Civic Intelligence

Cure Tay-Sachs Foundation

EIN 26-0256621 • 501(c)3 • Phoenix, AZ

Pub. 78 Eligible

Profile

The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. Tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

2409 E Luke AvePhoenix, AZ 85016

www.curetay-sachs.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

4th percentile

-78%

Higher net margin than 4% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

18th percentile

-7.9%

Faster asset growth than 18% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

6th percentile

-44%

Faster revenue growth than 6% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets18th percentile

Assets

Down

$1,941,305

Down $181,052 (-8.5%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$1,941,305

Down $181,052 (-8.5%) from 2023

Operations
Liabilities / Revenue19th percentileNet Margin4th percentile

Revenue

Up

$141,059

Up $33,477 (+31%) from 2023

Expenses

Up

$251,226

Up $61,919 (+33%) from 2023

Net Income

Down

-$110,167

Down $28,442 (-35%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth18th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2012: $1,255,305Liabilities 2012: $0Net Assets 2012: $1,255,3052012Assets 2015: $1,665,739Liabilities 2015: $0Net Assets 2015: $1,665,7392015Assets 2016: $1,579,908Liabilities 2016: $0Net Assets 2016: $1,579,9082016Assets 2017: $1,654,662Liabilities 2017: $0Net Assets 2017: $1,654,6622017Assets 2018: $1,796,485Liabilities 2018: $0Net Assets 2018: $1,796,4852018Assets 2019: $1,974,958Liabilities 2019: $474Net Assets 2019: $1,974,4842019Assets 2020: $2,110,129Liabilities 2020: $0Net Assets 2020: $2,110,1292020Assets 2021: $2,077,101Liabilities 2021: $0Net Assets 2021: $2,077,1012021Assets 2022: $2,287,110Liabilities 2022: $0Net Assets 2022: $2,287,1102022Assets 2023: $2,122,357Liabilities 2023: $0Net Assets 2023: $2,122,3572023Assets 2024: $1,941,305Liabilities 2024: $0Net Assets 2024: $1,941,3052024

Highlighted filing

2024

Assets$1,941,305
Liabilities$0
Net Assets$1,941,305
Open 2024 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KExpenses 2012: $482,2122012Revenue 2015: $366,911Expenses 2015: $405,731Net Income 2015: -$38,8202015Revenue 2016: $163,498Expenses 2016: $249,329Net Income 2016: -$85,8312016Revenue 2017: $297,398Expenses 2017: $222,644Net Income 2017: $74,7542017Revenue 2018: $344,149Expenses 2018: $202,326Net Income 2018: $141,8232018Revenue 2019: $397,972Expenses 2019: $219,973Net Income 2019: $177,9992019Revenue 2020: $289,919Expenses 2020: $154,274Net Income 2020: $135,6452020Revenue 2021: $192,718Expenses 2021: $225,746Net Income 2021: -$33,0282021Revenue 2022: $448,202Expenses 2022: $238,193Net Income 2022: $210,0092022Revenue 2023: $107,582Expenses 2023: $189,307Net Income 2023: -$81,7252023Revenue 2024: $141,059Expenses 2024: $251,226Net Income 2024: -$110,1672024

Highlighted filing

2024

Revenue$141,059
Expenses$251,226
Net Income-$110,167
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,941,305
Liabilities
$0
Net assets
$1,941,305
Revenue
$141,059
Expenses
$251,226
Net income
-$110,167
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.94$0.00$1.94$0.14$0.25$0.11
2023Detailed filing. Detailed filing data is available for this year.$2.12$0.00$2.12$0.11$0.19$0.08
2022Detailed filing. Detailed filing data is available for this year.$2.29$0.00$2.29$0.45$0.24$0.21
2021Detailed filing. Detailed filing data is available for this year.$2.08$0.00$2.08$0.19$0.23$0.03
2020Detailed filing. Detailed filing data is available for this year.$2.11$0.00$2.11$0.29$0.15$0.14
2019Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$0.40$0.22$0.18
2018Detailed filing. Detailed filing data is available for this year.$1.80$0.00$1.80$0.34$0.20$0.14
2017Detailed filing. Detailed filing data is available for this year.$1.65$0.00$1.65$0.30$0.22$0.07
2016Detailed filing. Detailed filing data is available for this year.$1.58$0.00$1.58$0.16$0.25$0.09
2015Detailed filing. Detailed filing data is available for this year.$1.67$0.00$1.67$0.37$0.41$0.04
2012Detailed filing. Detailed filing data is available for this year.$1.26$0.00$1.26$0.48
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 11, 2025
Return Version
2024v5.2
Gross Receipts
$167,385
Mission and Program Overview

Mission

The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. Tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$2,122,357$1,941,305▼ $181,052
Investments Other Securities$2,111,407$1,696,215▼ $415,192
Cash and Non-Interest-Bearing Accounts$10,950$245,090▲ $234,140
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$2,122,357$1,941,305▼ $181,052
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$2,122,357$1,941,305▼ $181,052
Total Liabilities and Net Assets / Fund Balance$2,122,357$1,941,305▼ $181,052

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$1,696,215--
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Rick KarlPresidentPT$48,000$48,000

Board Members and Trustees

NameTitle
Brian PlickDirector
Brianne AndersonDirector
Cheryl BaboDirector
Deepa KodaliDirector
Holly McdonaldDirector
Laurie Ten BergDirector
Matt LunchickDirector
Nicki LuceDirector
Robbie SandovalDirector
Royce StingerDirector
Terry Karl EsqDirector
Bruce SteigerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$57,863
Program Service Revenue
$0
Investment Income
$83,196
Other Revenue
$0
All Other Contributions
$57,863
Change in Net Assets
$-110,167
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$200,000
Salaries, Compensation, and Employee Benefits$48,000
Other Expenses$3,226
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$200,000--$200,000
Current Officers, Directors, Trustees, and Key Employees$24,000$24,000-$48,000
Fees for Services Accounting-$2,000-$2,000
Insurance$873--$873
Other Expenses$353--$353
Total Functional Expenses$225,226$26,000$0$251,226
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MassachusettsWorcester, MA-Grant$150,000
NtsadBoston, MA-Grant$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A final version of the form 990 is provided to each board member before it is filed.”

Form 990, Part VI, Section B, Line 12C

“There is a written conflict of interest policy that requires the officers, directors, and trustees to annually disclose potential conflicts of themselves and their family members. Any potential conflicts are submitted to the board for review.”

Form 990, Part VI, Section C, Line 19

“We make our form 990 and other governing documents available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Tay-sachs Foundation
EIN
26-0256621
Phone
5622121071
Address
2409 E LUKE AVE, PHOENIX, AZ 85016

Signing Officer

Name
Rick Karl
Title
President
Phone
5622121071
Signed
2025-08-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rick Karl
Formed
2007
Legal Domicile
Oh
Voting Board Members
13
Independent Board Members
13
Employees
0
Volunteers
0

Preparer

Firm
Corrigan Krause
Address
191 AMERICAN BLVD SUITE 201, WESTLAKE, OH 44145
Preparer
Thomas L Harrison CPA
Phone
4404710800
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/PoliticalCampaignActyInd00
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IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt029339
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0119875
IRS990/PYInvestmentIncomeAmt039613
IRS990/PYOtherExpensesAmt021432
IRS990/PYOtherRevenueAmt038630
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-81725
IRS990/PYSalariesCompEmpBnftPaidAmt048000
IRS990/PYTotalExpensesAmt0189307
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0107582
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-110167
IRS990/RegularMonitoringEnfrcInd01
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IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
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IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt01941305
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0375338
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0103455
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt083195
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt059762
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt056940
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt059814
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt050666
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IRS990ScheduleI/RecipientTable/RecipientEIN1131912877
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt066 N LAKE AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt12001 BEACON STREET SUITE 204
IRS990ScheduleI/RecipientTable/USAddress/CityNm0WORCESTER
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BOSTON
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A FINAL VERSION OF THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THERE IS A WRITTEN CONFLICT OF INTEREST POLICY THAT REQUIRES THE OFFICERS, DIRECTORS, AND TRUSTEES TO ANNUALLY DISCLOSE POTENTIAL CONFLICTS OF THEMSELVES AND THEIR FAMILY MEMBERS. ANY POTENTIAL CONFLICTS ARE SUBMITTED TO THE BOARD FOR REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2WE MAKE OUR FORM 990 AND OTHER GOVERNING DOCUMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
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IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
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IRS990/TotalLiabilitiesGrp/EOYAmt00
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IRS990/TotalReportableCompFromOrgAmt048000
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt083196
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0141059
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IRS990/TotalVolunteersCnt00
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IRS990/USAddress/CityNm0PHOENIX
IRS990/USAddress/StateAbbreviationCd0AZ
IRS990/USAddress/ZIPCd085016
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IRS990/WebsiteAddressTxt0WWW.CURETAY-SACHS.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0RICK KARL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum05622121071
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-08-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CURE TAY-SACHS FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0CURE
ReturnHeader/Filer/EIN0260256621
ReturnHeader/Filer/PhoneNum05622121071
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ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0371574855
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CORRIGAN KRAUSE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0191 AMERICAN BLVD SUITE 201
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0WESTLAKE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd044145
ReturnHeader/PreparerPersonGrp/PhoneNum04404710800
ReturnHeader/PreparerPersonGrp/PreparationDt02025-08-11
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0THOMAS L HARRISON CPA
ReturnHeader/ReturnTs02025-08-13T12:09:01-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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