Civic Intelligence

Gene Spotlight Inc.

990 • Fiscal year 2019 • EIN 27-2978110

Jan 01, 2019 to Dec 31, 2019 • Filed on Feb 27, 2020

Organization Profilewww.genespotlight.org
801 Arthur Godfrey Rd Ste 401Miami Beach, FL 33140

(305) 498-2937

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

15th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

15th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

90th percentile

46%

Higher net margin than 90% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

36th percentile

$0

Higher top officer pay than 36% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

64th percentile

8.5%

Faster asset growth than 64% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

3rd percentile

-59%

Faster revenue growth than 3% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets15th percentile

Assets

Up

$1,983,894

Up $155,950 (+8.5%) from 2018

Net Assets

Up

$1,983,894

Up $155,950 (+8.5%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue15th percentileNet Margin90th percentile

Revenue

Down

$339,888

Down $497,608 (-59%) from 2018

Expenses

Up

$183,938

Up $76,972 (+72%) from 2018

Net Income

Down

$155,950

Down $574,580 (-79%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $339,261Liabilities 2011: $0Net Assets 2011: $339,2612011Assets 2012: $313,029Liabilities 2012: $0Net Assets 2012: $313,0292012Assets 2013: $347,512Liabilities 2013: $0Net Assets 2013: $347,5122013Assets 2014: $479,467Liabilities 2014: $50,000Net Assets 2014: $429,4672014Assets 2015: $512,959Liabilities 2015: $0Net Assets 2015: $512,9592015Assets 2016: $677,733Liabilities 2016: $0Net Assets 2016: $677,7332016Assets 2017: $1,097,414Liabilities 2017: $0Net Assets 2017: $1,097,4142017Assets 2018: $1,827,944Liabilities 2018: $0Net Assets 2018: $1,827,9442018Assets 2019: $1,983,894Liabilities 2019: $0Net Assets 2019: $1,983,8942019Assets 2020: $2,146,788Liabilities 2020: $0Net Assets 2020: $2,146,7882020Assets 2021: $2,315,134Liabilities 2021: $0Net Assets 2021: $2,315,1342021Assets 2022: $2,517,330Liabilities 2022: $10,490Net Assets 2022: $2,506,8402022Assets 2024: $15,011,328Liabilities 2024: $0Net Assets 2024: $15,011,3282024

Highlighted filing

2019

Assets$1,983,894
Liabilities$0
Net Assets$1,983,894
Open 2019 Filing

Operations Trend

Revenue Growth3rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KExpenses 2011: $43,2302011Expenses 2012: $121,6642012Revenue 2013: $183,981Expenses 2013: $149,498Net Income 2013: $34,4832013Revenue 2014: $111,605Expenses 2014: $29,650Net Income 2014: $81,9552014Revenue 2015: $212,624Expenses 2015: $129,132Net Income 2015: $83,4922015Revenue 2016: $439,019Expenses 2016: $274,245Net Income 2016: $164,7742016Revenue 2017: $706,272Expenses 2017: $286,591Net Income 2017: $419,6812017Revenue 2018: $837,496Expenses 2018: $106,966Net Income 2018: $730,5302018Revenue 2019: $339,888Expenses 2019: $183,938Net Income 2019: $155,9502019Revenue 2020: $337,343Expenses 2020: $174,449Net Income 2020: $162,8942020Revenue 2021: $307,543Expenses 2021: $139,197Net Income 2021: $168,3462021Revenue 2022: $475,304Expenses 2022: $133,596Net Income 2022: $341,7082022Revenue 2024: $123,316Expenses 2024: $197,108Net Income 2024: -$73,7922024

Highlighted filing

2019

Revenue$339,888
Expenses$183,938
Net Income$155,950
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Feb 27, 2020
Return Version
2019v5.1
Gross Receipts
$339,888
Mission and Program Overview

Mission

To provide funding and support for the research and awareness of rare genetic diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,827,944$1,983,894▲ $155,950
Cash and Non-Interest-Bearing Accounts$1,227,752$1,393,381▲ $165,629
Investments Program Related$590,002$590,002→ $0
Other Notes and Loans Receivable, Net$10,000$383▼ $9,617
Land, Buildings, and Equipment, Net$190$128▼ $62
Total Assets$1,827,944$1,983,894▲ $155,950
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,827,944$1,983,894▲ $155,950
Total Liabilities and Net Assets / Fund Balance$1,827,944$1,983,894▲ $155,950

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$128$941$1,069
Investment Program Related Org$590,002--
Compensation and Service Providers
Top Officer Pay36th percentile

Board Members and Trustees

NameTitle
Dennis BradyPresident
Joan RookVice President
Aly CohenDirector
Carter Crum CFAOfficer
Allison WeissSecretary
Jonathan SemelTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$339,888
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$146,826
Change in Net Assets
$155,950
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$130,500
Other Expenses$44,599
Total Fundraising Expense$32,067
Professional Fundraising Fees$8,839
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$100,500--$100,500
Grants to Domestic Individuals$30,000--$30,000
Information Technology-$15,928-$15,928
Advertising-$480$8,918$9,398
Fees for Services Professional Fundraising--$8,839$8,839
Travel--$7,942$7,942
Fees for Services Legal--$6,368$6,368
Fees for Services Accounting-$3,563-$3,563
Fees for Services Other-$433-$433
Other Expenses-$325-$325
Office Expenses-$219-$219
Depreciation Depletion-$62-$62
Total Functional Expenses$130,500$21,371$32,067$183,938
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
EveryLife Foundation for Rare DiseaNovato, CA501c3Donation for rare diseases research$60,000
The University of PennsylvaniaPhiladelphia, PA501c3Donation for rare diseases research$30,000
The National MPS SocietyResearch Triangle Park, NC501c3Donation for rare diseases research$10,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$8,839

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Give Miami$193,062$193,062-$193,062
Total Events$193,062$193,062-$193,062
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“All Board Members reviewed Form 990 before it was filed with the IRS.”

Conflict of interest policy compliance Part VI line 12C

“Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.”

Governing documents etc available to public Part VI line 19

“The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Gene Spotlight Inc
EIN
27-2978110
Address
801 Arthur Godfrey Rd Ste 401, Miami Beach, FL 33140

Signing Officer

Name
Dennis Brady
Title
President
Phone
3054982937
Signed
2020-02-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dennis Brady
Formed
2010
Legal Domicile
Fl
Voting Board Members
6
Independent Board Members
6
Employees
0
Volunteers
6

Preparer

Firm
DM Accounting Services Inc
Address
8175 NW 12th Street Ste 433, Doral, FL 33126
Preparer
Elizabeth Manso CPA
Phone
7862750175
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IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Donation for rare diseases research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Donation for rare diseases research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Donation for rare diseases research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0The National MPS Society
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1EveryLife Foundation for Rare Disea
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2The University of Pennsylvania
IRS990ScheduleI/RecipientTable/RecipientEIN0112734849
IRS990ScheduleI/RecipientTable/RecipientEIN1264614274
IRS990ScheduleI/RecipientTable/RecipientEIN2231352685
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO Box 14686
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt177 Digital Drive Suite 210
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt251 N 39th ST
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Research Triangle Park
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Novato
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NC
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd027709
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd194949
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd219104
IRS990ScheduleI/Total501c3OrgCnt03
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All Board Members reviewed Form 990 before it was filed with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0FL
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01827944
IRS990/TotalAssetsEOYAmt01983894
IRS990/TotalAssetsGrp/BOYAmt01827944
IRS990/TotalAssetsGrp/EOYAmt01983894
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0339888
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt032067
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt021371
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0130500
IRS990/TotalFunctionalExpensesGrp/TotalAmt0183938
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01827944
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01983894
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0130500
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0339888
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt06
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01827944
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01983894
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TransactionWithControlEntInd0false
IRS990/TravelGrp/FundraisingAmt07942
IRS990/TravelGrp/TotalAmt07942
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01447 Waverly Road
IRS990/USAddress/CityNm0Gladwyne
IRS990/USAddress/StateAbbreviationCd0PA
IRS990/USAddress/ZIPCd019035
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0www.genespotlight.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Dennis Brady
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum03054982937
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-02-27
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Gene Spotlight Inc
ReturnHeader/Filer/BusinessNameControlTxt0GENE
ReturnHeader/Filer/EIN0272978110
ReturnHeader/Filer/USAddress/AddressLine1Txt0801 Arthur Godfrey Rd Ste 401
ReturnHeader/Filer/USAddress/CityNm0Miami Beach
ReturnHeader/Filer/USAddress/StateAbbreviationCd0FL
ReturnHeader/Filer/USAddress/ZIPCd033140
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId02221C6C947BA2E2F53967E19471DFAA065E79A58
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId02221C6C947BA2E2F53967E19471DFAA065E79A58
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId0600652202031840lwm1j
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02020-11-13
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt050.192.130.49
ReturnHeader/FilingSecurityInformation/IPDt02020-11-13
ReturnHeader/FilingSecurityInformation/IPTm015:30:04
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0263587948
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0DM Accounting Services Inc
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt08175 NW 12th Street Ste 433
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Doral
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0FL
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd033126
ReturnHeader/PreparerPersonGrp/PhoneNum07862750175
ReturnHeader/PreparerPersonGrp/PreparationDt02020-11-13
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Elizabeth Manso CPA
ReturnHeader/ReturnTs02020-11-13T13:37:14-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,983,894
Liabilities
$0
Net assets
$1,983,894
Revenue
$339,888
Expenses
$183,938
Net income
$155,950
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.0$0.00$15.0$0.12$0.20$0.07
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.52$0.01$2.51$0.48$0.13$0.34
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.32$0.00$2.32$0.31$0.14$0.17
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.15$0.00$2.15$0.34$0.17$0.16
2019Detailed filing. Detailed filing data is available for this year.$1.98$0.00$1.98$0.34$0.18$0.16
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.83$0.00$1.83$0.84$0.11$0.73
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.10$0.00$1.10$0.71$0.29$0.42
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.68$0.00$0.68$0.44$0.27$0.16
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.00$0.51$0.21$0.13$0.08
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.05$0.43$0.11$0.03$0.08
2013Detailed filing. Detailed filing data is available for this year.$0.35$0.00$0.35$0.18$0.15$0.03
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.31$0.00$0.31$0.12
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.00$0.34$0.04