Civic Intelligence

A Foundation Building Strength Inc.

990 • Fiscal year 2016 • EIN 26-1761329

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 04, 2017

3825 El Camino RealPalo Alto, CA 94306

(650) 320-8000

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

50th percentile

0.04x

Higher debt load relative to assets than 50% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

57th percentile

0.06x

Higher debt load relative to revenue than 57% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

91st percentile

47%

Higher net margin than 91% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

88th percentile

45%

Faster asset growth than 88% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

91st percentile

71%

Faster revenue growth than 91% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Assets

Up

$945,607

Up $293,610 (+45%) from 2015

Net Assets

Up

$908,246

Up $278,465 (+44%) from 2015

Liabilities

Up

$37,361

Up $15,145 (+68%) from 2015

Revenue

Up

$597,190

Up $247,101 (+71%) from 2015

Expenses

Down

$319,261

Down $211,230 (-40%) from 2015

Net Income

Up

$277,929

Up $458,331 (+254%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $293,549Liabilities 2011: $73,698Net Assets 2011: $219,8512011Assets 2012: $413,169Liabilities 2012: $0Net Assets 2012: $413,1692012Assets 2013: $520,153Liabilities 2013: $0Net Assets 2013: $520,1532013Assets 2014: $811,058Liabilities 2014: $875Net Assets 2014: $810,1832014Assets 2015: $651,997Liabilities 2015: $22,216Net Assets 2015: $629,7812015Assets 2016: $945,607Liabilities 2016: $37,361Net Assets 2016: $908,2462016Assets 2017: $1,099,169Liabilities 2017: $10,495Net Assets 2017: $1,088,6742017Assets 2018: $1,195,196Liabilities 2018: $277,389Net Assets 2018: $917,8072018Assets 2019: $1,175,528Liabilities 2019: $116,948Net Assets 2019: $1,058,5802019Assets 2020: $1,220,038Liabilities 2020: $45,338Net Assets 2020: $1,174,7002020Assets 2021: $1,820,254Liabilities 2021: $102,582Net Assets 2021: $1,717,6722021Assets 2022: $2,925,120Liabilities 2022: $133,524Net Assets 2022: $2,791,5962022Assets 2023: $3,531,624Liabilities 2023: $185,612Net Assets 2023: $3,346,0122023Assets 2024: $3,358,607Liabilities 2024: $128,832Net Assets 2024: $3,229,7752024

Highlighted filing

2016

Assets$945,607
Liabilities$37,361
Net Assets$908,246

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $321,1402011Expenses 2012: $37,5122012Revenue 2013: $313,134Expenses 2013: $206,150Net Income 2013: $106,9842013Revenue 2014: $339,614Expenses 2014: $49,584Net Income 2014: $290,0302014Revenue 2015: $350,089Expenses 2015: $530,491Net Income 2015: -$180,4022015Revenue 2016: $597,190Expenses 2016: $319,261Net Income 2016: $277,9292016Revenue 2017: $458,196Expenses 2017: $277,757Net Income 2017: $180,4392017Revenue 2018: $506,009Expenses 2018: $676,876Net Income 2018: -$170,8672018Revenue 2019: $440,714Expenses 2019: $299,941Net Income 2019: $140,7732019Revenue 2020: $362,525Expenses 2020: $246,405Net Income 2020: $116,1202020Revenue 2021: $1,126,904Expenses 2021: $583,931Net Income 2021: $542,9732021Revenue 2022: $1,839,492Expenses 2022: $765,568Net Income 2022: $1,073,9242022Revenue 2023: $1,461,428Expenses 2023: $907,012Net Income 2023: $554,4162023Revenue 2024: $1,048,763Expenses 2024: $1,163,106Net Income 2024: -$114,3432024

Highlighted filing

2016

Revenue$597,190
Expenses$319,261
Net Income$277,929
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 4, 2017
Return Version
2016v3.0
Gross Receipts
$597,190
Mission and Program Overview

Mission

To find treatments for nemaline myopathy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$605,959$909,199▲ $303,240
Accounts Receivable$46,038$34,441▼ $11,597
Prepaid Expenses and Deferred Charges-$1,967-
Cash and Non-Interest-Bearing Accounts-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$651,997$945,607▲ $293,610
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$22,216$37,361▲ $15,145
Total Liabilities$22,216$37,361▲ $15,145
Net Assets / Fund Balance
Unrestricted Net Assets$629,781$908,246▲ $278,465
Total Net Assets Fund Balance$629,781$908,246▲ $278,465
Total Liabilities and Net Assets / Fund Balance$651,997$945,607▲ $293,610
Compensation and Service Providers

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$596,853
Program Service Revenue
$0
Investment Income
$337
Other Revenue
$0
All Other Contributions
$596,853
Change in Net Assets
$277,929
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$156,025
Other Expenses$83,243
Salaries, Compensation, and Employee Benefits$79,993
Total Fundraising Expense$4,472
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$156,025--$156,025
Other Salaries and Wages$62,893$11,099-$73,992
Conferences and Meetings$40,445--$40,445
Fees for Services Accounting-$15,212-$15,212
Fees for Services Other$8,540$1,507-$10,047
Payroll Taxes$5,101$900-$6,001
Insurance-$2,040-$2,040
Information Technology-$1,224-$1,224
Travel$569$100-$669
Other Expenses$4,729$3,955$299$299
All Other Expenses-$285-$285
Office Expenses-$145-$145
Fees for Services Legal-$20-$20
Advertising--$10$10
Total Functional Expenses$278,302$36,487$4,472$319,261
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Institute of Medical ResearchNetherlands, WA-ACTA1 NM Therapeutic Approaches$95,794
College of Medicine ArizonaTucson, AZ-Nebulin-NM mechanisms & treatment$60,000
College of MedicineTucson, AZ-Gene therapy for nebulin-based NM$39,000
Childrens Hospital WisconsinMilwaukee, WI-NM global tissue banking$34,958
Vu University Medical Center--Myofiblar mechanics & muscle weakne$30,000
Childrens Hospital WisconsinMilwaukee, WI, Nl-Mitochondrial Cell Study$10,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
AustraliaRefund From GrantGrant Award00$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

Two board members are related to each other through marriage.

Form 990, Part VI, Line 11B: Form 990 Review Process

The tax return is reviewed by the finance committee prior to filing.

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

Board members are reminded of the importance of disclosing and potential related parties at the beginning of each board meeting

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

No documents available to the public.

Filing and Contact Details

Filer

Filer Name
A Foundation Building Strength Inc
EIN
26-1761329
Phone
6503208000
Address
3825 EL CAMINO REAL, PALO ALTO, CA 94306

Signing Officer

Name
Marc Guillet
Title
President
Signed
2017-11-04
Discuss with paid preparer
Yes

Organization Details

Formed
2008
Legal Domicile
CA
Voting Board Members
7
Independent Board Members
5
Employees
1
Volunteers
50

Preparer

Firm
Vavrinek Trine Day & Co LLP
Address
5000 Hopyard Road Suite 335, Pleasanton, CA 94588-3351
Preparer
Terri Montgomery
Phone
9257346600
Raw XML AppendixShowing 400 of 494 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt022216
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt037361
IRS990/AccountsReceivableGrp/BOYAmt046038
IRS990/AccountsReceivableGrp/EOYAmt034441
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO FIND TREATMENTS FOR NEMALINE MYOPATHY.
IRS990/AdvertisingGrp/FundraisingAmt010
IRS990/AdvertisingGrp/TotalAmt010
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0596853
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0285
IRS990/AllOtherExpensesGrp/TotalAmt0285
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0MARC GUILLET
IRS990/BooksInCareOfDetail/PhoneNum06503208000
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03825 EL CAMINO REAL
IRS990/BooksInCareOfDetail/USAddress/CityNm0PALO ALTO
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd094306
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/EOYAmt00
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt040445
IRS990/ConferencesMeetingsGrp/TotalAmt040445
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0596853
IRS990/CYGrantsAndSimilarPaidAmt0156025
IRS990/CYInvestmentIncomeAmt0337
IRS990/CYOtherExpensesAmt083243
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0277929
IRS990/CYSalariesCompEmpBnftPaidAmt079993
IRS990/CYTotalExpensesAmt0319261
IRS990/CYTotalFundraisingExpenseAmt04472
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0597190
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0MEDICAL RESEARCH
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonatedServicesAndUseFcltsAmt0536
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt0278302
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt015212
IRS990/FeesForServicesAccountingGrp/TotalAmt015212
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt020
IRS990/FeesForServicesLegalGrp/TotalAmt020
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt01507
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt08540
IRS990/FeesForServicesOtherGrp/TotalAmt010047
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt54.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/PersonNm0MARC GUILLET
IRS990/Form990PartVIISectionAGrp/PersonNm1JOHN KERSHNER
IRS990/Form990PartVIISectionAGrp/PersonNm2WILLIE QUINN
IRS990/Form990PartVIISectionAGrp/PersonNm3CLIFF KATZ JD
IRS990/Form990PartVIISectionAGrp/PersonNm4BORIS SHIMANOVSKY
IRS990/Form990PartVIISectionAGrp/PersonNm5PATRICIA MITCHELL
IRS990/Form990PartVIISectionAGrp/PersonNm6SHARON FIEDLER-SHIMANOVSKY JD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/Form990TFiledInd0false
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0156025
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0156025
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0597190
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt05
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01224
IRS990/InformationTechnologyGrp/TotalAmt01224
IRS990/InsuranceGrp/ManagementAndGeneralAmt02040
IRS990/InsuranceGrp/TotalAmt02040
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt0337
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0337
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0CA
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO FIND TREATMENTS FOR NEMALINE MYOPATHY.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0629781
IRS990/NetAssetsOrFundBalancesEOYAmt0908246
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt0967
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0145
IRS990/OfficeExpensesGrp/TotalAmt0145
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0GRANTS
IRS990/OtherExpensesGrp/Desc1FUNDRAISING EXPENSES
IRS990/OtherExpensesGrp/Desc2BANK CHARGES
IRS990/OtherExpensesGrp/Desc3Postage and Shipping
IRS990/OtherExpensesGrp/FundraisingAmt04163
IRS990/OtherExpensesGrp/FundraisingAmt1299
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03955
IRS990/OtherExpensesGrp/ProgramServicesAmt04729
IRS990/OtherExpensesGrp/TotalAmt04729
IRS990/OtherExpensesGrp/TotalAmt14163
IRS990/OtherExpensesGrp/TotalAmt23955
IRS990/OtherExpensesGrp/TotalAmt3299
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt011099
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt062893
IRS990/OtherSalariesAndWagesGrp/TotalAmt073992
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0900
IRS990/PayrollTaxesGrp/ProgramServicesAmt05101
IRS990/PayrollTaxesGrp/TotalAmt06001
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01967
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0349748
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0399005
IRS990/PYInvestmentIncomeAmt0341
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt024733
IRS990/PYRevenuesLessExpensesAmt0-180402
IRS990/PYSalariesCompEmpBnftPaidAmt0106753
IRS990/PYTotalExpensesAmt0530491
IRS990/PYTotalRevenueAmt0350089
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0277929
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0605959
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0909199
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt0193356
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0193356
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0596853
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0349458
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0339149
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0312607
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0229276
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01827343
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt0465
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0527
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt01554
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt02546
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt0465
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0527
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt01554
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt02546
IRS990ScheduleA/InvestmentIncomeCYPct00.00140
IRS990ScheduleA/InvestmentIncomePYPct00.00250
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.86320
IRS990ScheduleA/PublicSupportPY509Pct00.99750
IRS990ScheduleA/PublicSupportTotal509Amt01579607
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt0247736
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0247736
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt054380
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt054380
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0596853
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0349458
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0339149
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0312607
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0229276
IRS990ScheduleA/Total509Grp/TotalAmt01827343
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0596853
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0349458
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0339614
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0313134
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0230830
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01829889
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0AUSTRALIA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0GRANT AWARD
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0REFUND FROM GRANT
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0RECEIVED REFUND OF GRANT FUNDS PREVIOUSLY PAID TO ORGANIZATION IN AUSTRALIA.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt010000
IRS990ScheduleI/RecipientTable/CashGrantAmt134958
IRS990ScheduleI/RecipientTable/CashGrantAmt239000
IRS990ScheduleI/RecipientTable/CashGrantAmt360000
IRS990ScheduleI/RecipientTable/CashGrantAmt495794
IRS990ScheduleI/RecipientTable/CashGrantAmt530000
IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt0Office 12W51 0/2 Building
IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd0NL
IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd01011
IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm0AMSTERDAM
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt40
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt50
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Mitochondrial Cell Study
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1NM global tissue banking
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Gene therapy for nebulin-based NM
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Nebulin-NM mechanisms & treatment
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4ACTA1 NM Therapeutic Approaches
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5Myofiblar mechanics & muscle weakne
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CHILDRENS HOSPITAL WISCONSIN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHILDRENS HOSPITAL WISCONSIN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2COLLEGE OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3COLLEGE OF MEDICINE ARIZONA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4INSTITUTE OF MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5VU UNIVERSITY MEDICAL CENTER
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt08915 W Connell Ct
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt18915 W Connell Ct
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2UNIVERSITY OF ARIZONA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3UNIVERSITY OF ARIZONA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4QEII Medical Centre 6 Verdun
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Milwaukee
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Milwaukee
IRS990ScheduleI/RecipientTable/USAddress/CityNm2TUCSON
IRS990ScheduleI/RecipientTable/USAddress/CityNm3TUCSON
IRS990ScheduleI/RecipientTable/USAddress/CityNm4NETHERLANDS
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0WI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1WI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2AZ
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3AZ
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4WA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd053226
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd153226
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd285721

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.36$0.13$3.23$1.05$1.16$0.11
2023Detailed filing. Detailed filing data is available for this year.$3.53$0.19$3.35$1.46$0.91$0.55
2022Detailed filing. Detailed filing data is available for this year.$2.93$0.13$2.79$1.84$0.77$1.07
2021Detailed filing. Detailed filing data is available for this year.$1.82$0.10$1.72$1.13$0.58$0.54
2020Detailed filing. Detailed filing data is available for this year.$1.22$0.05$1.17$0.36$0.25$0.12
2019Detailed filing. Detailed filing data is available for this year.$1.18$0.12$1.06$0.44$0.30$0.14
2018Detailed filing. Detailed filing data is available for this year.$1.20$0.28$0.92$0.51$0.68$0.17
2017Detailed filing. Detailed filing data is available for this year.$1.10$0.01$1.09$0.46$0.28$0.18
2016Detailed filing. Detailed filing data is available for this year.$0.95$0.04$0.91$0.60$0.32$0.28
2015Detailed filing. Detailed filing data is available for this year.$0.65$0.02$0.63$0.35$0.53$0.18
2014Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.34$0.05$0.29
2013Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.52$0.31$0.21$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.41$0.00$0.41$0.04
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.07$0.22$0.32