Civic Intelligence

Lgs Foundation Inc

990 • Fiscal year 2020 • EIN 26-2051377

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 15, 2021

Organization ProfileWWW.LGSFOUNDATION.ORG
6030 Santo Road Ste 1 No 420878San Diego, CA 92142

(718) 374-3800

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.16x

Higher debt load relative to assets than 58% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

58th percentile

0.19x

Higher debt load relative to revenue than 58% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

94th percentile

67%

Higher net margin than 94% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

37th percentile

$0

Higher top officer pay than 37% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

94th percentile

124%

Faster asset growth than 94% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

87th percentile

50%

Faster revenue growth than 87% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets58th percentile

Assets

$1,393,791

No earlier filing loaded for comparison.

Net Assets

$1,169,575

No earlier filing loaded for comparison.

Liabilities

$224,216

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin94th percentile

Revenue

$1,165,055

No earlier filing loaded for comparison.

Expenses

$382,339

No earlier filing loaded for comparison.

Net Income

$782,716

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2020: $1,393,791Liabilities 2020: $224,216Net Assets 2020: $1,169,5752020

Highlighted filing

2020

Assets$1,393,791
Liabilities$224,216
Net Assets$1,169,575
Open 2020 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0Revenue 2020: $1,165,055Expenses 2020: $382,339Net Income 2020: $782,7162020

Highlighted filing

2020

Revenue$1,165,055
Expenses$382,339
Net Income$782,716
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 15, 2021
Return Version
2020v4.1
Gross Receipts
$1,216,096
Mission and Program Overview

Mission

The lgs foundation is dedicated to improving the lives of individuals living with lennox-gastaut syndrome, a rare and catastrophic form of epilepsy, through research, programs and education.

The mission of the lgs foundation is to improve the lives of those impacted by lennox-gastaut syndrome through advancing research, awareness, education, and family support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$386,859$1,169,575▲ $782,716
Cash and Non-Interest-Bearing Accounts$232,779$931,634▲ $698,855
Accounts Receivable$178,684$250,333▲ $71,649
Savings and Temporary Cash Investments$211,704$211,824▲ $120
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$623,167$1,393,791▲ $770,624
Other Assets Total$0$0→ $0
Liabilities
Deferred Revenue$200,000$200,000→ $0
Accounts Payable and Accrued Expenses$36,308$24,216▼ $12,092
Total Liabilities$236,308$224,216▼ $12,092
Net Assets / Fund Balance
Total Net Assets Fund Balance$386,859$1,169,575▲ $782,716
Total Liabilities and Net Assets / Fund Balance$623,167$1,393,791▲ $770,624
Compensation and Service Providers
Top Officer Pay37th percentile

Board Members and Trustees

NameTitle
Natalie GilmorePresident
Karen GroffVice President
Dale ToddBoard Member
Melanie Huntley PhdBoard Member
Tracy Dixon-salazarExecutive Director
John CurrierFormer Treasurer, Left Dec 2020
Elizabeth TerryFormer VP, Left Dec 2020
Christopher Mitchell JdSecretary
Kevin MerrittTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,215,976
Program Service Revenue
$0
Investment Income
$120
Other Revenue
$-51,041
All Other Contributions
$858,808
Change in Net Assets
$782,716
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$329,839
Grants and Similar Amounts Paid$52,500
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$218,356--$218,356
Grants to Domestic Orgs$52,500--$52,500
Information Technology-$43,243-$43,243
Fees for Services Accounting-$22,567-$22,567
Travel$378$12,325-$12,703
Office Expenses$820$7,709-$8,529
Advertising$3,353$4,444-$7,797
Fees for Services Legal-$7,020-$7,020
All Other Expenses$425$5,112-$5,537
Occupancy-$2,074-$2,074
Insurance-$2,013-$2,013
Total Functional Expenses$275,832$106,507$0$382,339
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OF ORANGE COUNTY-501(c)(3)Research to Study Lgs$25,000
University of California San Francisco-501(c)(3)Research to Study Lgs$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$51,041
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Lgs Virtual Conference$161,997-$34,476-
Lgs Awareness Day$131,889-$10,897-
Total Events$357,168-$51,041$-51,041
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

“Contractors are hired to perform research consulting to l.g.s. Foundation in order to help rovide additional research and resources for explanation in relation to lennox-gastaut syndrome.”

Form 990, Part VI, Section B, Line 11B

“A copy of form 990 and all related schedules is provided to the executive committee of the board of directors and the full board of directors for review prior to filing with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“A conflict of interest disclosures statement is distributed and signed by each board member annually. Conflicts are dealt with on a case-by-case basis.”

Form 990, Part VI, Section C, Line 19

“Lgsf makes its governing documents and conflict of interest policy available to the public upon prior written request from the president. Financial statements are available for public view on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Lgs Foundation Inc
EIN
26-2051377
Phone
7183743800
Address
6030 SANTO ROAD STE 1 NO 420878, SAN DIEGO, CA 92142

Signing Officer

Name
Tracy Dixon-salazar
Title
Executive Director
Phone
7183743800
Signed
2021-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tracy Dixon-salazar
Formed
2008
Legal Domicile
Ny
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
120

Preparer

Firm
Cliftonlarsonallen Llp
Address
5550 WILD ROSE LANE SUITE 300, WEST DES MOINES, IA 50266-5304
Preparer
David Little
Phone
5152224400
Supplemental Narrative

Additional Explanations

Part V Line 2B

“Board members are not compensated. Any work or assistance done on behalf of the organization is done so through independent contractors. Independent contractors are compensated according to industry standards and the fair market value of the services they provide to lgsf.”

Part XII Line 2C

“The finance committee is responsible for overseeing the audit.”

Raw XML AppendixShowing 400 of 453 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt036308
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt024216
IRS990/AccountsReceivableGrp/BOYAmt0178684
IRS990/AccountsReceivableGrp/EOYAmt0250333
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE MISSION OF THE LGS FOUNDATION IS TO IMPROVE THE LIVES OF THOSE IMPACTED BY LENNOX-GASTAUT SYNDROME THROUGH ADVANCING RESEARCH, AWARENESS, EDUCATION, AND FAMILY SUPPORT.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/ManagementAndGeneralAmt04444
IRS990/AdvertisingGrp/ProgramServicesAmt03353
IRS990/AdvertisingGrp/TotalAmt07797
IRS990/AllOtherContributionsAmt0858808
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt05112
IRS990/AllOtherExpensesGrp/ProgramServicesAmt0425
IRS990/AllOtherExpensesGrp/TotalAmt05537
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0TRACY DIXON-SALAZAR
IRS990/BooksInCareOfDetail/PhoneNum08587350183
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt06030 SANTO ROAD STE 1 NO 420878
IRS990/BooksInCareOfDetail/USAddress/CityNm0SAN DIEGO
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd092142
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt00
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt00
IRS990/CashNonInterestBearingGrp/BOYAmt0232779
IRS990/CashNonInterestBearingGrp/EOYAmt0931634
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0357168
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01215976
IRS990/CYGrantsAndSimilarPaidAmt052500
IRS990/CYInvestmentIncomeAmt0120
IRS990/CYOtherExpensesAmt0329839
IRS990/CYOtherRevenueAmt0-51041
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0782716
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0382339
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01165055
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt0200000
IRS990/DeferredRevenueGrp/EOYAmt0200000
IRS990/DelegationOfMgmtDutiesInd01
IRS990/Desc0LGSF FUNDS RESEARCH FOR BETTER TREATMENTS AND CURES FOR LGS AND LGS-RELATED EPILEPSIES BY AWARDING RESEARCH GRANTS TO QUALIFIED SCIENTISTS AND CLINICIANS. THESE GRANTS FUND INITIAL RESEARCH HYPOTHESES THAT HAVE NOT BEEN FULLY EXPLORED. THE RESULTS EXTRACTED FROM THIS TYPE OF RESEARCH WILL HELP BRING UNTESTED RESEARCH TO THE POINT THAT IT MAY QUALIFY FOR LARGER GOVERNMENTAL FUNDING. SINCE 2013, LGS HAS AWARDED OVER HALF A MILLION DOLLARS TO 13 RESEARCH ENDEAVORS AND EFFORTS ARE RAMPING UP STARTING IN 2020 TO INCREASE THIS DRAMATICALLY. RESEARCH AREAS INCLUDE DEATH IN LGS, SUDEP, UNDERSTANDING WHERE THE ELECTROGRAPHIC FEATURES OF LGS ORIGINATE IN THE BRAIN, DRUG DISCOVERY, DRUG SCREENING, TREATMENTS, GENETICS, EPIDEMIOLOGY, AND NEURAL NETWORKS. IN 2020, LGSF BROUGHT ON A NEW EXECUTIVE DIRECTOR (ED) THAT ALSO HAS A PH.D. IN NEUROSCIENCE. THE ED SERVES AS A PEER BETWEEN THE PATIENT, SCIENTIFIC/MEDICAL COMMUNITY, DEVELOPS STRATEGIES TO FIND THE CURES, PREPARES ORIGINAL MANUSCRIPTS, AND HELPS CATALYZE AND SYNERGIES EFFORTS BETWEEN PATIENTS, FAMILIES, FOUNDATIONS, THE NIH, FDA, PHARMA, AND BIOTECH.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0241356
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt022567
IRS990/FeesForServicesAccountingGrp/TotalAmt022567
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt07020
IRS990/FeesForServicesLegalGrp/TotalAmt07020
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt0218356
IRS990/FeesForServicesManagementGrp/TotalAmt0218356
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt44.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt860.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/PersonNm0NATALIE GILMORE
IRS990/Form990PartVIISectionAGrp/PersonNm1ELIZABETH TERRY
IRS990/Form990PartVIISectionAGrp/PersonNm2KAREN GROFF
IRS990/Form990PartVIISectionAGrp/PersonNm3JOHN CURRIER
IRS990/Form990PartVIISectionAGrp/PersonNm4CHRISTOPHER MITCHELL JD
IRS990/Form990PartVIISectionAGrp/PersonNm5DALE TODD
IRS990/Form990PartVIISectionAGrp/PersonNm6MELANIE HUNTLEY PHD
IRS990/Form990PartVIISectionAGrp/PersonNm7KEVIN MERRITT
IRS990/Form990PartVIISectionAGrp/PersonNm8TRACY DIXON-SALAZAR
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1FORMER VP, LEFT DEC 2020
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3FORMER TREASURER, LEFT DEC 2020
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt8EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0357168
IRS990/FundraisingDirectExpensesAmt051041
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GrantAmt052500
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt052500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt052500
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01216096
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartVInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt043243
IRS990/InformationTechnologyGrp/TotalAmt043243
IRS990/InsuranceGrp/ManagementAndGeneralAmt02013
IRS990/InsuranceGrp/TotalAmt02013
IRS990/InvestmentIncomeGrp/ExclusionAmt0120
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0120
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt09
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE LGS FOUNDATION IS DEDICATED TO IMPROVING THE LIVES OF INDVIDUALS LIVING WITH LENNOX-GASTAUT SYNDROME, A RARE AND CATASTROPHIC FORM OF EPILEPSY, THROUGH RESEARCH, PROGRAMS AND EDUCATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0386859
IRS990/NetAssetsOrFundBalancesEOYAmt01169575
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-51041
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-51041
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt02074
IRS990/OccupancyGrp/TotalAmt02074
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07709
IRS990/OfficeExpensesGrp/ProgramServicesAmt0820
IRS990/OfficeExpensesGrp/TotalAmt08529
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/PartialLiquidationInd00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0TRACY DIXON-SALAZAR
IRS990/ProfessionalFundraisingInd01
IRS990/ProgSrvcAccomActy2Grp/Desc0RECEIVING A DIAGNOSIS OF LGS IS OVERWHELMING AND LEAVES FAMILIES WITH MANY UNANSWERED QUESTIONS. LGSF PROVIDES PATIENT NAVIGATOR AND FAMILY SUPPORT TO ALL LIVING WITH LGS SO THAT NOBODY HAS TO WALK THE JOURNEY ALONE. WE HOST A BIENNIAL PROFESSIONAL AND FAMILY CONFERENCE DESIGNED TO UNITE THE COMMUNITY OF PATIENTS, FAMILIES, CAREGIVERS, RESEARCHERS, CLINICIANS, AND OTHER PROFESSIONALS. OUR 2020 VIRTUAL CONFERENCE BROUGHT TOGETHER MORE THAN 420 FAMILIES FROM AROUND THE WORLD FOR THIS 3-DAY EVENT. THE PURPOSE OF THE CONFERENCE IS TO BRING THE LATEST MEDICAL AND SCIENTIFIC INFORMATION TO FAMILIES LIVING WITH LGS AND TO HEAR FROM PATIENT FAMILY EXPERTS AS THEY ADVISE PROFESSIONALS AS TO WHAT MATTERS MOST TO THEM IN THEIR DAILY LIVES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt034476
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0LGSF PRODUCES AN ANNUAL RESEARCH ROUNDTABLE MEETING TO PROVIDE RESEARCHERS AND CLINICIANS THE OPPORTUNITY TO COLLABORATE AND BETTER DISCUSS RESEARCH AND TREATMENT OPTIONS FOR LGS AND TO DESIGN OUR ROADMAP TOWARDS THE CURES. THE LGS RESEARCH ROUNDTABLE DRAWS IN MORE THAN 100 PARTICIPANTS AND ADDRESSES UNMET NEEDS IN RESEARCH, MEDICAL CARE, HEALTHCARE PROVIDER EDUCATION, AND MORE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt00
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0767633
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt077500
IRS990/PYInvestmentIncomeAmt098
IRS990/PYOtherExpensesAmt0585608
IRS990/PYOtherRevenueAmt06603
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0111226
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0663108
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0774334
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0782716
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt0386859
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt01169575
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0211704
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0211824
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0858808
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0775527
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0405800
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0397945
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0278906
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02716986
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0120
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0120
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt019000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt016000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt035000
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearAmt0357168
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt025454
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus2YearsAmt030532
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt042244
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus4YearsAmt065177
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt0520575
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0120
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0120
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt098
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt0175
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt0159
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt076
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt0508
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99980
IRS990ScheduleA/PublicSupportPY509Pct00.99970
IRS990ScheduleA/PublicSupportTotal509Amt03272561
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt01215976
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0800981
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0455332
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0440189
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0360083
IRS990ScheduleA/Total509Grp/TotalAmt03272561
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt01216096
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0801079
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0455507
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0440348
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0360159
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03273189
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleG/AgrmtProfFundraisingActyInd00
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0357168
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0161997
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0131889
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt063282
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt051041
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0LGS VIRTUAL CONFERENCE
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LGS AWARENESS DAY
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0161997
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0131889
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt063282
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0357168
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-51041
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt05668
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt051041
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt034476
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt010897
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/PhoneSolicitationsInd0X
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/CashGrantAmt125000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH TO STUDY LGS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH TO STUDY LGS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF CALIFORNIA SAN FRANCISCO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHILDREN'S HOSPITAL OF ORANGE COUNTY
IRS990ScheduleI/RecipientTable/RecipientEIN0680000845
IRS990ScheduleI/RecipientTable/RecipientEIN1952321786
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0GRANT APPLICATIONS ARE RECEIVED ANNUAL AND QUALIFIED APPLICANTS AFFILIATED WITH AN ACCREDITED UNIVERSITY ARE REVIEWED BY AN EXTERNAL REVIEW PANEL OF SCIENTIFIC EXPERTS. SCIENTIFIC SCORING IS BASED ON THE NIH RO1 GRANT SCORING SYSTEM AND FINAL SCIENTIFIC SCORES ARE SHARED WITH THE BOARD OF DIRECTORS (BOD). THE LGSF BOD THEN CONSIDERS THE SCIENTIFIC MERIT OF EACH GRANT IN THE CONTEXT OF ORGANIZATIONAL GOALS AND VOTES TO FUND APPROVED RESEARCH GRANTS ON AN ANNUAL BASIS. GRANTEES PROVIDE PROGRESS REPORTS EVERY 6 MONTHS, WHICH ALLOWS ALLOCATION OF FUNDS FOR THE NEXT GRANT PERIOD, AND PROVIDE FINAL PROGRESS REPORTS AT THE END OF THE PROJECT.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt02
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0BOARD MEMBERS ARE NOT COMPENSATED. ANY WORK OR ASSISTANCE DONE ON BEHALF OF THE ORGANIZATION IS DONE SO THROUGH INDEPENDENT CONTRACTORS. INDEPENDENT CONTRACTORS ARE COMPENSATED ACCORDING TO INDUSTRY STANDARDS AND THE FAIR MARKET VALUE OF THE SERVICES THEY PROVIDE TO LGSF.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1CONTRACTORS ARE HIRED TO PERFORM RESEARCH CONSULTING TO L.G.S. FOUNDATION IN ORDER TO HELP ROVIDE ADDITIONAL RESEARCH AND RESOURCES FOR EXPLANATION IN RELATION TO LENNOX-GASTAUT SYNDROME.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A COPY OF FORM 990 AND ALL RELATED SCHEDULES IS PROVIDED TO THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS AND THE FULL BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A CONFLICT OF INTEREST DISCLOSURES STATEMENT IS DISTRIBUTED AND SIGNED BY EACH BOARD MEMBER ANNUALLY. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4LGSF MAKES ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC UPON PRIOR WRITTEN REQUEST FROM THE PRESIDENT. FINANCIAL STATEMENTS ARE AVAILABLE FOR PUBLIC VIEW ON THE ORGANIZATION'S WEBSITE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSEEING THE AUDIT.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0PART V LINE 2B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5PART XII LINE 2C
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0623167
IRS990/TotalAssetsEOYAmt01393791
IRS990/TotalAssetsGrp/BOYAmt0623167
IRS990/TotalAssetsGrp/EOYAmt01393791
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt01215976
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0106507
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0275832
IRS990/TotalFunctionalExpensesGrp/TotalAmt0382339
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0236308
IRS990/TotalLiabilitiesEOYAmt0224216
IRS990/TotalLiabilitiesGrp/BOYAmt0236308
IRS990/TotalLiabilitiesGrp/EOYAmt0224216
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0386859
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01169575
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0275832
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt0-50921
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt01165055

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,393,791
Liabilities
$224,216
Net assets
$1,169,575
Revenue
$1,165,055
Expenses
$382,339
Net income
$782,716
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2020Detailed filing. Detailed filing data is available for this year.$1.39$0.22$1.17$1.17$0.38$0.78