Civic Intelligence

Cure Tay-Sachs Foundation

990 • Fiscal year 2016 • EIN 26-0256621

Jan 01, 2016 to Dec 31, 2016 • Filed on Sep 21, 2017

12730 Triskett RoadCleveland, OH 44111

(216) 251-9070

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

7th percentile

-52%

Higher net margin than 7% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

21st percentile

-5.2%

Faster asset growth than 21% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

5th percentile

-55%

Faster revenue growth than 5% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Assets

Down

$1,579,908

Down $85,831 (-5.2%) from 2015

Net Assets

Down

$1,579,908

Down $85,831 (-5.2%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue

Down

$163,498

Down $203,413 (-55%) from 2015

Expenses

Down

$249,329

Down $156,402 (-39%) from 2015

Net Income

Down

-$85,831

Down $47,011 (-121%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2012: $1,255,305Liabilities 2012: $0Net Assets 2012: $1,255,3052012Assets 2015: $1,665,739Liabilities 2015: $0Net Assets 2015: $1,665,7392015Assets 2016: $1,579,908Liabilities 2016: $0Net Assets 2016: $1,579,9082016Assets 2017: $1,654,662Liabilities 2017: $0Net Assets 2017: $1,654,6622017Assets 2018: $1,796,485Liabilities 2018: $0Net Assets 2018: $1,796,4852018Assets 2019: $1,974,958Liabilities 2019: $474Net Assets 2019: $1,974,4842019Assets 2020: $2,110,129Liabilities 2020: $0Net Assets 2020: $2,110,1292020Assets 2021: $2,077,101Liabilities 2021: $0Net Assets 2021: $2,077,1012021Assets 2022: $2,287,110Liabilities 2022: $0Net Assets 2022: $2,287,1102022Assets 2023: $2,122,357Liabilities 2023: $0Net Assets 2023: $2,122,3572023Assets 2024: $1,941,305Liabilities 2024: $0Net Assets 2024: $1,941,3052024

Highlighted filing

2016

Assets$1,579,908
Liabilities$0
Net Assets$1,579,908

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KExpenses 2012: $482,2122012Revenue 2015: $366,911Expenses 2015: $405,731Net Income 2015: -$38,8202015Revenue 2016: $163,498Expenses 2016: $249,329Net Income 2016: -$85,8312016Revenue 2017: $297,398Expenses 2017: $222,644Net Income 2017: $74,7542017Revenue 2018: $344,149Expenses 2018: $202,326Net Income 2018: $141,8232018Revenue 2019: $397,972Expenses 2019: $219,973Net Income 2019: $177,9992019Revenue 2020: $289,919Expenses 2020: $154,274Net Income 2020: $135,6452020Revenue 2021: $192,718Expenses 2021: $225,746Net Income 2021: -$33,0282021Revenue 2022: $448,202Expenses 2022: $238,193Net Income 2022: $210,0092022Revenue 2023: $107,582Expenses 2023: $189,307Net Income 2023: -$81,7252023Revenue 2024: $141,059Expenses 2024: $251,226Net Income 2024: -$110,1672024

Highlighted filing

2016

Revenue$163,498
Expenses$249,329
Net Income-$85,831
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Sep 21, 2017
Return Version
2016v3.0
Gross Receipts
$373,285
Mission and Program Overview

Mission

The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. Tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,665,739$1,579,908▼ $85,831
Investments Other Securities$1,548,589$1,390,864▼ $157,725
Cash and Non-Interest-Bearing Accounts$117,150$189,044▲ $71,894
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$1,665,739$1,579,908▼ $85,831
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,665,739$1,579,908▼ $85,831
Total Liabilities and Net Assets / Fund Balance$1,665,739$1,579,908▼ $85,831

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,390,864--
Compensation and Service Providers

Board Members and Trustees

NameTitle
Kenneth BihnPresident
Timothy BihnVice President
Bill CostelloDirector
Cheryl BaboDirector
Dave RabinowitzDirector
Julie BihnDirector
Laurie Ten BergeDirector
Mike WeisbarthDirector
Nichole MarkowichDirector
Nicole LuceDirector
Rick KarlDirector
Scott MetzgerDirector
Sue MitchellDirector
Tim RochmanDirector
Robert BihnTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$121,208
Program Service Revenue
$0
Investment Income
$42,290
Other Revenue
$0
All Other Contributions
$121,208
Change in Net Assets
$-85,831
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$243,193
Other Expenses$6,136
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$203,193--$203,193
Foreign Grants$40,000--$40,000
Insurance$584--$584
Other Expenses$278--$278
All Other Expenses$247--$247
Total Functional Expenses$249,329$0$0$249,329
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Massachusetts Medical SchoolWorcester, MA-To Fund Research to Cure Tay-sachs$108,872
University of California DavisDavis, CA-To Fund Stem Cell Research to Cure Tay-sachs$74,321
Boston CollegeChestnut Hill, MA-To Fund Research to Cure Tay-sachs$20,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Kennteh and tim bihn are brothers. Robert bihn is the father of kenneth and tim. Julie bihn is the wife of kenneth bihn.

Form 990, Part VI, Section B, Line 11B

A final version of the form 990 was provided to each board member before it is files.

Form 990, Part VI, Section B, Line 12C

We have a written conflict of interest policy that requires our officers, directors, and trustees to annually disclose potential conflicts of themselves and their family members. Any potential conflicts are submitted to the board for review.

Form 990, Part VI, Section C, Line 19

We make our form 990 and other governing documents available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Cure Tay-sachs Foundation
EIN
26-0256621
Phone
2162519070
Address
12730 TRISKETT ROAD, CLEVELAND, OH 44111

Signing Officer

Name
Kenneth Bihn
Title
President
Phone
2162519070
Signed
2017-09-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kenneth Bihn
Formed
2007
Legal Domicile
Oh
Voting Board Members
15
Independent Board Members
15
Employees
0
Volunteers
100

Preparer

Firm
Corrigan Krause
Address
2055 CROCKER RD SUITE 300, WESTLAKE, OH 44145-1964
Preparer
Thomas L Harrison CPA
Phone
4404710800
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IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0KENNETH BIHN
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0220151
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0364669
IRS990/PYInvestmentIncomeAmt059022
IRS990/PYOtherExpensesAmt041062
IRS990/PYOtherRevenueAmt087738
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-38820
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0405731
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0366911
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-85831
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt042290
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt01665739
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt01579908
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0121208
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0220151
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0292231
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0478617
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0365017
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01477224
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt052105
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt057940
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt048400
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt027793
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt023914
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0210152
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt087738
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0126852
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0121775
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt093826
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0430191
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.69760
IRS990ScheduleA/PublicSupportPY170Pct00.70210
IRS990ScheduleA/PublicSupportTotal170Amt01477224
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0121208
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0220151
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0292231
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0478617
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0365017
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01477224
IRS990ScheduleA/TotalSupportAmt02117567
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt01390864
IRS990ScheduleD/OtherSecuritiesGrp/Desc0RSVS INC PRIME PORTFOLIO
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0C
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueSecuritiesAmt01390864
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinutationTotalEmployeeCnt00
IRS990ScheduleF/ContinutationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt040000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EUROPE
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc0FMV
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt074321
IRS990ScheduleI/RecipientTable/CashGrantAmt1108872
IRS990ScheduleI/RecipientTable/CashGrantAmt220000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO FUND STEM CELL RESEARCH TO CURE TAY-SACHS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3TO FUND RESEARCH TO CURE TAY-SACHS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF CALIFORNIA DAVIS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2BOSTON COLLEGE
IRS990ScheduleI/RecipientTable/RecipientEIN0946036494
IRS990ScheduleI/RecipientTable/RecipientEIN1104316735
IRS990ScheduleI/RecipientTable/RecipientEIN2042103545
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01 SHIELDS AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt155 N LAKE AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2140 COMMONWEALTH AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0DAVIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1WORCESTER
IRS990ScheduleI/RecipientTable/USAddress/CityNm2CHESTNUT HILL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd095616
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd101655
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd202467
IRS990ScheduleI/Total501c3OrgCnt03
IRS990ScheduleI/TotalOtherOrgCnt01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0KENNTEH AND TIM BIHN ARE BROTHERS. ROBERT BIHN IS THE FATHER OF KENNETH AND TIM. JULIE BIHN IS THE WIFE OF KENNETH BIHN.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A FINAL VERSION OF THE FORM 990 WAS PROVIDED TO EACH BOARD MEMBER BEFORE IT IS FILES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2WE HAVE A WRITTEN CONFLICT OF INTEREST POLICY THAT REQUIRES OUR OFFICERS, DIRECTORS, AND TRUSTEES TO ANNUALLY DISCLOSE POTENTIAL CONFLICTS OF THEMSELVES AND THEIR FAMILY MEMBERS. ANY POTENTIAL CONFLICTS ARE SUBMITTED TO THE BOARD FOR REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3WE MAKE OUR FORM 990 AND OTHER GOVERNING DOCUMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0OH
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt01665739
IRS990/TotalAssetsEOYAmt01579908
IRS990/TotalAssetsGrp/BOYAmt01665739
IRS990/TotalAssetsGrp/EOYAmt01579908
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0121208
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt00
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0249329
IRS990/TotalFunctionalExpensesGrp/TotalAmt0249329
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00

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