, Directors, Trustees, and Key Employees$282,813$24,780$37,617$345,210
Depreciation Depletion$79,164$8,685$3,206$91,055
Payroll Taxes$42,251$3,702$5,620$51,573
Occupancy$44,913$3,564$1,694$50,171
Fees for Services Other$31,000$2,022$14,723$47,745
Other Employee Benefits$38,099$3,338$5,068$46,505
Pension Plan Contributions$30,625$2,683$4,074$37,382
Insurance$13,963$1,367$656$15,986
Travel$12,320-$59$12,379
All Other Expenses$8,421$1,372$1,186$10,979
Other Expenses$5,629$298$4,649$10,576
Information Technology$6,135$547$1,583$8,265
Conferences and Meetings$2,112$2,093$120$4,325
Office Expenses$2,175$366$174$2,715
Advertising$2,311--$2,311
Total Functional Expenses$1,175,362$85,144$186,416$1,446,922
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$89,649
Fundraising Direct Expenses$27,477
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Patchwork Benefit$89,649$89,649$27,477$62,172
Total Events$89,649$89,649$27,477$62,172
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A copy of the form 990 is provided to governance to review prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Board members are asked to report any conflicts to the office as necessary.”

Form 990, Part VI, Section C, Line 18

“UPON REQUEST”

Form 990, Part VI, Section C, Line 19

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Ddc Clinic for Special Needs
EIN
34-1914344
Phone
4406321668
Address
14567 MADISON ROAD, MIDDLEFIELD, OH 44062-0845

Signing Officer

Name
Donald R Daut
Title
President
Phone
4406321668
Signed
2020-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Donald R Daut
Formed
2000
Legal Domicile
Oh
Voting Board Members
20
Independent Board Members
20
Employees
13
Volunteers
25

Preparer

Firm
Ciuni & Panichi Inc
Address
25201 CHAGRIN BLVD 200, CLEVELAND, OH 44122-5683
Preparer
Herzl Ginsburg CPA
Phone
2168317171
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The clinic is tax-exempt, under section 501(c)(3) of the internal revenue code of 1986. No provision for federal or state income taxes has been reported in its financial statements. The clinic accounts for income taxes in accordance with the "income taxes" topic of the fasb asc. Uncertain income tax positions are evaluated at least annually by management. The clinic classifies interest and penalties related to income tax matters as miscellaneous expenses in the accompanying financial statements. As of december 31, 2019 and 2018, the clinic has identified no uncertain income tax positions and has incurred no amounts for income tax penalties and interest for the years then ended. The clinic files its federal form 990 in the u.s. Federal jurisdiction and a state registration in the office of the state's attorney general for the state of ohio.”

Raw XML AppendixShowing 400 of 633 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE AND CULTURALLY EFFECTIVE.WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 160 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME , GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH (CONTINUED ON SCHEDULE O) MEDICAL SUPPLIES AND NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO, MEDICAL DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
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IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
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IRS990/FundraisingGrossIncomeAmt089649
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IRS990/GoverningBodyVotingMembersCnt020
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
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IRS990/GrossRentsGrp/RealAmt019211
IRS990/GroupReturnForAffiliatesInd00
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IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0547
IRS990/InformationTechnologyGrp/ProgramServicesAmt06135
IRS990/InformationTechnologyGrp/TotalAmt08265
IRS990/InsuranceGrp/FundraisingAmt0656
IRS990/InsuranceGrp/ManagementAndGeneralAmt01367
IRS990/InsuranceGrp/ProgramServicesAmt013963
IRS990/InsuranceGrp/TotalAmt015986
IRS990/InvestmentIncomeGrp/ExclusionAmt04616
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt04616
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0936993
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01608645
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01554152
IRS990/LandBldgEquipCostOrOtherBssAmt02491145
IRS990/LegalDomicileStateCd0OH
IRS990/LessRentalExpensesGrp/RealAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERITED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH, AND EDUCATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02737455
IRS990/NetAssetsOrFundBalancesEOYAmt02535611
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt062172
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt062172
IRS990/NetRentalIncomeOrLossGrp/ExclusionAmt019211
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt019211
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt03852
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01916802
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01892684
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt01694
IRS990/OccupancyGrp/ManagementAndGeneralAmt03564
IRS990/OccupancyGrp/ProgramServicesAmt044913
IRS990/OccupancyGrp/TotalAmt050171
IRS990/OfficeExpensesGrp/FundraisingAmt0174
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0366
IRS990/OfficeExpensesGrp/ProgramServicesAmt02175
IRS990/OfficeExpensesGrp/TotalAmt02715
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05068
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03338
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt038099
IRS990/OtherEmployeeBenefitsGrp/TotalAmt046505
IRS990/OtherExpensesGrp/Desc0MEDICAL SERVICE
IRS990/OtherExpensesGrp/Desc1COMMUNITY AUCTIONS
IRS990/OtherExpensesGrp/Desc2PRINTING AND REPRODUCTI
IRS990/OtherExpensesGrp/Desc3POSTAGE & DELIVERY
IRS990/OtherExpensesGrp/FundraisingAmt039566
IRS990/OtherExpensesGrp/FundraisingAmt120913
IRS990/OtherExpensesGrp/FundraisingAmt24649
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0350
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1298
IRS990/OtherExpensesGrp/ProgramServicesAmt0219574
IRS990/OtherExpensesGrp/ProgramServicesAmt1221
IRS990/OtherExpensesGrp/ProgramServicesAmt211501
IRS990/OtherExpensesGrp/ProgramServicesAmt35629
IRS990/OtherExpensesGrp/TotalAmt0219574
IRS990/OtherExpensesGrp/TotalAmt139787
IRS990/OtherExpensesGrp/TotalAmt232764
IRS990/OtherExpensesGrp/TotalAmt310576
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt045508
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt029977
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0342135
IRS990/OtherSalariesAndWagesGrp/TotalAmt0417620
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05620
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03702
IRS990/PayrollTaxesGrp/ProgramServicesAmt042251
IRS990/PayrollTaxesGrp/TotalAmt051573
IRS990/PensionPlanContributionsGrp/FundraisingAmt04074
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02683
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt030625
IRS990/PensionPlanContributionsGrp/TotalAmt037382
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0180768
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt023473
IRS990/PrincipalOfficerNm0DONALD R DAUT
IRS990/ProfessionalFundraisingInd00
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IRS990/ProgramServiceRevenueGrp/BusinessCd1621400
IRS990/ProgramServiceRevenueGrp/BusinessCd2621400
IRS990/ProgramServiceRevenueGrp/Desc0PATIENT CARE
IRS990/ProgramServiceRevenueGrp/Desc1CLIA LAB
IRS990/ProgramServiceRevenueGrp/Desc2RESEARCH CONTRACT
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0193182
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1143737
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt283659
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0193182
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1143737
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt283659
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUNDBREAKING TREATMENT, BRINGING RELIEF TO CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS TRANSLATED IMMEDIATELY TO PATIENT CARE. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY AFFECTED PATIENTS.OUR MOLECULAR DIAGNOSTICS LABORATORY OFFERS STATE-OF-THE-ART GENETIC TESTING FOR HUNDREDS OF GENETIC DISORDERS. THE LAB WAS DEVELOPED IN 2005 TO SUPPORT TRANSLATIONAL RESEARCH AND PERSONALIZED MEDICINE FOR PATIENTS. IN 2012, WITH A GROWING NUMBER OF REQUESTS BY CLINICIANS ACROSS THE COUNTRY LOOKING FOR HIGH-QUALITY (CONTINUED ON SCHEDULE O)AND AFFORDABLE TESTING SERVICES FOR RARE GENETIC CONDITIONS, OUR LAB SOUGHT AND EARNED CERTIFICATION BY THE CLINICAL LABORATORY IMPROVEMENT AMENDMENTS (CLIA). OUR TESTS INCLUDE DNA SEQUENCE ANALYSIS VIA SANGER SEQUENCING AND NEXT-GENERATION SEQUENCING (NGS), AS WELL AS DNA COPY NUMBER VARIATION ANALYSIS BY CHROMOSOMAL MICROARRAY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0678126
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0246607
IRS990/ProgSrvcAccomActy3Grp/Desc0WE PARTNER WITH FAMILIES, THE COMMUNITY AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE.WE OFFER FAMILY SUPPORT SERVICES INCLUDING GENETIC COUNSELING, DISORDER-SPECIFIC FAMILY GATHERINGS, AND MOTHERS SUPPORT GROUPS.WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE (CONTINUED ON SCHEDULE O)NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS, AMERICAN JOURNAL OF HERMATOLOGY, BRITISH JOURNAL OF HERMATOLOGY, AND JOURNAL OF MOVEMENT DISORDERS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0100790
IRS990/ProgSrvcAccomActyOtherGrp/Desc0DENTAL
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IRS990/PYOtherExpensesAmt0593189
IRS990/PYOtherRevenueAmt083909
IRS990/PYProgramServiceRevenueAmt0390667
IRS990/PYRevenuesLessExpensesAmt0-89295
IRS990/PYSalariesCompEmpBnftPaidAmt0839509
IRS990/PYTotalExpensesAmt01432698
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01343403

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,538,122
Liabilities
$2,511
Net assets
$2,535,611
Revenue
$1,241,226
Expenses
$1,446,922
Net income
-$205,696
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.94$0.00$4.93$2.40$2.37$0.03
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.90$0.00$3.89$2.32$1.70$0.62
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.34$0.01$3.33$1.94$1.39$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.97$0.20$2.77$1.37$1.13$0.24
2019Detailed filing. Detailed filing data is available for this year.$2.54$0.00$2.54$1.24$1.45$0.21
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.00$2.74$1.34$1.43$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.16$0.08$3.08$1.38$1.38$0.00
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$0.00$3.08$1.18$1.31$0.13
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.21$0.01$3.21$1.41$1.18$0.23
2014Detailed filing. Detailed filing data is available for this year.$2.98$0.01$2.98$0.96$1.06$0.10
2013Detailed filing. Detailed filing data is available for this year.$3.13$0.06$3.07$0.78$0.96$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.25$0.01$3.24$0.93