Civic Intelligence

Lgs Foundation Inc

990 • Fiscal year 2019 • EIN 26-2051377

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 16, 2020

Organization ProfileWWW.LGSFOUNDATION.ORG
80 Orville Dr No 100Bohemia, NY 11716

(718) 374-3800

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

82nd percentile

0.38x

Higher debt load relative to assets than 82% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

81st percentile

0.31x

Higher debt load relative to revenue than 81% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

71st percentile

14%

Higher net margin than 71% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

85th percentile

$91,166

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 11.8% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

42nd percentile

0.5%

Faster asset growth than 42% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

91st percentile

82%

Faster revenue growth than 91% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets82nd percentile

Assets

Up

$623,167

Up $3,119 (+0.5%) from 2018

Net Assets

Up

$386,859

Up $98,465 (+34%) from 2018

Liabilities

Down

$236,308

Down $95,346 (-29%) from 2018

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin71st percentile

Revenue

Up

$774,334

Up $349,434 (+82%) from 2018

Expenses

Up

$663,108

Up $381,048 (+135%) from 2018

Net Income

Down

$111,226

Down $31,614 (-22%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth42nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0-$500KAssets 2010: $5,135Liabilities 2010: $6,301Net Assets 2010: -$1,1662010Assets 2011: $57,210Liabilities 2011: $905Net Assets 2011: $56,3052011Assets 2012: $54,939Liabilities 2012: $2,810Net Assets 2012: $52,1292012Assets 2013: $352,259Liabilities 2013: $245,000Net Assets 2013: $107,2592013Assets 2014: $286,678Liabilities 2014: $152,824Net Assets 2014: $133,8542014Assets 2015: $325,521Liabilities 2015: $156,961Net Assets 2015: $168,5602015Assets 2016: $504,025Liabilities 2016: $305,609Net Assets 2016: $198,4162016Assets 2017: $401,865Liabilities 2017: $256,311Net Assets 2017: $145,5542017Assets 2018: $620,048Liabilities 2018: $331,654Net Assets 2018: $288,3942018Assets 2019: $623,167Liabilities 2019: $236,308Net Assets 2019: $386,8592019Assets 2020: $1,393,791Liabilities 2020: $224,216Net Assets 2020: $1,169,5752020Assets 2021: $1,489,428Liabilities 2021: $257,400Net Assets 2021: $1,232,0282021Assets 2022: $1,598,197Liabilities 2022: $382,191Net Assets 2022: $1,216,0062022Assets 2023: $1,281,404Liabilities 2023: $243,658Net Assets 2023: $1,037,7462023Assets 2024: $984,047Liabilities 2024: $260,544Net Assets 2024: $723,5032024

Highlighted filing

2019

Assets$623,167
Liabilities$236,308
Net Assets$386,859
Open 2019 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2010: $59,167Expenses 2010: $60,333Net Income 2010: -$1,1662010Revenue 2011: $138,217Expenses 2011: $94,208Net Income 2011: $44,0092011Revenue 2012: $89,368Expenses 2012: $93,544Net Income 2012: -$4,1762012Revenue 2013: $245,752Expenses 2013: $156,521Net Income 2013: $89,2312013Revenue 2014: $292,077Expenses 2014: $265,482Net Income 2014: $26,5952014Revenue 2015: $214,368Expenses 2015: $179,662Net Income 2015: $34,7062015Revenue 2016: $336,556Expenses 2016: $306,700Net Income 2016: $29,8562016Revenue 2017: $426,999Expenses 2017: $479,861Net Income 2017: -$52,8622017Revenue 2018: $424,900Expenses 2018: $282,060Net Income 2018: $142,8402018Revenue 2019: $774,334Expenses 2019: $663,108Net Income 2019: $111,2262019Revenue 2020: $1,165,055Expenses 2020: $382,339Net Income 2020: $782,7162020Revenue 2021: $785,563Expenses 2021: $723,112Net Income 2021: $62,4512021Revenue 2022: $1,363,205Expenses 2022: $1,379,227Net Income 2022: -$16,0222022Revenue 2023: $1,070,661Expenses 2023: $1,253,284Net Income 2023: -$182,6232023Revenue 2024: $1,248,197Expenses 2024: $1,565,600Net Income 2024: -$317,4032024

Highlighted filing

2019

Revenue$774,334
Expenses$663,108
Net Income$111,226
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 16, 2020
Return Version
2019v5.1
Gross Receipts
$801,079
Mission and Program Overview

Mission

The lgs foundation is dedicated to improving the lives of individuals living with lennox-gastaut syndrome, a rare and catastrophic form of epilepsy, through research, programs and education.

The lgs foundation is dedicated to providing information about lennox-gastaut syndrome while raising funds for research, services and support for individuals living with lgs and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$288,394$386,859▲ $98,465
Cash and Non-Interest-Bearing Accounts$306,434$232,779▼ $73,655
Savings and Temporary Cash Investments$300,556$211,704▼ $88,852
Accounts Receivable-$178,684-
Prepaid Expenses and Deferred Charges$12,000--
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$620,048$623,167▲ $3,119
Other Assets Total$1,058--
Liabilities
Deferred Revenue$325,000$200,000▼ $125,000
Accounts Payable and Accrued Expenses$6,654$36,308▲ $29,654
Total Liabilities$331,654$236,308▼ $95,346
Net Assets / Fund Balance
Total Net Assets Fund Balance$288,394$386,859▲ $98,465
Total Liabilities and Net Assets / Fund Balance$620,048$623,167▲ $3,119
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Christina SaninocencioExecutive DirectorFT$91,166$91,166

Board Members and Trustees

NameTitle
Natalie GilmorePresident
Elizabeth TerryVice President
Christopher Mitchell JdBoard Member
Dale ToddBoard Member
Melanie Huntley PhdBoard Member
Karen GroffSecretary
John CurrierTreasuer

Highest Paid Contractors

ContractorServicesLocationCompensation
Tracy Dixon-salazarResearch Consulting Serivces10287 VERACRUZ COURT, San Diego, CA 92124$102,083
Revenue and Support

Revenue Composition

Contributions and Grants
$767,633
Program Service Revenue
$0
Investment Income
$98
Other Revenue
$6,603
All Other Contributions
$742,179
Change in Net Assets
$111,226
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$585,608
Grants and Similar Amounts Paid$77,500
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$319,946--$319,946
Conferences and Meetings$204,108--$204,108
Grants to Domestic Orgs$77,500--$77,500
Travel$13,609$9,550-$23,159
Office Expenses$5,036$6,591-$11,627
Advertising$1,273$1,784-$3,057
Insurance-$2,512-$2,512
All Other Expenses$589--$589
Information Technology-$497-$497
Other Expenses-$141-$141
Total Functional Expenses$622,061$41,047$0$663,108
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern UniversityChicago, IL-Research to Study Lgs-

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$26,745
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk N Wheel$14,189-$5,724-
Lgs Awareness Day$5,593-$5,762-
Total Events$25,454-$26,745$-26,745
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

“Contractors are hired to perfrom research consulting to l.g.s. Foundation in order to help rovide additional research and resources for explanation in relation to lennox-gastaut syndrome.”

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by the organization's public accounting firm based on information provided by management. Once the draft is available, it is reviewed by management and any changes incorporated into the filing. Once this detailed review is complete, the draft of the form 990 is presented to the board of directors for their review and comments prior to filing with the irs."”

Form 990, Part VI, Section C, Line 18

“No documents available to the public”

Form 990, Part VI, Section C, Line 19

“No documents available to the public”

Form 990 Part VI Line 11B

“Organization's process to review form 990 president of the organization reviews the 990.”

Filing and Contact Details

Filer

Filer Name
Lgs Foundation Inc
EIN
26-2051377
Phone
7183743800
Address
80 ORVILLE DR NO 100, BOHEMIA, NY 11716

Signing Officer

Name
Natalie Gilmore
Title
President
Phone
7183743800
Signed
2020-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Natalie Gilmore
Formed
2008
Legal Domicile
Ny
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
100

Preparer

Firm
Cliftonlarsonallen Llp
Address
5550 WILD ROSE LANE SUITE 300, WEST DES MOINES, IA 50266-5304
Preparer
David Little
Phone
5152224400
Supplemental Narrative

Additional Explanations

Part V Line 2B

“Board members are not compensated. Any work or assistance done on behalf of the organization is done so through independent contractors. Independent contractors are compensated according to industry standards and the fair market value of the services they provide to lgsf.”

Raw XML AppendixShowing 400 of 484 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0405800
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt023750
IRS990/PYInvestmentIncomeAmt0175
IRS990/PYOtherExpensesAmt0258310
IRS990/PYOtherRevenueAmt018925
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0142840
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0282060
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0424900
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0111226
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt0288394
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt0386859
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0300556
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0211704
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0775527
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0405800
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0397945
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0278906
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0199621
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02057799
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt00
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt019000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt016000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt012619
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt047619
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearAmt025454
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt030532
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus2YearsAmt042244
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt065177
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus4YearsAmt02000
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt0165407
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt098
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt0175
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt0159
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt076
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt0128
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt0636
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99970
IRS990ScheduleA/PublicSupportPY509Pct00.99960
IRS990ScheduleA/PublicSupportTotal509Amt02270825
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0800981
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0455332
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0440189
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0360083
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0214240
IRS990ScheduleA/Total509Grp/TotalAmt02270825
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0801079
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0455507
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0440348
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0360159
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0214368
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02271461
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt025000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH TO STUDY LGS
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0245 BURGUNDY STREET
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0GRANT APPLICATIONS ARE RECEIVED ANNUAL AND QUALIFIED APPLICANTS AFFILIATED WITH AN ACCREDITED UNIVERSITY ARE REVIEWED BY AN EXTERNAL REVIEW PANEL OF SCIENTIFIC EXPERTS. SCIENTIFIC SCORING IS BASED ON THE NIH RO1 GRANT SCORING SYSTEM AND FINAL SCIENTIFIC SCORES ARE SHARED WITH THE BOARD OF DIRECTORS (BOD). THE LGSF BOD THEN CONSIDERS THE SCIENTIFIC MERIT OF EACH GRANT IN THE CONTEXT OF ORGANIZATIONAL GOALS AND VOTES TO FUND APPROVED RESEARCH GRANTS ON AN ANNUAL BASIS. GRANTEES PROVIDE PROGRESS REPORTS EVERY 6 MONTHS, WHICH ALLOWS ALLOCATION OF FUNDS FOR THE NEXT GRANT PERIOD, AND PROVIDE FINAL PROGRESS REPORTS AT THE END OF THE PROJECT.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1PART III ACCOUNTING METHOD:
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/AgrmtProfFundraisingActyInd00
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt025454
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt05593
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt014189
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt05672
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt026745
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0LGS AWARENESS DAY
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0WALK N WHEEL
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt012598
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt012598
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt05593
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt014189
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt05672
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt025454
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-26745
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt02661
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt014147
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt05762
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt05724
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/PhoneSolicitationsInd0X
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt047500
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH TO STUDY LGS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0NORTHWESTERN UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0362167817
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0303 E CHICAGO AVE WARD 9-250
IRS990ScheduleI/RecipientTable/USAddress/CityNm0CHICAGO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0IL
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd060611
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0GRANT APPLICATIONS ARE RECEIVED ANNUAL AND QUALIFIED APPLICANTS AFFILIATED WITH AN ACCREDITED UNIVERSITY ARE REVIEWED BY AN EXTERNAL REVIEW PANEL OF SCIENTIFIC EXPERTS. SCIENTIFIC SCORING IS BASED ON THE NIH RO1 GRANT SCORING SYSTEM AND FINAL SCIENTIFIC SCORES ARE SHARED WITH THE BOARD OF DIRECTORS (BOD). THE LGSF BOD THEN CONSIDERS THE SCIENTIFIC MERIT OF EACH GRANT IN THE CONTEXT OF ORGANIZATIONAL GOALS AND VOTES TO FUND APPROVED RESEARCH GRANTS ON AN ANNUAL BASIS. GRANTEES PROVIDE PROGRESS REPORTS EVERY 6 MONTHS, WHICH ALLOWS ALLOCATION OF FUNDS FOR THE NEXT GRANT PERIOD, AND PROVIDE FINAL PROGRESS REPORTS AT THE END OF THE PROJECT.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt02
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0BOARD MEMBERS ARE NOT COMPENSATED. ANY WORK OR ASSISTANCE DONE ON BEHALF OF THE ORGANIZATION IS DONE SO THROUGH INDEPENDENT CONTRACTORS. INDEPENDENT CONTRACTORS ARE COMPENSATED ACCORDING TO INDUSTRY STANDARDS AND THE FAIR MARKET VALUE OF THE SERVICES THEY PROVIDE TO LGSF.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1CONTRACTORS ARE HIRED TO PERFROM RESEARCH CONSULTING TO L.G.S. FOUNDATION IN ORDER TO HELP ROVIDE ADDITIONAL RESEARCH AND RESOURCES FOR EXPLANATION IN RELATION TO LENNOX-GASTAUT SYNDROME.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE FORM 990 IS PREPARED BY THE ORGANIZATION'S PUBLIC ACCOUNTING FIRM BASED ON INFORMATION PROVIDED BY MANAGEMENT. ONCE THE DRAFT IS AVAILABLE, IT IS REVIEWED BY MANAGEMENT AND ANY CHANGES INCORPORATED INTO THE FILING. ONCE THIS DETAILED REVIEW IS COMPLETE, THE DRAFT OF THE FORM 990 IS PRESENTED TO THE BOARD OF DIRECTORS FOR THEIR REVIEW AND COMMENTS PRIOR TO FILING WITH THE IRS."
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5ORGANIZATION'S PROCESS TO REVIEW FORM 990 PRESIDENT OF THE ORGANIZATION REVIEWS THE 990.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0PART V LINE 2B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990 PART VI LINE 11B
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$623,167
Liabilities
$236,308
Net assets
$386,859
Revenue
$774,334
Expenses
$663,108
Net income
$111,226
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.98$0.26$0.72$1.25$1.57$0.32
2023Detailed filing. Detailed filing data is available for this year.$1.28$0.24$1.04$1.07$1.25$0.18
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.60$0.38$1.22$1.36$1.38$0.02
2021Detailed filing. Detailed filing data is available for this year.$1.49$0.26$1.23$0.79$0.72$0.06
2020Detailed filing. Detailed filing data is available for this year.$1.39$0.22$1.17$1.17$0.38$0.78
2019Detailed filing. Detailed filing data is available for this year.$0.62$0.24$0.39$0.77$0.66$0.11
2018Detailed filing. Detailed filing data is available for this year.$0.62$0.33$0.29$0.42$0.28$0.14
2017Detailed filing. Detailed filing data is available for this year.$0.40$0.26$0.15$0.43$0.48$0.05
2016Detailed filing. Detailed filing data is available for this year.$0.50$0.31$0.20$0.34$0.31$0.03
2015Detailed filing. Detailed filing data is available for this year.$0.33$0.16$0.17$0.21$0.18$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.29$0.15$0.13$0.29$0.27$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.35$0.25$0.11$0.25$0.16$0.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.05$0.00$0.05$0.09$0.09$0.00
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.06$0.00$0.06$0.14$0.09$0.04
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.01$0.01$0.00$0.06$0.06$0.00