Civic Intelligence

Global Down Syndrome Foundation

990 • Fiscal year 2014 • EIN 26-4431001

Jan 01, 2014 to Dec 31, 2014 • Filed on Aug 13, 2015

Organization Profilewww.globaldownsyndrome.org

View Organization Page

3300 E First Ave No 390Denver, CO 80206

(303) 321-6277

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.07x

Higher debt load relative to assets than 44% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

30th percentile

0.04x

Higher debt load relative to revenue than 30% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

63rd percentile

7.6%

Higher net margin than 63% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

90th percentile

$196,710

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 5.9% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

76th percentile

14%

Faster asset growth than 76% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

74th percentile

19%

Faster revenue growth than 74% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets44th percentile

Assets

Up

$1,578,710

Up $193,856 (+14%) from 2013

Net Assets

Up

$1,461,348

Up $255,952 (+21%) from 2013

Liabilities

Down

$117,362

Down $62,096 (-35%) from 2013

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin63rd percentile

Revenue

Up

$3,348,940

Up $538,466 (+19%) from 2013

Expenses

Up

$3,092,988

Up $356,861 (+13%) from 2013

Net Income

Up

$255,952

Up $181,605 (+244%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2012: $1,213,782Liabilities 2012: $82,733Net Assets 2012: $1,131,0492012Assets 2013: $1,384,854Liabilities 2013: $179,458Net Assets 2013: $1,205,3962013Assets 2014: $1,578,710Liabilities 2014: $117,362Net Assets 2014: $1,461,3482014Assets 2015: $2,566,132Liabilities 2015: $898,807Net Assets 2015: $1,667,3252015Assets 2016: $4,194,862Liabilities 2016: $352,032Net Assets 2016: $3,842,8302016Assets 2017: $6,298,263Liabilities 2017: $988,156Net Assets 2017: $5,310,1072017Assets 2018: $7,089,904Liabilities 2018: $1,058,841Net Assets 2018: $6,031,0632018Assets 2019: $7,622,270Liabilities 2019: $1,217,819Net Assets 2019: $6,404,4512019Assets 2020: $7,860,291Liabilities 2020: $795,042Net Assets 2020: $7,065,2492020Assets 2021: $8,253,735Liabilities 2021: $631,867Net Assets 2021: $7,621,8682021Assets 2022: $8,604,160Liabilities 2022: $1,242,235Net Assets 2022: $7,361,9252022Assets 2023: $9,055,430Liabilities 2023: $1,396,875Net Assets 2023: $7,658,5552023Assets 2024: $8,646,012Liabilities 2024: $1,396,303Net Assets 2024: $7,249,7092024Assets 2025: $8,688,920Liabilities 2025: $1,403,074Net Assets 2025: $7,285,8462025

Highlighted filing

2014

Assets$1,578,710
Liabilities$117,362
Net Assets$1,461,348
Open 2014 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2012: $1,874,8062012Revenue 2013: $2,810,474Expenses 2013: $2,736,127Net Income 2013: $74,3472013Revenue 2014: $3,348,940Expenses 2014: $3,092,988Net Income 2014: $255,9522014Revenue 2015: $3,770,552Expenses 2015: $3,563,447Net Income 2015: $207,1052015Revenue 2016: $5,550,024Expenses 2016: $3,373,147Net Income 2016: $2,176,8772016Revenue 2017: $5,093,567Expenses 2017: $3,626,290Net Income 2017: $1,467,2772017Revenue 2018: $4,769,092Expenses 2018: $4,048,136Net Income 2018: $720,9562018Revenue 2019: $3,703,167Expenses 2019: $3,329,779Net Income 2019: $373,3882019Revenue 2020: $3,586,993Expenses 2020: $2,924,422Net Income 2020: $662,5712020Revenue 2021: $3,228,128Expenses 2021: $2,669,185Net Income 2021: $558,9432021Revenue 2022: $946,045Expenses 2022: $1,207,187Net Income 2022: -$261,1422022Revenue 2023: $3,826,365Expenses 2023: $3,562,334Net Income 2023: $264,0312023Revenue 2024: $4,313,796Expenses 2024: $4,670,703Net Income 2024: -$356,9072024Revenue 2025: $4,716,290Expenses 2025: $4,697,476Net Income 2025: $18,8142025

Highlighted filing

2014

Revenue$3,348,940
Expenses$3,092,988
Net Income$255,952
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 13, 2015
Return Version
2014v5.0
Gross Receipts
$4,120,177
Mission and Program Overview

Mission

To significantly improve the lives of people with down syndrome through research, medical care, education and advocacy. An important part of this mission is to support the global affiliate organizations that we helped establish and continue to fundraise for. Global and our affiliates work together to elongate life and dramatically improve health outcomes to ensure people with the condition can reach their true potential. Global affiliates include: crnic institute for down syndrome, alzheimer's & cognition center, sie center for down syndrome, and global adult clinic. Another important part of our mission is to engage in government advocacy that leads to transformative increases in government funding for down syndrome research and medical care which in turn will create a pipeline of young talent dedicated to this population. Because of global's work, scientists are developing better methods to understand how the triplication leads to a much higher incidence of certain diseases (for exam

See Part III, Line 1

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,069,770$1,263,815▲ $194,045
Pledges and Grants Receivable$252,389$220,252▼ $32,137
Land, Buildings, and Equipment, Net$45,260$48,738▲ $3,478
Prepaid Expenses and Deferred Charges$16,299$44,013▲ $27,714
Inventories for Sale or Use$1,136$1,892▲ $756
Total Assets$1,384,854$1,578,710▲ $193,856
Liabilities
Accounts Payable and Accrued Expenses$143,938$116,097▼ $27,841
Deferred Revenue$35,520$1,265▼ $34,255
Total Liabilities$179,458$117,362▼ $62,096
Net Assets / Fund Balance
Unrestricted Net Assets$1,054,600$1,162,714▲ $108,114
Temporarily Rstr Net Assets$150,796$298,634▲ $147,838
Total Net Assets Fund Balance$1,205,396$1,461,348▲ $255,952
Total Liabilities and Net Assets / Fund Balance$1,384,854$1,578,710▲ $193,856

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$48,738$45,245$93,983
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michelle Sie WhittenDirector and PresidentPT$136,246$11,286$147,532
John J SieChair--$38,091$38,091

Board Members and Trustees

NameTitle
Anna M SieDirector
Jay MillsDirector
John C McGinleyDirector
Ricki RestDirector
Tomago CollinsDirector
Neil M GoffSecretary
Mary Beth WallingfordTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
CreativeResponse Research Services IncResearch500 N Michigan Ave 1200, Chicago, IL 60611$140,500
Revenue and Support

Revenue Composition

Contributions and Grants
$3,320,099
Program Service Revenue
$19,384
Investment Income
$2,198
Other Revenue
$7,259
All Other Contributions
$1,284,749
Change in Net Assets
$255,952

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table541$586,851Selling Price
Securities Publicly Traded3$46,126Average Fair Market Value (FMV)
Other Non Cash Contri Table15$26,931Fair Market Value (FMV)
Other Non Cash Contri Table15$15,966Fair Market Value (FMV)
Other Non Cash Contri Table3$14,777Fair Market Value (FMV)
Clothing and Household Goods-$3,600Fair Market Value (FMV)
Total Noncash Contributions577$694,251-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,348,940
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$184,967
Total Revenue per Audited Statements
$3,533,907
Total Revenue per Form 990
$3,348,940
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,263,418
Other Expenses$1,055,510
Salaries, Compensation, and Employee Benefits$754,060
Total Fundraising Expense$657,542
Professional Fundraising Fees$20,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,263,418--$1,263,418
Other Salaries and Wages$184,687$199,022$119,664$503,373
Fees for Services Other$67,090$22,074$162,324$251,488
Current Officers, Directors, Trustees, and Key Employees$59,012$36,883$51,636$147,531
Advertising$29,637$46,545$48,481$124,663
Travel$21,884$7,074$39,708$68,666
Other Employee Benefits$27,609$17,902$8,873$54,384
Payroll Taxes$18,016$18,200$12,556$48,772
Office Expenses$6,410$5,604$31,206$43,220
Other Expenses$16,047$18,536$3,286$37,869
Fees for Services Professional Fundraising--$20,000$20,000
Conferences and Meetings$18,615--$18,615
Depreciation Depletion$5,760$5,431$5,266$16,457
Fees for Services Legal$2,187$12,718-$14,905
All Other Expenses$1,090$1,995$1,544$4,629
Insurance-$4,068$400$4,468
Fees for Services Lobbying-$2,518-$2,518
Total Functional Expenses$1,950,936$484,510$657,542$3,092,988

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,277,955
Expenses per Audited Statements$3,092,988
Total Expenses per Form 990$3,092,988
Expenses Not Reported on Form 990$184,967
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Alzheimer's Disease and Related Disorders AssociationChicago, IL501(c)3Research grant$500,000
University of Colorado FoundationBoulder, CO501(c)3Linda Crnic Institute for Down Syndrome funding$500,000
Children's Hospital Colorado FoundationAurora, CO501(c)3Sie Center for Down Syndrome funding$170,918
Club 21 Learning & Resource CenterPasadena, CA501(c)3Educational grant$10,000
Colorado Springs Down Syndrome AssociationColorado Springs, CO501(c)3Educational conference grant$10,000
Down Syndrome Alliance of the MidlandsBoys Town, NE501(c)3Educational grant$10,000
Down Syndrome Community of Puget SoundSeattle, WA501(c)3Educational grant$10,000
Montana Down Syndrome AssociationMissoula, MT501(c)3Educational grant$10,000
Southeastern New Mexico Down Syndrome FoundationRoswell, NM501(c)3Educational grant$10,000
Up Side of Downs of Northeast OhioIndependence, OH501(c)3Educational grant$10,000
Gold Coast Down Syndrome OrganizationBoynton Beach, FL501(c)3Educational grant$7,500
Down Syndrome Association of DelawareMiddletown, DE501(c)3Educational grant$5,000
Down Syndrome Awareness GroupBaton Rouge, LA501(c)3Educational grant$5,000
Peak Parent Center IncColorado Springs, CO501(c)3Educational conference grant$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$771,237
Fundraising Gross Income$771,237
Professional Fundraising Fees$20,000

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fashion Show/Gala (2)$1,251,749$771,237$104,928$666,309
Total Events$1,251,749$771,237$771,237$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“Three of the nine members of the board of directors have a family relationship.”

Form 990, Part VI, Section B, line 11

“Form 990 is reviewed by senior management and distributed by email to the board prior to filing.”

Form 990, Part VI, Section B, line 12C

“The board discloses conflicts of interest on an annual basis.”

Form 990, Part VI, Section B, line 15

“The board of directors reviews compensation levels for all employees using comparability studies to determine appropriate salary ranges.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy, and financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Global Down Syndrome Foundation
EIN
26-4431001
Phone
3033216277
Address
3300 E First Ave No 390, Denver, CO 80206

Signing Officer

Name
Michelle Whitten
Title
Executive Director
Phone
3033216277
Signed
2015-08-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michelle Sie Whitten
Formed
2009
Legal Domicile
Co
Voting Board Members
9
Independent Board Members
6
Employees
17
Volunteers
363

Preparer

Firm
Kundinger Corder & Engle PC
Address
475 Lincoln Street Suite 200, Denver, CO 80203
Preparer
Laurie Anderson
Phone
3035345953
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 2C

“Members of management, including a member of the Board of Directors, meet with the external auditors on an annual basis to review the financial statements in detail.”

Financial Statement Notes

Part X, Line 2:

“Management is required to evaluate tax positions taken by GDSF and recognize a tax liability (or asset) if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by taxing authorities. Management has analyzed the tax positions taken or expected to be taken that would require recognition of a liability (or asset) or disclosure in the financial statements and determined there are none. GDSF is subject to routine audits by taxing jurisdictions: however, there are currently no audits for any tax periods in progress. Management believes GDSF is no longer subject to income tax examinations for years prior to December 31, 2011.”

Raw XML AppendixShowing 400 of 768 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0See Part III, Line 1
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IRS990/Form990PartVIISectionAGrp/PersonNm8Tomago Collins
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IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt4Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
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IRS990/MissionDesc0To eradicate the medical and cognitive ill effects associated with Down syndrome by supporting basic research, clinical research and clinical care, and otherwise to improve significantly the lives of people with Down syndrome.
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IRS990/PrincipalOfficerNm0Michelle Sie Whitten
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IRS990/ProgSrvcAccomActy2Grp/Desc0Health and education: In November 2012, Global and the National Down Syndrome Congress (NDSC) co-published and began distributing the Prenatal Testing Pamphlet (PTP). The pamphlet is distributed directly from Global and the NDSC and through the largest prenatal testing company, Sequenom. The PTP is free of charge to people or organizations providing resources to pregnant women or their medical providers. Medical providers or professionals include, but are not limited to, doctors, nurses, and genetic counselors. Organizations include hospitals, universities, OBGYN offices, and Down syndrome organizations. (Continued on Schedule O.)In March 2014, Global commissioned a multi-phase, multi-targeted national research project in order to garner feedback on and ideas for enhancing the PTP to reflect what information is important to pregnant women and medical professionals. The findings from that research have been incorporated into a new version of the PTP, which will be distributed in mid-to late 2015. Global also supports the Crnic Institute's Sie Center for Down Syndrome to provide the best multidisciplinary care for children with Down syndrome. The Sie Center is working to update medical guidelines for children with Down syndrome, and will help to ensure that families, doctors and other healthcare providers have access to updated information. The Sie Center received a grant from Global in the amount of $170,918 in 2014. In addition, Global issued educational grants in the total amount of $92,500 to local and national Down syndrome organizations in 2014.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Outreach: The goal of Global's outreach programs is to provide the highest quality health oriented activities and education to people with Down syndrome and their families. Global staff learn from programs launched by other organizations, and in turn, encourage and help others to launch similar programs. Additionally, these programs help ensure people with Down syndrome have the opportunity to have fun, gain confidence, excel and reach their potential which effects many areas of their lives. In support of these goals, Global hosts Dare to Play camps. Football, Cheer, Soccer, several dance classes and an educational series all of which promote mental and physical wellness. (Continued on Schedule O.) Moreover, Global conducts roundtables, workshops, and briefings on Alzheimer's disease-Down syndrome research and advocacy. All of the aforementioned programs are designed to help people with Down syndrome dream big so they can not only meet, but exceed their expectations.
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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,578,710
Liabilities
$117,362
Net assets
$1,461,348
Revenue
$3,348,940
Expenses
$3,092,988
Net income
$255,952
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.69$1.40$7.29$4.72$4.70$0.02
2024Detailed filing. Detailed filing data is available for this year.$8.65$1.40$7.25$4.31$4.67$0.36
2023Detailed filing. Detailed filing data is available for this year.$9.06$1.40$7.66$3.83$3.56$0.26
2022Detailed filing. Detailed filing data is available for this year.$8.60$1.24$7.36$0.95$1.21$0.26
2021Detailed filing. Detailed filing data is available for this year.$8.25$0.63$7.62$3.23$2.67$0.56
2020Detailed filing. Detailed filing data is available for this year.$7.86$0.80$7.07$3.59$2.92$0.66
2019Detailed filing. Detailed filing data is available for this year.$7.62$1.22$6.40$3.70$3.33$0.37
2018Detailed filing. Detailed filing data is available for this year.$7.09$1.06$6.03$4.77$4.05$0.72
2017Detailed filing. Detailed filing data is available for this year.$6.30$0.99$5.31$5.09$3.63$1.47
2016Detailed filing. Detailed filing data is available for this year.$4.19$0.35$3.84$5.55$3.37$2.18
2015Detailed filing. Detailed filing data is available for this year.$2.57$0.90$1.67$3.77$3.56$0.21
2014Detailed filing. Detailed filing data is available for this year.$1.58$0.12$1.46$3.35$3.09$0.26
2013Detailed filing. Detailed filing data is available for this year.$1.38$0.18$1.21$2.81$2.74$0.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.08$1.13$1.87