Civic Intelligence

A Foundation Building Strength Inc

EIN 26-1761329 • 501(c)3 • Palo Alto, CA

Profile

To find treatments for Nemaline Myopathy

3825 El Camino RealPalo Alto, CA 94306

buildingstrength.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

44th percentile

0.04x

Higher debt load relative to assets than 44% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

57th percentile

0.12x

Higher debt load relative to revenue than 57% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

21st percentile

-11%

Higher net margin than 21% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

59th percentile

7.2%

Faster asset growth than 59% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

12th percentile

-24%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets44th percentile

Assets

Down

$3,358,607

Down $173,017 (-4.9%) from 2023

Liabilities

Down

$128,832

Down $56,780 (-31%) from 2023

Net Assets

Down

$3,229,775

Down $116,237 (-3.5%) from 2023

Operations
Liabilities / Revenue57th percentileNet Margin21st percentile

Revenue

Down

$1,048,763

Down $412,665 (-28%) from 2023

Expenses

Up

$1,163,106

Up $256,094 (+28%) from 2023

Net Income

Down

-$114,343

Down $668,759 (-121%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth59th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $293,549Liabilities 2011: $73,698Net Assets 2011: $219,8512011Assets 2012: $413,169Liabilities 2012: $0Net Assets 2012: $413,1692012Assets 2013: $520,153Liabilities 2013: $0Net Assets 2013: $520,1532013Assets 2014: $811,058Liabilities 2014: $875Net Assets 2014: $810,1832014Assets 2015: $651,997Liabilities 2015: $22,216Net Assets 2015: $629,7812015Assets 2016: $945,607Liabilities 2016: $37,361Net Assets 2016: $908,2462016Assets 2017: $1,099,169Liabilities 2017: $10,495Net Assets 2017: $1,088,6742017Assets 2018: $1,195,196Liabilities 2018: $277,389Net Assets 2018: $917,8072018Assets 2019: $1,175,528Liabilities 2019: $116,948Net Assets 2019: $1,058,5802019Assets 2020: $1,220,038Liabilities 2020: $45,338Net Assets 2020: $1,174,7002020Assets 2021: $1,820,254Liabilities 2021: $102,582Net Assets 2021: $1,717,6722021Assets 2022: $2,925,120Liabilities 2022: $133,524Net Assets 2022: $2,791,5962022Assets 2023: $3,531,624Liabilities 2023: $185,612Net Assets 2023: $3,346,0122023Assets 2024: $3,358,607Liabilities 2024: $128,832Net Assets 2024: $3,229,7752024

Highlighted filing

2024

Assets$3,358,607
Liabilities$128,832
Net Assets$3,229,775
Open 2024 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $321,1402011Expenses 2012: $37,5122012Revenue 2013: $313,134Expenses 2013: $206,150Net Income 2013: $106,9842013Revenue 2014: $339,614Expenses 2014: $49,584Net Income 2014: $290,0302014Revenue 2015: $350,089Expenses 2015: $530,491Net Income 2015: -$180,4022015Revenue 2016: $597,190Expenses 2016: $319,261Net Income 2016: $277,9292016Revenue 2017: $458,196Expenses 2017: $277,757Net Income 2017: $180,4392017Revenue 2018: $506,009Expenses 2018: $676,876Net Income 2018: -$170,8672018Revenue 2019: $440,714Expenses 2019: $299,941Net Income 2019: $140,7732019Revenue 2020: $362,525Expenses 2020: $246,405Net Income 2020: $116,1202020Revenue 2021: $1,126,904Expenses 2021: $583,931Net Income 2021: $542,9732021Revenue 2022: $1,839,492Expenses 2022: $765,568Net Income 2022: $1,073,9242022Revenue 2023: $1,461,428Expenses 2023: $907,012Net Income 2023: $554,4162023Revenue 2024: $1,048,763Expenses 2024: $1,163,106Net Income 2024: -$114,3432024

Highlighted filing

2024

Revenue$1,048,763
Expenses$1,163,106
Net Income-$114,343
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$3,358,607
Liabilities
$128,832
Net assets
$3,229,775
Revenue
$1,048,763
Expenses
$1,163,106
Net income
-$114,343
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.36$0.13$3.23$1.05$1.16$0.11
2023Detailed filing. Detailed filing data is available for this year.$3.53$0.19$3.35$1.46$0.91$0.55
2022Detailed filing. Detailed filing data is available for this year.$2.93$0.13$2.79$1.84$0.77$1.07
2021Detailed filing. Detailed filing data is available for this year.$1.82$0.10$1.72$1.13$0.58$0.54
2020Detailed filing. Detailed filing data is available for this year.$1.22$0.05$1.17$0.36$0.25$0.12
2019Detailed filing. Detailed filing data is available for this year.$1.18$0.12$1.06$0.44$0.30$0.14
2018Detailed filing. Detailed filing data is available for this year.$1.20$0.28$0.92$0.51$0.68$0.17
2017Detailed filing. Detailed filing data is available for this year.$1.10$0.01$1.09$0.46$0.28$0.18
2016Detailed filing. Detailed filing data is available for this year.$0.95$0.04$0.91$0.60$0.32$0.28
2015Detailed filing. Detailed filing data is available for this year.$0.65$0.02$0.63$0.35$0.53$0.18
2014Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.34$0.05$0.29
2013Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.52$0.31$0.21$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.41$0.00$0.41$0.04
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.07$0.22$0.32
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 15, 2025
Return Version
2024v5.2
Gross Receipts
$1,062,932
Mission and Program Overview

Mission

To find treatments for nemaline myopathy.

To find treatments for Nemaline Myopathy

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,881,405$2,243,741▼ $637,664
Accounts Receivable$46,012$534,439▲ $488,427
Cash and Non-Interest-Bearing Accounts$249,975$372,984▲ $123,009
Pledges and Grants Receivable-$194,143-
Prepaid Expenses and Deferred Charges$204,232$13,300▼ $190,932
Total Assets$3,531,624$3,358,607▼ $173,017
Other Assets Total$150,000--
Liabilities
Accounts Payable and Accrued Expenses$185,612$128,832▼ $56,780
Total Liabilities$185,612$128,832▼ $56,780
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,346,012$3,229,775▼ $116,237
Total Net Assets Fund Balance$3,346,012$3,229,775▼ $116,237
Total Liabilities and Net Assets / Fund Balance$3,531,624$3,358,607▼ $173,017
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Jennifer TozerExecutive DirectorFT$115,000$115,000

Board Members and Trustees

NameTitle
Marc GuilletPresident
Boris ShimanovskyDirector
Guilherme MachadoDirector
Leticia MachadoDirector
Lyn BaierDirector
Matt LloydDirector
Sam LipsickDirector
Sharon ShimanovskySecretary
Kelly LloydTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$950,307
Program Service Revenue
$0
Investment Income
$110,613
Other Revenue
$-12,157
All Other Contributions
$602,711
Change in Net Assets
$-114,343
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$821,705
Other Expenses$216,813
Salaries, Compensation, and Employee Benefits$124,588
Total Fundraising Expense$76,139
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$798,905--$798,905
Fees for Services Other$133,089$9,096$17,247$159,432
Current Officers, Directors, Trustees, and Key Employees$74,750$11,500$28,750$115,000
Foreign Grants$22,800--$22,800
Fees for Services Accounting-$11,605-$11,605
Information Technology$721$9,727$200$10,648
Payroll Taxes--$9,588$9,588
Conferences and Meetings$9,314--$9,314
Insurance-$2,725-$2,725
Travel$2,009--$2,009
Other Expenses--$1,020$1,020
Office Expenses$525$201-$726
Total Functional Expenses$1,042,113$44,854$76,139$1,163,106
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Brigham & Womens HospitalBoston, MA501c3Research$237,267
Nationwide Childrens HospitalColumbus, OH501c3Research$174,037
Boston Childrens HospitalBoston, MA501c3Research$110,000
University of WashingtonSeattle, WA501c3Research$109,748
UC RiversideRiverside, CA501c3Research$30,000

International Summary

Spending
$22,800

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesMedical Research--$22,800
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$12,352
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
EoY Campaign$200,449-$3,835-
LoveLiv$59,096-$2,145-
Total Events$314,801-$12,352$-12,352
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“The Organization has three pairs of spouses on The Board.”

Form 990 governing body review Part VI line 11

“The tax return is reviewed by the finance committee prior to filing.”

Conflict of interest policy compliance Part VI line 12C

“Board members are reminded of the importance of disclosing any potential related parties at the beginning of each board meeting.”

CEO executive director top management comp Part VI line 15A

“Compensation is reviewed by independent Board members, including the President, using comparative data from a rare disease nonprofit consultant and considering organization size and annual revenue. Approved compensation is reflected in the annual budget and formalized in the executed employment agreement, providing contemporaneous substantiation.”

Governing documents etc available to public Part VI line 19

“Governing documents and policies are avaialble at The Organizations address upon request.”

Filing and Contact Details

Filer

Filer Name
A Foundation Building Strength Inc
EIN
26-1761329
In Care Of
% Kelly Lloyd
Phone
4082120207
Address
3825 El Camino Real, Palo Alto, CA 94306

Signing Officer

Name
Kelly Lloyd
Title
Treasurer
Phone
4082120207
Signed
2025-10-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marc Guillet
Formed
2008
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
1
Volunteers
25

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Consulting: $144,596 Contract Labor: $9,785 Fundraising Expenses: $5,051”

Raw XML AppendixShowing 400 of 500 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0185612
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0128832
IRS990/AccountsReceivableGrp/BOYAmt046012
IRS990/AccountsReceivableGrp/EOYAmt0534439
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To find treatments for Nemaline Myopathy
IRS990/AllOtherContributionsAmt0602711
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0The Organization
IRS990/BooksInCareOfDetail/PhoneNum04082120207
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03825 El Camino Real
IRS990/BooksInCareOfDetail/USAddress/CityNm0Palo Alto
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd094306
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0249975
IRS990/CashNonInterestBearingGrp/EOYAmt0372984
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt028750
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt011500
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt074750
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0115000
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt09314
IRS990/ConferencesMeetingsGrp/TotalAmt09314
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt0347596
IRS990/CostOfGoodsSoldAmt01817
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0950307
IRS990/CYGrantsAndSimilarPaidAmt0821705
IRS990/CYInvestmentIncomeAmt0110613
IRS990/CYOtherExpensesAmt0216813
IRS990/CYOtherRevenueAmt0-12157
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-114343
IRS990/CYSalariesCompEmpBnftPaidAmt0124588
IRS990/CYTotalExpensesAmt01163106
IRS990/CYTotalFundraisingExpenseAmt076139
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01048763
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0The largest program services include research grants to foreign and domestic organizations advancing Nemaline Myopathy science. Domestically, grants supported the development of gene therapy for ACTA1-based Nemaline Myopathy; gene replacement and drug screening studies for KLHL40-, KLHL41-related forms; creation of patient-derived 3D muscle models to test potential treatments; maintenance of a national biobank to advance research and clinical trial readiness; and development of soft robotic garments to assist lower-limb movement and improve mobility for children with NM. Internationally, grants supported research to test therapies for KBTBD13-related Nemaline Myopathy (NEM6) using a mouse model to determine treatment timing and efficacy in preventing or reversing disease progression.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt01042113
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt011605
IRS990/FeesForServicesAccountingGrp/TotalAmt011605
IRS990/FeesForServicesOtherGrp/FundraisingAmt017247
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt09096
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0133089
IRS990/FeesForServicesOtherGrp/TotalAmt0159432
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt022800
IRS990/ForeignGrantsGrp/TotalAmt022800
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt23.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt83.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0Jennifer Tozer
IRS990/Form990PartVIISectionAGrp/PersonNm1Marc Guillet
IRS990/Form990PartVIISectionAGrp/PersonNm2Lyn Baier
IRS990/Form990PartVIISectionAGrp/PersonNm3Sam Lipsick
IRS990/Form990PartVIISectionAGrp/PersonNm4Matt Lloyd
IRS990/Form990PartVIISectionAGrp/PersonNm5Kelly Lloyd
IRS990/Form990PartVIISectionAGrp/PersonNm6Leticia Machado
IRS990/Form990PartVIISectionAGrp/PersonNm7Guilherme Machado
IRS990/Form990PartVIISectionAGrp/PersonNm8Boris Shimanovsky
IRS990/Form990PartVIISectionAGrp/PersonNm9Sharon Shimanovsky
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0115000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Secretary
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0347596
IRS990/FundraisingDirectExpensesAmt012352
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantAmt0821705
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0798905
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0798905
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt01062932
IRS990/GrossSalesOfInventoryAmt02012
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0200
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt09727
IRS990/InformationTechnologyGrp/ProgramServicesAmt0721
IRS990/InformationTechnologyGrp/TotalAmt010648
IRS990/InsuranceGrp/ManagementAndGeneralAmt02725
IRS990/InsuranceGrp/TotalAmt02725
IRS990/InvestmentIncomeGrp/ExclusionAmt0110613
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0110613
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0To find treatments for Nemaline Myopathy
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt03346012
IRS990/NetAssetsOrFundBalancesEOYAmt03229775
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-12352
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-12352
IRS990/NetIncomeOrLossGrp/ExclusionAmt0195
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0195
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-1894
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03346012
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03229775
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0201
IRS990/OfficeExpensesGrp/ProgramServicesAmt0525
IRS990/OfficeExpensesGrp/TotalAmt0726
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0150000
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0Classy Fees
IRS990/OtherExpensesGrp/Desc1Bank Fees
IRS990/OtherExpensesGrp/FundraisingAmt019334
IRS990/OtherExpensesGrp/FundraisingAmt11020
IRS990/OtherExpensesGrp/TotalAmt019334
IRS990/OtherExpensesGrp/TotalAmt11020
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt09588
IRS990/PayrollTaxesGrp/TotalAmt09588
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0194143
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0204232
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt013300
IRS990/PrincipalOfficerNm0Marc Guillet
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01269206
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0617501
IRS990/PYInvestmentIncomeAmt051267
IRS990/PYOtherExpensesAmt0188502
IRS990/PYOtherRevenueAmt0140955
IRS990/PYRevenuesLessExpensesAmt0554416
IRS990/PYSalariesCompEmpBnftPaidAmt0101009
IRS990/PYTotalExpensesAmt0907012
IRS990/PYTotalRevenueAmt01461428
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-114343
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02881405
IRS990/SavingsAndTempCashInvstGrp/EOYAmt02243741
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0950307
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01269206
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt01741351
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01126280
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0361591
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt05448735
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0110613
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt051267
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt04713
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0624
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0167217
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0110613
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt051267
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt04713
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0624
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0167217
IRS990ScheduleA/InvestmentIncomeCYPct00.03000
IRS990ScheduleA/InvestmentIncomePYPct00.01000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97020
IRS990ScheduleA/PublicSupportPY509Pct00.98780
IRS990ScheduleA/PublicSupportTotal509Amt05448735
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0950307
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt01269206
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt01741351
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt01126280
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0361591
IRS990ScheduleA/Total509Grp/TotalAmt05448735
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt01060920
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt01320473
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt01746064
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt01126904
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0361591
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt05615952
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt022800
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Medical Research
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt022800
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Medical Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Europe including Iceland and Greenland
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt022800
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalSpentAmt022800
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0314801
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0200449
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt059096
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt055256
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt012352
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0EoY Campaign
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LoveLiv
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0200449
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt059096
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt055256
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0314801
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-12352
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt06372
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt012352
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt03835
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt02145
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt03
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0237267
IRS990ScheduleI/RecipientTable/CashGrantAmt1109748
IRS990ScheduleI/RecipientTable/CashGrantAmt230000
IRS990ScheduleI/RecipientTable/CashGrantAmt3174037
IRS990ScheduleI/RecipientTable/CashGrantAmt4110000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501c3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Brigham & Womens Hospital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Washington
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2UC Riverside
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Nationwide Childrens Hospital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Boston Childrens Hospital
IRS990ScheduleI/RecipientTable/RecipientEIN0042312909
IRS990ScheduleI/RecipientTable/RecipientEIN1916001537
IRS990ScheduleI/RecipientTable/RecipientEIN2956006142
IRS990ScheduleI/RecipientTable/RecipientEIN3316056230
IRS990ScheduleI/RecipientTable/RecipientEIN4042774441
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO Box 3887 Finance Research
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1Box 354966
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2900 University Avenue Bldg 1111
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3700 Childrens Dr
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4300 Longwood Ave
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Seattle
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Riverside
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Columbus
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Boston
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1WA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd0022413887
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd198195

Document Assets

No mirrored PDF or thumbnail assets are attached yet.