Als Association Central & Southern Ohio Chapter

“The finance committee meets and reviews a draft of the 990 with the preparer. Upon satisfaction of any issues, the draft copy of the 990 and its supporting documents are forwarded to all members of the board of directors. Then the final copy is filed with the irs and appropriate state agencies.”

“Board members receive a written copy of the conflict of interest policy annually which is reviewed and signed by the board members and retained by als united ohio. At each board meeting, the board chair calls for all board members to indicate any conflict of interest and to recuse themselves, if indicated.”

“The board has a formal process for the approval of compensation for the ceo/executive director and other key employees that conforms to the irs rebuttable presumption of reasonableness standard.”

“The form 990, financial statements, conflict of interest policy and governing documents are available for review at the als united ohio office upon written request.”

“Patient services and support: als united ohio provides a wide range of services to people who have been diagnosed with amyotrophic lateral sclerosis (als) or lou gehrig's disease and to their family members. Services include case management by medical and healthcare professionals who assist patients, spouses, and caregivers in knowing how to prepare and deal with various aspects (physical, psycho-social, and financial) of being diagnosed with this devastating, terminal illness. In addition, the organization provides equipment loans, monthly support groups, staffing and partnering with als clinics (ohiohealth in columbus and university of cincinnati), a patient grant program and children's als resources. All of these services are provided, free of charge. During this period, over 587 people living with als were served; 903 individuals attended ten monthly support group meetings; 85 child and teen backpacks provided; 482 patient visits to 2 multidisciplinary als clinics, and 1,017 pieces of equipment loaned and purchased for patients. During fiscal year 2025, the organization was able to continue its patient grant program. Total grants provided equaled 222,020. Grants are awarded based upon eligibility applications that are reviewed and approved by the organization's staff.”

“Public awareness: als united ohio provides in-service training to healthcare providers so they are better prepared to care for als patients. Staff and volunteers speak to community organizations, school groups, and the general public about als and the need for local services, support and about the need for research to find effective treatments and a cure for als. The organization's staff work with local radio stations, newspapers/publications and television stations to acquire coverage when possible to educate the general public about als, our free services and to encourage the public to attend our chapter-sponsored events. The organization partners with local athletic teams - major league and minor league baseball) to host lou gehrig day events to honor an individual with als, to provide information about the disease and to direct others with als to the free services the organization provides.”

“Advocacy and research: als united ohio supports scientific research grants to find the cause, treatments and cure for als. In addition to financial support, the als united ohio actively develops relationships with local als researchers, inviting them to present their new projects and their findings to als united ohio support groups and to write articles for posting in the organization's newsletter. The organization also facilitates opportunities for local als researchers to educate patients about specific research projects and drug trials and to recruit patients to voluntarily participate in those efforts. The organization partners with als volunteers to educate members of the the ohio congressional delegation about als and the need to increase awareness and resources to people affected by this disease. The organization's staff and volunteers meet with various state of ohio legislators to educate them about als, about the free services we provide in the community and the need for additional resources to help support people in ohio with als.”