Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
EIN 26-2051377 • 501(c)3 • San Diego, CA
Profile
The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
12th percentile
Higher net margin than 12% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
8th percentile
Faster asset growth than 8% of similar nonprofits.
Revenue Growth
28th percentile
Faster revenue growth than 28% of similar nonprofits.
Assets
Down$984,047
Down $297,357 (-23%) from 2023
Liabilities
Up$260,544
Up $16,886 (+6.9%) from 2023
Net Assets
Down$723,503
Down $314,243 (-30%) from 2023
Revenue
Up$1,248,197
Up $177,536 (+17%) from 2023
Expenses
Up$1,565,600
Up $312,316 (+25%) from 2023
Net Income
Down-$317,403
Down $134,780 (-74%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
The lgs foundation is dedicated to improving the lives of individuals living with lennox-gastaut syndrome, a rare and catastrophic form of epilepsy, through research, programs and education.
The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $524,425 | $660,438 | ▲ $136,013 |
| Cash and Non-Interest-Bearing Accounts | $427,066 | $130,483 | ▼ $296,583 |
| Accounts Receivable | $57,180 | $81,222 | ▲ $24,042 |
| Prepaid Expenses and Deferred Charges | $8,344 | $59,536 | ▲ $51,192 |
| Savings and Temporary Cash Investments | $254,849 | $52,368 | ▼ $202,481 |
| Land, Buildings, and Equipment, Net | $9,540 | - | - |
| Total Assets | $1,281,404 | $984,047 | ▼ $297,357 |
| Liabilities | |||
| Grants Payable | $67,490 | $139,990 | ▲ $72,500 |
| Deferred Revenue | $155,000 | $115,500 | ▼ $39,500 |
| Accounts Payable and Accrued Expenses | $21,168 | $5,054 | ▼ $16,114 |
| Total Liabilities | $243,658 | $260,544 | ▲ $16,886 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $976,671 | $642,281 | ▼ $334,390 |
| Net Assets With Donor Restrictions | $61,075 | $81,222 | ▲ $20,147 |
| Total Net Assets Fund Balance | $1,037,746 | $723,503 | ▼ $314,243 |
| Total Liabilities and Net Assets / Fund Balance | $1,281,404 | $984,047 | ▼ $297,357 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | - | $38,159 | $38,159 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Tracy Dixon-Salazar PhD | Executive Director | FT | $132,498 | $132,498 |
| Amber Mathas | Sr Director of Operations | FT | $94,661 | $94,661 |
| Name | Title |
|---|---|
| Fred Roedl | Chair |
| Deena Andreola | Board Member |
| Jacqueline Villatoro | Board Member |
| Kat Belendiuk PhD | Board Member |
| Dale Todd | Secretary |
| Kevin Merritt CFA | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $721,619 |
| Salaries, Compensation, and Employee Benefits | $687,981 |
| Grants and Similar Amounts Paid | $156,000 |
| Total Fundraising Expense | $53,165 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $332,456 | $39,260 | $17,761 | $389,477 |
| Conferences and Meetings | $234,016 | $123 | $18,074 | $252,213 |
| Current Officers, Directors, Trustees, and Key Employees | $193,902 | $22,898 | $10,359 | $227,159 |
| Travel | $170,312 | - | - | $170,312 |
| Grants to Domestic Orgs | $156,000 | - | - | $156,000 |
| Fees for Services Other | $130,672 | $8,780 | - | $139,452 |
| Payroll Taxes | $43,000 | $5,070 | $2,310 | $50,380 |
| Information Technology | $46,450 | $1,469 | $448 | $48,367 |
| Fees for Services Accounting | - | $37,370 | - | $37,370 |
| Advertising | $32,656 | - | - | $32,656 |
| Office Expenses | $15,282 | $9,468 | $4,109 | $28,859 |
| Other Employee Benefits | $14,889 | $5,972 | $104 | $20,965 |
| Depreciation Depletion | $9,540 | - | - | $9,540 |
| Fees for Services Legal | - | $2,190 | - | $2,190 |
| Occupancy | - | $660 | - | $660 |
| Total Functional Expenses | $1,379,175 | $133,260 | $53,165 | $1,565,600 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,565,600 |
| Total Expenses per Audited Statements | $1,565,600 |
| Total Expenses per Form 990 | $1,565,600 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Stanford University | Los Angeles, CA | 501c3 | Grant | $37,500 |
| Mayo Clinic | Rochester, MN | 501c3 | Grant | $30,000 |
| Danny Did Foundation | Evanston, IL | 501c3 | Grant | $5,000 |
| Northwestern University | Chicago, IL | 501c3 | Grant | $5,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Contractors are hired to perform research consulting to L.G.S. Foundation in order to help provide additional research and resources for explanation in relation to Lennox-Gastaut Syndrome.”
“A copy of form 990 and all related schedules is provided to the executive committee of the board of directors and the full board of directors for review prior to filing with the Internal Revenue Service.”
“A conflict of interest disclosures statement is distributed and signed by each board member annually. Conflicts are dealt with on a case-by-case basis.”
“LGSF makes its governing documents and conflict of interest policy available to the public upon prior written request from the president. Financial statements are available for public view on the organizations website.”
“The finance committee is responsible for overseeing the audit.”
“Contracted Services: $130,672Payroll Fees: $8,780”
“Event Expenses”
“Event Expenses”
“The Foundation is exempt from federal income taxes under section 501(c)(3) of the Internal Revenue code. The accounting standard on accounting for uncertainity in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorde in the financial statements. Under that guidance, the Foundation may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the techincal mertis of the position. Examples of tax positions include the tax exempt status of the Foundation and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial Statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilties for at December 31, 2024. The Foundations policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during 2024. Generally, the Foundation is no longer subject to U.S. Federal or State examinations for returns filed prior to the previous three years.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 21168 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 5054 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 57180 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 81222 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 32656 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 32656 |
| IRS990/AllOtherContributionsAmt | 0 | 1142243 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | LGS FOUNDATION INC |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7183743800 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6030 Santo Road Suite 1 NO 420878 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | San Diego |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 92142 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 427066 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 130483 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 10359 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22898 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 193902 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 227159 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 18074 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 123 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 234016 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 252213 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1142243 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 156000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 28637 |
| IRS990/CYOtherExpensesAmt | 0 | 721619 |
| IRS990/CYOtherRevenueAmt | 0 | 3503 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 73814 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -317403 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 687981 |
| IRS990/CYTotalExpensesAmt | 0 | 1565600 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 53165 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1248197 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 155000 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 115500 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | true |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 9540 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 9540 |
| IRS990/Desc | 0 | LGS Family Support, Education, and Empowerment Programs: Receiving a diagnosis of LGS is overwhelming and leaves families with many unanswered questions. The LGS Foundation provides comprehensive support and educational programs to over 12,000 members impacted by LGS, offering direct assistance through individual consultations, resource navigation, and financial aid for medical expenses not covered by insurance. In 2024, our private, online caregiver community reached 7,500 members, with 51 ambassadors in 8 countries who help local families navigate the LGS journey. In 2024, 653 new families were onboarded to our support community and 34 online support groups were hosted, including groups for Spanish-speaking families, Dads, and Caregivers of Adults living with LGS. 461 New Family Welcome Kits, 224 About LGS Treatment Kits, 246 Sibling Support Kits, and 494 Adult Care Binders were mailed to help families navigate the different stages of their LGS journeys. The LGS Foundation also supported approximately 140 bereaved families who have lost their loved ones to LGS. Further, we have funded over $120,000 in patient assistance grants since our inception. The LGS Foundations family support and education efforts continue to grow as we focus on supporting families locally and globally. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | Lennox-Gastaut Syndrome LGS Fd |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 61075 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 81222 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 11 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 642921 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 37370 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 37370 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2190 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2190 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8780 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 130672 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 139452 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Tracy Dixon-Salazar PhD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Amber Mathas |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Deena Andreola |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Kat Belendiuk PhD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Jacqueline Villatoro |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Kevin Merritt CFA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Dale Todd |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Fred Roedl |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 132498 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 94661 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Sr Director of Operations |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Chair |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 156000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 67490 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 139990 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 156000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 156000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1248197 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 448 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1469 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 46450 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 48367 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 28637 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 28637 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 524425 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 660438 |
| IRS990/IRPDocumentCnt | 0 | 8 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 38159 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 9540 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 38159 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1037746 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 723503 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 3160 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 976671 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 642281 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 660 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 660 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 4109 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 9468 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 15282 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 28859 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 104 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5972 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 14889 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 20965 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Miscellaneous |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 3503 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 3503 |
| IRS990/OtherRevenueTotalAmt | 0 | 3503 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 17761 |
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| IRS990/PrincipalOfficerNm | 0 | Tracy Dixon-Salazar PhD |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | The LGS Foundation organized its biennial International Family & Professional Conference, hosting three days of educational, scientific, and community-building sessions for more than 350 attendees, including families, clinicians, scientists, allied health providers, and industry partners around the world. The conference featured 18 expert-led educational sessions, six interactive clinical and research workshops, and breakout groups on sleep management, SUDEP prevention, behavioral and cognitive therapies, and transition planning to adult care. Dedicated family engagement programming included a Sib Camp for siblings, full inclusion of individuals with LGS, and caregiver roundtables to share lived expertise and foster peer connections. LGS Family and Professional Conference: Additionally, the conference provided access to one-on-one consultations with renowned epilepsy experts, allowing families to ask questions about diagnosis, therapies, genetic testing, and individualized care strategies. An on-site resource fair, supported by 14 partner organizations and sponsors, gave participants direct access to information on clinical trials, assistive technologies, and community services. The Foundation awarded 168 travel scholarships, 84 for individuals who have never attended the conference, and provided accessibility services to ensure the event was inclusive and accessible to families who could not attend. Conference presentations were recorded and distributed post-event, with over 6,500 views and ongoing access supporting lifelong learning for stakeholders unable to attend in person. This multifaceted event continues to advance the LGS Foundations goal of nurturing a well-informed, resilient, and interconnected global community. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Research Grants and Funded Initiatives: To date, the LGS Foundation has hosted 12 international LGS research convenings and awarded over $2 million in competitive research grants supporting 18 high-impact projects focused on understanding disease mechanisms, improving treatments, and advancing toward cures for LGS. These convenings and grants have contributed to significant scientific progress, including studies on novel therapeutic approaches and clinical trial endpoints. The Foundations research portfolio supported 2 new funded studies in 2024, one on moving us towards preventing LGS by identifying early risk factors and one on formulating an international consensus for the diagnosis and management of LGS. Findings from convenings and grants are published in peer-reviewed journals and presented at major scientific conferences. The LGS Foundation also supports the LGS Learn from Every Patient Database, a natural history registry that includes electronic health records and real-world data from caregivers living with LGS. Research efforts have ramped up to increase this dramatically over the next 5 years. Research areas include death in LGS, SUDEP, understanding where the electrographic features of LGS originate in the brain, drug discovery, targeted treatments, genetics, epidemiology, and neural networks. The Foundations commitment to research has helped accelerate research on LGS, which would not otherwise be undertaken. These accomplishments reflect the Foundations dedication to improving the lives of individuals with LGS and their families through robust support, education, and research initiatives. |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | The Foundation is exempt from federal income taxes under section 501(c)(3) of the Internal Revenue code. The accounting standard on accounting for uncertainity in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorde in the financial statements. Under that guidance, the Foundation may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the techincal mertis of the position. Examples of tax positions include the tax exempt status of the Foundation and various positions related to the potential sources of unrelated business taxable income (UBIT). The tax benefits recognized in the financial Statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilties for at December 31, 2024. The Foundations policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during 2024. Generally, the Foundation is no longer subject to U.S. Federal or State examinations for returns filed prior to the previous three years. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part XI, Line 2d-Other revenue included on Sch D but not on 990 |
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| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) |
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