Civic Intelligence

Global Down Syndrome Foundation

990 • Fiscal year 2013 • EIN 26-4431001

Jan 01, 2013 to Dec 31, 2013 • Filed on Aug 14, 2014

Organization Profilewww.globaldownsyndrome.org

View Organization Page

3300 E First Ave No 39080206

(303) 468-6060

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

52nd percentile

0.13x

Higher debt load relative to assets than 52% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Liabilities / Revenue

40th percentile

0.06x

Higher debt load relative to revenue than 40% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Net Margin

50th percentile

2.6%

Higher net margin than 50% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Top Officer Pay

90th percentile

$183,956

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Asset Growth

77th percentile

14%

Faster asset growth than 77% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets52nd percentile

Assets

Up

$1,384,854

Up $171,072 (+14%) from 2012

Net Assets

Up

$1,205,396

Up $74,347 (+6.6%) from 2012

Liabilities

Up

$179,458

Up $96,725 (+117%) from 2012

Revenue And Expenses
Liabilities / Revenue40th percentileNet Margin50th percentile

Revenue

$2,810,474

No earlier filing loaded for comparison.

Expenses

Up

$2,736,127

Up $861,321 (+46%) from 2012

Net Income

$74,347

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth77th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2012: $1,213,782Liabilities 2012: $82,733Net Assets 2012: $1,131,0492012Assets 2013: $1,384,854Liabilities 2013: $179,458Net Assets 2013: $1,205,3962013Assets 2014: $1,578,710Liabilities 2014: $117,362Net Assets 2014: $1,461,3482014Assets 2015: $2,566,132Liabilities 2015: $898,807Net Assets 2015: $1,667,3252015Assets 2016: $4,194,862Liabilities 2016: $352,032Net Assets 2016: $3,842,8302016Assets 2017: $6,298,263Liabilities 2017: $988,156Net Assets 2017: $5,310,1072017Assets 2018: $7,089,904Liabilities 2018: $1,058,841Net Assets 2018: $6,031,0632018Assets 2019: $7,622,270Liabilities 2019: $1,217,819Net Assets 2019: $6,404,4512019Assets 2020: $7,860,291Liabilities 2020: $795,042Net Assets 2020: $7,065,2492020Assets 2021: $8,253,735Liabilities 2021: $631,867Net Assets 2021: $7,621,8682021Assets 2022: $8,604,160Liabilities 2022: $1,242,235Net Assets 2022: $7,361,9252022Assets 2023: $9,055,430Liabilities 2023: $1,396,875Net Assets 2023: $7,658,5552023Assets 2024: $8,646,012Liabilities 2024: $1,396,303Net Assets 2024: $7,249,7092024Assets 2025: $8,688,920Liabilities 2025: $1,403,074Net Assets 2025: $7,285,8462025

Highlighted filing

2013

Assets$1,384,854
Liabilities$179,458
Net Assets$1,205,396
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2012: $1,874,8062012Revenue 2013: $2,810,474Expenses 2013: $2,736,127Net Income 2013: $74,3472013Revenue 2014: $3,348,940Expenses 2014: $3,092,988Net Income 2014: $255,9522014Revenue 2015: $3,770,552Expenses 2015: $3,563,447Net Income 2015: $207,1052015Revenue 2016: $5,550,024Expenses 2016: $3,373,147Net Income 2016: $2,176,8772016Revenue 2017: $5,093,567Expenses 2017: $3,626,290Net Income 2017: $1,467,2772017Revenue 2018: $4,769,092Expenses 2018: $4,048,136Net Income 2018: $720,9562018Revenue 2019: $3,703,167Expenses 2019: $3,329,779Net Income 2019: $373,3882019Revenue 2020: $3,586,993Expenses 2020: $2,924,422Net Income 2020: $662,5712020Revenue 2021: $3,228,128Expenses 2021: $2,669,185Net Income 2021: $558,9432021Revenue 2022: $946,045Expenses 2022: $1,207,187Net Income 2022: -$261,1422022Revenue 2023: $3,826,365Expenses 2023: $3,562,334Net Income 2023: $264,0312023Revenue 2024: $4,313,796Expenses 2024: $4,670,703Net Income 2024: -$356,9072024Revenue 2025: $4,716,290Expenses 2025: $4,697,476Net Income 2025: $18,8142025

Highlighted filing

2013

Revenue$2,810,474
Expenses$2,736,127
Net Income$74,347
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Aug 14, 2014
Return Version
2013v3.0
Gross Receipts
$3,572,045
Mission and Program Overview

Mission

To significantly improve the lives of people with down syndrome through research, medical care, education and advocacy. An important part of this mission is to support the global affiliate organizations that we helped establish and continue to fundraise for. Global and our affiliates work together to elongate life and dramatically improve health outcomes to ensure people with the condition can reach their true potential. Global affiliates include: crnic institute for down syndrome, alzheimer's & cognition center, sie center for down syndrome, and global adult clinic. Another important part of our mission is to engage in government advocacy that leads to transformative increases in government funding for down syndrome research and medical care which in turn will create a pipeline of young talent dedicated to this population. Because of global's work, scientists are developing better methods to understand how the triplication leads to a much higher incidence of certain diseases (for exam

See Part III, Line 1

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,064,616$1,069,770▲ $5,154
Pledges and Grants Receivable$90,503$252,389▲ $161,886
Land, Buildings, and Equipment, Net$57,060$45,260▼ $11,800
Prepaid Expenses and Deferred Charges$302$16,299▲ $15,997
Inventories for Sale or Use$1,301$1,136▼ $165
Total Assets$1,213,782$1,384,854▲ $171,072
Liabilities
Accounts Payable and Accrued Expenses$67,733$143,938▲ $76,205
Deferred Revenue$15,000$35,520▲ $20,520
Total Liabilities$82,733$179,458▲ $96,725
Net Assets / Fund Balance
Unrestricted Net Assets$1,103,191$1,054,600▼ $48,591
Temporarily Rstr Net Assets$27,858$150,796▲ $122,938
Total Net Assets Fund Balance$1,131,049$1,205,396▲ $74,347
Total Liabilities and Net Assets / Fund Balance$1,213,782$1,384,854▲ $171,072

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$45,260$28,488$73,748
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michelle Sie WhittenDirector and PresidentPT$123,065$60,891$123,065
John J SieChair--$31,762$31,762

Board Members and Trustees

NameTitle
Anna M SieDirector
Jay MillsDirector
John C McGinleyDirector
Ricki RestDirector
Tomago CollinsDirector
Neil M GoffSecretary
Mary Beth WallingfordTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
William Morris Endeavor EntertainmentGala Entertainment-$250,000
Revenue and Support

Revenue Composition

Contributions and Grants
$2,794,986
Program Service Revenue
$10,705
Investment Income
$1,854
Other Revenue
$2,929
All Other Contributions
$451,335
Change in Net Assets
$74,347

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table439$323,093Selling Price
Other Non Cash Contri Table1$12,540Fair Market Value (FMV)
Securities Publicly Traded1$5,262Average Fair Market Value (FMV)
Other Non Cash Contri Table4$2,900Fair Market Value (FMV)
Total Noncash Contributions445$343,795-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,810,474
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$98,010
Total Revenue per Audited Statements
$2,908,484
Total Revenue per Form 990
$2,810,474
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,256,000
Other Expenses$776,150
Salaries, Compensation, and Employee Benefits$687,222
Total Fundraising Expense$425,688
Professional Fundraising Fees$16,755

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,256,000--$1,256,000
Other Salaries and Wages$209,960$146,880$84,594$441,434
Fees for Services Other$15,644$177,864$30,401$223,909
Current Officers, Directors, Trustees, and Key Employees$56,472$35,295$49,413$141,180
Advertising$9,878$14,582$47,837$72,297
Travel$27,580$3,789$34,449$65,818
Other Employee Benefits$37,938$14,535$9,292$61,765
Office Expenses$4,272$20,157$23,015$47,444
Payroll Taxes$19,688$13,511$9,644$42,843
Conferences and Meetings$21,350$199$891$22,440
Fees for Services Professional Fundraising--$16,755$16,755
Depreciation Depletion$5,028$4,740$4,597$14,365
Other Expenses$2,325$4,250$3,424$9,999
Fees for Services Legal$1,793$6,160-$7,953
Insurance$567$3,983$1,542$6,092
All Other Expenses$3,555$700-$4,255
Total Functional Expenses$1,820,568$489,871$425,688$2,736,127

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,834,137
Expenses per Audited Statements$2,736,127
Total Expenses per Form 990$2,736,127
Expenses Not Reported on Form 990$98,010
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
36-3463656-501(c)3Conference sponsorship$600,000
84-6049811-501(c)3Linda Crnic Institute for Down Syndrome funding$500,000
84-0813462-501(c)3Sie Center for Down Syndrome funding$80,000
45-3274946-501(c)3Educational grant$10,000
30-0344421-501(c)3Educational grant$10,000
59-3124673-501(c)3Educational grant$10,000
73-1594411-501(c)3Educational grant$10,000
62-1858376-501(c)3Educational grant$10,000
66-0480413-501(c)3Educational grant$10,000
57-1211451-501(c)3Educational grant$10,000
54-1252305-501(c)3Educational grant$6,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$761,571
Fundraising Gross Income$761,571
Professional Fundraising Fees$16,755

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$1,561,176$761,571$76,532$685,039
Total Events$1,561,176$761,571$761,571$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“Three of the nine members of the board of directors have a family relationship.”

Form 990, Part VI, Section B, line 11

“Form 990 is reviewed by senior management and distributed by email to the board prior to filing.”

Form 990, Part VI, Section B, line 12C

“The board discloses conflicts of interest on an annual basis.”

Form 990, Part VI, Section B, line 15

“The board of directors reviews compensation levels for all employees using comparability studies to determine appropriate salary ranges.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy, and financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

EIN
26-4431001
Phone
3034686060

Signing Officer

Name
Michelle Whitten
Title
Executive Director
Phone
3034686060
Signed
2014-08-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michelle Sie Whitten
Formed
2009
Legal Domicile
Co
Voting Board Members
9
Independent Board Members
6
Employees
23
Volunteers
238

Preparer

Preparer
Laurie Anderson
Phone
3035345953
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 2C

“Members of management, including a member of the Board of Directors, meet with the external auditors on an annual basis to review the financial statements in detail.”

Financial Statement Notes

Part X, Line 2:

“Management is required to evaluate tax positions taken by GDSF and recognize a tax liability (or asset) if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by taxing authorities. Management has analyzed the tax positions taken or expected to be taken that would require recognition of a liability (or asset) or disclosure in the financial statements and determined there are none. GDSF is subject to routine audits by taxing jurisdictions: however, there are currently no audits for any tax periods in progress. Management believes GDSF is no longer subject to income tax examinations for years prior to December 31, 2010.”

Raw XML AppendixShowing 400 of 723 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0See Schedule O.Research: The Foundation's primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed to research and medical care for people with Down syndrome. Grants to the Lunda Crnic Institute totaled $500,000 in 2013. The research conducted by the Institute focuses on sleep apnea, physical delays, Alzheimer's disease, congenital heart disease, and autism - diseases and conditions that a large number of people with Down syndrome have. The Foundation also supports the Crnic Institute's Sie Center for Down Syndrome to provide the best multidisciplinary care for children with Down syndrome. The Sie Center is working to update medical guidelines for children with Down syndrome, and will help to ensure that families, doctors and other healthcare providers have access to updated information.
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IRS990/Form990PartVIISectionAGrp/PersonNm3Mary Beth Wallingford
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IRS990/Form990PartVIISectionAGrp/PersonNm5John C McGinley
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IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
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IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt4Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
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IRS990/MissionDesc0To eradicate the medical and cognitive ill effects associated with Down syndrome by supporting basic research, clinical research and clinical care, and otherwise to improve significantly the lives of people with Down syndrome.
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IRS990/PayrollTaxesGrp/FundraisingAmt09644
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IRS990/PrincipalOfficerNm0Michelle Sie Whitten
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IRS990/ProgSrvcAccomActy2Grp/Desc0Education: The Global Down Syndrome Educational Series was launched in 2006 and brings nationally and internationally recognized Down syndrome experts to Colorado for two full days of lectures. The Educational Series was replaced in 2013 by a Research and Medical Care roundtable that took place in conjunction with the National Down Syndrome Congress Convention in Denver, Colorado led by an NIH keynote speaker. Approximately 400 attendees from across the country attended, of which 80% were self-advocates and family members and the rest were professionals. The roundtable was a full day conference covering cutting-edge research and best-practices in medical care, including a focus on prenatal testing, basic research, Down Syndrome, Alzheimer's disease, and general medical care.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01165395
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0756000
IRS990/ProgSrvcAccomActy3Grp/Desc0Outreach: The goal of the Foundation's outreach programs is to provide the highest quality activities and education to people with Down syndrome and their families. It is also to learn from programs launched by other organizations, and, in turn, encourage and help others to launch similar programs. Finally, it is to make sure that people with Down syndrome have the opportunity to have fun, gain confidence, excel and reach their potential.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt098205
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt013634
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IRS990/PYTotalExpensesAmt01874806
IRS990/PYTotalProfFndrsngExpnsAmt010000
IRS990/PYTotalRevenueAmt01926920
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt074347
IRS990/RegularMonitoringEnfrcInd01
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IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
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IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt023810
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt025616
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt02929
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IRS990ScheduleA/OtherIncome170Grp/TotalAmt04455
IRS990ScheduleA/PublicOrganization170Ind0X
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IRS990ScheduleA/SubstantialContributorsTotAmt03658816
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt051010
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IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt0198006
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IRS990ScheduleD/FootnoteTextInd0X
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Management is required to evaluate tax positions taken by GDSF and recognize a tax liability (or asset) if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by taxing authorities. Management has analyzed the tax positions taken or expected to be taken that would require recognition of a liability (or asset) or disclosure in the financial statements and determined there are none. GDSF is subject to routine audits by taxing jurisdictions: however, there are currently no audits for any tax periods in progress. Management believes GDSF is no longer subject to income tax examinations for years prior to December 31, 2010.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2:
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Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,384,854
Liabilities
$179,458
Net assets
$1,205,396
Revenue
$2,810,474
Expenses
$2,736,127
Net income
$74,347
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.69$1.40$7.29$4.72$4.70$0.02
2024Detailed filing. Detailed filing data is available for this year.$8.65$1.40$7.25$4.31$4.67$0.36
2023Detailed filing. Detailed filing data is available for this year.$9.06$1.40$7.66$3.83$3.56$0.26
2022Detailed filing. Detailed filing data is available for this year.$8.60$1.24$7.36$0.95$1.21$0.26
2021Detailed filing. Detailed filing data is available for this year.$8.25$0.63$7.62$3.23$2.67$0.56
2020Detailed filing. Detailed filing data is available for this year.$7.86$0.80$7.07$3.59$2.92$0.66
2019Detailed filing. Detailed filing data is available for this year.$7.62$1.22$6.40$3.70$3.33$0.37
2018Detailed filing. Detailed filing data is available for this year.$7.09$1.06$6.03$4.77$4.05$0.72
2017Detailed filing. Detailed filing data is available for this year.$6.30$0.99$5.31$5.09$3.63$1.47
2016Detailed filing. Detailed filing data is available for this year.$4.19$0.35$3.84$5.55$3.37$2.18
2015Detailed filing. Detailed filing data is available for this year.$2.57$0.90$1.67$3.77$3.56$0.21
2014Detailed filing. Detailed filing data is available for this year.$1.58$0.12$1.46$3.35$3.09$0.26
2013Detailed filing. Detailed filing data is available for this year.$1.38$0.18$1.21$2.81$2.74$0.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.08$1.13$1.87
Peer Organizations

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