Liabilities / Assets
50th percentile
Higher debt load relative to assets than 50% of similar nonprofits.
990 • Fiscal year 2016 • EIN 26-1761329
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
50th percentile
Higher debt load relative to assets than 50% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
91st percentile
Higher net margin than 91% of similar nonprofits.
Top Officer Pay
49th percentile
Higher top officer pay than 49% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
88th percentile
Faster asset growth than 88% of similar nonprofits.
Revenue Growth
91st percentile
Faster revenue growth than 91% of similar nonprofits.
Assets
Up$945,607
Up $293,610 (+45%) from 2015
Net Assets
Up$908,246
Up $278,465 (+44%) from 2015
Liabilities
Up$37,361
Up $15,145 (+68%) from 2015
Revenue
Up$597,190
Up $247,101 (+71%) from 2015
Expenses
Down$319,261
Down $211,230 (-40%) from 2015
Net Income
Up$277,929
Up $458,331 (+254%) from 2015
To find treatments for nemaline myopathy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $605,959 | $909,199 | ▲ $303,240 |
| Accounts Receivable | $46,038 | $34,441 | ▼ $11,597 |
| Prepaid Expenses and Deferred Charges | - | $1,967 | - |
| Cash and Non-Interest-Bearing Accounts | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $651,997 | $945,607 | ▲ $293,610 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $22,216 | $37,361 | ▲ $15,145 |
| Total Liabilities | $22,216 | $37,361 | ▲ $15,145 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $629,781 | $908,246 | ▲ $278,465 |
| Total Net Assets Fund Balance | $629,781 | $908,246 | ▲ $278,465 |
| Total Liabilities and Net Assets / Fund Balance | $651,997 | $945,607 | ▲ $293,610 |
| Name | Title |
|---|---|
| Marc Guillet | President |
| Boris Shimanovsky | Director |
| John Kershner | Director |
| Patricia Mitchell | Director |
| Sharon Fiedler-shimanovsky Jd | Director |
| Cliff Katz Jd | Secretary |
| Willie Quinn | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $156,025 |
| Other Expenses | $83,243 |
| Salaries, Compensation, and Employee Benefits | $79,993 |
| Total Fundraising Expense | $4,472 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $156,025 | - | - | $156,025 |
| Other Salaries and Wages | $62,893 | $11,099 | - | $73,992 |
| Conferences and Meetings | $40,445 | - | - | $40,445 |
| Fees for Services Accounting | - | $15,212 | - | $15,212 |
| Fees for Services Other | $8,540 | $1,507 | - | $10,047 |
| Payroll Taxes | $5,101 | $900 | - | $6,001 |
| Insurance | - | $2,040 | - | $2,040 |
| Information Technology | - | $1,224 | - | $1,224 |
| Travel | $569 | $100 | - | $669 |
| Other Expenses | $4,729 | $3,955 | $299 | $299 |
| All Other Expenses | - | $285 | - | $285 |
| Office Expenses | - | $145 | - | $145 |
| Fees for Services Legal | - | $20 | - | $20 |
| Advertising | - | - | $10 | $10 |
| Total Functional Expenses | $278,302 | $36,487 | $4,472 | $319,261 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Institute of Medical Research | Netherlands, WA | - | ACTA1 NM Therapeutic Approaches | $95,794 |
| College of Medicine Arizona | Tucson, AZ | - | Nebulin-NM mechanisms & treatment | $60,000 |
| College of Medicine | Tucson, AZ | - | Gene therapy for nebulin-based NM | $39,000 |
| Childrens Hospital Wisconsin | Milwaukee, WI | - | NM global tissue banking | $34,958 |
| Vu University Medical Center | - | - | Myofiblar mechanics & muscle weakne | $30,000 |
| Childrens Hospital Wisconsin | Milwaukee, WI, Nl | - | Mitochondrial Cell Study | $10,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Australia | Refund From Grant | Grant Award | 0 | 0 | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Two board members are related to each other through marriage.”
“The tax return is reviewed by the finance committee prior to filing.”
“Board members are reminded of the importance of disclosing and potential related parties at the beginning of each board meeting”
“No documents available to the public.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 22216 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 37361 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 46038 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 34441 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO FIND TREATMENTS FOR NEMALINE MYOPATHY. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 10 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 10 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 596853 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 285 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 285 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARC GUILLET |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6503208000 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3825 EL CAMINO REAL |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | PALO ALTO |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94306 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 0 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 40445 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 40445 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 596853 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 156025 |
| IRS990/CYInvestmentIncomeAmt | 0 | 337 |
| IRS990/CYOtherExpensesAmt | 0 | 83243 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 277929 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 79993 |
| IRS990/CYTotalExpensesAmt | 0 | 319261 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 4472 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 597190 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | MEDICAL RESEARCH |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 536 |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 278302 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15212 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15212 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 20 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 20 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1507 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 8540 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 10047 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 3.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 4.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARC GUILLET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JOHN KERSHNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | WILLIE QUINN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CLIFF KATZ JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BORIS SHIMANOVSKY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | PATRICIA MITCHELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | SHARON FIEDLER-SHIMANOVSKY JD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 2008 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 156025 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 156025 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 597190 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1224 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 1224 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2040 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2040 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 337 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 337 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO FIND TREATMENTS FOR NEMALINE MYOPATHY. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 629781 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 908246 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 967 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 145 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 145 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | GRANTS |
| IRS990/OtherExpensesGrp/Desc | 1 | FUNDRAISING EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 4163 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 299 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3955 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4729 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 4729 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 4163 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3955 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 299 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 11099 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 62893 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 73992 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 900 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 5101 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 6001 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1967 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 349748 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 399005 |
| IRS990/PYInvestmentIncomeAmt | 0 | 341 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 24733 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -180402 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 106753 |
| IRS990/PYTotalExpensesAmt | 0 | 530491 |
| IRS990/PYTotalRevenueAmt | 0 | 350089 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 277929 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 605959 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 909199 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 193356 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 193356 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 596853 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 349458 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 339149 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 312607 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 229276 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1827343 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 465 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 527 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1554 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 2546 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 465 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 527 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1554 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 2546 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00140 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00250 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.86320 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99750 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 1579607 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 247736 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 247736 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 54380 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 54380 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 596853 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 349458 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 339149 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 312607 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 229276 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 1827343 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 596853 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 349458 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 339614 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 313134 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 230830 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 1829889 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | AUSTRALIA |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | GRANT AWARD |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | REFUND FROM GRANT |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | RECEIVED REFUND OF GRANT FUNDS PREVIOUSLY PAID TO ORGANIZATION IN AUSTRALIA. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 34958 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 39000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 60000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 95794 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 30000 |
| IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt | 0 | Office 12W51 0/2 Building |
| IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd | 0 | NL |
| IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd | 0 | 1011 |
| IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm | 0 | AMSTERDAM |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 2 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 3 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 4 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 5 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Mitochondrial Cell Study |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | NM global tissue banking |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Gene therapy for nebulin-based NM |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | Nebulin-NM mechanisms & treatment |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | ACTA1 NM Therapeutic Approaches |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | Myofiblar mechanics & muscle weakne |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | CHILDRENS HOSPITAL WISCONSIN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | CHILDRENS HOSPITAL WISCONSIN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | COLLEGE OF MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | COLLEGE OF MEDICINE ARIZONA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | INSTITUTE OF MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | VU UNIVERSITY MEDICAL CENTER |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 8915 W Connell Ct |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 8915 W Connell Ct |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | UNIVERSITY OF ARIZONA |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | UNIVERSITY OF ARIZONA |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | QEII Medical Centre 6 Verdun |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Milwaukee |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Milwaukee |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | TUCSON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | TUCSON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | NETHERLANDS |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | AZ |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | AZ |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | WA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 53226 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 53226 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 85721 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.