Civic Intelligence

Cure Duchenne

990 • Fiscal year 2022 • EIN 20-0299958

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 14, 2023

Organization ProfileWWW.CUREDUCHENNE.ORG

View Organization Page

100 Bayview Circle 5600Newport Beach, CA 92660

(949) 872-2552

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

12th percentile

0.01x

Higher debt load relative to assets than 12% of similar nonprofits.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2022

Liabilities / Revenue

14th percentile

0.05x

Higher debt load relative to revenue than 14% of similar nonprofits.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2022

Net Margin

5th percentile

-57%

Higher net margin than 5% of similar nonprofits.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2022

Top Officer Pay

39th percentile

$211,308

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 3.7% of source-year revenue.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2022

Asset Growth

11th percentile

-14%

Faster asset growth than 11% of similar nonprofits.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2021 to 2022

Revenue Growth

53rd percentile

5.7%

Faster revenue growth than 53% of similar nonprofits.

2022 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets12th percentile

Assets

Down

$28,410,543

Down $4,744,369 (-14%) from 2021

Net Assets

Down

$28,099,885

Down $4,745,369 (-14%) from 2021

Liabilities

Up

$310,658

Up $1,000 (+0.3%) from 2021

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin5th percentile

Revenue

Up

$5,751,368

Up $309,149 (+5.7%) from 2021

Expenses

Up

$9,005,616

Up $1,400,230 (+18%) from 2021

Net Income

Down

-$3,254,248

Down $1,091,081 (-50%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $2,393,224Liabilities 2010: $44,019Net Assets 2010: $2,349,2052010Assets 2011: $2,419,665Liabilities 2011: $109,931Net Assets 2011: $2,309,7342011Assets 2012: $2,121,132Liabilities 2012: $30,078Net Assets 2012: $2,091,0542012Assets 2013: $2,803,555Liabilities 2013: $40,898Net Assets 2013: $2,762,6572013Assets 2014: $7,112,452Liabilities 2014: $69,394Net Assets 2014: $7,043,0582014Assets 2015: $6,440,098Liabilities 2015: $165,805Net Assets 2015: $6,274,2932015Assets 2016: $5,890,732Liabilities 2016: $1,031,882Net Assets 2016: $4,858,8502016Assets 2017: $6,196,389Liabilities 2017: $22,157Net Assets 2017: $6,174,2322017Assets 2018: $6,797,553Liabilities 2018: $81,849Net Assets 2018: $6,715,7042018Assets 2019: $29,774,719Liabilities 2019: $558,721Net Assets 2019: $29,215,9982019Assets 2020: $40,900,297Liabilities 2020: $442,149Net Assets 2020: $40,458,1482020Assets 2021: $33,154,912Liabilities 2021: $309,658Net Assets 2021: $32,845,2542021Assets 2022: $28,410,543Liabilities 2022: $310,658Net Assets 2022: $28,099,8852022Assets 2023: $27,086,351Liabilities 2023: $256,435Net Assets 2023: $26,829,9162023Assets 2024: $30,906,923Liabilities 2024: $247,864Net Assets 2024: $30,659,0592024

Highlighted filing

2022

Assets$28,410,543
Liabilities$310,658
Net Assets$28,099,885
Open 2022 Filing

Operations Trend

Revenue Growth53rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MRevenue 2010: $1,306,461Expenses 2010: $952,618Net Income 2010: $353,8432010Revenue 2011: $1,524,567Expenses 2011: $1,564,038Net Income 2011: -$39,4712011Revenue 2012: $1,769,444Expenses 2012: $1,988,523Net Income 2012: -$219,0792012Revenue 2013: $1,875,303Expenses 2013: $1,956,413Net Income 2013: -$81,1102013Revenue 2014: $4,052,797Expenses 2014: $1,546,811Net Income 2014: $2,505,9862014Revenue 2015: $1,902,106Expenses 2015: $2,518,144Net Income 2015: -$616,0382015Revenue 2016: $2,050,636Expenses 2016: $3,255,183Net Income 2016: -$1,204,5472016Revenue 2017: $2,985,008Expenses 2017: $2,592,407Net Income 2017: $392,6012017Revenue 2018: $4,813,344Expenses 2018: $4,314,793Net Income 2018: $498,5512018Revenue 2019: $27,520,354Expenses 2019: $4,978,057Net Income 2019: $22,542,2972019Revenue 2020: $5,329,712Expenses 2020: $5,957,804Net Income 2020: -$628,0922020Revenue 2021: $5,442,219Expenses 2021: $7,605,386Net Income 2021: -$2,163,1672021Revenue 2022: $5,751,368Expenses 2022: $9,005,616Net Income 2022: -$3,254,2482022Revenue 2023: $7,357,938Expenses 2023: $10,247,154Net Income 2023: -$2,889,2162023Revenue 2024: $3,941,885Expenses 2024: $9,167,617Net Income 2024: -$5,225,7322024

Highlighted filing

2022

Revenue$5,751,368
Expenses$9,005,616
Net Income-$3,254,248
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 14, 2023
Return Version
2022v5.0
Gross Receipts
$10,530,786
Mission and Program Overview

Mission

Cure duchenne is a not-for-profit organization dedicated to coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy, and improving their care and health.

Coordinating and funding research necessary to find a cure for duchenne muscular dystrophy. As well as, improving the care and health of duchenne muscular distrophy patients.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$19,555,425$19,514,869▼ $40,556
Cash and Non-Interest-Bearing Accounts$13,432,108$8,410,921▼ $5,021,187
Land, Buildings, and Equipment, Net$0$16,220▲ $16,220
Intangible Assets$0$0→ $0
Total Assets$33,154,912$28,410,543▼ $4,744,369
Other Assets Total$167,379$468,533▲ $301,154
Liabilities
Other Liabilities$234,531$207,742▼ $26,789
Deferred Revenue$15,177$66,808▲ $51,631
Accounts Payable and Accrued Expenses$59,950$36,108▼ $23,842
Total Liabilities$309,658$310,658▲ $1,000
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$32,845,254$28,099,885▼ $4,745,369
Total Net Assets Fund Balance$32,845,254$28,099,885▼ $4,745,369
Total Liabilities and Net Assets / Fund Balance$33,154,912$28,410,543▼ $4,744,369

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$16,220$21,117$37,337
Investment Program Related Org$19,514,869--
Compensation and Service Providers
Top Officer Pay39th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kent MoraFormer Chief of StaffFT$211,308$211,308
Lianna OrlandoVice President of ResearchFT$196,917$196,917
Michael KellyChief Scientific OfficerFT$175,000$175,000
Kathlene BalisyFinance DirectorFT$170,833$170,833
Heather MedlinSenior Director of Clinical DevelopmentFT$156,821$156,821
Heather MedlinSenior Director of Clinical Developm-$156,821$156,821
Debra MillerPresident & CEOFT$151,305$151,305
Bradley HodgesFormer Partner With Cureduchenne VenturesFT$151,231$151,231
Bradley HodgesFormer Partner With Cureduchenne Ven-$151,231$151,231

Board Members and Trustees

NameTitle
Dana WhiteDirector
David MacinnisDirector
Elaine WuDirector
Jeffrey GoffmanDirector
Martin LehrDirector
Peter StrelowDirector
Ryan WilliamsDirector
Sarah McelroyDirector
Tim SullivanDirector
Tj FarnsworthDirector
Paul MillerSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
The Worthwhile CompanySoftware DevelopmentPO BOX 63478, Charlotte, NC 28263$875,400
Trinds LLCResearch6425 LIVING SPACE 2ND FLOOR, Pittsburg, PA 15206$289,580
System Holdings LLCEmployment ServicesPO BOX 644722, Pittsburg, PA 15264$139,602
Brand Amp LLCMarketing1945 PLACENTIA AVE BLG C, Costa Mesa, CA 92627$127,461
Ideal HallMarketing611 ANTON BLVD STE 140, Costa Mesa, CA 92626$115,419
Revenue and Support

Revenue Composition

Contributions and Grants
$2,429,586
Program Service Revenue
$0
Investment Income
$147,656
Other Revenue
$3,174,126
All Other Contributions
$978,714
Change in Net Assets
$-3,254,248

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,751,368
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-1,491,121
Total Revenue per Audited Statements
$4,260,247
Total Revenue per Form 990
$5,751,368
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,823,959
Salaries, Compensation, and Employee Benefits$3,851,657
Total Fundraising Expense$1,066,464
Grants and Similar Amounts Paid$330,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,373,482$326,427$474,329$2,174,238
Current Officers, Directors, Trustees, and Key Employees$1,132,599$15,211$68,312$1,216,122
Travel$249,542$109,813$49,750$409,105
Occupancy$309,392$14,555$61,087$385,034
Grants to Domestic Orgs$330,000--$330,000
All Other Expenses$109,302$105,376$49,678$264,356
Payroll Taxes$189,637$20,226$48,400$258,263
Fees for Services Other$160,200$17,478$64,981$242,659
Information Technology$89,322$117,985$22,268$229,575
Other Employee Benefits$163,035$20$39,979$203,034
Office Expenses$13,514$165,278$1,906$180,698
Other Expenses$47,810$53,402$32,933$134,145
Insurance$32,866$12,576$14,486$59,928
Fees for Services Accounting$13,470$29,001$3,230$45,701
Fees for Services Legal$5,083$11,927$2,787$19,797
Depreciation Depletion-$4,054-$4,054
Total Functional Expenses$6,736,726$1,202,426$1,066,464$9,005,616

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$9,005,616
Total Expenses per Audited Statements$9,005,616
Total Expenses per Form 990$9,005,616
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
THE BRIGHAM AND WOMEN'S HOSPITAL INCBoston, MA-Education/ Outreach/ Research$230,000
Foundation of National Institute of HealthBethseda, MD-Education/ Outreach/ Research$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$5,669,912
Fundraising Direct Expenses$2,462,858
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraiser-newport Beach Gala$1,394,710$1,354,710$399,631$955,079
Fundraiser-miami Gala$568,530$555,430$135,188$420,242
Total Events$7,120,784$5,669,912$2,462,858$3,207,054
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liabilities$200,154
Pension Payable$7,588
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Debra and paul miller have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“Form 990 will be available to all the board members to review prior to filing at the regularly scheduled board meetings. However, a limited number of board members will review the entire form 990 prior to filing.”

Form 990, Part VI, Section B, Line 12C

“The board of directors are required to review and sign the conflict of interest policy at least annually. The board member must inform the rest of the board if a conflict arises or if it exists.”

Form 990, Part VI, Section B, Line 15

“Compensation of top management and officers of the organization are reviewed by independent legal counsel and submitted to the board members for approval.”

Form 990, Part VI, Section C, Line 19

“The organziation's audited financial statements and form 990 are available to the public via the guidestar usa inc website.”

Filing and Contact Details

Filer

Filer Name
Cure Duchenne
EIN
20-0299958
Phone
9498722552
Address
100 BAYVIEW CIRCLE 5600, NEWPORT BEACH, CA 92660

Signing Officer

Name
Debra Miller
Title
CEO
Phone
9498722552
Signed
2023-11-14

Organization Details

Principal Officer
Debra Miller
Formed
2003
Legal Domicile
CA
Voting Board Members
12
Independent Board Members
10
Employees
37
Volunteers
18

Preparer

Firm
John S Balisy & Company
Address
24000 ALICIA PARKWAY 17 STE 466, MISSION VIEJO, CA 92691
Preparer
John S Balisy Company
Phone
9495407519
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“2021 employee retention credit received in 2022 158,924. Wash sale loss disallowed -68.”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“2021 employee retention credit received in 2022 158,924. Wash sales loss disallowed -68.”

Raw XML AppendixShowing 400 of 813 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/PersonNm0PAUL MILLER
IRS990/Form990PartVIISectionAGrp/PersonNm1DEBRA MILLER
IRS990/Form990PartVIISectionAGrp/PersonNm2JEFFREY GOFFMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3PETER STRELOW
IRS990/Form990PartVIISectionAGrp/PersonNm4DAVID MACINNIS
IRS990/Form990PartVIISectionAGrp/PersonNm5DANA WHITE
IRS990/Form990PartVIISectionAGrp/PersonNm6RYAN WILLIAMS
IRS990/Form990PartVIISectionAGrp/PersonNm7MARTIN LEHR
IRS990/Form990PartVIISectionAGrp/PersonNm8ELAINE WU
IRS990/Form990PartVIISectionAGrp/PersonNm9TJ FARNSWORTH
IRS990/Form990PartVIISectionAGrp/PersonNm10SARAH MCELROY
IRS990/Form990PartVIISectionAGrp/PersonNm11TIM SULLIVAN
IRS990/Form990PartVIISectionAGrp/PersonNm12KATHLENE BALISY
IRS990/Form990PartVIISectionAGrp/PersonNm13BRADLEY HODGES
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHAEL KELLY
IRS990/Form990PartVIISectionAGrp/PersonNm15HEATHER MEDLIN
IRS990/Form990PartVIISectionAGrp/PersonNm16KENT MORA
IRS990/Form990PartVIISectionAGrp/PersonNm17LIANNA ORLANDO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1151305
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12170833
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13151231
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14175000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15156821
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16211308
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17196917
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12FINANCE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13FORMER PARTNER WITH CUREDUCHENNE VENTURES
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt15SENIOR DIRECTOR OF CLINICAL DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt16FORMER CHIEF OF STAFF
IRS990/Form990PartVIISectionAGrp/TitleTxt17VICE PRESIDENT OF RESEARCH
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd01
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01450872
IRS990/FundraisingDirectExpensesAmt02462858
IRS990/FundraisingGrossIncomeAmt05669912
IRS990/GainOrLossGrp/OtherAmt09096
IRS990/GainOrLossGrp/SecuritiesAmt0-224155
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantAmt0330000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0330000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0330000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt09096
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt02092405
IRS990/GrossReceiptsAmt010530786
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt010
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt022268
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0117985
IRS990/InformationTechnologyGrp/ProgramServicesAmt089322
IRS990/InformationTechnologyGrp/TotalAmt0229575
IRS990/InsuranceGrp/FundraisingAmt014486
IRS990/InsuranceGrp/ManagementAndGeneralAmt012576
IRS990/InsuranceGrp/ProgramServicesAmt032866
IRS990/InsuranceGrp/TotalAmt059928
IRS990/IntangibleAssetsGrp/BOYAmt00
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0362715
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0362715
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt019555425
IRS990/InvestmentsProgramRelatedGrp/EOYAmt019514869
IRS990/IRPDocumentCnt045
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt021117
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt016220
IRS990/LandBldgEquipCostOrOtherBssAmt037337
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt00
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt02316560
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS AND COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt032845254
IRS990/NetAssetsOrFundBalancesEOYAmt028099885
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt0-215059
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-215059
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt03207054
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt03207054
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-1649977
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt032845254
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt028099885
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt061087
IRS990/OccupancyGrp/ManagementAndGeneralAmt014555
IRS990/OccupancyGrp/ProgramServicesAmt0309392
IRS990/OccupancyGrp/TotalAmt0385034
IRS990/OfficeExpensesGrp/FundraisingAmt01906
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0165278
IRS990/OfficeExpensesGrp/ProgramServicesAmt013514
IRS990/OfficeExpensesGrp/TotalAmt0180698
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0167379
IRS990/OtherAssetsTotalGrp/EOYAmt0468533
IRS990/OtherChangesInNetAssetsAmt0158856
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt039979
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt020
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0163035
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0203034
IRS990/OtherExpensesGrp/Desc0OUTSIDE SERVICES
IRS990/OtherExpensesGrp/Desc1PROMOTIONAL EXPENSE
IRS990/OtherExpensesGrp/Desc2PUBLIC RELATIONS
IRS990/OtherExpensesGrp/Desc3DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/FundraisingAmt075550
IRS990/OtherExpensesGrp/FundraisingAmt150285
IRS990/OtherExpensesGrp/FundraisingAmt26503
IRS990/OtherExpensesGrp/FundraisingAmt332933
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0136099
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt162998
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt253402
IRS990/OtherExpensesGrp/ProgramServicesAmt02057420
IRS990/OtherExpensesGrp/ProgramServicesAmt1214051
IRS990/OtherExpensesGrp/ProgramServicesAmt2246001
IRS990/OtherExpensesGrp/ProgramServicesAmt347810
IRS990/OtherExpensesGrp/TotalAmt02269069
IRS990/OtherExpensesGrp/TotalAmt1327334
IRS990/OtherExpensesGrp/TotalAmt2252504
IRS990/OtherExpensesGrp/TotalAmt3134145
IRS990/OtherLiabilitiesGrp/BOYAmt0234531
IRS990/OtherLiabilitiesGrp/EOYAmt0207742
IRS990/OtherRevenueMiscGrp/BusinessCd0541700
IRS990/OtherRevenueMiscGrp/Desc0TRINDS LLC LOSS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0-32928
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0-32928
IRS990/OtherRevenueTotalAmt0-32928
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0474329
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0326427
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01373482
IRS990/OtherSalariesAndWagesGrp/TotalAmt02174238
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt048400
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt020226
IRS990/PayrollTaxesGrp/ProgramServicesAmt0189637
IRS990/PayrollTaxesGrp/TotalAmt0258263
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0DEBRA MILLER
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02697179
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0394830
IRS990/PYInvestmentIncomeAmt0412798
IRS990/PYOtherExpensesAmt04271299
IRS990/PYOtherRevenueAmt02332242
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-2163167
IRS990/PYSalariesCompEmpBnftPaidAmt02939257
IRS990/PYTotalExpensesAmt07605386
IRS990/PYTotalProfFndrsngExpnsAmt00

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$28,410,543
Liabilities
$310,658
Net assets
$28,099,885
Revenue
$5,751,368
Expenses
$9,005,616
Net income
-$3,254,248
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$30.9$0.25$30.7$3.94$9.17$5.23
2023Detailed filing. Detailed filing data is available for this year.$27.1$0.26$26.8$7.36$10.2$2.89
2022Detailed filing. Detailed filing data is available for this year.$28.4$0.31$28.1$5.75$9.01$3.25
2021Detailed filing. Detailed filing data is available for this year.$33.2$0.31$32.8$5.44$7.61$2.16
2020Detailed filing. Detailed filing data is available for this year.$40.9$0.44$40.5$5.33$5.96$0.63
2019Detailed filing. Detailed filing data is available for this year.$29.8$0.56$29.2$27.5$4.98$22.5
2018Detailed filing. Detailed filing data is available for this year.$6.80$0.08$6.72$4.81$4.31$0.50
2017Detailed filing. Detailed filing data is available for this year.$6.20$0.02$6.17$2.99$2.59$0.39
2016Detailed filing. Detailed filing data is available for this year.$5.89$1.03$4.86$2.05$3.26$1.20
2015Detailed filing. Detailed filing data is available for this year.$6.44$0.17$6.27$1.90$2.52$0.62
2014Detailed filing. Detailed filing data is available for this year.$7.11$0.07$7.04$4.05$1.55$2.51
2013Summary only. Only limited summary data is available for this year.$2.80$0.04$2.76$1.88$1.96$0.08
2012Summary only. Only limited summary data is available for this year.$2.12$0.03$2.09$1.77$1.99$0.22
2011Summary only. Only limited summary data is available for this year.$2.42$0.11$2.31$1.52$1.56$0.04
2010Summary only. Only limited summary data is available for this year.$2.39$0.04$2.35$1.31$0.95$0.35