Liabilities / Assets
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
14th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
93rd percentile
Higher net margin than 93% of similar nonprofits.
Top Officer Pay
35th percentile
Higher top officer pay than 35% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
93rd percentile
Faster asset growth than 93% of similar nonprofits.
Revenue Growth
88th percentile
Faster revenue growth than 88% of similar nonprofits.
Assets
Up$1,097,414
Up $419,681 (+62%) from 2016
Net Assets
Up$1,097,414
Up $419,681 (+62%) from 2016
Liabilities
Flat$0
Flat from 2016
Revenue
Up$706,272
Up $267,253 (+61%) from 2016
Expenses
Up$286,591
Up $12,346 (+4.5%) from 2016
Net Income
Up$419,681
Up $254,907 (+155%) from 2016
To provide funding and support for the research and awareness of rare genetic diseases.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $677,733 | $1,097,414 | ▲ $419,681 |
| Investments Program Related | $500,002 | $590,002 | ▲ $90,000 |
| Cash and Non-Interest-Bearing Accounts | $177,295 | $495,682 | ▲ $318,387 |
| Other Notes and Loans Receivable, Net | - | $11,417 | - |
| Land, Buildings, and Equipment, Net | $436 | $313 | ▼ $123 |
| Total Assets | $677,733 | $1,097,414 | ▲ $419,681 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $677,733 | $1,097,414 | ▲ $419,681 |
| Total Liabilities and Net Assets / Fund Balance | $677,733 | $1,097,414 | ▲ $419,681 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $313 | $542 | $855 |
| Investment Program Related Org | $590,002 | - | - |
| Name | Title |
|---|---|
| Dennis Brady | President |
| Joan Rook | Vice President |
| Aly Cohen | Director |
| Carter Crum CFA | Officer |
| Allison Weiss | Secretary |
| Jonathan Semel | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $254,500 |
| Total Fundraising Expense | $27,950 |
| Other Expenses | $21,044 |
| Professional Fundraising Fees | $11,047 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $236,500 | - | - | $236,500 |
| Grants to Domestic Individuals | $18,000 | - | - | $18,000 |
| Fees for Services Professional Fundraising | - | - | $11,047 | $11,047 |
| Advertising | - | - | $6,477 | $6,477 |
| Fees for Services Legal | - | - | $5,250 | $5,250 |
| Travel | - | - | $5,176 | $5,176 |
| Fees for Services Accounting | - | $2,275 | - | $2,275 |
| Information Technology | - | $1,000 | - | $1,000 |
| Fees for Services Other | $300 | $164 | - | $464 |
| Office Expenses | - | $218 | - | $218 |
| Depreciation Depletion | - | $123 | - | $123 |
| Other Expenses | - | $61 | - | $61 |
| Total Functional Expenses | $254,800 | $3,841 | $27,950 | $286,591 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| EveryLife Foundation for Rare Disea | Novato, CA | 501c3 | Donation for rare diseases research | $145,000 |
| The National MPS Society | Research Triangle Park, NC | 501c3 | Donation for rare diseases research | $76,500 |
| Jupiter Orphan Therapeutics Inc | Jupiter, FL | 501c3 | Donation for rare diseases research | $10,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $11,047 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Give Miami | $290,762 | $290,762 | - | $290,762 |
| Total Events | $290,762 | $290,762 | - | $290,762 |
“All Board Members reviewed Form 990 before it was filed with the IRS.”
“Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes.”
“The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To provide funding and support for the research and awareness of rare genetic diseases. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 6477 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 6477 |
| IRS990/AllOtherContributionsAmt | 0 | 415510 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Dennis Brady |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3054982937 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3535 S Mooring Way |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Miami |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33133 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 177295 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 495682 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 290762 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 706272 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 254500 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 21044 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 419681 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 286591 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 27950 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 11047 |
| IRS990/CYTotalRevenueAmt | 0 | 706272 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 123 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 123 |
| IRS990/Desc | 0 | Provided monetary grants for research, treatment, and cure of rare genetic diseases, and conducted awareness campaigns informing the general public on issues related to the treatment and cure of such rare diseases. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 254800 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2275 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 2275 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 5250 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 5250 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 164 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 300 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 464 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 11047 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 11047 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Dennis Brady |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Carter Crum CFA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Joan Rook |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Jonathan Semel |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Allison Weiss |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Aly Cohen |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Officer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 290762 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 254500 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 18000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 18000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 236500 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 236500 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 706272 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1000 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 1000 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 500002 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 590002 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 542 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 436 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 313 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 855 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To provide funding and support for the research and awareness of rare genetic diseases. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 677733 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1097414 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 218 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 218 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Licenses & Permits |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 61 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 61 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 11417 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | Dennis Brady |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 439019 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 244715 |
| IRS990/PYOtherExpensesAmt | 0 | 20208 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 164774 |
| IRS990/PYTotalExpensesAmt | 0 | 274245 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 9322 |
| IRS990/PYTotalRevenueAmt | 0 | 439019 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 419681 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | true |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 677733 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 1097414 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 706272 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 428261 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 212624 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 111605 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 183981 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1642743 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.74870 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.78810 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1229873 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 412870 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 706272 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 428261 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 212624 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 111605 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 183981 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1642743 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1642743 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 313 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 542 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 855 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 590002 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | Jupiter Orphan Thera |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 313 |
| IRS990ScheduleD/TotalBookValueProgramRltdAmt | 0 | 590002 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Give Miami |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 290762 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 290762 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 290762 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 290762 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 290762 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 18000 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | Provided monitary grants for treatment of rare diseases |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt | 0 | 2 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 145000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 76500 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501c3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Donation for rare diseases research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | Donation for rare diseases research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Donation for rare diseases research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | EveryLife Foundation for Rare Disea |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Jupiter Orphan Therapeutics Inc |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | The National MPS Society |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 264614274 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 474828381 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 112734849 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 77 Digital Drive Suite 210 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 601 Heritage Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | PO Box 14686 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Novato |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Jupiter |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Research Triangle Park |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | FL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | NC |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 94949 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 33458 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 27709 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | All Board Members reviewed Form 990 before it was filed with the IRS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person: a) has received a copy of the conflicts of interest polity; b) has read and understands the policy; c) has agreed to comply with the policy; and d) understands the organization is charitable and in order to maintain its federal tax exemption it must engage primarily in activities which accomplish one or more of its tax-exempt purposes. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The organizations governing documents, conflict of interest policy, and financial statements are available to the public upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Governing documents etc available to public Part VI line 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | FL |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 677733 |
| IRS990/TotalAssetsEOYAmt | 0 | 1097414 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 677733 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1097414 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 706272 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 27950 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 3841 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 254800 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 286591 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 677733 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 1097414 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 254800 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 706272 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 6 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 677733 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 1097414 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 5176 |
| IRS990/TravelGrp/TotalAmt | 0 | 5176 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 3535 S Mooring Way |
| IRS990/USAddress/CityNm | 0 | Miami |
| IRS990/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/USAddress/ZIPCd | 0 | 33133 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 6 |
| IRS990/VotingMembersIndependentCnt | 0 | 6 |
| IRS990/WebsiteAddressTxt | 0 | www.genespotlight.org |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2018-06-14 16:35:46Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Dennis Brady |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 3054982937 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2018-03-26 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Gene Spotlight Inc |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | GENE |
| ReturnHeader/Filer/EIN | 0 | 272978110 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 801 Arthur Godfrey Rd Ste 401 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Miami Beach |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | FL |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 33140 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId | 0 | F73206832AEAAB87EFCB6A6D69F7B2348C1D85DE |
| ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId | 0 | F73206832AEAAB87EFCB6A6D69F7B2348C1D85DE |
| ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId | 0 | 6006522018099l234aaw |
| ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt | 0 | 2018-04-09 |
| ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd | 0 | P |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 76.110.72.222 |
| ReturnHeader/FilingSecurityInformation/IPDt | 0 | 2018-04-09 |
| ReturnHeader/FilingSecurityInformation/IPTm | 0 | 14:19:03 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 263587948 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | DM Accounting Services Inc |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 6161 Blue Lagoon Dr Ste 260 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Miami |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | FL |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 33126 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 7862750175 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2018-04-09 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Elizabeth Manso CPA |
| ReturnHeader/ReturnTs | 0 | 2018-04-09T14:14:44-04:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2017-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2017-12-31 |
| ReturnHeader/TaxYr | 0 | 2017 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.