Civic Intelligence

Autism Speaks Inc.

990 • Fiscal year 2020 • EIN 20-2329938

Apr 01, 2019 to Mar 31, 2020 • Filed on Mar 25, 2021

Organization Profilewww.autismspeaks.org

View Organization Page

1 East 33rd Street Suite 4th FLNew York, NY 10016

(646) 385-8500

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

32nd percentile

0.12x

Higher debt load relative to assets than 32% of similar nonprofits.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2020

Liabilities / Revenue

17th percentile

0.10x

Higher debt load relative to revenue than 17% of similar nonprofits.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2020

Net Margin

66th percentile

10%

Higher net margin than 66% of similar nonprofits.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2020

Top Officer Pay

87th percentile

$974,881

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 1.8% of source-year revenue.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2020

Asset Growth

76th percentile

19%

Faster asset growth than 76% of similar nonprofits.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Annualized from 2019 to 2020

Revenue Growth

99th percentile

456%

Faster revenue growth than 99% of similar nonprofits.

2020 filings • 501(c)3 • $50M-$100M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets32nd percentile

Assets

Up

$46,226,879

Up $7,234,701 (+19%) from 2019

Net Assets

Up

$40,788,175

Up $5,575,690 (+16%) from 2019

Liabilities

Up

$5,438,704

Up $1,659,011 (+44%) from 2019

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin66th percentile

Revenue

Up

$53,701,450

Up $44,044,507 (+456%) from 2019

Expenses

Up

$48,144,682

Up $39,205,517 (+439%) from 2019

Net Income

Up

$5,556,768

Up $4,838,990 (+674%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $19,092,550Liabilities 2010: $6,622,621Net Assets 2010: $12,469,9292010Assets 2011: $22,705,993Liabilities 2011: $11,471,752Net Assets 2011: $11,234,2412011Assets 2012: $15,783,483Liabilities 2012: $9,968,376Net Assets 2012: $5,815,1072012Assets 2013: $19,677,425Liabilities 2013: $9,969,101Net Assets 2013: $9,708,3242013Assets 2014: $16,027,902Liabilities 2014: $7,342,084Net Assets 2014: $8,685,8182014Assets 2015: $18,248,413Liabilities 2015: $12,041,734Net Assets 2015: $6,206,6792015Assets 2016: $15,392,508Liabilities 2016: $8,369,003Net Assets 2016: $7,023,5052016Assets 2017: $20,577,061Liabilities 2017: $5,977,780Net Assets 2017: $14,599,2812017Assets 2018: $37,840,172Liabilities 2018: $3,326,543Net Assets 2018: $34,513,6292018Assets 2019: $38,992,178Liabilities 2019: $3,779,693Net Assets 2019: $35,212,4852019Assets 2020: $46,226,879Liabilities 2020: $5,438,704Net Assets 2020: $40,788,1752020Assets 2021: $48,207,079Liabilities 2021: $6,502,112Net Assets 2021: $41,704,9672021Assets 2022: $47,834,408Liabilities 2022: $3,480,430Net Assets 2022: $44,353,9782022Assets 2023: $41,380,468Liabilities 2023: $3,538,397Net Assets 2023: $37,842,0712023Assets 2025: $29,672,783Liabilities 2025: $2,759,793Net Assets 2025: $26,912,9902025

Highlighted filing

2020

Assets$46,226,879
Liabilities$5,438,704
Net Assets$40,788,175
Open 2020 Filing

Operations Trend

Revenue Growth99th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$80M$60M$40M$20M$0-$20MExpenses 2010: $48,657,4802010Revenue 2011: $55,487,475Expenses 2011: $56,711,411Net Income 2011: -$1,223,9362011Expenses 2012: $58,720,2562012Revenue 2013: $63,786,909Expenses 2013: $62,401,349Net Income 2013: $1,385,5602013Revenue 2014: $57,567,046Expenses 2014: $58,589,552Net Income 2014: -$1,022,5062014Revenue 2015: $58,138,267Expenses 2015: $60,617,406Net Income 2015: -$2,479,1392015Revenue 2016: $47,556,499Expenses 2016: $46,739,673Net Income 2016: $816,8262016Revenue 2017: $50,437,078Expenses 2017: $42,861,302Net Income 2017: $7,575,7762017Revenue 2018: $60,008,376Expenses 2018: $40,094,028Net Income 2018: $19,914,3482018Revenue 2019: $9,656,943Expenses 2019: $8,939,165Net Income 2019: $717,7782019Revenue 2020: $53,701,450Expenses 2020: $48,144,682Net Income 2020: $5,556,7682020Revenue 2021: $42,083,296Expenses 2021: $41,166,504Net Income 2021: $916,7922021Revenue 2022: $46,771,653Expenses 2022: $44,122,642Net Income 2022: $2,649,0112022Revenue 2023: $36,262,685Expenses 2023: $42,911,083Net Income 2023: -$6,648,3982023Revenue 2025: $28,799,237Expenses 2025: $34,172,414Net Income 2025: -$5,373,1772025

Highlighted filing

2020

Revenue$53,701,450
Expenses$48,144,682
Net Income$5,556,768
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Apr 1, 2019 to Mar 31, 2020
Signed
Mar 25, 2021
Return Version
2019v5.1
Gross Receipts
$55,161,517
Mission and Program Overview

Mission

See schedule owe achieve our organizational mission by ensuring access to reliable information and services across the lifespan; supporting research and innovation that drives toward improved quality of life and well-being for individuals with autism throughout their lives; through advocacy, partnerships and collaboration, leveraging our assets to support, extend, and convene the work of service providers; accelerating delivery of solutions for adult quality of life needs, including transition, employment, housing, and health and wellness; and living and promoting principles of diversity, equity, access and inclusion both in and outside the organization.

Autism speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$16,062,081$21,920,530▲ $5,858,449
Cash and Non-Interest-Bearing Accounts$9,906,643$10,354,708▲ $448,065
Savings and Temporary Cash Investments$6,703,422$5,564,463▼ $1,138,959
Accounts Receivable$2,882,443$5,042,389▲ $2,159,946
Pledges and Grants Receivable$1,672,942$1,681,996▲ $9,054
Prepaid Expenses and Deferred Charges$844,341$818,454▼ $25,887
Land, Buildings, and Equipment, Net$668,908$567,996▼ $100,912
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$38,992,178$46,226,879▲ $7,234,701
Other Assets Total$251,398$276,343▲ $24,945
Liabilities
Accounts Payable and Accrued Expenses$2,158,142$3,816,039▲ $1,657,897
Other Liabilities$1,121,619$884,709▼ $236,910
Grants Payable$450,080$719,166▲ $269,086
Deferred Revenue$30,930$18,790▼ $12,140
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$3,760,771$5,438,704▲ $1,677,933
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$26,501,423$29,230,217▲ $2,728,794
Net Assets With Donor Restrictions$8,729,984$11,557,958▲ $2,827,974
Total Net Assets Fund Balance$35,231,407$40,788,175▲ $5,556,768
Total Liabilities and Net Assets / Fund Balance$38,992,178$46,226,879▲ $7,234,701

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$503,084$1,332,401$1,835,485
Equipment$49,842$640,938$690,780
Leasehold Improvements$15,070$552,604$567,674
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Angela GeigerPresident & CEOFT$513,635$461,246$974,881
Thomas FrazierChief Science OfficerFT$351,699$37,394$389,093
Lisa GerbasiStrategic Initiatives & InnovaFT$272,729$41,870$314,599
Andy ShihSR VP Public Health/InclusionFT$246,496$35,301$283,217
Lynn HappelSVP, It & Data SupportFT$210,918$25,998$237,387
Stuart SpielmanSVP, AdvocacyFT$225,936$10,182$236,515
Melanie AkinsVP, Corporate InitiativesFT$199,590$30,883$230,473
Jennifer PodollSVP, Constituent EngagementFT$203,856$34,855$228,287
Donna S MurrayVP, Head Clinical ProgramsFT$201,469$9,739$219,344
Karen RobinsonCFO (thru 8/9/19)FT$168,925$17,656$186,581
Jane HadleyVP, ControllerFT$167,308$14,470$181,778
Anne Marie ForbesChief Field Ofr (thru 8/31/19)FT$163,428$17,007$180,435

Board Members and Trustees

NameTitle
Brian KellyChair
Adrian M JonesDirector
Aidan KehoeDirector
Barry R FeirsteinDirector
Billy MannDirector
Brian L HarperDirector
Cheryl VitaliDirector
Chuck SaftlerDirector
Curtis ArledgeDirector
Dan SchulmanDirector
Dan TarmanDirector
Dee Ocleppo HilfigerDirector
Henson OrserDirector
Herbert Pardes MDDirector
Jacquelyn NanceDirector
Jamie T RichardsonDirector
Jennifer CasertaDirector
Joseph T Coyle MdDirector
Kevin J MurrayDirector
Lisa YangDirector
Matthew HigginsDirector
Scott R CarpenterDirector
Stephen Shore EdDDirector
Steven P StanbrookDirector
Stuart SavitzDirector
Tim JonesDirector
Tom BernardDirector
Tommy HilfigerDirector
Adam FrazierDirector (begin 8/22/19)

Highest Paid Contractors

ContractorServicesLocationCompensation
The Advertising Council Incadvertising-$921,389
Craft Commerce LLPcreative work-$794,250
FBO Zenith Media Servicesadvertising-$413,885
Thompson Habib Dennison Incdirect mail svcs-$297,206
Oberlandcreative work-$289,900
Revenue and Support

Revenue Composition

Contributions and Grants
$53,131,832
Program Service Revenue
$0
Investment Income
$398,856
Other Revenue
$170,762
All Other Contributions
$49,879,783
Change in Net Assets
$5,556,768

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded21$252,624Fair Market Value (FMV)
Total Noncash Contributions21$252,624-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$21,826,789
Salaries, Compensation, and Employee Benefits$21,060,957
Total Fundraising Expense$7,443,589
Grants and Similar Amounts Paid$4,955,263
Professional Fundraising Fees$301,673

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$9,320,517$2,100,130$3,116,468$14,537,115
Advertising$6,504,239$134,623$401,557$7,040,419
Grants to Domestic Orgs$3,599,889--$3,599,889
Other Employee Benefits$1,586,832$341,624$501,147$2,429,603
Current Officers, Directors, Trustees, and Key Employees$1,600,174$301,108$421,644$2,322,926
Fees for Services Other$2,182,718$50,598$77,029$2,310,345
Office Expenses$1,217,958$89,872$589,940$1,897,770
Information Technology$1,109,639$175,146$317,596$1,602,381
Occupancy$1,169,847$122,863$295,227$1,587,937
Travel$1,213,949$35,264$234,560$1,483,773
Payroll Taxes$811,688$182,582$270,317$1,264,587
Foreign Grants$845,277--$845,277
Fees for Services Lobbying$590,930--$590,930
Grants to Domestic Individuals$510,097--$510,097
Pension Plan Contributions$328,244$71,233$107,249$506,726
All Other Expenses$226,498$32,778$46,655$305,931
Fees for Services Professional Fundraising--$301,673$301,673
Depreciation Depletion$177,353$34,283$52,100$263,736
Fees for Services Legal$121,282$39,127-$160,409
Other Expenses$77,312$517,691$77,312$154,624
Conferences and Meetings$137,873$39$3,732$141,644
Fees for Services Accounting$64,688$34,810-$99,498
Insurance$60,428$13,242$19,275$92,945
Total Functional Expenses$9,338,127$1,606,539$4,940,352$15,885,018
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Southwest Autism Research & Resource CenterPhoenix, AZ501(c)3Science & Research$285,037
Cincinnati Children's Hospital Medical CenterCincinnati, OH501(c)3Science & Research$217,628
The Curators of the University of Missouri-ColumbiColumbia, MO115Science & Research$186,884
The Children's Hospital of PhiladelphiaPhiladelphia, PA501(c)3Science & Research$181,003
Marcus Autism CenterAtlanta, GA501(c)3Science & Research$178,895
The General Hospital CorporationBoston, MA501(c)3Science & Research$171,038
Research Institute at Nationwide Children's HospitColumbus, OH501(c)3Science & Research$168,637
University of RochesterRochester, NY501(c)3Science & Research$165,756
University of PittsburghPittsburgh, PA501(c)3Science & Research$157,046
Regents of the University of California at IrvineIrvine, CA501(c)3SCIENCE & RESEARCH; SERVICES$152,567
Childrens Hospital Los AngelesLos Angeles, CA501(c)3Science & Research$145,955
Vanderbilt University Medical CenterNashville, TN501(c)3Science & Research$145,161
New York Presbyterian Fund IncNew York, NY501(c)3Science & Research$129,339
Regents University of California Los AngelesLos Angeles, CA501(c)3Science & Research$125,000
The Board of Trustees of the Leland Stanford JunioRedwood City, CA501(c)3Science & Research$123,557
The Ohio State UniversityColumbus, OH501(c)(1)Science & Research$73,139
National Academy of SciencesWashington, DC501(c)3Science & Research$50,000
The Regents of the University of California San FSan Francisco, CA501(c)3Science & Research$20,000
Etta Israel CenterNorth Hollywood, CA501(c)3Services$10,000
Young Men's Christian Association of ChicagoChicago, IL-Services$10,000

International Summary

Spending
$845,277

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (Including Iceland and Greenland)Grantmaking---$411,600
North AmericaGrantmaking---$383,677
Middle East and North AfricaGrantmaking---$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,460,067
Fundraising Gross Income$1,460,067
Professional Fundraising Fees$301,673
Gaming Direct Expenses$0
Gaming Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chef Gala$1,201,266$482,556$42,893$439,663
Golf Event$466,651$232,547$3,186$229,361
Total Events$4,471,602$1,460,067$1,460,067-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$782,868
Intercompany Payable$71,841
Annuity Liability$30,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B:

“The form 990 is prepared by Finance Department staff members and reviewed by external independent certified public accountants. Once completed, the form 990 is presented to the board of directors in advance of filing with the IRS.”

Form 990, Part VI, Section B, Line 12C:

“The conflict of interests policy is reviewed annually at a board meeting with key executives present. board members, key executives, and all staff are required to review and sign the policy on an annual basis and disclose any business entity which provided services to autism speaks or to which autism speaks provided grants or services that they or their spouse have an interest. also required to be listed is any entity, whether business, institution, or non-profit organization, with which they are currently affiliated with in any working capacity. the autism speaks staff review each grant awarded for potential conflicts of interest. every business entity reported by board members or staff with which a working relationship outside of autism speaks exists is investigated for a potential conflict of interest. Autism Speaks may impose sanctions on a covered person for non-compliance, including termination.”

Form 990, Part VI, Section B, Line 15:

“The compensation committee of the board reviews ceo compensation of several national non-profits of similar size and scope when determining appropriate compensation for autism speaks' president and other senior executives. Additionally, autism speaks has a formal compensation structure based on market data of similarly sized national organizations, which determines a salary range by job. Autism Speaks' aims to pay individuals at competitive market rates targeted to the median.”

Form 990, Part VI, Section C, Line 19:

“Autism Speaks' audited financial statements and form 990 are available on its website - autismspeaks.org and are available upon request. Autism Speaks' form 1023, conflict of interests policy and by-laws are available upon request.”

Filing and Contact Details

Filer

Filer Name
Autism Speaks Inc
EIN
20-2329938
In Care Of
% JOSEPH T VANYO
Phone
6463858500
Address
1 East 33rd Street Suite 4th FL, New York, NY 10016

Signing Officer

Name
Joseph T Vanyo
Title
COO
Phone
6463858597
Signed
2021-03-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Joseph T Vanyo
Formed
2005
Legal Domicile
De
Voting Board Members
26
Independent Board Members
26
Employees
216
Volunteers
188,000

Preparer

Firm
Grant Thornton Llp
Address
2001 MARKET STREET SUITE 700, PHILADELPHIA, PA 19103
Preparer
Alycia Solecki
Phone
2155614200
Supplemental Narrative

Additional Explanations

Form 990 Amended Return

“Form 990, Part VII, Col D was originally filed using each individuals 2019 W-2 Gross Compensation. The 990 is being amended to correct this presentation and to report each individuals 2019 W-2, the greater of Box 1 or 5 amount.”

Financial Statement Notes

Part X, Line 2

“The Organization has been granted tax-exempt status as a nonprofit organization under Section 501(c)(3) of the Internal Revenue Code and, accordingly, files Federal Tax Form 990 (Return of Organization Exempt from Income Tax) annually. No provision for income taxes is required in the organization's consolidated financial statements. The Organization files U.S. federal, state and local informational returns, and no returns are currently under examination. The statute of limitations on the Organization's U.S. federal returns remains open for three years following the year they are filed. U.S. GAAP requires that a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The Organization does not believe its consolidated financial statements include uncertain tax positions.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0FUNDED NEARLY $5M IN RESEARCH PROJECTS ACROSS SCIENTIFIC DISCIPLINES, WHICH WILL HELP DELIVER A SPECTRUM OF SOLUTIONS FOR MILLIONS OF AUTISTIC PEOPLE. TRANSITION TO ADULTHOOD RECEIVED THE LARGEST AMOUNT OF FUNDING AT $2.6M. SUPPORTED MULTIPLE STUDIES TO IMPROVE THE LIVES OF PEOPLE WITH AUTISM, AND PUBLISHED RESEARCH ON FACTORS CONTRIBUTING TO UNMET HEALTHCARE NEEDS AMONG CHILDREN. ADVOCATED FOR THE PASSAGE AND ENACTMENT OF THE AUTISM CARES ACT OF 2019, AUTHORIZING $1.85 BILLION IN FEDERAL FUNDING FOR AUTISM RESEARCH, SERVICES, TRAINING AND PREVALENCE MONITORING. CONTINUED PUBLIC AWARENESS EFFORTS TO INCREASE EARLY DIAGNOSIS AND TIMELY INTERVENTION.CLOSED DIAGNOSIS GAP BETWEEN BLACK AND WHITE YOUTH.
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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$46,226,879
Liabilities
$5,438,704
Net assets
$40,788,175
Revenue
$53,701,450
Expenses
$48,144,682
Net income
$5,556,768
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$29.7$2.76$26.9$28.8$34.2$5.37
2023Summary only. Only limited summary data is available for this year.$41.4$3.54$37.8$36.3$42.9$6.65
2022Detailed filing. Detailed filing data is available for this year.$47.8$3.48$44.4$46.8$44.1$2.65
2021Detailed filing. Detailed filing data is available for this year.$48.2$6.50$41.7$42.1$41.2$0.92
2020Detailed filing. Detailed filing data is available for this year.$46.2$5.44$40.8$53.7$48.1$5.56
2019Summary only. Only limited summary data is available for this year.$39.0$3.78$35.2$9.66$8.94$0.72
2018Summary only. Only limited summary data is available for this year.$37.8$3.33$34.5$60.0$40.1$19.9
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.6$5.98$14.6$50.4$42.9$7.58
2016Detailed filing. Detailed filing data is available for this year.$15.4$8.37$7.02$47.6$46.7$0.82
2015Detailed filing. Detailed filing data is available for this year.$18.2$12.0$6.21$58.1$60.6$2.48
2014Detailed filing. Detailed filing data is available for this year.$16.0$7.34$8.69$57.6$58.6$1.02
2013Detailed filing. Detailed filing data is available for this year.$19.7$9.97$9.71$63.8$62.4$1.39
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.8$9.97$5.82$58.7
2011Summary only. Only limited summary data is available for this year.$22.7$11.5$11.2$55.5$56.7$1.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.1$6.62$12.5$48.7
Peer Organizations

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