Civic Intelligence

DDC Clinic for Special Needs Children

990 • Fiscal year 2018 • EIN 34-1914344

Jan 01, 2018 to Dec 31, 2018 • Filed on Nov 13, 2019

14567 Madison RoadMiddlefield, OH 44062-0845

(440) 632-1668

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.00x

Higher debt load relative to assets than 16% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

15th percentile

0.00x

Higher debt load relative to revenue than 15% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

25th percentile

-6.6%

Higher net margin than 25% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

93rd percentile

$249,804

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 18.6% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

10th percentile

-13%

Faster asset growth than 10% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

33rd percentile

-2.5%

Faster revenue growth than 33% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Assets

Down

$2,738,517

Down $420,625 (-13%) from 2017

Net Assets

Down

$2,737,455

Down $339,295 (-11%) from 2017

Liabilities

Down

$1,062

Down $81,330 (-99%) from 2017

Revenue

Down

$1,343,403

Down $34,302 (-2.5%) from 2017

Expenses

Up

$1,432,698

Up $56,563 (+4.1%) from 2017

Net Income

Down

-$89,295

Down $90,865 (-5788%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2012: $3,251,680Liabilities 2012: $8,651Net Assets 2012: $3,243,0292012Assets 2013: $3,127,508Liabilities 2013: $56,270Net Assets 2013: $3,071,2382013Assets 2014: $2,981,527Liabilities 2014: $6,303Net Assets 2014: $2,975,2242014Assets 2015: $3,212,837Liabilities 2015: $7,028Net Assets 2015: $3,205,8092015Assets 2016: $3,077,605Liabilities 2016: $2,425Net Assets 2016: $3,075,1802016Assets 2017: $3,159,142Liabilities 2017: $82,392Net Assets 2017: $3,076,7502017Assets 2018: $2,738,517Liabilities 2018: $1,062Net Assets 2018: $2,737,4552018Assets 2019: $2,538,122Liabilities 2019: $2,511Net Assets 2019: $2,535,6112019Assets 2020: $2,968,259Liabilities 2020: $202,966Net Assets 2020: $2,765,2932020Assets 2021: $3,336,076Liabilities 2021: $5,320Net Assets 2021: $3,330,7562021Assets 2022: $3,898,894Liabilities 2022: $4,966Net Assets 2022: $3,893,9282022Assets 2024: $4,936,064Liabilities 2024: $4,412Net Assets 2024: $4,931,6522024

Highlighted filing

2018

Assets$2,738,517
Liabilities$1,062
Net Assets$2,737,455

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2012: $932,9452012Revenue 2013: $784,879Expenses 2013: $956,670Net Income 2013: -$171,7912013Revenue 2014: $961,211Expenses 2014: $1,057,225Net Income 2014: -$96,0142014Revenue 2015: $1,412,771Expenses 2015: $1,182,187Net Income 2015: $230,5842015Revenue 2016: $1,178,804Expenses 2016: $1,309,433Net Income 2016: -$130,6292016Revenue 2017: $1,377,705Expenses 2017: $1,376,135Net Income 2017: $1,5702017Revenue 2018: $1,343,403Expenses 2018: $1,432,698Net Income 2018: -$89,2952018Revenue 2019: $1,241,226Expenses 2019: $1,446,922Net Income 2019: -$205,6962019Revenue 2020: $1,369,343Expenses 2020: $1,128,348Net Income 2020: $240,9952020Revenue 2021: $1,941,383Expenses 2021: $1,385,087Net Income 2021: $556,2962021Revenue 2022: $2,321,270Expenses 2022: $1,704,065Net Income 2022: $617,2052022Revenue 2024: $2,403,080Expenses 2024: $2,372,750Net Income 2024: $30,3302024

Highlighted filing

2018

Revenue$1,343,403
Expenses$1,432,698
Net Income-$89,295
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 13, 2019
Return Version
2018v3.1
Gross Receipts
$1,368,114
Mission and Program Overview

Mission

To enhance the quality of life for special needs people with metabolic and inherited disorders through early diagnosis and treatment, research, and education.

To enhance the quality of life for people with special needs caused by rare genetic disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Land, Buildings, and Equipment, Net$1,674,266$1,608,645▼ $65,621
Savings and Temporary Cash Investments$946,526$821,266▼ $125,260
Pledges and Grants Receivable$439,518$180,768▼ $258,750
Accounts Receivable$67,842$78,695▲ $10,853
Cash and Non-Interest-Bearing Accounts$458$27,103▲ $26,645
Prepaid Expenses and Deferred Charges$30,532$22,040▼ $8,492
Total Assets$3,159,142$2,738,517▼ $420,625
Liabilities
Accounts Payable and Accrued Expenses$82,392$1,062▼ $81,330
Total Liabilities$82,392$1,062▼ $81,330
Net Assets / Fund Balance
Unrestricted Net Assets$2,105,302$1,916,802▼ $188,500
Temporarily Rstr Net Assets$437,498$536,703▲ $99,205
Permanently Rstr Net Assets$533,950$283,950▼ $250,000
Total Net Assets Fund Balance$3,076,750$2,737,455▼ $339,295
Total Liabilities and Net Assets / Fund Balance$3,159,142$2,738,517▼ $420,625

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$1,349,165$419,472$1,768,637
Equipment$154,938$389,480$544,418
Land$80,589-$80,589
Leasehold Improvements$21,364$20,615$41,979
Other Land Buildings$2,589$16,371$18,960

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$396,931-▲ $5,444-$402,375
2017$392,393-▲ $4,538-$396,931
2016$381,388$10,000▲ $1,005-$392,393
2015$371,218$7,450▲ $2,720-$381,388
2014$139,718$231,500--$371,218
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Heng Wang MdCEO, Medical DirectorFT$226,297$23,507$249,804
Blake AndresExecutive DirectorFT$111,753$13,011$124,764

Board Members and Trustees

NameTitle
Eli MillerPresident
Aden a MillerVice President
Chuck FowlerDirector
Crist YoderDirector
Denise RichardsonDirector
Don DautDirector
Gordon SafranDirector
John Tumbush DoDirector
Jr Bockoven MdDirector
Leroy CoblentzDirector
Linda VinneyDirector
Mark Rodgers MdDirector
Marvin FisherDirector
Natalie SukalacDirector
Patra Duangjak MdDirector
Robert MillerDirector
Robert YoderDirector
Sam FisherDirector
Tom Stone PhdDirector
F Scott BraceAssistant Treasurer
John DetweilerSecretary
Joe VitaleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$861,577
Program Service Revenue
$390,667
Investment Income
$7,250
Other Revenue
$83,909
All Other Contributions
$861,577
Change in Net Assets
$-89,295

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,343,403
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$61,411
Total Revenue per Audited Statements
$1,404,814
Total Revenue per Form 990
$1,343,403
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$839,509
Other Expenses$593,189
Total Fundraising Expense$203,811
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$309,704$27,609$36,932$374,245
Current Officers, Directors, Trustees, and Key Employees$279,752$24,939$33,360$338,051
Depreciation Depletion$69,955$8,804$15,903$94,662
Fees for Services Other$31,948$3,068$31,802$66,818
Occupancy$37,803$4,353$7,863$50,019
Payroll Taxes$39,826$3,550$4,749$48,125
Other Employee Benefits$36,107$3,219$4,306$43,632
Pension Plan Contributions$29,341$2,616$3,499$35,456
Insurance$15,804$2,059$1,432$19,295
Other Expenses$11,973$1,556$2,944$16,473
Advertising$6,456$453$7,490$14,399
Travel$11,024$10$128$11,162
Information Technology$7,320$455$1,723$9,498
All Other Expenses$4,965$2,940$1,554$9,459
Office Expenses$3,182$291$455$3,928
Conferences and Meetings$2,354$1,130$145$3,629
Total Functional Expenses$1,140,316$88,571$203,811$1,432,698

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,494,109
Expenses per Audited Statements$1,432,698
Total Expenses per Form 990$1,432,698
Expenses Not Reported on Form 990$61,411
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$89,474
Fundraising Direct Expenses$24,711
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Patchwork Benefit$89,474$89,474$24,711$64,763
Total Events$89,474$89,474$24,711$64,763
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

A copy of the form 990 is provided to the finance committee to review and then a signed copy is provided to all board members prior to filing.

Form 990, Part VI, Section B, Line 12C

Board members are asked to report any conflicts to the office as necessary.

Form 990, Part VI, Section C, Line 18

UPON REQUEST

Form 990, Part VI, Section C, Line 19

UPON REQUEST

Filing and Contact Details

Filer

Filer Name
Ddc Clinic for Special Needs
EIN
34-1914344
Phone
4406321668
Address
14567 MADISON ROAD, MIDDLEFIELD, OH 44062-0845

Signing Officer

Name
Giuseppe Vitale
Title
Treasurer
Phone
4406321668
Signed
2019-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Giuseppe Vitale
Formed
2000
Legal Domicile
Oh
Voting Board Members
22
Independent Board Members
22
Employees
9
Volunteers
35

Preparer

Firm
Ciuni & Panichi Inc
Address
25201 CHAGRIN BLVD 200, CLEVELAND, OH 44122-5683
Preparer
Herzl Ginsburg CPA
Phone
2168317171
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Loss on pledge receivable -250,000.

Financial Statement Notes

PART X, LINE 2:

The clinic is tax-exempt, under section 501(c)(3) of the internal revenue code of 1986. No provision for federal or state income taxes has been reported in its financial statements. The clinic accounts for income taxes in accordance with the "income taxes" topic of the fasb asc. Uncertain income tax positions are evaluated at least annually by management. The clinic classifies interest and penalties related to income tax matters as miscellaneous expenses in the accompanying financial statements. As of december 31, 2018 and 2017, the clinic has identified no uncertain income tax positions and has incurred no amounts for income tax penalties and interest for the years then ended. The clinic files its federal form 990 in the u.s. Federal jurisdiction and a state registration in the office of the state's attorney general for the state of ohio.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Direct fundraising expenses 24,711.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Direct fundraising expenses 24,711.

Raw XML AppendixShowing 400 of 671 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0WE SERVE PATIENTS WITH COMPLEX MEDICAL NEEDS, CLOSELY FOLLOWING THE AMERICAN ACADEMY OF PEDIATRICS (AAP) MODEL FOR A MEDICAL HOME. WE PROVIDE CARE THAT IS ACCESSIBLE, CONTINUOUS, COMPREHENSIVE, FAMILY-CENTERED, COORDINATED, COMPASSIONATE AND CULTURALLY EFFECTIVE.WE PROVIDE MEDICAL SERVICES FOR CHILDREN WITH OVER 70 DIFFERENT RARE DISEASES; WE ARE RECOGNIZED AS A LEADING INTERNATIONAL MEDICAL FACILITY FOR SUCH COMPLEX DISORDERS AS PROLIDASE DEFICIENCY, COHEN SYNDROME , GANGLIOSIDE GM3 SYNTHASE DEFICIENCY, GLUCOSE-GALACTOSE MALABSORPTION, TMCO1 DEFECT SYNDROME AND SAMS ASSOCIATION.IN ADDITION, WE HELP FAMILIES WITH (CONTINUED ON SCHEDULE O) MEDICAL SUPPLIES AND NUTRITION NEEDS THROUGH A PATIENT ASSISTANCE PROGRAM AND WE COORDINATE ON-SITE SUB-SPECIALTY SERVICES WITH OUTSIDE INSTITUTIONS.
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IRS990/Form990PartVIISectionAGrp/PersonNm21ROBERT MILLER
IRS990/Form990PartVIISectionAGrp/PersonNm22HENG WANG MD
IRS990/Form990PartVIISectionAGrp/PersonNm23BLAKE ANDRES
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22226297
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23111753
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17ASSISTANT TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22CEO, MEDICAL DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02000
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt024711
IRS990/FundraisingGrossIncomeAmt089474
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt022
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01368114
IRS990/GrossRentsGrp/RealAmt019146
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt022
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt01723
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0455
IRS990/InformationTechnologyGrp/ProgramServicesAmt07320
IRS990/InformationTechnologyGrp/TotalAmt09498
IRS990/InsuranceGrp/FundraisingAmt01432
IRS990/InsuranceGrp/ManagementAndGeneralAmt02059
IRS990/InsuranceGrp/ProgramServicesAmt015804
IRS990/InsuranceGrp/TotalAmt019295
IRS990/InvestmentIncomeGrp/ExclusionAmt07250
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt07250
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0845938
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01674266
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01608645
IRS990/LandBldgEquipCostOrOtherBssAmt02454583
IRS990/LegalDomicileStateCd0OH
IRS990/LessRentalExpensesGrp/RealAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF LIFE FOR SPECIAL NEEDS PEOPLE WITH METABOLIC AND INHERITED DISORDERS THROUGH EARLY DIAGNOSIS AND TREATMENT, RESEARCH, AND EDUCATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt03076750
IRS990/NetAssetsOrFundBalancesEOYAmt02737455
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt064763
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt064763
IRS990/NetRentalIncomeOrLossGrp/ExclusionAmt019146
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt019146
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt07863
IRS990/OccupancyGrp/ManagementAndGeneralAmt04353
IRS990/OccupancyGrp/ProgramServicesAmt037803
IRS990/OccupancyGrp/TotalAmt050019
IRS990/OfficeExpensesGrp/FundraisingAmt0455
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0291
IRS990/OfficeExpensesGrp/ProgramServicesAmt03182
IRS990/OfficeExpensesGrp/TotalAmt03928
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt0-250000
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04306
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03219
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt036107
IRS990/OtherEmployeeBenefitsGrp/TotalAmt043632
IRS990/OtherExpensesGrp/Desc0MEDICAL SERVICE
IRS990/OtherExpensesGrp/Desc1PRINTING AND REPRODUCTI
IRS990/OtherExpensesGrp/Desc2COMMUNITY AUCTIONS
IRS990/OtherExpensesGrp/Desc3POSTAGE & DELIVERY
IRS990/OtherExpensesGrp/FundraisingAmt021979
IRS990/OtherExpensesGrp/FundraisingAmt127547
IRS990/OtherExpensesGrp/FundraisingAmt22944
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01519
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11556
IRS990/OtherExpensesGrp/ProgramServicesAmt0213930
IRS990/OtherExpensesGrp/ProgramServicesAmt128772
IRS990/OtherExpensesGrp/ProgramServicesAmt2100
IRS990/OtherExpensesGrp/ProgramServicesAmt311973
IRS990/OtherExpensesGrp/TotalAmt0213930
IRS990/OtherExpensesGrp/TotalAmt152270
IRS990/OtherExpensesGrp/TotalAmt227647
IRS990/OtherExpensesGrp/TotalAmt316473
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt036932
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt027609
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0309704
IRS990/OtherSalariesAndWagesGrp/TotalAmt0374245
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04749
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03550
IRS990/PayrollTaxesGrp/ProgramServicesAmt039826
IRS990/PayrollTaxesGrp/TotalAmt048125
IRS990/PensionPlanContributionsGrp/FundraisingAmt03499
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02616
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt029341
IRS990/PensionPlanContributionsGrp/TotalAmt035456
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0533950
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0283950
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0439518
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0180768
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt030532
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt022040
IRS990/PrincipalOfficerNm0GIUSEPPE VITALE
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0621400
IRS990/ProgramServiceRevenueGrp/BusinessCd1621400
IRS990/ProgramServiceRevenueGrp/BusinessCd2621400
IRS990/ProgramServiceRevenueGrp/Desc0PATIENT CARE
IRS990/ProgramServiceRevenueGrp/Desc1CLIA LAB
IRS990/ProgramServiceRevenueGrp/Desc2RESEARCH CONTRACT
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0179867
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1133161
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt277639
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0179867
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1133161
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt277639
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT-ORIENTED RESEARCH ALLOWS US TO FOCUS ON EARLY DIAGNOSIS AND GROUNDBREAKING TREATMENT, BRINGING RELIEF TO CHILDREN AND HOPE TO THEIR FAMILIES. THIS IS OFTEN REFERRED TO AS "TRANSLATIONAL" RESEARCH BECAUSE WHAT WE LEARN IS TRANSLATED IMMEDIATELY TO PATIENT CARE. WE ARE CONSIDERED A FOREMOST RESOURCE TO OTHER DOCTORS WHO HAVE SIMILARLY AFFECTED PATIENTS.OUR MOLECULAR DIAGNOSTICS LABORATORY OFFERS STATE-OF-THE-ART GENETIC TESTING FOR HUNDREDS OF GENETIC DISORDERS. THE LAB WAS DEVELOPED IN 2005 TO SUPPORT TRANSLATIONAL RESEARCH AND PERSONALIZED MEDICINE FOR PATIENTS. IN 2012, WITH A GROWING NUMBER OF REQUESTS BY CLINICIANS ACROSS THE COUNTRY LOOKING FOR HIGH-QUALITY (CONTINUED ON SCHEDULE O)AND AFFORDABLE TESTING SERVICES FOR RARE GENETIC CONDITIONS, OUR LAB SOUGHT AND EARNED CERTIFICATION BY THE CLINICAL LABORATORY IMPROVEMENT AMENDMENTS (CLIA). OUR TESTS INCLUDE DNA SEQUENCE ANALYSIS VIA SANGER SEQUENCING AND NEXT-GENERATION SEQUENCING (NGS), AS WELL AS DNA COPY NUMBER VARIATION ANALYSIS BY CHROMOSOMAL MICROARRAY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0666255
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0229946
IRS990/ProgSrvcAccomActy3Grp/Desc0WE PARTNER WITH FAMILIES, THE COMMUNITY AND MEDICAL PROFESSIONALS TO EMPOWER THEM WITH KNOWLEDGE; EXTENSIVE OUTREACH TO FAMILIES AND MEDICAL PROFESSIONALS HAS INCREASED AWARENESS OF RISK FACTORS AND DISEASE PROCESSES LEADING TO EARLIER DIAGNOSIS AND BETTER PLANS OF CARE.WE OFFER FAMILY SUPPORT SERVICES INCLUDING GENETIC COUNSELING, DISORDER-SPECIFIC FAMILY GATHERINGS, AND MOTHERS SUPPORT GROUPS.WE COLLABORATE WITH LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES, SHARING KNOWLEDGE WITH PROMINENT PHYSICIANS AND RESEARCH SCIENTISTS AROUND THE WORLD THROUGH PAPERS PUBLISHED IN PRESTIGIOUS JOURNALS SUCH AS THE PROCEEDINGS OF THE (CONTINUED ON SCHEDULE O)NATIONAL ACADEMY OF SCIENCES, NATURE GENETICS AND THE AMERICAN JOURNAL OF MEDICAL GENETICS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0104509
IRS990/ProgSrvcAccomActyOtherGrp/Desc0DENTAL
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt06387
IRS990/ProhibitedTaxShelterTransInd00

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.94$0.00$4.93$2.40$2.37$0.03
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.90$0.00$3.89$2.32$1.70$0.62
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.34$0.01$3.33$1.94$1.39$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.97$0.20$2.77$1.37$1.13$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.54$0.00$2.54$1.24$1.45$0.21
2018Detailed filing. Detailed filing data is available for this year.$2.74$0.00$2.74$1.34$1.43$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.16$0.08$3.08$1.38$1.38$0.00
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$0.00$3.08$1.18$1.31$0.13
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.21$0.01$3.21$1.41$1.18$0.23
2014Detailed filing. Detailed filing data is available for this year.$2.98$0.01$2.98$0.96$1.06$0.10
2013Detailed filing. Detailed filing data is available for this year.$3.13$0.06$3.07$0.78$0.96$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.25$0.01$3.24$0.93