Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
990 • Fiscal year 2023 • EIN 26-1761329
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
86th percentile
Higher net margin than 86% of similar nonprofits.
Top Officer Pay
68th percentile
Higher top officer pay than 68% of similar nonprofits.
Top officer pay equals 6.9% of source-year revenue.
Asset Growth
77th percentile
Faster asset growth than 77% of similar nonprofits.
Revenue Growth
17th percentile
Faster revenue growth than 17% of similar nonprofits.
Assets
Up$3,531,624
Up $606,504 (+21%) from 2022
Net Assets
Up$3,346,012
Up $554,416 (+20%) from 2022
Liabilities
Up$185,612
Up $52,088 (+39%) from 2022
Revenue
Down$1,461,428
Down $378,064 (-21%) from 2022
Expenses
Up$907,012
Up $141,444 (+18%) from 2022
Net Income
Down$554,416
Down $519,508 (-48%) from 2022
To find treatments for nemaline myopathy.
To find treatments for Nemaline Myopathy
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $2,663,853 | $2,881,405 | ▲ $217,552 |
| Cash and Non-Interest-Bearing Accounts | - | $249,975 | - |
| Prepaid Expenses and Deferred Charges | $230,945 | $204,232 | ▼ $26,713 |
| Accounts Receivable | $30,322 | $46,012 | ▲ $15,690 |
| Total Assets | $2,925,120 | $3,531,624 | ▲ $606,504 |
| Other Assets Total | - | $150,000 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $70,112 | $185,612 | ▲ $115,500 |
| Deferred Revenue | $63,411 | - | - |
| Other Liabilities | $1 | - | - |
| Total Liabilities | $133,524 | $185,612 | ▲ $52,088 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $2,791,596 | $3,346,012 | ▲ $554,416 |
| Total Net Assets Fund Balance | $2,791,596 | $3,346,012 | ▲ $554,416 |
| Total Liabilities and Net Assets / Fund Balance | $2,925,120 | $3,531,624 | ▲ $606,504 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Assets Org | $150,000 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Jennifer Tozer | Development Director | FT | $101,009 | $101,009 |
| Name | Title |
|---|---|
| Marc Guillet | President |
| Boris Shimanovsky | Director |
| Guilherme Machado | Director |
| Leticia Machado | Director |
| Lyn Baier | Director |
| Matt Lloyd | Director |
| Sam Lipsick | Director |
| Sharon Shimanovsky | Secretary |
| Kelly Lloyd | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Jennifer Tozer | Management | 1746 Thorley Way, San Marcos, CA 92078 | $101,009 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $617,501 |
| Other Expenses | $188,502 |
| Salaries, Compensation, and Employee Benefits | $101,009 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $432,916 | - | - | $432,916 |
| Foreign Grants | $184,585 | - | - | $184,585 |
| Fees for Services Other | $29,293 | $111,095 | - | $140,388 |
| Other Salaries and Wages | $21,076 | $79,933 | - | $101,009 |
| Conferences and Meetings | $13,277 | $3,058 | - | $16,335 |
| Fees for Services Accounting | - | $7,881 | - | $7,881 |
| Information Technology | - | $6,130 | - | $6,130 |
| Office Expenses | $171 | $3,146 | - | $3,317 |
| Insurance | - | $1,353 | - | $1,353 |
| Other Expenses | $3,659 | $831 | - | $831 |
| Advertising | $682 | - | - | $682 |
| Total Functional Expenses | $685,659 | $221,353 | $0 | $907,012 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Brigham & Womens Hospital | Boston, MA | 501c3 | Research | $244,175 |
| University of Washington | Seattle, WA | 501c3 | Research | $108,333 |
| UC Riverside | Riverside, CA | 501c3 | Research | $69,786 |
| CureCMD Inc | Torrance, CA | 501c3 | Research | $5,429 |
| University of Arizona | Tucson, AZ | 501c3 | Research | $5,193 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America Not the United States | Program services | Medical Research | - | - | $93,745 |
| Europe including Iceland and Greenland | Program services | Medical Research | - | - | $90,833 |
| East Asia and the Pacific | Program services | Medical Research | - | - | $7 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $156,122 |
| Fundraising Direct Expenses | $15,167 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| LoveLive | $72,392 | $72,392 | $6,674 | $65,718 |
| NYC Marathon | $23,043 | $23,043 | $3,704 | $19,339 |
| Total Events | $156,122 | $156,122 | $15,167 | $140,955 |
“The Organization has three pairs of spouses on The Board.”
“The tax return is reviewed by the finance committee prior to filing.”
“Board members are reminded of the importance of disclosing any potential related parties at the beginning of each board meeting.”
“Governing documents and policies are avaialble at The Organizations address upon request.”
“Consulting: $117,219Contract Labor: $13,990Fundraising Expenses: $9,179”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 70112 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 185612 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 30322 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 46012 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To find treatments for Nemaline Myopathy |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 682 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 682 |
| IRS990/AllOtherContributionsAmt | 0 | 1269206 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | The Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4082120207 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3825 El Camino Real |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Palo Alto |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94306 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 249975 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 3058 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 13277 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 16335 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 101009 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 1746 Thorley Way |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | San Marcos |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 92078 |
| IRS990/ContractorCompensationGrp/ContractorName/PersonNm | 0 | Jennifer Tozer |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Management |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1269206 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 617501 |
| IRS990/CYInvestmentIncomeAmt | 0 | 51267 |
| IRS990/CYOtherExpensesAmt | 0 | 188502 |
| IRS990/CYOtherRevenueAmt | 0 | 140955 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 554416 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 101009 |
| IRS990/CYTotalExpensesAmt | 0 | 907012 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1461428 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 63411 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | The largest program services include the research grants to foreign and domestic organizations researching Nemaline Myopathy science. Domestically, these grants supported research to test the inhibitory molecule to the protein myostatin; gene replacement therapy on gene KLHl41; correcting muscle function in nm by mutation independent approaches; and soft robotic garments research to assist in lower-limb function.The foreign grants supported research on drug repurposing for the treatment of NEB Nemaline Myopathy; tested genetic therapies on ACTA NM; and CRISPR/CAS9 research on NEB NM. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 685659 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7881 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7881 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 111095 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 29293 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 140388 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 184585 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 184585 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Jennifer Tozer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Leticia Machado |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Guilherme Machado |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Boris Shimanovsky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Matt Lloyd |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Lyn Baier |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Sam Lipsick |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Sharon Shimanovsky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Marc Guillet |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Kelly Lloyd |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 101009 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Development Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 15167 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 156122 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantAmt | 0 | 617501 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 432916 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 432916 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1476595 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 6130 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6130 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1353 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1353 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 51267 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 51267 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 13 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To find treatments for Nemaline Myopathy |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2791596 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 3346012 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 140955 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 140955 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2791596 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3346012 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3146 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 171 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3317 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 150000 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Bank Charges & Fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Miscellaneous |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 7926 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 831 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 3659 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 11585 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 831 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 1 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 79933 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 21076 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 101009 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 230945 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 204232 |
| IRS990/PrincipalOfficerNm | 0 | Marc Guillet |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1721248 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 420697 |
| IRS990/PYInvestmentIncomeAmt | 0 | 4713 |
| IRS990/PYOtherExpensesAmt | 0 | 344871 |
| IRS990/PYOtherRevenueAmt | 0 | 113531 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 1073924 |
| IRS990/PYTotalExpensesAmt | 0 | 765568 |
| IRS990/PYTotalRevenueAmt | 0 | 1839492 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 554416 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 2663853 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 2881405 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1269206 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1741351 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1126280 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 361591 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 436204 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4934632 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 51267 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 4713 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 624 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4510 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 61114 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 51267 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 4713 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 624 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 4510 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 61114 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.01000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.98780 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99600 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4934632 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1269206 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1741351 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1126280 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 361591 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 436204 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4934632 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1320473 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1746064 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1126904 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 361591 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 440714 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4995746 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/OtherAssetsOrgGrp/BookValueAmt | 0 | 150000 |
| IRS990ScheduleD/OtherAssetsOrgGrp/Desc | 0 | Refunds Receivable |
| IRS990ScheduleD/TotalBookValueOtherAssetsAmt | 0 | 150000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 93745 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 1 | 90833 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 2 | 7 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | North America Not the United States |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 1 | Europe including Iceland and Greenland |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 2 | East Asia and the Pacific |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | Medical Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 1 | Medical Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 2 | Medical Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 1 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 2 | Program services |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 90833 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 93745 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Medical Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | Medical Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe including Iceland and Greenland |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | North America Not the United States |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 184585 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization monitors use of funds granted both within and outside of the United States. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Use of grant monitoring procedures (Part I, line 2) |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 184585 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 15167 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | LoveLive |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | NYC Marathon |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 72392 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 23043 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 60687 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 156122 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 72392 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 23043 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 60687 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 156122 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 140955 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 4789 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 15167 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 6674 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 3704 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 3 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 244175 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 108333 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 69786 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 5429 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 5193 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501c3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | Research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | Research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | Research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Brigham & Womens Hospital |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | University of Washington |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | UC Riverside |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | CureCMD Inc |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | University of Arizona |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 042312909 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 916001537 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 956006142 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 262640975 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 742652689 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO Box 3887 Finance Research |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | Box 354966 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 900 University Avenue Bldg 1111 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 19401 S Vermont Avenue Ste J100 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 1303 E University Blvd Box 3 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Seattle |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Riverside |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Torrance |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.