Civic Intelligence

Gene Spotlight Inc.

990 • Fiscal year 2016 • EIN 27-2978110

Jan 01, 2016 to Dec 31, 2016 • Filed on Jul 18, 2017

Organization Profilewww.genespotlight.org
801 Arthur Godfrey Rd Ste 401Miami Beach, FL 33140

(305) 498-2937

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

26th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

26th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

88th percentile

38%

Higher net margin than 88% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

85th percentile

32%

Faster asset growth than 85% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

94th percentile

106%

Faster revenue growth than 94% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets26th percentile

Assets

Up

$677,733

Up $164,774 (+32%) from 2015

Net Assets

Up

$677,733

Up $164,774 (+32%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue26th percentileNet Margin88th percentile

Revenue

Up

$439,019

Up $226,395 (+106%) from 2015

Expenses

Up

$274,245

Up $145,113 (+112%) from 2015

Net Income

Up

$164,774

Up $81,282 (+97%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth85th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $339,261Liabilities 2011: $0Net Assets 2011: $339,2612011Assets 2012: $313,029Liabilities 2012: $0Net Assets 2012: $313,0292012Assets 2013: $347,512Liabilities 2013: $0Net Assets 2013: $347,5122013Assets 2014: $479,467Liabilities 2014: $50,000Net Assets 2014: $429,4672014Assets 2015: $512,959Liabilities 2015: $0Net Assets 2015: $512,9592015Assets 2016: $677,733Liabilities 2016: $0Net Assets 2016: $677,7332016Assets 2017: $1,097,414Liabilities 2017: $0Net Assets 2017: $1,097,4142017Assets 2018: $1,827,944Liabilities 2018: $0Net Assets 2018: $1,827,9442018Assets 2019: $1,983,894Liabilities 2019: $0Net Assets 2019: $1,983,8942019Assets 2020: $2,146,788Liabilities 2020: $0Net Assets 2020: $2,146,7882020Assets 2021: $2,315,134Liabilities 2021: $0Net Assets 2021: $2,315,1342021Assets 2022: $2,517,330Liabilities 2022: $10,490Net Assets 2022: $2,506,8402022Assets 2024: $15,011,328Liabilities 2024: $0Net Assets 2024: $15,011,3282024

Highlighted filing

2016

Assets$677,733
Liabilities$0
Net Assets$677,733
Open 2016 Filing

Operations Trend

Revenue Growth94th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KExpenses 2011: $43,2302011Expenses 2012: $121,6642012Revenue 2013: $183,981Expenses 2013: $149,498Net Income 2013: $34,4832013Revenue 2014: $111,605Expenses 2014: $29,650Net Income 2014: $81,9552014Revenue 2015: $212,624Expenses 2015: $129,132Net Income 2015: $83,4922015Revenue 2016: $439,019Expenses 2016: $274,245Net Income 2016: $164,7742016Revenue 2017: $706,272Expenses 2017: $286,591Net Income 2017: $419,6812017Revenue 2018: $837,496Expenses 2018: $106,966Net Income 2018: $730,5302018Revenue 2019: $339,888Expenses 2019: $183,938Net Income 2019: $155,9502019Revenue 2020: $337,343Expenses 2020: $174,449Net Income 2020: $162,8942020Revenue 2021: $307,543Expenses 2021: $139,197Net Income 2021: $168,3462021Revenue 2022: $475,304Expenses 2022: $133,596Net Income 2022: $341,7082022Revenue 2024: $123,316Expenses 2024: $197,108Net Income 2024: -$73,7922024

Highlighted filing

2016

Revenue$439,019
Expenses$274,245
Net Income$164,774
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jul 18, 2017
Return Version
2016v3.0
Gross Receipts
$439,019
Mission and Program Overview

Mission

To provide funding and support for the research and awareness of rare genetic diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$512,959$677,733▲ $164,774
Investments Program Related-$500,002-
Cash and Non-Interest-Bearing Accounts$509,618$177,295▼ $332,323
Other Notes and Loans Receivable, Net$2,700--
Land, Buildings, and Equipment, Net$641$436▼ $205
Total Assets$512,959$677,733▲ $164,774
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$512,959$677,733▲ $164,774
Total Liabilities and Net Assets / Fund Balance$512,959$677,733▲ $164,774

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$436$419$855
Investment Program Related Org$500,002--
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Dennis BradyPresident
Joan RookVice President
Aly CohenDirector
Carter Crum CFAOfficer
Allison WeissSecretary
Jonathan SemelTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$439,019
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$181,460
Change in Net Assets
$164,774
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$244,715
Other Expenses$20,208
Professional Fundraising Fees$9,322
Total Fundraising Expense$9,322
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$232,215--$232,215
Grants to Domestic Individuals$12,500--$12,500
Fees for Services Professional Fundraising--$9,322$9,322
Advertising$7,994--$7,994
Travel$5,239--$5,239
Fees for Services Other-$2,250-$2,250
Conferences and Meetings$1,431--$1,431
Office Expenses-$1,111-$1,111
Fees for Services Accounting-$1,038-$1,038
Information Technology-$679-$679
Other Expenses-$261-$261
Depreciation Depletion-$205-$205
Total Functional Expenses$259,379$5,544$9,322$274,245
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MiamiMiami, FL501c3Donation for rare diseases research$165,000
EveryLife Foundation for Rare DiseaNovato, CA501c3Donation for rare diseases research$30,000
The National MPS SocietyResearch Triangle Park, NC501c3Donation for rare diseases research$10,000
University of Minnesota FoundationMinneapolis, MN501c3Donation for rare diseases research$10,000
Los Angeles Biomedical ResearchTorrance, CA501c3Donation for rare diseases research$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$9,322

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Give Miami$257,409$257,409-$257,409
Total Events$257,409$257,409-$257,409
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“All Board Members reviewed Form 990 before it was filed with the IRS.”

Conflict of interest policy compliance Part VI line 12C

“Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.”

Governing documents etc available to public Part VI line 19

“The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Gene Spotlight Inc
EIN
27-2978110
Address
801 Arthur Godfrey Rd Ste 401, Miami Beach, FL 33140

Signing Officer

Name
Dennis Brady
Title
President
Phone
3054982937
Signed
2017-07-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dennis Brady
Formed
2010
Legal Domicile
Fl
Voting Board Members
6
Independent Board Members
6
Employees
0
Volunteers
6

Preparer

Firm
DM Accounting Services Inc
Address
6161 Blue Lagoon Dr Ste 260, Miami, FL 33126
Preparer
Elizabeth Manso CPA
Phone
7862750175
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Donation for rare diseases research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Donation for rare diseases research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Donation for rare diseases research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0University of Miami
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1EveryLife Foundation for Rare Disea
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2The National MPS Society
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3University of Minnesota Foundation
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Los Angeles Biomedical Research
IRS990ScheduleI/RecipientTable/RecipientEIN0590624458
IRS990ScheduleI/RecipientTable/RecipientEIN1264614274
IRS990ScheduleI/RecipientTable/RecipientEIN2112734849
IRS990ScheduleI/RecipientTable/RecipientEIN3416042488
IRS990ScheduleI/RecipientTable/RecipientEIN4952138184
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01501 NW 10 th Ave 33136
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt177 Digital Drive Suite 210
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2PO Box 14686
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3200 Oak Street SE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt41124 West Carson Street
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Miami
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Novato
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Research Triangle Park
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Minneapolis
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Torrance
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0FL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2NC
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3MN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd033136
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd194949
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd227709
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd355455
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd490502
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0For any grant in which it is feasible, the organization staggers the money donated for a research project, and establishes milestones that must be met before the next installment is paid. The organization also requires quarterly or semiannually written status reports to ensure the research is being performed and to determine whether results are promising.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
IRS990ScheduleI/Total501c3OrgCnt05
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All Board Members reviewed Form 990 before it was filed with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0FL
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0512959
IRS990/TotalAssetsEOYAmt0677733
IRS990/TotalAssetsGrp/BOYAmt0512959
IRS990/TotalAssetsGrp/EOYAmt0677733
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0439019
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt09322
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt05544
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0259379
IRS990/TotalFunctionalExpensesGrp/TotalAmt0274245
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0512959
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0677733
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0259379
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0439019
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt06
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0512959
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0677733
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt05239
IRS990/TravelGrp/TotalAmt05239
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt03535 S Mooring Way
IRS990/USAddress/CityNm0Miami
IRS990/USAddress/StateAbbreviationCd0FL
IRS990/USAddress/ZIPCd033133
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0www.genespotlight.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Dennis Brady
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum03054982937
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-07-18
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Gene Spotlight Inc
ReturnHeader/Filer/BusinessNameControlTxt0GENE
ReturnHeader/Filer/EIN0272978110
ReturnHeader/Filer/USAddress/AddressLine1Txt0801 Arthur Godfrey Rd Ste 401
ReturnHeader/Filer/USAddress/CityNm0Miami Beach
ReturnHeader/Filer/USAddress/StateAbbreviationCd0FL
ReturnHeader/Filer/USAddress/ZIPCd033140
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId03A998DED1BEFD9062F83BE5BEC2A7133074EAFC7
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId03A998DED1BEFD9062F83BE5BEC2A7133074EAFC7
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId06006522017215pnukka2
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02017-08-03
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0107.190.141.148
ReturnHeader/FilingSecurityInformation/IPDt02017-08-03
ReturnHeader/FilingSecurityInformation/IPTm012:49:20
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0263587948
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0DM Accounting Services Inc
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt06161 Blue Lagoon Dr Ste 260
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Miami
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0FL
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd033126
ReturnHeader/PreparerPersonGrp/PhoneNum07862750175
ReturnHeader/PreparerPersonGrp/PreparationDt02017-08-03
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Elizabeth Manso CPA
ReturnHeader/ReturnTs02017-08-03T12:40:55-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$677,733
Liabilities
$0
Net assets
$677,733
Revenue
$439,019
Expenses
$274,245
Net income
$164,774
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.0$0.00$15.0$0.12$0.20$0.07
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.52$0.01$2.51$0.48$0.13$0.34
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.32$0.00$2.32$0.31$0.14$0.17
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.15$0.00$2.15$0.34$0.17$0.16
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.98$0.00$1.98$0.34$0.18$0.16
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.83$0.00$1.83$0.84$0.11$0.73
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.10$0.00$1.10$0.71$0.29$0.42
2016Detailed filing. Detailed filing data is available for this year.$0.68$0.00$0.68$0.44$0.27$0.16
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.00$0.51$0.21$0.13$0.08
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.05$0.43$0.11$0.03$0.08
2013Detailed filing. Detailed filing data is available for this year.$0.35$0.00$0.35$0.18$0.15$0.03
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.31$0.00$0.31$0.12
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.00$0.34$0.04