Civic Intelligence

Patient Access Network Foundation

990 • Fiscal year 2020 • EIN 20-1184743

Jan 01, 2020 to Dec 31, 2020 • Filed on Oct 25, 2021

805 15th Street NW No 500Washington, DC 20005

(202) 347-9272

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.30x

Higher debt load relative to assets than 45% of similar nonprofits.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2020

Liabilities / Revenue

36th percentile

0.41x

Higher debt load relative to revenue than 36% of similar nonprofits.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2020

Net Margin

16th percentile

-5.9%

Higher net margin than 16% of similar nonprofits.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2020

Top Officer Pay

23rd percentile

$436,299

Higher top officer pay than 23% of similar nonprofits.

Top officer pay equals 0.1% of source-year revenue.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Source year 2020

Asset Growth

32nd percentile

1.5%

Faster asset growth than 32% of similar nonprofits.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Annualized from 2019 to 2020

Revenue Growth

42nd percentile

-0.0%

Faster revenue growth than 42% of similar nonprofits.

2020 filings • 501(c)3 • $250M-$1B nonprofits • Annualized from 2019 to 2020

Assets

Up

$621,060,629

Up $8,972,402 (+1.5%) from 2019

Net Assets

Down

$436,659,810

Down $26,013,969 (-5.6%) from 2019

Liabilities

Up

$184,400,819

Up $34,986,371 (+23%) from 2019

Revenue

Down

$450,697,511

Down $223,031 (-0.0%) from 2019

Expenses

Up

$477,094,459

Up $64,067,981 (+16%) from 2019

Net Income

Down

-$26,396,948

Down $64,291,012 (-170%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800M$600M$400M$200M$0Assets 2011: $132,290,472Liabilities 2011: $3,001,610Net Assets 2011: $129,288,8622011Assets 2012: $232,396,417Liabilities 2012: $47,176,235Net Assets 2012: $185,220,1822012Assets 2013: $387,017,900Liabilities 2013: $63,602,221Net Assets 2013: $323,415,6792013Assets 2014: $586,880,848Liabilities 2014: $93,515,280Net Assets 2014: $493,365,5682014Assets 2015: $556,249,581Liabilities 2015: $233,201,037Net Assets 2015: $323,048,5442015Assets 2016: $376,824,646Liabilities 2016: $293,898,181Net Assets 2016: $82,926,4652016Assets 2017: $391,367,055Liabilities 2017: $138,137,184Net Assets 2017: $253,229,8712017Assets 2018: $557,200,700Liabilities 2018: $133,224,367Net Assets 2018: $423,976,3332018Assets 2019: $612,088,227Liabilities 2019: $149,414,448Net Assets 2019: $462,673,7792019Assets 2020: $621,060,629Liabilities 2020: $184,400,819Net Assets 2020: $436,659,8102020Assets 2021: $507,970,702Liabilities 2021: $176,958,193Net Assets 2021: $331,012,5092021Assets 2022: $405,191,661Liabilities 2022: $137,766,552Net Assets 2022: $267,425,1092022Assets 2023: $468,568,076Liabilities 2023: $107,379,690Net Assets 2023: $361,188,3862023Assets 2024: $471,257,493Liabilities 2024: $62,244,479Net Assets 2024: $409,013,0142024

Highlighted filing

2020

Assets$621,060,629
Liabilities$184,400,819
Net Assets$436,659,810

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0B$500M$0-$500MExpenses 2011: $35,302,8242011Revenue 2012: $185,973,311Expenses 2012: $120,046,395Net Income 2012: $65,926,9162012Revenue 2013: $320,919,974Expenses 2013: $188,379,924Net Income 2013: $132,540,0502013Revenue 2014: $673,193,900Expenses 2014: $511,376,335Net Income 2014: $161,817,5652014Revenue 2015: $819,426,010Expenses 2015: $967,928,677Net Income 2015: -$148,502,6672015Revenue 2016: $577,624,682Expenses 2016: $821,599,158Net Income 2016: -$243,974,4762016Revenue 2017: $532,273,925Expenses 2017: $360,863,266Net Income 2017: $171,410,6592017Revenue 2018: $540,784,733Expenses 2018: $365,062,418Net Income 2018: $175,722,3152018Revenue 2019: $450,920,542Expenses 2019: $413,026,478Net Income 2019: $37,894,0642019Revenue 2020: $450,697,511Expenses 2020: $477,094,459Net Income 2020: -$26,396,9482020Revenue 2021: $310,279,884Expenses 2021: $406,772,925Net Income 2021: -$96,493,0412021Revenue 2022: $284,201,023Expenses 2022: $330,787,568Net Income 2022: -$46,586,5452022Revenue 2023: $374,424,371Expenses 2023: $288,133,138Net Income 2023: $86,291,2332023Revenue 2024: $203,018,273Expenses 2024: $164,252,647Net Income 2024: $38,765,6262024

Highlighted filing

2020

Revenue$450,697,511
Expenses$477,094,459
Net Income-$26,396,948
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Oct 25, 2021
Return Version
2020v4.1
Gross Receipts
$466,908,530
Mission and Program Overview

Mission

Patient access network (pan) foundation offers help and hope to people with chronic or life threatening illnesses who otherwise cannot afford breakthrough medical treatments. The pan foundation envisions a society in which every individual can access needed medical care, offering hope for a healthy tomorrow. Since 2004, pan foundation has offered financial assistance to over 150,000 patients by giving out approximately $350 million through more than 50 disease categories.

To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$321,753,045$425,171,811▲ $103,418,766
Savings and Temporary Cash Investments$252,740,835$141,398,137▼ $111,342,698
Pledges and Grants Receivable$32,083,000$51,791,285▲ $19,708,285
Accounts Receivable$2,073,840--
Land, Buildings, and Equipment, Net$3,198,141$1,997,574▼ $1,200,567
Prepaid Expenses and Deferred Charges$239,366$701,822▲ $462,456
Total Assets$612,088,227$621,060,629▲ $8,972,402
Liabilities
Other Liabilities$137,364,470$169,370,182▲ $32,005,712
Accounts Payable and Accrued Expenses$12,049,978$15,030,637▲ $2,980,659
Total Liabilities$149,414,448$184,400,819▲ $34,986,371
Net Assets / Fund Balance
Net Assets With Donor Restrictions$429,657,732$395,203,219▼ $34,454,513
Net Assets Without Donor Restrictions$33,016,047$41,456,591▲ $8,440,544
Total Net Assets Fund Balance$462,673,779$436,659,810▼ $26,013,969
Total Liabilities and Net Assets / Fund Balance$612,088,227$621,060,629▲ $8,972,402

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$1,971,633$3,977,516$5,949,149
Leasehold Improvements$25,941$25,722$51,663
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Daniel KleinPresident & CEOFT$364,608$71,691$436,299
Scott SchlenoffCFO & TreasurerFT$201,816$66,110$267,926
Amy NilesExecutive Vice PresidentFT$202,295$59,942$262,237
Nechumah GetzCOOFT$202,283$38,584$240,867
Leena PatelVice President of DevelopmentFT$174,336$40,434$214,770
Ayesha AzamVice President of Medical AffairsFT$164,197$32,191$196,388
Joel StrausControllerFT$130,558$60,080$190,638
Stuart Cherande FriedmanSenior Director of Special ProjectsFT$147,171$26,517$173,688
Deepak ShresthaDirector of Information TechnologyFT$129,150$31,072$160,222
Martin BieberChair-$14,000-$14,000
Christopher GrahamDirector-$10,000-$10,000
Deanna BanksDirector-$10,000-$10,000
Gary ThomasDirector-$10,000-$10,000
James DunlopDirector-$10,000-$10,000
Jeffrey KingDirector-$10,000-$10,000
Jonas De SouzaDirector-$10,000-$10,000
Kenneth WellsDirector-$10,000-$10,000
Mary FindleyDirector-$10,000-$10,000
Miriam AtkinsDirector-$10,000-$10,000
Nancy McgeeSecretary-$10,000-$10,000
Susan RuckerVice Chair-$10,000-$10,000
Wendy BullingtonDirector-$10,000-$10,000

Highest Paid Contractors

ContractorServicesLocationCompensation
Caremetx LLCPatient Services6931 ARLINGTON ROAD SUITE 308, Bethesda, MD 20814$17,463,676
TrustmarkClaim Administration62923 COLLECTION CENTER DRIVE, Chicago, IL 60693$1,500,000
Ss&c HealthClaim Administration13804 COLLECTIONS DRIVE, Chicago, IL 60693$1,475,825
Threespot Media LLCWebsite, Branding And Graphic Design1325 G ST NW SUITE 500, Washington, DC 20005$855,770
Faegre Drinker Biddle & Reath LLPLegal Services1500 K STREET NW, Washington, DC 20005$834,961
Revenue and Support

Revenue Composition

Contributions and Grants
$439,121,644
Program Service Revenue
$0
Investment Income
$11,575,867
Other Revenue
$0
All Other Contributions
$439,121,644
Change in Net Assets
$-26,396,948

Audited Revenue Reconciliation

Revenue per Audited Statements
$449,985,815
Revenue Not Reported on Financial Statements
$711,696
Revenue Not Reported on Form 990
$382,979
Total Revenue per Audited Statements
$450,368,794
Total Revenue per Form 990
$450,697,511
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$454,243,207
Other Expenses$18,069,237
Salaries, Compensation, and Employee Benefits$4,277,002
Total Fundraising Expense$1,125,006
Professional Fundraising Fees$505,013

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$454,243,207--$454,243,207
Fees for Services Other$8,672,307$3,432,887$25,877$12,131,071
Other Salaries and Wages$774,242$1,276,400$283,791$2,334,433
Current Officers, Directors, Trustees, and Key Employees$414,040$780,971$146,320$1,341,331
Depreciation Depletion$1,090,711$86,315$23,541$1,200,567
Fees for Services Legal$5,250$1,152,956-$1,158,206
Information Technology$124,658$593,456$10,959$729,073
Fees for Service Investment Mgmnt Fees-$711,696-$711,696
Fees for Services Accounting-$507,095-$507,095
Fees for Services Professional Fundraising--$505,013$505,013
Occupancy$359,615$28,459$7,761$395,835
Other Expenses$363,630$6,210-$369,840
All Other Expenses-$350,000-$350,000
Other Employee Benefits$107,114$126,086$31,354$264,554
Insurance-$251,299-$251,299
Payroll Taxes$79,186$133,460$27,734$240,380
Office Expenses$8,055$116,196$46,221$170,472
Pension Plan Contributions$53,484$31,709$11,111$96,304
Conferences and Meetings$3,385$43,941$3,449$50,775
Travel$6,738$34,695$1,875$43,308
Total Functional Expenses$466,305,622$9,663,831$1,125,006$477,094,459

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$477,094,459
Expenses per Audited Statements$476,382,763
Total Expenses per Audited Statements$476,382,763
Expenses Not Reported on Financial Statements$711,696
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$505,013
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Co-payment Assistance Obligation$169,370,182
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The 990 is reviewed by the finance committee. All board members receive a copy of the form prior to filing.

Form 990, Part VI, Section B, Line 12C

As potential board members or officers are recruited they are asked about possible conflicts of interest. Upon joining pan, and at least annually, members read and sign the conflict of interest policy. If any conflicts are noted on the form, more information will be gathered and it will be determined if the issue is material. In addition, that member will abstain from all discussions and vote on the matter. If it is material, we involve legal counsel and a detailed follow up and resolution will occur.

Form 990, Part VI, Section B, Line 15

The independent board determines the compensation for the president/ceo. The new president/ceo started in november 2014. His compensation was determined with the help of an outside consultant who used data from other organizations' 990s. All other employees salaries are determined by the president/ceo. The most recent staff compensation study was completed in 2018. The board reviewed findings and took them into consideration when determining compensation levels. In addition, periodically, the staff reviews forms 990 of organizations with similar missions to help determine compensation. All discussions are documented in the meeting minutes.

Form 990, Part VI, Section C, Line 19

The organization's financial statements are posted on its website. The organization's governing documents and conflict of interest policy may be made available upon request on a case by case basis.

Filing and Contact Details

Filer

Filer Name
Patient Access Network Foundation
EIN
20-1184743
Phone
2023479272
Address
805 15TH STREET NW NO 500, WASHINGTON, DC 20005

Signing Officer

Name
Kevin Hagan
Title
President & CEO
Phone
2023479272
Signed
2021-10-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kevin Hagan
Formed
2004
Legal Domicile
Dc
Voting Board Members
13
Independent Board Members
13
Employees
31
Volunteers
0

Preparer

Firm
Cherry Bekaert Llp
Address
1111 METROPOLITAN AVE STE 900, CHARLOTTE, NC 28204
Preparer
Amanda Adams
Phone
7043771678
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The foundation is a non-profit, tax-exempt organization under section 501(c)(3) of the internal revenue code. Management believes that the foundation continues to satisfy the requirements of a tax exempt organization and is not subject to tax. Accordingly, no provision for income taxes has been reflected in the accompanying financial statements. Management has evaluated the effect of fasb guidance on accounting for uncertainty in income taxes. The guidance clarifies the accounting for uncertainty in income taxes recognized in an entity's financial statements by prescribing a recognition threshold and measurement attribute for the financial statement recognition and measurement of a tax position taken or expected to be taken in a tax return. The foundation's policy is to record a liability for any tax position taken that is beneficial to the foundation, including any related interest and penalties, when it is more likely than not the position taken by management with respect to a transaction or class of transactions will be overturned by a taxing authority upon examination.

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IRS990/ActivityOrMissionDesc0TO HELP UNDERINSURED PEOPLE WITH LIFE-THREATENING, CHRONIC AND RARE DISEASES GET THE MEDICATIONS AND TREATMENT THEY NEED BY PAYING FOR THEIR OUT-OF-POCKET COSTS AND ADVOCATING FOR IMPROVED ACCESS AND AFFORDABILITY.
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IRS990/Desc0AT THE PAN FOUNDATION, WE ENVISION A NATION IN WHICH EVERYONE CAN GET ACCESS TO THE TREATMENT THEY NEED. WITH THE SUPPORT OF OUR GENEROUS DONORS AND IN COLLABORATION WITH HEALTHCARE PROVIDERS AND PHARMACIES THROUGHOUT THE U.S., PAN IS ABLE TO COVER PREMIUMS, DEDUCTIBLES, CO-PAYMENTS AND COINSURANCE FOR THOUSANDS OF UNDERINSURED PATIENTS. AS A RESULT, THESE PATIENTS ARE ABLE TO OBTAIN THE TREATMENTS THEY NEED TO BEST MANAGE THEIR CONDITIONS AND IMPROVE THEIR QUALITY OF LIFE. IN 2020, THE PAN FOUNDATION ASSISTED 170,814 PATIENTS, AND PAID OVER 1,011,000 CLAIMS FOR PATIENTS' OUT-OF-POCKET COSTS FOR THEIR CRITICAL MEDICATIONS. THE PAN FOUNDATION OPERATES UNDER AN ADVISORY OPINION ISSUED BY THE U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, OFFICE OF THE INSPECTOR GENERAL (OIG ADVISORY OPINION 07-18). ACCORDINGLY, PAN IS COMMITTED TO OPERATING IN A FULLY COMPLIANT AND TRANSPARENT MANNER THAT MEETS OR EXCEEDS ALL RELEVANT STATUTES AND GUIDANCE FOR CHARITABLE PATIENT ASSISTANCE FOUNDATIONS.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2140.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1319117
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1434248
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1543475
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1613147
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1722270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1813438
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt197458
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2015101
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2144212
IRS990/Form990PartVIISectionAGrp/PersonNm0MARTIN BIEBER
IRS990/Form990PartVIISectionAGrp/PersonNm1SUSAN RUCKER
IRS990/Form990PartVIISectionAGrp/PersonNm2MIRIAM ATKINS
IRS990/Form990PartVIISectionAGrp/PersonNm3DEANNA BANKS
IRS990/Form990PartVIISectionAGrp/PersonNm4WENDY BULLINGTON
IRS990/Form990PartVIISectionAGrp/PersonNm5JONAS DE SOUZA
IRS990/Form990PartVIISectionAGrp/PersonNm6JAMES DUNLOP
IRS990/Form990PartVIISectionAGrp/PersonNm7MARY FINDLEY
IRS990/Form990PartVIISectionAGrp/PersonNm8CHRISTOPHER GRAHAM
IRS990/Form990PartVIISectionAGrp/PersonNm9JEFFREY KING
IRS990/Form990PartVIISectionAGrp/PersonNm10NANCY MCGEE
IRS990/Form990PartVIISectionAGrp/PersonNm11GARY THOMAS
IRS990/Form990PartVIISectionAGrp/PersonNm12KENNETH WELLS
IRS990/Form990PartVIISectionAGrp/PersonNm13DANIEL KLEIN
IRS990/Form990PartVIISectionAGrp/PersonNm14AMY NILES
IRS990/Form990PartVIISectionAGrp/PersonNm15SCOTT SCHLENOFF
IRS990/Form990PartVIISectionAGrp/PersonNm16NECHUMAH GETZ
IRS990/Form990PartVIISectionAGrp/PersonNm17LEENA PATEL
IRS990/Form990PartVIISectionAGrp/PersonNm18AYESHA AZAM
IRS990/Form990PartVIISectionAGrp/PersonNm19STUART CHERANDE FRIEDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm20DEEPAK SHRESTHA
IRS990/Form990PartVIISectionAGrp/PersonNm21JOEL STRAUS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt014000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt310000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt410000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt510000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt610000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt710000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt810000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt910000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1010000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1110000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1210000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13417182
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14227989
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15224451
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16227720
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17192500
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18182950
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19166230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20145121
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21146426
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt15CFO & TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt16COO
IRS990/Form990PartVIISectionAGrp/TitleTxt17VICE PRESIDENT OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt18VICE PRESIDENT OF MEDICAL AFFAIRS
IRS990/Form990PartVIISectionAGrp/TitleTxt19SENIOR DIRECTOR OF SPECIAL PROJECTS
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF INFORMATION TECHNOLOGY
IRS990/Form990PartVIISectionAGrp/TitleTxt21CONTROLLER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02004
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt01751667
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantAmt0454243207
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0454243207
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0454243207
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt017962686
IRS990/GrossReceiptsAmt0466908530
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt013
IRS990/IndivRcvdGreaterThan100KCnt012
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt010959
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0593456
IRS990/InformationTechnologyGrp/ProgramServicesAmt0124658
IRS990/InformationTechnologyGrp/TotalAmt0729073
IRS990/InsuranceGrp/ManagementAndGeneralAmt0251299
IRS990/InsuranceGrp/TotalAmt0251299
IRS990/InvestmentIncomeGrp/ExclusionAmt09824200
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt09824200
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0321753045
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0425171811
IRS990/IRPDocumentCnt044
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt04003238
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03198141
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01997574
IRS990/LandBldgEquipCostOrOtherBssAmt06000812
IRS990/LegalDomicileStateCd0DC
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt016211019
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO HELP UNDERINSURED PEOPLE WITH LIFE-THREATENING, CHRONIC AND RARE DISEASES GET THE MEDICATIONS AND TREATMENT THEY NEED BY PAYING FOR THEIR OUT-OF-POCKET COSTS AND ADVOCATING FOR IMPROVED ACCESS AND AFFORDABILITY.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0462673779
IRS990/NetAssetsOrFundBalancesEOYAmt0436659810
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt01751667
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt01751667
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0382979
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt033016047
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt041456591
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt07761
IRS990/OccupancyGrp/ManagementAndGeneralAmt028459
IRS990/OccupancyGrp/ProgramServicesAmt0359615
IRS990/OccupancyGrp/TotalAmt0395835
IRS990/OfficeExpensesGrp/FundraisingAmt046221
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0116196
IRS990/OfficeExpensesGrp/ProgramServicesAmt08055
IRS990/OfficeExpensesGrp/TotalAmt0170472
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt031354
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0126086
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0107114
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0264554
IRS990/OtherExpensesGrp/Desc0ALLIANCE EXPENSES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt06210
IRS990/OtherExpensesGrp/ProgramServicesAmt0363630
IRS990/OtherExpensesGrp/TotalAmt0369840
IRS990/OtherLiabilitiesGrp/BOYAmt0137364470
IRS990/OtherLiabilitiesGrp/EOYAmt0169370182
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0283791
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt01276400
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0774242
IRS990/OtherSalariesAndWagesGrp/TotalAmt02334433
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt027734
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0133460
IRS990/PayrollTaxesGrp/ProgramServicesAmt079186
IRS990/PayrollTaxesGrp/TotalAmt0240380
IRS990/PensionPlanContributionsGrp/FundraisingAmt011111
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt031709
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt053484
IRS990/PensionPlanContributionsGrp/TotalAmt096304
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt032083000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt051791285
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0239366
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0701822
IRS990/PrincipalOfficerNm0KEVIN HAGAN
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0434035433
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0393325435
IRS990/PYInvestmentIncomeAmt016885109
IRS990/PYOtherExpensesAmt015262138

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$471$62.2$409$203$164$38.8
2023Summary only. Only limited summary data is available for this year.$469$107$361$374$288$86.3
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$405$138$267$284$331$46.6
2021Summary only. Only limited summary data is available for this year.$508$177$331$310$407$96.5
2020Detailed filing. Detailed filing data is available for this year.$621$184$437$451$477$26.4
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$612$149$463$451$413$37.9
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$557$133$424$541$365$176
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$391$138$253$532$361$171
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$377$294$82.9$578$822$244
2015Detailed filing. Detailed filing data is available for this year.$556$233$323$819$968$149
2014Detailed filing. Detailed filing data is available for this year.$587$93.5$493$673$511$162
2013Detailed filing. Detailed filing data is available for this year.$387$63.6$323$321$188$133
2012Summary only. Only limited summary data is available for this year.$232$47.2$185$186$120$65.9
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$132$3.00$129$35.3