Civic Intelligence

Cure Tay-Sachs Foundation

990 • Fiscal year 2018 • EIN 26-0256621

Jan 01, 2018 to Dec 31, 2018 • Filed on Nov 14, 2019

Organization ProfileWWW.CURETAY-SACHS.ORG
2409 E Luke AvePhoenix, AZ 85016

(562) 212-1071

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

89th percentile

41%

Higher net margin than 89% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

44th percentile

$48,000

Higher top officer pay than 44% of similar nonprofits.

Top officer pay equals 13.9% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

70th percentile

8.6%

Faster asset growth than 70% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

71st percentile

16%

Faster revenue growth than 71% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets14th percentile

Assets

Up

$1,796,485

Up $141,823 (+8.6%) from 2017

Net Assets

Up

$1,796,485

Up $141,823 (+8.6%) from 2017

Liabilities

Flat

$0

Flat from 2017

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin89th percentile

Revenue

Up

$344,149

Up $46,751 (+16%) from 2017

Expenses

Down

$202,326

Down $20,318 (-9.1%) from 2017

Net Income

Up

$141,823

Up $67,069 (+90%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth70th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2012: $1,255,305Liabilities 2012: $0Net Assets 2012: $1,255,3052012Assets 2015: $1,665,739Liabilities 2015: $0Net Assets 2015: $1,665,7392015Assets 2016: $1,579,908Liabilities 2016: $0Net Assets 2016: $1,579,9082016Assets 2017: $1,654,662Liabilities 2017: $0Net Assets 2017: $1,654,6622017Assets 2018: $1,796,485Liabilities 2018: $0Net Assets 2018: $1,796,4852018Assets 2019: $1,974,958Liabilities 2019: $474Net Assets 2019: $1,974,4842019Assets 2020: $2,110,129Liabilities 2020: $0Net Assets 2020: $2,110,1292020Assets 2021: $2,077,101Liabilities 2021: $0Net Assets 2021: $2,077,1012021Assets 2022: $2,287,110Liabilities 2022: $0Net Assets 2022: $2,287,1102022Assets 2023: $2,122,357Liabilities 2023: $0Net Assets 2023: $2,122,3572023Assets 2024: $1,941,305Liabilities 2024: $0Net Assets 2024: $1,941,3052024

Highlighted filing

2018

Assets$1,796,485
Liabilities$0
Net Assets$1,796,485
Open 2018 Filing

Operations Trend

Revenue Growth71st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KExpenses 2012: $482,2122012Revenue 2015: $366,911Expenses 2015: $405,731Net Income 2015: -$38,8202015Revenue 2016: $163,498Expenses 2016: $249,329Net Income 2016: -$85,8312016Revenue 2017: $297,398Expenses 2017: $222,644Net Income 2017: $74,7542017Revenue 2018: $344,149Expenses 2018: $202,326Net Income 2018: $141,8232018Revenue 2019: $397,972Expenses 2019: $219,973Net Income 2019: $177,9992019Revenue 2020: $289,919Expenses 2020: $154,274Net Income 2020: $135,6452020Revenue 2021: $192,718Expenses 2021: $225,746Net Income 2021: -$33,0282021Revenue 2022: $448,202Expenses 2022: $238,193Net Income 2022: $210,0092022Revenue 2023: $107,582Expenses 2023: $189,307Net Income 2023: -$81,7252023Revenue 2024: $141,059Expenses 2024: $251,226Net Income 2024: -$110,1672024

Highlighted filing

2018

Revenue$344,149
Expenses$202,326
Net Income$141,823
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Nov 14, 2019
Return Version
2018v3.1
Gross Receipts
$769,789
Mission and Program Overview

Mission

The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. Tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,654,662$1,796,485▲ $141,823
Investments Other Securities$1,443,815$1,601,593▲ $157,778
Cash and Non-Interest-Bearing Accounts$210,847$194,892▼ $15,955
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$1,654,662$1,796,485▲ $141,823
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,654,662$1,796,485▲ $141,823
Total Liabilities and Net Assets / Fund Balance$1,654,662$1,796,485▲ $141,823

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,601,593--
Compensation and Service Providers
Top Officer Pay44th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Rick KarlPresidentPT$48,000$48,000

Board Members and Trustees

NameTitle
Dave RabinowitzVice President
Brian PlickDirector
Brianne AndersonDirector
Cheryl BaboDirector
Deepa KodaliDirector
Holly McdonaldDirector
Laurie Ten BergDirector
Matt LunchickDirector
Nicki LuceDirector
Robbie SandovalDirector
Royce StingerDirector
Terry Karl EsqDirector
Bruce SteigerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$293,978
Program Service Revenue
$0
Investment Income
$50,171
Other Revenue
$0
All Other Contributions
$293,978
Change in Net Assets
$141,823
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$98,615
Other Expenses$55,711
Salaries, Compensation, and Employee Benefits$48,000
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$53,615--$53,615
Current Officers, Directors, Trustees, and Key Employees$24,000$24,000-$48,000
Foreign Grants$45,000--$45,000
Advertising$19,648--$19,648
Travel$12,488--$12,488
Insurance$2,630--$2,630
Other Expenses$200--$200
Total Functional Expenses$178,326$24,000$0$202,326
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Massachusetts Medical SchoolWorcester, MA-To Fund Research to Cure Tay-sachs$53,615

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A final version of the form 990 was provided to each board member before it is files.”

Form 990, Part VI, Section B, Line 12C

“We have a written conflict of interest policy that requires our officers, directors, and trustees to annually disclose potential conflicts of themselves and their family members. Any potential conflicts are submitted to the board for review.”

Form 990, Part VI, Section C, Line 19

“We make our form 990 and other governing documents available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Tay-sachs Foundation
EIN
26-0256621
Phone
5622121071
Address
2409 E LUKE AVE, PHOENIX, AZ 85016

Signing Officer

Name
Rick Karl
Title
President
Phone
5622121071
Signed
2019-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rick Karl
Formed
2007
Legal Domicile
Oh
Voting Board Members
14
Independent Board Members
14
Employees
0
Volunteers
100

Preparer

Firm
Corrigan Krause
Address
2055 CROCKER RD SUITE 300, WESTLAKE, OH 44145-1964
Preparer
Thomas L Harrison CPA
Phone
4404710800
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IRS990/PYInvestmentIncomeAmt053040
IRS990/PYOtherExpensesAmt036605
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt074754
IRS990/PYSalariesCompEmpBnftPaidAmt044000
IRS990/PYTotalExpensesAmt0222644
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0297398
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0141823
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt050171
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt01654662
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt01796485
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0293978
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0244358
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0121208
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0220151
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0292231
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01171926
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt060988
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt053040
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt052105
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt057940
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt048400
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0272473
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt087738
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0126852
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0214590
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.70640
IRS990ScheduleA/PublicSupportPY170Pct00.70210
IRS990ScheduleA/PublicSupportTotal170Amt01171926
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0293978
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0244358
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0121208
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0220151
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0292231
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01171926
IRS990ScheduleA/TotalSupportAmt01658989
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt01601593
IRS990ScheduleD/OtherSecuritiesGrp/Desc0RSVS INC PRIME PORTFOLIO
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0C
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueSecuritiesAmt01601593
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt045000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0CANADA
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc0FMV
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt053615
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
IRS990ScheduleI/RecipientTable/RecipientEIN0104316735
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt055 N LAKE AVENUE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0WORCESTER
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd001655
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A FINAL VERSION OF THE FORM 990 WAS PROVIDED TO EACH BOARD MEMBER BEFORE IT IS FILES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1WE HAVE A WRITTEN CONFLICT OF INTEREST POLICY THAT REQUIRES OUR OFFICERS, DIRECTORS, AND TRUSTEES TO ANNUALLY DISCLOSE POTENTIAL CONFLICTS OF THEMSELVES AND THEIR FAMILY MEMBERS. ANY POTENTIAL CONFLICTS ARE SUBMITTED TO THE BOARD FOR REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2WE MAKE OUR FORM 990 AND OTHER GOVERNING DOCUMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0OH
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt01654662
IRS990/TotalAssetsEOYAmt01796485
IRS990/TotalAssetsGrp/BOYAmt01654662
IRS990/TotalAssetsGrp/EOYAmt01796485
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0293978
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt024000
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0178326
IRS990/TotalFunctionalExpensesGrp/TotalAmt0202326
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01654662
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01796485
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0178326
IRS990/TotalReportableCompFromOrgAmt048000
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt050171
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0344149
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt0100
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01654662
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01796485
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt012488
IRS990/TravelGrp/TotalAmt012488
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt02409 E LUKE AVE
IRS990/USAddress/CityNm0PHOENIX
IRS990/USAddress/StateAbbreviationCd0AZ
IRS990/USAddress/ZIPCd085016
IRS990/VotingMembersGoverningBodyCnt014
IRS990/VotingMembersIndependentCnt014
IRS990/WebsiteAddressTxt0WWW.CURETAY-SACHS.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02020-03-31 21:24:44Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0RICK KARL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,796,485
Liabilities
$0
Net assets
$1,796,485
Revenue
$344,149
Expenses
$202,326
Net income
$141,823
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.94$0.00$1.94$0.14$0.25$0.11
2023Detailed filing. Detailed filing data is available for this year.$2.12$0.00$2.12$0.11$0.19$0.08
2022Detailed filing. Detailed filing data is available for this year.$2.29$0.00$2.29$0.45$0.24$0.21
2021Detailed filing. Detailed filing data is available for this year.$2.08$0.00$2.08$0.19$0.23$0.03
2020Detailed filing. Detailed filing data is available for this year.$2.11$0.00$2.11$0.29$0.15$0.14
2019Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.40$0.22$0.18
2018Detailed filing. Detailed filing data is available for this year.$1.80$0.00$1.80$0.34$0.20$0.14
2017Detailed filing. Detailed filing data is available for this year.$1.65$0.00$1.65$0.30$0.22$0.07
2016Detailed filing. Detailed filing data is available for this year.$1.58$0.00$1.58$0.16$0.25$0.09
2015Detailed filing. Detailed filing data is available for this year.$1.67$0.00$1.67$0.37$0.41$0.04
2012Detailed filing. Detailed filing data is available for this year.$1.26$0.00$1.26$0.48