Civic Intelligence

Patient Access Network Foundation

990 • Fiscal year 2021 • EIN 20-1184743

Jan 01, 2021 to Dec 31, 2021 • Filed on Jun 14, 2022

Organization ProfileWWW.PANFOUNDATION.ORG

View Organization Page

805 15th Street NW 500Washington, DC 20005

(202) 347-9272

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.35x

Higher debt load relative to assets than 56% of similar nonprofits.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2021

Liabilities / Revenue

54th percentile

0.57x

Higher debt load relative to revenue than 54% of similar nonprofits.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2021

Net Margin

4th percentile

-31%

Higher net margin than 4% of similar nonprofits.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2021

Top Officer Pay

29th percentile

$474,105

Higher top officer pay than 29% of similar nonprofits.

Top officer pay equals 0.2% of source-year revenue.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2021

Asset Growth

2nd percentile

-18%

Faster asset growth than 2% of similar nonprofits.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Annualized from 2020 to 2021

Revenue Growth

5th percentile

-31%

Faster revenue growth than 5% of similar nonprofits.

2021 filings • 501(c)3 • $250M-$1B nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets56th percentile

Assets

Flat

$507,970,702

Flat from 2021

Net Assets

Flat

$331,012,509

Flat from 2021

Liabilities

Flat

$176,958,193

Flat from 2021

Revenue And Expenses
Liabilities / Revenue54th percentileNet Margin4th percentile

Revenue

Flat

$310,279,884

Flat from 2021

Expenses

Flat

$406,772,925

Flat from 2021

Net Income

Flat

-$96,493,041

Flat from 2021

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800M$600M$400M$200M$0Assets 2011: $132,290,472Liabilities 2011: $3,001,610Net Assets 2011: $129,288,8622011Assets 2012: $232,396,417Liabilities 2012: $47,176,235Net Assets 2012: $185,220,1822012Assets 2013: $387,017,900Liabilities 2013: $63,602,221Net Assets 2013: $323,415,6792013Assets 2014: $586,880,848Liabilities 2014: $93,515,280Net Assets 2014: $493,365,5682014Assets 2015: $556,249,581Liabilities 2015: $233,201,037Net Assets 2015: $323,048,5442015Assets 2016: $376,824,646Liabilities 2016: $293,898,181Net Assets 2016: $82,926,4652016Assets 2017: $391,367,055Liabilities 2017: $138,137,184Net Assets 2017: $253,229,8712017Assets 2018: $557,200,700Liabilities 2018: $133,224,367Net Assets 2018: $423,976,3332018Assets 2019: $612,088,227Liabilities 2019: $149,414,448Net Assets 2019: $462,673,7792019Assets 2020: $621,060,629Liabilities 2020: $184,400,819Net Assets 2020: $436,659,8102020Assets 2021: $507,970,702Liabilities 2021: $176,958,193Net Assets 2021: $331,012,5092021Assets 2021: $507,970,702Liabilities 2021: $176,958,193Net Assets 2021: $331,012,5092021Assets 2022: $405,191,661Liabilities 2022: $137,766,552Net Assets 2022: $267,425,1092022Assets 2023: $468,568,076Liabilities 2023: $107,379,690Net Assets 2023: $361,188,3862023Assets 2024: $471,257,493Liabilities 2024: $62,244,479Net Assets 2024: $409,013,0142024

Highlighted filing

2021

Assets$507,970,702
Liabilities$176,958,193
Net Assets$331,012,509
Open 2021 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0B$500M$0-$500MExpenses 2011: $35,302,8242011Revenue 2012: $185,973,311Expenses 2012: $120,046,395Net Income 2012: $65,926,9162012Revenue 2013: $320,919,974Expenses 2013: $188,379,924Net Income 2013: $132,540,0502013Revenue 2014: $673,193,900Expenses 2014: $511,376,335Net Income 2014: $161,817,5652014Revenue 2015: $819,426,010Expenses 2015: $967,928,677Net Income 2015: -$148,502,6672015Revenue 2016: $577,624,682Expenses 2016: $821,599,158Net Income 2016: -$243,974,4762016Revenue 2017: $532,273,925Expenses 2017: $360,863,266Net Income 2017: $171,410,6592017Revenue 2018: $540,784,733Expenses 2018: $365,062,418Net Income 2018: $175,722,3152018Revenue 2019: $450,920,542Expenses 2019: $413,026,478Net Income 2019: $37,894,0642019Revenue 2020: $450,697,511Expenses 2020: $477,094,459Net Income 2020: -$26,396,9482020Revenue 2021: $310,279,884Expenses 2021: $406,772,925Net Income 2021: -$96,493,0412021Revenue 2021: $310,279,884Expenses 2021: $406,772,925Net Income 2021: -$96,493,0412021Revenue 2022: $284,201,023Expenses 2022: $330,787,568Net Income 2022: -$46,586,5452022Revenue 2023: $374,424,371Expenses 2023: $288,133,138Net Income 2023: $86,291,2332023Revenue 2024: $203,018,273Expenses 2024: $164,252,647Net Income 2024: $38,765,6262024

Highlighted filing

2021

Revenue$310,279,884
Expenses$406,772,925
Net Income-$96,493,041
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Jun 14, 2022
Return Version
2021v4.2
Gross Receipts
$360,829,204
Mission and Program Overview

Mission

Patient access network (pan) foundation offers help and hope to people with chronic or life threatening illnesses who otherwise cannot afford breakthrough medical treatments. The pan foundation envisions a society in which every individual can access needed medical care, offering hope for a healthy tomorrow. Since 2004, pan foundation has offered financial assistance to over 150,000 patients by giving out approximately $350 million through more than 50 disease categories.

To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$425,171,811$378,725,245▼ $46,446,566
Savings and Temporary Cash Investments$141,398,137$101,414,537▼ $39,983,600
Pledges and Grants Receivable$51,791,285$20,760,000▼ $31,031,285
Land, Buildings, and Equipment, Net$1,997,574$6,115,693▲ $4,118,119
Prepaid Expenses and Deferred Charges$701,822$955,227▲ $253,405
Total Assets$621,060,629$507,970,702▼ $113,089,927
Liabilities
Other Liabilities$169,370,182$162,103,371▼ $7,266,811
Accounts Payable and Accrued Expenses$15,030,637$14,854,822▼ $175,815
Total Liabilities$184,400,819$176,958,193▼ $7,442,626
Net Assets / Fund Balance
Net Assets With Donor Restrictions$395,203,219$288,415,632▼ $106,787,587
Net Assets Without Donor Restrictions$41,456,591$42,596,877▲ $1,140,286
Total Net Assets Fund Balance$436,659,810$331,012,509▼ $105,647,301
Total Liabilities and Net Assets / Fund Balance$621,060,629$507,970,702▼ $113,089,927

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$5,746,387$6,875,709$12,622,096
Leasehold Improvements$369,306$261,507$630,813
Compensation and Service Providers
Top Officer Pay29th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Daniel KleinFormer President & CEOFT$348,014$126,091$474,105
Nechumah GetzCOOFT$219,086$49,223$268,309
Scott SchlenoffCFO & TreasurerFT$206,643$58,576$265,219
Amy NilesExecutive Vice PresidentFT$207,131$47,148$254,279
Leena PatelVice President of DevelopmentFT$186,034$43,975$230,009
Ayesha AzamVice President of Medical AffairsFT$168,747$35,160$203,907
Richard CitrenbaumVice President, Patient Support ServicesFT$166,338$18,038$184,376
Richard CitrenbaumVice President, Patient Support Serv-$149,760$34,616$184,376
Stuart Cherande FriedmanSenior Director of Special ProjectsFT$145,727$29,130$174,857
Deepak ShresthaDirector of ItFT$136,010$37,515$173,525
Kevin HaganPresident & CEO From SeptFT$142,679$4,709$147,388
Susan RuckerChair-$16,000-$16,000
Christopher GrahamDirector-$12,000-$12,000
Deanna BanksVice Chair-$12,000-$12,000
Howard WeinbergDirector-$12,000-$12,000
JOSEPH D'AVELLADirector-$12,000-$12,000
James DunlopDirector-$12,000-$12,000
Jonas De SouzaDirector-$12,000-$12,000
Mary FindleyDirector-$12,000-$12,000
Miriam AtkinsDirector-$12,000-$12,000
Nancy McgeeSecretary-$12,000-$12,000
Wendy BullingtonDirector-$12,000-$12,000
Winfred ParnellDirector-$12,000-$12,000
Gary ThomasDirector-$10,000-$10,000
Jeffrey KingDirector-$8,000-$8,000

Highest Paid Contractors

ContractorServicesLocationCompensation
Caremetx LLCPatient Services6931 ARLINGTON ROAD SUITE 308, Bethesda, MD 20814$8,905,050
Ad HocPatient Services1350 I ST NW SUITE 550, Washington, DC 20005$4,419,793
TrustmarkClaim Administration62923 COLLECTION CENTER DRIVE, Chicago, IL 60693$1,552,000
Ss&c HealthClaim Administration13804 COLLECTIONS DRIVE, Chicago, IL 60693$1,327,149
Summit Business TechnologiesIt Services8223 CLOVERLEAF DRIVE SUITE 100, Millersville, MD 21108$975,115
Revenue and Support

Revenue Composition

Contributions and Grants
$297,101,560
Program Service Revenue
$0
Investment Income
$13,178,324
Other Revenue
$0
All Other Contributions
$297,101,560
Change in Net Assets
$-96,493,041

Audited Revenue Reconciliation

Revenue per Audited Statements
$309,663,705
Revenue Not Reported on Financial Statements
$616,179
Revenue Not Reported on Form 990
$-9,154,260
Total Revenue per Audited Statements
$300,509,445
Total Revenue per Form 990
$310,279,884
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$380,051,359
Other Expenses$17,829,405
Salaries, Compensation, and Employee Benefits$8,351,678
Total Fundraising Expense$1,501,876
Professional Fundraising Fees$540,483

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$380,051,359--$380,051,359
Fees for Services Other$9,824,375$1,284,082$24,648$11,133,105
Other Salaries and Wages$3,109,061$1,389,817$752,329$5,251,207
Depreciation Depletion$3,123,056$10,920-$3,133,976
Current Officers, Directors, Trustees, and Key Employees$522,588$1,052,712-$1,575,300
Other Employee Benefits$643,536$246,019$58,640$948,195
Information Technology$226,157$521,732$60$747,949
Fees for Service Investment Mgmnt Fees-$616,179-$616,179
Fees for Services Legal$36,276$513,556-$549,832
Fees for Services Professional Fundraising--$540,483$540,483
Payroll Taxes$277,821$174,154$57,553$509,528
Occupancy$318,083$71,914$11,064$401,061
Insurance-$312,004-$312,004
Other Expenses$289,422--$289,422
Office Expenses$29,235$197,082$51,786$278,103
Fees for Services Accounting-$247,749-$247,749
Travel$9,770$87,470$394$97,634
Pension Plan Contributions$45,777$17,500$4,171$67,448
Conferences and Meetings$1,311$20,332$748$22,391
Total Functional Expenses$398,507,827$6,763,222$1,501,876$406,772,925

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$406,772,925
Expenses per Audited Statements$406,156,746
Total Expenses per Audited Statements$406,156,746
Expenses Not Reported on Financial Statements$616,179
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$540,483
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Co-payment Assistance Obligation$162,103,371
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the finance committee. All board members receive a copy of the form prior to filing.”

Form 990, Part VI, Section B, Line 12C

“As potential board members or officers are recruited they are asked about possible conflicts of interest. Upon joining pan, and at least annually, members read and sign the conflict of interest policy. If any conflicts are noted on the form, more information will be gathered and it will be determined if the issue is material. In addition, that member will abstain from all discussions and vote on the matter. If it is material, we involve legal counsel and a detailed follow up and resolution will occur.”

Form 990, Part VI, Section B, Line 15

“The independent board determines the compensation for the president/ceo. The new president/ceo started in september 2021. His compensation was determined with the help of an outside consultant who used data from other organizations' 990s. All other employees salaries are determined by the president/ceo in accordance with third party compensation surveys. The most recent staff compensation study was completed in 2020. In addition, periodically, the staff reviews forms 990 of organizations with similar missions to help determine compensation. All discussions are documented in the meeting minutes.”

Form 990, Part VI, Section C, Line 19

“The organization's financial statements are posted on its website. The organization's governing documents and conflict of interest policy may be made available upon request on a case by case basis.”

Filing and Contact Details

Filer

Filer Name
Patient Access Network Foundation
EIN
20-1184743
Phone
2023479272
Address
805 15TH STREET NW 500, WASHINGTON, DC 20005

Signing Officer

Name
Kevin Hagan
Title
President & CEO
Phone
2023479272
Signed
2022-06-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kevin Hagan
Formed
2004
Legal Domicile
Dc
Voting Board Members
14
Independent Board Members
14
Employees
178
Volunteers
0

Preparer

Firm
Cherry Bekaert Llp
Address
1111 METROPOLITAN AVE STE 900, CHARLOTTE, NC 28204
Preparer
Amanda Adams
Phone
7043771678
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is a non-profit, tax-exempt organization under section 501(c)(3) of the internal revenue code. Management believes that the foundation continues to satisfy the requirements of a tax exempt organization and is not subject to tax. Accordingly, no provision for income taxes has been reflected in the accompanying financial statements. Management has evaluated the effect of fasb guidance on accounting for uncertainty in income taxes. The guidance clarifies the accounting for uncertainty in income taxes recognized in an entity's financial statements by prescribing a recognition threshold and measurement attribute for the financial statement recognition and measurement of a tax position taken or expected to be taken in a tax return. The foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position taken by management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO HELP UNDERINSURED PEOPLE WITH LIFE-THREATENING, CHRONIC AND RARE DISEASES GET THE MEDICATIONS AND TREATMENT THEY NEED BY PAYING FOR THEIR OUT-OF-POCKET COSTS AND ADVOCATING FOR IMPROVED ACCESS AND AFFORDABILITY.
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IRS990/Desc0AT THE PAN FOUNDATION, WE ENVISION A NATION IN WHICH EVERYONE CAN GET ACCESS TO THE TREATMENT THEY NEED. WITH THE SUPPORT OF OUR GENEROUS DONORS AND IN COLLABORATION WITH HEALTHCARE PROVIDERS AND PHARMACIES THROUGHOUT THE U.S., PAN IS ABLE TO COVER PREMIUMS, DEDUCTIBLES, CO-PAYMENTS AND COINSURANCE FOR THOUSANDS OF UNDERINSURED PATIENTS. AS A RESULT, THESE PATIENTS ARE ABLE TO OBTAIN THE TREATMENTS THEY NEED TO BEST MANAGE THEIR CONDITIONS AND IMPROVE THEIR QUALITY OF LIFE. IN 2021, THE PAN FOUNDATION ASSISTED 160,554 PATIENTS, AND PAID OVER 888,000 CLAIMS FOR PATIENTS' OUT-OF-POCKET COSTS FOR THEIR CRITICAL MEDICATIONS. THE PAN FOUNDATION OPERATES UNDER AN ADVISORY OPINION ISSUED BY THE U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, OFFICE OF THE INSPECTOR GENERAL (OIG ADVISORY OPINION 07-18). ACCORDINGLY, PAN IS COMMITTED TO OPERATING IN A FULLY COMPLIANT AND TRANSPARENT MANNER THAT MEETS OR EXCEEDS ALL RELEVANT STATUTES AND GUIDANCE FOR CHARITABLE PATIENT ASSISTANCE FOUNDATIONS.
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IRS990/Form990PartVIISectionAGrp/OfficerInd2X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt144709
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1518644
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1628162
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1710482
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1813426
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1917396
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2012843
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt218070
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2213759
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2318038
IRS990/Form990PartVIISectionAGrp/PersonNm0SUSAN RUCKER
IRS990/Form990PartVIISectionAGrp/PersonNm1DEANNA BANKS
IRS990/Form990PartVIISectionAGrp/PersonNm2NANCY MCGEE
IRS990/Form990PartVIISectionAGrp/PersonNm3MIRIAM ATKINS
IRS990/Form990PartVIISectionAGrp/PersonNm4WENDY BULLINGTON
IRS990/Form990PartVIISectionAGrp/PersonNm5JOSEPH D'AVELLA
IRS990/Form990PartVIISectionAGrp/PersonNm6JONAS DE SOUZA
IRS990/Form990PartVIISectionAGrp/PersonNm7JAMES DUNLOP
IRS990/Form990PartVIISectionAGrp/PersonNm8MARY FINDLEY
IRS990/Form990PartVIISectionAGrp/PersonNm9CHRISTOPHER GRAHAM
IRS990/Form990PartVIISectionAGrp/PersonNm10JEFFREY KING
IRS990/Form990PartVIISectionAGrp/PersonNm11WINFRED PARNELL
IRS990/Form990PartVIISectionAGrp/PersonNm12GARY THOMAS
IRS990/Form990PartVIISectionAGrp/PersonNm13HOWARD WEINBERG
IRS990/Form990PartVIISectionAGrp/PersonNm14KEVIN HAGAN
IRS990/Form990PartVIISectionAGrp/PersonNm15AMY NILES
IRS990/Form990PartVIISectionAGrp/PersonNm16SCOTT SCHLENOFF
IRS990/Form990PartVIISectionAGrp/PersonNm17NECHUMAH GETZ
IRS990/Form990PartVIISectionAGrp/PersonNm18DANIEL KLEIN
IRS990/Form990PartVIISectionAGrp/PersonNm19LEENA PATEL
IRS990/Form990PartVIISectionAGrp/PersonNm20AYESHA AZAM
IRS990/Form990PartVIISectionAGrp/PersonNm21STUART CHERANDE FRIEDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm22DEEPAK SHRESTHA
IRS990/Form990PartVIISectionAGrp/PersonNm23RICHARD CITRENBAUM
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt112000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt212000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt312000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt412000
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1312000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14142679
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15235635
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16237057
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17257827
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18460679
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19212613
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20191064
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21166787
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22159766
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23166338
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14PRESIDENT & CEO FROM SEPT
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt16CFO & TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt17COO
IRS990/Form990PartVIISectionAGrp/TitleTxt18FORMER PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt19VICE PRESIDENT OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt20VICE PRESIDENT OF MEDICAL AFFAIRS
IRS990/Form990PartVIISectionAGrp/TitleTxt21SENIOR DIRECTOR OF SPECIAL PROJECTS
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR OF IT
IRS990/Form990PartVIISectionAGrp/TitleTxt23VICE PRESIDENT, PATIENT SUPPORT SERVICES
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02004
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt03951441
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantAmt0380051359
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0380051359
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0380051359
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt054500761
IRS990/GrossReceiptsAmt0360829204
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt020
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt060
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0521732
IRS990/InformationTechnologyGrp/ProgramServicesAmt0226157
IRS990/InformationTechnologyGrp/TotalAmt0747949
IRS990/InsuranceGrp/ManagementAndGeneralAmt0312004
IRS990/InsuranceGrp/TotalAmt0312004
IRS990/InvestmentIncomeGrp/ExclusionAmt09226883
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt09226883
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0425171811
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0378725245
IRS990/IRPDocumentCnt043
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt07137216
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IRS990/LandBldgEquipCostOrOtherBssAmt013252909
IRS990/LegalDomicileStateCd0DC
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt050549320
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO HELP UNDERINSURED PEOPLE WITH LIFE-THREATENING, CHRONIC AND RARE DISEASES GET THE MEDICATIONS AND TREATMENT THEY NEED BY PAYING FOR THEIR OUT-OF-POCKET COSTS AND ADVOCATING FOR IMPROVED ACCESS AND AFFORDABILITY.
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IRS990/MoreThan5000KToOrgInd00
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IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt03951441
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IRS990/NetUnrlzdGainsLossesInvstAmt0-9154260
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IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt042596877
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011064
IRS990/OccupancyGrp/ManagementAndGeneralAmt071914
IRS990/OccupancyGrp/ProgramServicesAmt0318083
IRS990/OccupancyGrp/TotalAmt0401061
IRS990/OfficeExpensesGrp/FundraisingAmt051786
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0197082
IRS990/OfficeExpensesGrp/ProgramServicesAmt029235
IRS990/OfficeExpensesGrp/TotalAmt0278103
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt058640
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0246019
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0643536
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0948195
IRS990/OtherExpensesGrp/Desc0ALLIANCE EXPENSES
IRS990/OtherExpensesGrp/ProgramServicesAmt0289422
IRS990/OtherExpensesGrp/TotalAmt0289422
IRS990/OtherLiabilitiesGrp/BOYAmt0169370182
IRS990/OtherLiabilitiesGrp/EOYAmt0162103371
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0752329
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt01389817
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt03109061
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IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt057553
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0174154
IRS990/PayrollTaxesGrp/ProgramServicesAmt0277821
IRS990/PayrollTaxesGrp/TotalAmt0509528
IRS990/PensionPlanContributionsGrp/FundraisingAmt04171
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt017500
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt045777
IRS990/PensionPlanContributionsGrp/TotalAmt067448
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt051791285
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt020760000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0701822
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0955227
IRS990/PrincipalOfficerNm0KEVIN HAGAN

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$507,970,702
Liabilities
$176,958,193
Net assets
$331,012,509
Revenue
$310,279,884
Expenses
$406,772,925
Net income
-$96,493,041
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$471$62.2$409$203$164$38.8
2023Summary only. Only limited summary data is available for this year.$469$107$361$374$288$86.3
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$405$138$267$284$331$46.6
2021Detailed filing. Detailed filing data is available for this year.$508$177$331$310$407$96.5
2021Summary only. Only limited summary data is available for this year.$508$177$331$310$407$96.5
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$621$184$437$451$477$26.4
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$612$149$463$451$413$37.9
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$557$133$424$541$365$176
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$391$138$253$532$361$171
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$377$294$82.9$578$822$244
2015Detailed filing. Detailed filing data is available for this year.$556$233$323$819$968$149
2014Detailed filing. Detailed filing data is available for this year.$587$93.5$493$673$511$162
2013Detailed filing. Detailed filing data is available for this year.$387$63.6$323$321$188$133
2012Summary only. Only limited summary data is available for this year.$232$47.2$185$186$120$65.9
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$132$3.00$129$35.3