Civic Intelligence

Patient Access Network Foundation

990 • Fiscal year 2016 • EIN 20-1184743

Jan 01, 2016 to Dec 31, 2016 • Filed on Jul 07, 2017

Organization Profilewww.panfoundation.org

View Organization Page

1331 F STREET No 975Washington, DC 20004

(202) 347-9272

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

88th percentile

0.78x

Higher debt load relative to assets than 88% of similar nonprofits.

2016 filings • 501(c)3 • $1B+ nonprofits • Source year 2016

Liabilities / Revenue

30th percentile

0.51x

Higher debt load relative to revenue than 30% of similar nonprofits.

2016 filings • 501(c)3 • $1B+ nonprofits • Source year 2016

Net Margin

3rd percentile

-42%

Higher net margin than 3% of similar nonprofits.

2016 filings • 501(c)3 • $1B+ nonprofits • Source year 2016

Top Officer Pay

4th percentile

$394,267

Higher top officer pay than 4% of similar nonprofits.

Top officer pay equals 0.1% of source-year revenue.

2016 filings • 501(c)3 • $1B+ nonprofits • Source year 2016

Asset Growth

1st percentile

-32%

Faster asset growth than 1% of similar nonprofits.

2016 filings • 501(c)3 • $1B+ nonprofits • Annualized from 2015 to 2016

Revenue Growth

8th percentile

-30%

Faster revenue growth than 8% of similar nonprofits.

2016 filings • 501(c)3 • $1B+ nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets88th percentile

Assets

Down

$376,824,646

Down $179,424,935 (-32%) from 2015

Net Assets

Down

$82,926,465

Down $240,122,079 (-74%) from 2015

Liabilities

Up

$293,898,181

Up $60,697,144 (+26%) from 2015

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin3rd percentile

Revenue

Down

$577,624,682

Down $241,801,328 (-30%) from 2015

Expenses

Down

$821,599,158

Down $146,329,519 (-15%) from 2015

Net Income

Down

-$243,974,476

Down $95,471,809 (-64%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth1st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800M$600M$400M$200M$0Assets 2011: $132,290,472Liabilities 2011: $3,001,610Net Assets 2011: $129,288,8622011Assets 2012: $232,396,417Liabilities 2012: $47,176,235Net Assets 2012: $185,220,1822012Assets 2013: $387,017,900Liabilities 2013: $63,602,221Net Assets 2013: $323,415,6792013Assets 2014: $586,880,848Liabilities 2014: $93,515,280Net Assets 2014: $493,365,5682014Assets 2015: $556,249,581Liabilities 2015: $233,201,037Net Assets 2015: $323,048,5442015Assets 2016: $376,824,646Liabilities 2016: $293,898,181Net Assets 2016: $82,926,4652016Assets 2017: $391,367,055Liabilities 2017: $138,137,184Net Assets 2017: $253,229,8712017Assets 2018: $557,200,700Liabilities 2018: $133,224,367Net Assets 2018: $423,976,3332018Assets 2019: $612,088,227Liabilities 2019: $149,414,448Net Assets 2019: $462,673,7792019Assets 2020: $621,060,629Liabilities 2020: $184,400,819Net Assets 2020: $436,659,8102020Assets 2021: $507,970,702Liabilities 2021: $176,958,193Net Assets 2021: $331,012,5092021Assets 2022: $405,191,661Liabilities 2022: $137,766,552Net Assets 2022: $267,425,1092022Assets 2023: $468,568,076Liabilities 2023: $107,379,690Net Assets 2023: $361,188,3862023Assets 2024: $471,257,493Liabilities 2024: $62,244,479Net Assets 2024: $409,013,0142024

Highlighted filing

2016

Assets$376,824,646
Liabilities$293,898,181
Net Assets$82,926,465
Open 2016 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0B$500M$0-$500MExpenses 2011: $35,302,8242011Revenue 2012: $185,973,311Expenses 2012: $120,046,395Net Income 2012: $65,926,9162012Revenue 2013: $320,919,974Expenses 2013: $188,379,924Net Income 2013: $132,540,0502013Revenue 2014: $673,193,900Expenses 2014: $511,376,335Net Income 2014: $161,817,5652014Revenue 2015: $819,426,010Expenses 2015: $967,928,677Net Income 2015: -$148,502,6672015Revenue 2016: $577,624,682Expenses 2016: $821,599,158Net Income 2016: -$243,974,4762016Revenue 2017: $532,273,925Expenses 2017: $360,863,266Net Income 2017: $171,410,6592017Revenue 2018: $540,784,733Expenses 2018: $365,062,418Net Income 2018: $175,722,3152018Revenue 2019: $450,920,542Expenses 2019: $413,026,478Net Income 2019: $37,894,0642019Revenue 2020: $450,697,511Expenses 2020: $477,094,459Net Income 2020: -$26,396,9482020Revenue 2021: $310,279,884Expenses 2021: $406,772,925Net Income 2021: -$96,493,0412021Revenue 2022: $284,201,023Expenses 2022: $330,787,568Net Income 2022: -$46,586,5452022Revenue 2023: $374,424,371Expenses 2023: $288,133,138Net Income 2023: $86,291,2332023Revenue 2024: $203,018,273Expenses 2024: $164,252,647Net Income 2024: $38,765,6262024

Highlighted filing

2016

Revenue$577,624,682
Expenses$821,599,158
Net Income-$243,974,476
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jul 7, 2017
Return Version
2016v3.0
Gross Receipts
$1,526,047,162
Mission and Program Overview

Mission

Patient access network (pan) foundation offers help and hope to people with chronic or life threatening illnesses who otherwise cannot afford breakthrough medical treatments. The pan foundation envisions a society in which every individual can access needed medical care, offering hope for a healthy tomorrow. Since 2004, pan foundation has offered financial assistance to over 150,000 patients by giving out approximately $350 million through more than 50 disease categories.

To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$368,005,610$233,489,621▼ $134,515,989
Savings and Temporary Cash Investments$134,791,857$86,443,241▼ $48,348,616
Pledges and Grants Receivable$53,205,000$53,305,500▲ $100,500
Land, Buildings, and Equipment, Net$99,138$3,253,267▲ $3,154,129
Prepaid Expenses and Deferred Charges$147,977$333,017▲ $185,040
Total Assets$556,249,582$376,824,646▼ $179,424,936
Liabilities
Other Liabilities$217,199,905$219,592,489▲ $2,392,584
Mortgage Notes Payable Secured by Investment Property-$65,209,235-
Accounts Payable and Accrued Expenses$16,001,134$9,096,457▼ $6,904,677
Total Liabilities$233,201,039$293,898,181▲ $60,697,142
Net Assets / Fund Balance
Temporarily Rstr Net Assets$305,560,439$70,150,166▼ $235,410,273
Unrestricted Net Assets$17,488,104$12,776,299▼ $4,711,805
Total Net Assets Fund Balance$323,048,543$82,926,465▼ $240,122,078
Total Liabilities and Net Assets / Fund Balance$556,249,582$376,824,646▼ $179,424,936

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,247,656$54,809$3,302,465
Leasehold Improvements$5,611$23,764$29,375
Compensation and Service Providers
Top Officer Pay4th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Daniel KleinPresident & CEOFT$332,572$61,695$394,267
John CroutCOO & General CounselFT$187,329$84,133$271,462
Amy NilesVice President, External AffairsFT$169,437$65,787$235,224
Scott SchlenoffCFO & TreasurerFT$155,372$49,951$205,323
Margaret FigleyDirector of CommunicationsFT$124,352$55,766$180,118
Bruce BarthCTOFT$143,532$21,125$164,657
Richard GoldsteinFormer CFO-$106,010-$106,010
Constance GarciaDirector-$12,000-$12,000
Donald BaroneChairman-$12,000-$12,000
Fred SchnellDirECTOR-$12,000-$12,000
Ian SpatzDirector-$12,000-$12,000
Martin BieberdIRECTOR-$12,000-$12,000
Michael O'GradyDirector-$12,000-$12,000
Norrie ThomasDirector-$12,000-$12,000
Susan RuckerDirector-$12,000-$12,000
grant lawlessDirector-$12,000-$12,000
Jonas De SouzaDirector-$8,000-$8,000
Kenneth WellsDirector-$8,000-$8,000
Miriam AtkinsDirector-$4,000-$4,000
William ScanlonDirector-$4,000-$4,000

Highest Paid Contractors

ContractorServicesLocationCompensation
Lash Group Amerisource Bergen ConsultingPatient Services1800 Innovation Point Kingsley Park, Ft Mill, SC 29715$20,614,657
CoreSource IncPatient Services62923 Collection Center Drive, Chicago, IL 60693$4,309,889
CareMetx LLCSoftware Development6931 Arlington Road Suite 308, Bethesda, MD 20814$3,116,605
MillimanActuaries111 Monument Circle Suite 601, Indianapolis, IN 46204$790,241
Schaner & Lubitz PLLCLegal Services6931 Arlington Road Suite 200, Bethesda, MD 20814$321,099
Revenue and Support

Revenue Composition

Contributions and Grants
$582,541,219
Program Service Revenue
$0
Investment Income
$-4,916,537
Other Revenue
$0
All Other Contributions
$582,541,219
Change in Net Assets
$-243,974,476

Audited Revenue Reconciliation

Revenue per Audited Statements
$576,251,480
Revenue Not Reported on Financial Statements
$1,373,202
Revenue Not Reported on Form 990
$3,852,398
Total Revenue per Audited Statements
$580,103,878
Total Revenue per Form 990
$577,624,682
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$784,840,353
Other Expenses$33,513,090
Salaries, Compensation, and Employee Benefits$3,245,715
Total Fundraising Expense$1,194,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$784,840,353--$784,840,353
Fees for Services Management$26,758,435--$26,758,435
Other Salaries and Wages$489,185$770,869$385,091$1,645,145
Interest-$1,400,009-$1,400,009
Fees for Service Investment Mgmnt Fees-$1,373,202-$1,373,202
Fees for Services Other$656,241$507,281$55,750$1,219,272
Current Officers, Directors, Trustees, and Key Employees$312,393$633,863$221,453$1,167,709
Fees for Services Legal$112,403$399,311$9,075$520,789
Information Technology$82,136$181,259$24,007$287,402
Fees for Services Accounting-$278,471-$278,471
Occupancy-$234,776-$234,776
Other Employee Benefits$51,991$152,303$9,943$214,237
Office Expenses$41,956$156,371$5,541$203,868
Payroll Taxes$50,494$80,926$39,063$170,483
Travel$52,598$94,438$14,220$161,256
Insurance$1,420$111,338$425$113,183
Conferences and Meetings$15,334$64,433$929$80,696
Pension Plan Contributions$28,829$17,992$1,320$48,141
Depreciation Depletion-$26,705-$26,705
Other Expenses$4,091$832$427,683$4,923
Total Functional Expenses$813,920,279$6,484,379$1,194,500$821,599,158

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$821,599,158
Expenses per Audited Statements$820,225,956
Total Expenses per Audited Statements$820,225,956
Expenses Not Reported on Financial Statements$1,373,202
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Common board memberSee Part VNo$224,467
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Co Payment Assistance Obligation$219,592,489
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The 990 is reviewed by the finance committee. All board members receive a copy of the form prior to filing.”

Form 990, Part VI, Section B, line 12C

“As potential Board members or officers are recruited they are asked about possible conflicts of interest. Upon joining PAN, and at least annually, members read and sign the Conflict of Interest Policy. If any conflicts are noted on the form, more information will be gathered and it will be determined if the issue is material. In addition, that member will abstain from all discussions and vote on the matter. If it is material, we involve legal counsel and a detailed follow up and resolution will occur.”

Form 990, Part VI, Section B, line 15

“THE INDEPENDENT BOARD DETERMINES THE COMPENSATION FOR THE PRESIDENT/CEO. THE NEW PRESIDENT/CEO STARTED IN NOVEMBER 2014. HIS COMPENSATION WAS DETERMINED WITH THE HELP OF AN OUTSIDE CONSULTANT WHO USED DATA FROM OTHER ORGANIZATIONS' 990S. ALL OTHER EMPLOYEES SALARIES ARE DETERMINED BY THE PRESIDENT/CEO. A STAFF COMPENSATION STUDY WAS COMPLETED IN 2014 AS WELL AS 2016. THE BOARD REVIEWED FINDINGS AND TOOK THEM INTO CONSIDERATION WHEN DETERMINING COMPENSATION LEVELS. IN ADDITION, PERIODICALLY, THE STAFF REVIEWS FORMS 990 OF ORGANIZATIONS WITH SIMILAR MISSIONS TO HELP DETERMINE COMPENSATION. All discussions are documented in the meeting minutes.”

Form 990, Part VI, Section C, line 19

“The organization's financial statements are posted on its website. The organization's governing documents and conflict of interest policy may be made available upon request on a case by case basis.”

Filing and Contact Details

Filer

Filer Name
Patient Access Network Foundation
EIN
20-1184743
Phone
2023479272
Address
1331 F STREET No 975, WASHINGTON, DC 20004

Signing Officer

Name
Daniel Klein
Title
President & CEO
Phone
2023479272
Signed
2017-07-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Daniel Klein
Formed
2004
Legal Domicile
Dc
Voting Board Members
13
Independent Board Members
12
Employees
21
Volunteers
13

Preparer

Firm
Cherry Bekaert Llp
Address
1111 Metropolitan Ave Ste 1000, Charlotte, NC 28204
Preparer
Amanda Adams
Phone
7043771678
Supplemental Narrative

Additional Explanations

form 990, part XII, line 2C

“The audit, risk, oversight and compliance committee's (arocc) purpose is to assist the board in its oversight of the foundation's financial affairs, including the audit process. It is the committee's responsibility to select and discharge independent auditors and supervise and evaluate the performance of the auditors.”

Form 990, part V, lINE 1

“During 2016, the foundation hired coresource, inc. To process its payments for medical services. Coresource issues 1099s to any providers it pays on behalf of the foundation. Therefore, the number of 1099s filed by the foundation in 2016 is significantly less than in prior years.”

Financial Statement Notes

Part X, Line 2:

“The foundation is a nonprofit, tax-exempt organization under section 501(c)(3) of the internal revenue code. Management believes that the foundation continues to satisfy the requirements of a tax exempt organization and is not subject to tax. Accordingly, no provision for income taxes has been reflected in the accompanying financial statements. Management has evaluated the effect of fasb guidance on accounting for uncertainty in income taxes. The guidance clarifies the accounting for uncertainty in income taxes recognized in an entity's financial statements by prescribing a recognition threshold and measurement attribute for the financial statement recognition and measurement of a tax position taken or expected to be taken in a tax return. The foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position taken by management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination. Management believes there are no such positions as of december 31, 2016 and 2015 and, accordingly, no liability has been accrued. The foundation believes it is no longer subject to tax examinations for tax years prior to 2011.”

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IRS990/Desc0At the PAN Foundation, we envision a nation in which everyone can get the health care they need. We work toward this goal by helping underinsured people with life-threatening, chronic and rare diseases get access to necessary medications and treatment. Partnering with generous donors, healthcare providers and pharmacies, PAN covers out-of-pocket costs for underinsured patients, providing access to the therapies they need to best manage their conditions and improve their quality of life. In 2016, the PAN Foundation assisted a total of 263,238 patients. Of that total, 191,835 were patients seeking and receiving assistance from the PAN Foundation for the first time. In the same year, PAN paid more than 1,500,000 claims related to patients' out-of-pocket prescription drug expenses and received over 600,000 phone calls. PAN's reach includes partnerships with over 1,673 specialty pharmacies and more than 132,050 providers across the USA.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1432326
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1549029
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1731757
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1823682
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/PersonNm0Donald Barone
IRS990/Form990PartVIISectionAGrp/PersonNm1Miriam Atkins
IRS990/Form990PartVIISectionAGrp/PersonNm2MARTIN BIEBER
IRS990/Form990PartVIISectionAGrp/PersonNm3Jonas De Souza
IRS990/Form990PartVIISectionAGrp/PersonNm4Constance Garcia
IRS990/Form990PartVIISectionAGrp/PersonNm5grant lawless
IRS990/Form990PartVIISectionAGrp/PersonNm6Michael O'Grady
IRS990/Form990PartVIISectionAGrp/PersonNm7Susan Rucker
IRS990/Form990PartVIISectionAGrp/PersonNm8William Scanlon
IRS990/Form990PartVIISectionAGrp/PersonNm9Fred Schnell
IRS990/Form990PartVIISectionAGrp/PersonNm10Ian Spatz
IRS990/Form990PartVIISectionAGrp/PersonNm11Norrie Thomas
IRS990/Form990PartVIISectionAGrp/PersonNm12KENNETH WELLS
IRS990/Form990PartVIISectionAGrp/PersonNm13Daniel Klein
IRS990/Form990PartVIISectionAGrp/PersonNm14SCOTT SCHLENOFF
IRS990/Form990PartVIISectionAGrp/PersonNm15JOHN CROUT
IRS990/Form990PartVIISectionAGrp/PersonNm16Bruce Barth
IRS990/Form990PartVIISectionAGrp/PersonNm17Margaret Figley
IRS990/Form990PartVIISectionAGrp/PersonNm18Amy Niles
IRS990/Form990PartVIISectionAGrp/PersonNm19RICHARD GOLDSTEIN
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt212000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt38000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt412000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt512000
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt84000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt912000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1012000
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt128000
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15222433
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16153845
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18211542
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19106010
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2dIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DirECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13President & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt14CFO & Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt15COO & GENERAL COUNSEL
IRS990/Form990PartVIISectionAGrp/TitleTxt16CTO
IRS990/Form990PartVIISectionAGrp/TitleTxt17Director of Communications
IRS990/Form990PartVIISectionAGrp/TitleTxt18Vice President, External Affairs
IRS990/Form990PartVIISectionAGrp/TitleTxt19FORMER CFO
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IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0933978806
IRS990/GrossReceiptsAmt01526047162
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
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IRS990/IndivRcvdGreaterThan100KCnt07
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt024007
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0181259
IRS990/InformationTechnologyGrp/ProgramServicesAmt082136
IRS990/InformationTechnologyGrp/TotalAmt0287402
IRS990/InsuranceGrp/FundraisingAmt0425
IRS990/InsuranceGrp/ManagementAndGeneralAmt0111338
IRS990/InsuranceGrp/ProgramServicesAmt01420
IRS990/InsuranceGrp/TotalAmt0113183
IRS990/InterestGrp/ManagementAndGeneralAmt01400009
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IRS990/IRPDocumentW2GCnt00
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IRS990/LandBldgEquipCostOrOtherBssAmt03331840
IRS990/LegalDomicileStateCd0DC
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.
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IRS990/MoreThan5000KToOrgInd00
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IRS990/OfficeExpensesGrp/ProgramServicesAmt041956
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IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$376,824,646
Liabilities
$293,898,181
Net assets
$82,926,465
Revenue
$577,624,682
Expenses
$821,599,158
Net income
-$243,974,476
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$471$62.2$409$203$164$38.8
2023Summary only. Only limited summary data is available for this year.$469$107$361$374$288$86.3
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$405$138$267$284$331$46.6
2021Summary only. Only limited summary data is available for this year.$508$177$331$310$407$96.5
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$621$184$437$451$477$26.4
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$612$149$463$451$413$37.9
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$557$133$424$541$365$176
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$391$138$253$532$361$171
2016Detailed filing. Detailed filing data is available for this year.$377$294$82.9$578$822$244
2015Detailed filing. Detailed filing data is available for this year.$556$233$323$819$968$149
2014Detailed filing. Detailed filing data is available for this year.$587$93.5$493$673$511$162
2013Detailed filing. Detailed filing data is available for this year.$387$63.6$323$321$188$133
2012Summary only. Only limited summary data is available for this year.$232$47.2$185$186$120$65.9
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$132$3.00$129$35.3